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Living Life To The Fullest With Ehlers Danlos Syndrome
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Book Synopsis Living Life to the Fullest with Ehlers-Danlos Syndrome by : Pt Kevin Muldowney
Download or read book Living Life to the Fullest with Ehlers-Danlos Syndrome written by Pt Kevin Muldowney and published by . This book was released on 2015-07-17 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book was written to teach people with Ehlers-Danlos Syndrome (EDS) how to systematically progress through an exercise program to allow their muscles to support many joint subluxations commonly associated with this genetic disorder. This will allow people living wih EDS to have less pain throughout their body."--Back cover.
Book Synopsis The Mystery of Ehlers-Danlos Syndrome by : Minnie H Lewis
Download or read book The Mystery of Ehlers-Danlos Syndrome written by Minnie H Lewis and published by Independently Published. This book was released on 2023-10-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Mystery Of Ehlers-Danlos Syndrome: A Comprehensive Guide for Patients, Caregivers, and Healthcare Professionals Ehlers-Danlos syndrome (EDS) is a collection of genetic connective tissue illnesses that predominantly affect your skin, joints, and blood vessel walls. People with EDS may experience a wide range of symptoms, including joint hypermobility, skin fragility, chronic pain, and fatigue. This comprehensive guide provides everything you need to know about EDS, from understanding the causes and diagnosis to managing symptoms and improving quality of life. The book covers: The different types of EDS and their clinical manifestations The latest research on EDS and its treatment Practical strategies for managing EDS on a day-to-day basis The emotional and psychological impact of living with EDS Resources and support networks for patients, families, and healthcare professionals Whether you are newly diagnosed with EDS or looking for ways to better manage your condition, this book is an essential resource. Learn how to navigate the healthcare system, advocate for your needs, and live a fulfilling life with EDS. Who this book is for: This book is intended for people living with hEDS and vEDS, their caregivers, and healthcare professionals. It is written in a clear and concise style, making it accessible to readers of all backgrounds. Benefits of this book: If you are living with EDS, this book will provide you with the knowledge and tools you need to manage your condition effectively. You will learn about the latest research on EDS, as well as practical strategies for coping with symptoms and improving your quality of life. If you are a caregiver of someone with EDS, this book will help you to better understand the condition and how to support your loved one. You will also learn about resources and support networks that are available to help you and your family. If you are a healthcare professional, this book will provide you with a comprehensive overview of EDS, its clinical manifestations, and the latest treatment options. You will also learn about ways to improve the lives of your patients with EDS. Grab your copy today and start living your best life with EDS!
Book Synopsis Our Stories of Strength by : Kendra Neilsen Myles
Download or read book Our Stories of Strength written by Kendra Neilsen Myles and published by . This book was released on 2016-10-20 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."
Download or read book Zebras of Hope written by Ellen Kelleher and published by CreateSpace. This book was released on 2014-05-04 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book was written for those diagnosed with Ehlers-Danlos Syndrome. It can be difficult to navigate the complexities of this condition, and I hope this book will help to prepare you to take on the challenge of living life after the diagnosis. We are born with EDS, yet finally receiving a diagnosis is devastating to many of us. This book includes some personal stories, so that you will be able to see how others have dealt with the diagnosis and learned to live their lives as they have faced the challenge of EDS and overcame the obstacle of self-pity, to move forward into a new life. Faith is the backbone of this book and I hope that through faith you will also learn to cope with EDS.
Book Synopsis Our Stories of Strength by : Kendra Neilsen Myles
Download or read book Our Stories of Strength written by Kendra Neilsen Myles and published by . This book was released on 2015-05 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos Syndromes. "These are stories of hope and resilience, of strength under adversity, of self-reliance and new-found sources of support. They offer one core message to all who suffer from the diverse and difficult manifestations of EDS: You are not alone." - Dr. Clair Francomano, MD "Ehlers-Danlos Syndrome is another form of the human body. Just as there are tall people, short people, dark skin colored people, and light skin colored people, each with their own set of medical issues - similarly there are hypermobile people and not so hypermobile people who have different medical issues. Our understanding of EDS has improved, but we still have a lot of work to do. While the medical world works on understanding Ehlers-Danlos Syndrome, people with EDS have provided us with stories of courage and ingenuity. These stories give others and doctors the strength to find solutions." - PRADEEP CHOPRA, MD "As a physical therapist who works with many patients suffering from EDS, I've seen firsthand how isolating and frustrating EDS can be. Along with a more knowledgeable medical field, what these patients need most is an understanding that they are not alone and to be given hope. 'Our Stories of Strength' provides both community and hope and will be just as effective as any medication or exercise." - CHRISTOPHER GNIP, PT, DPT EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles and Mysti Reutlinger founded Our SOS Media, LLC with core values of giving back to non-profit organizations, creating jobs for people living with invisible and chronic illnesses, and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Our SOS Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are stronger together."
Book Synopsis Ehler Danlos Syndrome Guide by : Justin Allen
Download or read book Ehler Danlos Syndrome Guide written by Justin Allen and published by Independently Published. This book was released on 2024-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos Syndrome Guide is your comprehensive companion to navigating life with EDS. This empowering guide provides in-depth insights into understanding the condition, managing physical health, prioritizing mental well-being, and fostering a fulfilling lifestyle. From personalized care plans to building a supportive network and pursuing passion, this book offers practical strategies for individuals, caregivers, and healthcare professionals. Written with compassion and expertise, the guide aims to empower those affected by Ehlers-Danlos Syndrome to thrive and find joy in their unique journey. Discover resilience, embrace knowledge, and live life to the fullest with this essential guide.
Book Synopsis A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) by : Isobel Knight
Download or read book A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Book Synopsis A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) by : Isobel Knight
Download or read book A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type) written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.
Book Synopsis EDS Survival Guide by : Sonya Zappone
Download or read book EDS Survival Guide written by Sonya Zappone and published by . This book was released on 2021-11-04 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do you have Ehlers-Danlos Syndrome (EDS)? Do you need an emotional survival guide? Feeling stuck with a debilitating condition that no one truly understands? Are you tired of merely surviving... and want to start thriving? It's one thing to survive and quite another to thrive. Perhaps you struggle daily to stay alive, while the thought of thriving seems like an impossible goal. There can be very little help available for this connective tissue disorder. Many people don't even know the name of this rare genetic condition. And even those closest to sufferers don't fully realize what it means for them. The lack of information and support available (even from medical professionals) can leave you feeling frustrated, alone, and discouraged. This EDS Survival Guide will walk you through 5 KEYS towards acceptance, peace, and taking the right action. If you have pain and problems from living with EDS, this book can offer you a place to reflect and be validated and supported. When you find yourself feeling like no one understands the amount of pain and problems you are experiencing, open this book to explore the 5 Keys of Thriving with EDS. Begin to improve your life with her suggested 7 Day Self-Love Solutions Checklists. Experience how even small changes in habits add up to better health--taking breaths and taking it. . . one day at a time. Learn to change your thinking from going through this to growing through it. Let the principles guide you to live with it and through it--as gracefully as possible. The key is to create new a definition of success. Please visit: SonyaZappone.com for more books, coaching, and free EDS resources!
Book Synopsis Symptomatic by : Clair A. Francomano
Download or read book Symptomatic written by Clair A. Francomano and published by Elsevier. This book was released on 2023-12-15 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: Symptomatic: The Symptom-Based Handbook for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders offers a novel approach structured around the panoply of 75 symptoms with which a person with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) may present to a clinician. The content is arranged intuitively from head to feet, with each chapter integrating clinical case studies with a concise discussion and two important diagnostic tools: a simplified algorithm for diagnosing and treating each symptom and differential diagnoses and alternative explanations for their symptoms. This is a handbook that combines the expertise of some 70 leading clinicians, representing more than 30 specialties. This book is suited for clinicians who need a concise and straight-forward presentation of the various and complex symptoms they confront in their clinical practice. It brings forth a field of knowledge emerging from interdisciplinary collaboration despite the pressures of specialization that bridges gaps in understanding between the several dozen disciplines implicated in EDS and HSD. • A comprehensive compendium of the symptoms of EDS and HSD to aid clinicians and patients • Symptom-based chapters for ease of making a diagnosis • A case report, differential diagnosis, discussion, and diagnostic and treatment algorithm for each symptom
Book Synopsis The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome by : Amber Walker
Download or read book The Trifecta Passport: Tools for Mast Cell Activation Syndrome, Postural Orthostatic Tachycardia Syndrome and Ehlers-Danlos Syndrome written by Amber Walker and published by Amber Walker. This book was released on 2021-01-27 with total page 503 pages. Available in PDF, EPUB and Kindle. Book excerpt: The “trifecta” refers to three conditions that commonly occur together: mast cell activation syndrome (MCAS), postural orthostatic tachycardia syndrome (POTS) and the hypermobile type of Ehlers-Danlos syndrome (hEDS). These three conditions are gradually becoming more recognized in the mainstream medical world as more and more patients find themselves struggling with debilitating and often mysterious symptoms. However, recognizing these conditions is only the first step on the healing journey. With the right approach and toolbox, patients can reverse many of these symptoms to find lasting vitality. Written by a Doctor of Physical Therapy who has additional certifications in functional medicine and nutrition and extensive experience in working with these conditions, this book serves as patient guide that empowers individuals to put all of the puzzle pieces together as part of an individualized healing plan. Part One (3 chapters) is an overview of the three trifecta conditions, and Part Two (9 chapters) outlines the important pillars of an essential plan to address any (or all) of these conditions holistically. The book wraps up with a chapter of patient case stories. Accompanying the purchase of this book is access to a free 20-page PDF document that serves as a customizable workbook for readers to use as they read along. The Trifecta Passport dives into topics such as nervous system regulation, mold and other biotoxins, nutrition, exercise, detoxification, mental/emotional health and trauma, structural/musculoskeletal issues and the many underlying root issues (related to hormones, bacterial/viral load, gut health, etc.) that can trigger or exacerbate these conditions. This resource unpacks many different tools and practical treatment options that should be on the radar of patients living with these (and other) chronic conditions. When faced with these labels, it can be overwhelming to weed through all the resources out there to figure out how to move forward with a comprehensive and personalized road map. By helping readers put it all together in an organized manner, this book is a great resource for any patient with chronic illness as well as the caregivers and doctors who support them.
Book Synopsis Holding It All Together When You're Hypermobile by : Christie Cox
Download or read book Holding It All Together When You're Hypermobile written by Christie Cox and published by Journey2joy LLC. This book was released on 2022-07-28 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: How to Deal - and Heal - for those with Rare Chronic Illness like EDS Tired of being told there's no name or treatment for your illness? That it's all in your head or that your pain can't be real because you're too young/old/pretty/bright/healthy/normal to have a chronic disorder? What if instead there was someone who knew what you were going through and could teach you strategies for coping with rare chronic illness? This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS) - from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone. In Holding It All Together When You're Hypermobile, Christie Cox explores not only the physical effects of hEDS but its emotional impact as well. As a fellow patient and medical rarity, known to doctors as zebras, she's experienced her body's betrayal and suffered through the myriad complications stemming from this disease. But she's also found a way out from the depths of this life-altering disorder with wisdom you can turn into hope. As a self-advocacy guide, she offers practical, no-nonsense advice about living with chronic illness and the concrete steps you can take to achieve a new normal. In her book, you'll discover... A healing prescription for the miracle of the modern mindset A look at the latest scientific research on the edge of answers Q&A interviews with expert doctors and advocacy groups Guidance for how to help loved ones better understand hEDS Christie's own inspiring story of how she came to live her best life Lessons, questions and quotes to inspire your search for answers Holding It All Together When You're Hypermobile gives you the tools and resources you need to get back to living the life you want. Reading it will not only boost your confidence but empower you to change your life for the better. To learn more about Christie's book, visit www.holdingitalltogether.com If you want to learn more about Christie's advocacy work, visit www.journey2joyous.com
Book Synopsis Living Life to the Fullest by : Kirsty Liddiard
Download or read book Living Life to the Fullest written by Kirsty Liddiard and published by Emerald Group Publishing. This book was released on 2022-05-09 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living Life to the Fullest forges new understandings of the lives, hopes, and desires of children and young people with ‘life-limiting’ or ‘life-threatening’ impairments. Aimed at undergraduate students, this book contributes to contemporary political and theoretical debates about the human in an age of global precarity and austerity.
Book Synopsis Living with Ehlers-Danlos Syndrome by : Britta Berglund
Download or read book Living with Ehlers-Danlos Syndrome written by Britta Berglund and published by . This book was released on 2003 with total page 69 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Selected Papers from CUBANNI 2017—“The Fourth International Workshop of Neuroimmunology” by : Maria De los Angeles Robinson Agramonte
Download or read book Selected Papers from CUBANNI 2017—“The Fourth International Workshop of Neuroimmunology” written by Maria De los Angeles Robinson Agramonte and published by MDPI. This book was released on 2019-02-04 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Selected Papers from CUBANNI 2017—“The Fourth International Workshop of Neuroimmunology” " that was published in Behavioral Sciences
Book Synopsis Journey to Health by : Mysti Reutlinger
Download or read book Journey to Health written by Mysti Reutlinger and published by CreateSpace. This book was released on 2014-05-10 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt: For years, unanswered questions about Mysti's health left her feeling isolated. Her closest family and friends didn't grasp how agonizingly painful each day had become. In 2013, a door was unlocked when Mysti was diagnosed with Ehlers Danlos Syndrome, a connective tissue disorder. Hopeful for treatments that would reduce her pain, Mysti was crushed as each medication left her further and further away from living the life of her dreams. Bedridden for all but a few hours each day, Mysti contemplated how life would be better without her alive. In a leap of faith, Mysti not only found the will to live, she did it all without being held captive my medications and doctor appointments. Journey to Health is a real look at what battling disabling diseases does to a person and provides details into Mysti's personal plan that now has her living life in ways once deemed impossible. Journey to Health: A Holistic Approach to Ehlers Danlos Syndrome is a must-read for anyone battling any chronic disease. Mysti Reutlinger expresses her mental and emotional battle alongside the physical struggles, leading the way to open the conversation about how chronic diseases are mismanaged and where family, friends, and co-workers can step in and help. To learn more about Ehlers Danlos Syndrome, visit ednf.org, ehlersdanlosnetwork.org, or rarediseases.org.
Book Synopsis Graceful Strength by : Zoë Jorna-Jackson
Download or read book Graceful Strength written by Zoë Jorna-Jackson and published by . This book was released on 2024-05 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Graceful Strength: Living Resiliently with Ehlers-Danlos Syndrome" is a powerful and insightful book designed to guide individuals through the complexities of living with Ehlers-Danlos Syndrome (EDS), a group of hereditary disorders affecting connective tissues. The book serves as a beacon of understanding, strength, and resilience, offering a path to navigate EDS's often challenging and misunderstood journey.Written collaboratively by those who know EDS intimately-patients themselves and specialists in the field-this book bridges the gap between personal experience and professional guidance. "Graceful Strength" dives deep into the multifaceted aspects of EDS, providing a detailed look at its symptoms, management strategies, and underlying genetics. It acknowledges the physical challenges and the emotional and psychological battles individuals face daily.Readers will find comprehensive sections on self-advocacy and healthcare communication, critical components for anyone navigating chronic illness. The book emphasizes the importance of building a collaborative relationship with healthcare providers and equips readers with the tools to articulate their healthcare needs and preferences effectively. It also offers practical advice for dealing with common issues such as medical gaslighting, appointment preparation, and understanding insurance processes.Its patient-centered approach sets "Graceful Strength" apart, ensuring the content is relatable, empathetic, and empowering. The narrative weaves together personal anecdotes with expert advice, creating a rich tapestry of support and wisdom. Each page aims to empower readers to find their voice, advocate for their care, and build a life filled with dignity and grace despite the challenges of EDS.Beyond just a guide, "Graceful Strength" is a companion for those affected by EDS, providing comfort and community. It acknowledges the strength it takes to live with a chronic condition and celebrates the resilience of the human spirit. For anyone touched by EDS-whether newly diagnosed, a long-term warrior, a family member, or a healthcare professional-this book offers a valuable perspective, practical strategies, and a profound understanding of living resiliently with Ehlers-Danlos Syndrome.
