Ethical Conduct of Clinical Research Involving Children

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Author :
Publisher : National Academies Press
ISBN 13 : 0309133386
Total Pages : 445 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Ethical Conduct of Clinical Research Involving Children by : Institute of Medicine

Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.

Pediatric Palliative Care

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Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty Ferrell

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Zero to Eighteen Years

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Publisher :
ISBN 13 : 9780901458292
Total Pages : 48 pages
Book Rating : 4.4/5 (582 download)

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Book Synopsis Zero to Eighteen Years by : General Medical Council (Gran Bretanya)

Download or read book Zero to Eighteen Years written by General Medical Council (Gran Bretanya) and published by . This book was released on 2007 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Ethics, Conflict and Medical Treatment for Children E-Book

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Author :
Publisher : Elsevier Health Sciences
ISBN 13 : 0702077828
Total Pages : 190 pages
Book Rating : 4.7/5 (2 download)

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Book Synopsis Ethics, Conflict and Medical Treatment for Children E-Book by : Dominic Wilkinson

Download or read book Ethics, Conflict and Medical Treatment for Children E-Book written by Dominic Wilkinson and published by Elsevier Health Sciences. This book was released on 2018-08-05 with total page 190 pages. Available in PDF, EPUB and Kindle. Book excerpt: What should happen when doctors and parents disagree about what would be best for a child? When should courts become involved? Should life support be stopped against parents' wishes? The case of Charlie Gard, reached global attention in 2017. It led to widespread debate about the ethics of disagreements between doctors and parents, about the place of the law in such disputes, and about the variation in approach between different parts of the world. In this book, medical ethicists Dominic Wilkinson and Julian Savulescu critically examine the ethical questions at the heart of disputes about medical treatment for children. They use the Gard case as a springboard to a wider discussion about the rights of parents, the harms of treatment, and the vital issue of limited resources. They discuss other prominent UK and international cases of disagreement and conflict. From opposite sides of the debate Wilkinson and Savulescu provocatively outline the strongest arguments in favour of and against treatment. They analyse some of the distinctive and challenging features of treatment disputes in the 21st century and argue that disagreement about controversial ethical questions is both inevitable and desirable. They outline a series of lessons from the Gard case and propose a radical new 'dissensus' framework for future cases of disagreement. - This new book critically examines the core ethical questions at the heart of disputes about medical treatment for children. - The contents review prominent cases of disagreement from the UK and internationally and analyse some of the distinctive and challenging features around treatment disputes in the 21st century. - The book proposes a radical new framework for future cases of disagreement around the care of gravely ill people.

When Children Die

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Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Children’s Competence to Consent

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Publisher : Springer Science & Business Media
ISBN 13 : 1468442899
Total Pages : 364 pages
Book Rating : 4.4/5 (684 download)

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Book Synopsis Children’s Competence to Consent by : Gary B. Melton

Download or read book Children’s Competence to Consent written by Gary B. Melton and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Nursing Care of the Critically Ill Child

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Publisher : Elsevier Health Sciences
ISBN 13 : 0323020402
Total Pages : 1174 pages
Book Rating : 4.3/5 (23 download)

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Book Synopsis Nursing Care of the Critically Ill Child by : Mary Fran Hazinski

Download or read book Nursing Care of the Critically Ill Child written by Mary Fran Hazinski and published by Elsevier Health Sciences. This book was released on 2012-05-08 with total page 1174 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now completely up to date to meet the needs of today's pediatric nurses, Mary Fran Hazinski's Nursing Care of the Critically Ill Child, 3rd Edition, remains the foundational text of pediatric critical care nursing. Known for its outstanding organization and clear descriptions, this comprehensive reference details the unique care required for critically ill children with thorough discussions of physiology, pathophysiology, pharmacology, collaborative management, and nursing management. Ten new chapters, new advanced practice content, and new nurse contributors and reviewers ensure that this classic text continues to be the essential resource for the care of critically ill children. Details differences in caring for critically ill children as compared with caring for adults: how to modify assessment procedures, consider aspects of psychosocial development, and examine developmental aspects of various body systems. Provides comprehensive coverage of physiology, pathophysiology, pharmacology, and nursing management related to care of the critically ill child. Includes detailed Nursing Care Plans for select disorders. Contains helpful appendices such as pediatric drug dosages, central venous catheter care, and pediatric fluid requirements. Features Evolve online resources with additional content for further study of related topics, including tables for ease of recollection of material and additional references. Contains 10 all-new chapters, including Pharmacokinetics and Pharmacodynamics; Shock, Cardiac Arrest, and Resuscitation; Mechanical Support of Cardiopulmonary Function; Fluid, Electrolyte, and Endocrine Problems; Immunology and Infectious Disorders; Transplantation and Organ Donation; Toxicology/Poisonings; Fundamentals of Quality Improvement and Patient Safety; Clinical Informatics; and Ethical Issues in Pediatric Critical Care Features nurse contributors and reviewers for every chapter, making this edition a truly collaborative text. Provides information vital to the advanced practice nurse, such as assessment tools and severity of illness management. Includes numerous Pearls that highlight practical wisdom from experts in pediatric critical care nursing.

Informed Consent

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Publisher :
ISBN 13 :
Total Pages : 28 pages
Book Rating : 4.:/5 (319 download)

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Book Synopsis Informed Consent by : Charlotte Kenton

Download or read book Informed Consent written by Charlotte Kenton and published by . This book was released on 1982 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Guidelines for Nursing Excellence in the Care of Children, Youth, and Families

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Author :
Publisher : Springer Publishing Company
ISBN 13 : 0826169627
Total Pages : 396 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Guidelines for Nursing Excellence in the Care of Children, Youth, and Families by : Cecily Betz, PhD, RN, FAAN

Download or read book Guidelines for Nursing Excellence in the Care of Children, Youth, and Families written by Cecily Betz, PhD, RN, FAAN and published by Springer Publishing Company. This book was released on 2017-10-28 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: First Edition Designated a Doody's Core Title and Winner of an AJN Book of the Year Award! This distinguished title, written by nationally recognized nursing experts in health care and pediatrics, delivers the most current evidence-based practice standards and their application. These guidelines, developed through systematic consensus-building led by the AAN’s Child, Adolescent, and Family Expert Panel, incorporates the wisdom of 17 professional nursing and healthcare organizations regarding the core elements of pediatric nursing excellence. This second edition contains substantial updates to all guidelines based on the most current research evidence and demonstrates examples of how to best apply the guidelines to nursing practice. Disseminating the gold standard of care for infants, children, adolescents, and families, this text addresses access to health care, genetic assessment and counseling, culturally responsive care, care for children and youth with disabilities, and others. Every chapter breaks down a guideline into its definition, history, and implications for clinical, education, policy, and research in nursing practice. A case study based around the analyzed guideline illustrates how the guideline should be employed in nursing practice culminates every chapter. Replete with supplemental online files full of resources to apply these guidelines to nursing practice, Guidelines for Nursing Excellence in the Care of Children, Youth, and Families represents an invaluable resource for pediatric nurses, nursing students, nursing educators, nursing administrators, pediatric and family nurse practitioners, advanced practice nurses, nursing clinicians in public health, school nurses, and nurse researchers. New to the Second Edition: Significant updates to all 17 guidelines based on latest research evidence Contributions by five new nursing and health care organizations A new chapter organizational framework incorporating useful pedagogical elements Examples of applications to education, research, policy, and clinical practice A new faculty toolkit Key Features: Provides current pediatric practice standards formatted and endorsed by 17 leading professional nursing and health care organizations Includes content applicable to advanced practice nurses, educators, researchers, and consultants Includes learning objectives, description of guidelines, applications to practice, exemplars, references, and websites for additional resources

Protecting Data Privacy in Health Services Research

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Publisher : National Academies Press
ISBN 13 : 0309071879
Total Pages : 208 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Protecting Data Privacy in Health Services Research by : Institute of Medicine

Download or read book Protecting Data Privacy in Health Services Research written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-13 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Pediatric Critical Care Medicine

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Publisher : Springer Science & Business
ISBN 13 : 1447163621
Total Pages : 766 pages
Book Rating : 4.4/5 (471 download)

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Book Synopsis Pediatric Critical Care Medicine by : Derek S. Wheeler

Download or read book Pediatric Critical Care Medicine written by Derek S. Wheeler and published by Springer Science & Business. This book was released on 2014-04-26 with total page 766 pages. Available in PDF, EPUB and Kindle. Book excerpt: The second edition of Pediatric Critical Care Medicine spans three volumes, with major sections dedicated to specific organ systems. Each major section consists of separate chapters dedicated to reviewing the specific disease processes affecting each organ system. Each chapter concludes with a comprehensive list of references, with brief, concise remarks denoting references of ‘special interest’ and ‘of interest’. Consequently, the books are unique in their comprehensive coverage of pediatric critical care and their ease of use and will be of value to those studying towards pediatric critical care examinations and those who are already qualified.

Pediatric Psycho-oncology

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Publisher : Oxford University Press, USA
ISBN 13 : 0199335117
Total Pages : 433 pages
Book Rating : 4.1/5 (993 download)

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Book Synopsis Pediatric Psycho-oncology by : Lori Wiener

Download or read book Pediatric Psycho-oncology written by Lori Wiener and published by Oxford University Press, USA. This book was released on 2015 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Psycho-Oncology is a comprehensive handbook that provides best practice models for the management of psychological, cognitive, and social outcomes of adolescents living with cancer and their families. Chapters cover a wide range of topics including psychological aspects of particular pediatric cancers and their treatments, how to talk to a child and family at critical times during the disease course, genetic testing, individual, family, educational, psychological and psychiatric interventions, and caring for international patients . Each chapter highlights the necessity of embracing an interdisciplinary approach to ensure that each child has the best options for living with cancer and, when cure is not possible, that death occurs with as much dignity as possible for the child and family. An extensive resource section is appended to provide information on written, online, video, community, national and international services and programs. This book features contributions from experts designed to help clinicians review, anticipate and respond to emotional issues that often arise in the context of treating pediatric cancer patients. Numerous cross-references and succinct tables and figures make this concise reference easy to use. Pediatric Psycho-Oncology is an ideal resource for helping pediatric oncologists and nurses recognize when it may be best to refer patients to their mental health colleagues and for those who are establishing pediatric oncology services or adding psychosocial components to existing clinics.

Cross-Cultural and Religious Critiques of Informed Consent

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Publisher : Routledge
ISBN 13 : 1000510441
Total Pages : 119 pages
Book Rating : 4.0/5 (5 download)

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Book Synopsis Cross-Cultural and Religious Critiques of Informed Consent by : Joseph Tham

Download or read book Cross-Cultural and Religious Critiques of Informed Consent written by Joseph Tham and published by Routledge. This book was released on 2021-11-28 with total page 119 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the challenges of informed consent in medical intervention and research ethics, considering the global reality of multiculturalism and religious diversity. Even though informed consent is a gold standard in research ethics, its theoretical foundation is based on the conception of individual subjects making autonomous decisions. There is a need to reconsider autonomy as relational—where family members, community and religious leaders can play an important part in the consent process. The volume re-evaluates informed consent in multicultural contexts and features perspectives from Buddhism, Confucianism, Hinduism, Christianity, Judaism and Islam. It is valuable reading for scholars interested in bioethics, healthcare ethics, research ethics, comparative religions, theology, human rights, law and sociology.

Pediatric Bioethics

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Publisher : Cambridge University Press
ISBN 13 : 0521517982
Total Pages : 305 pages
Book Rating : 4.5/5 (215 download)

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Book Synopsis Pediatric Bioethics by : Geoffrey Miller

Download or read book Pediatric Bioethics written by Geoffrey Miller and published by Cambridge University Press. This book was released on 2010 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume offers a theoretical and practical overview of the ethics of pediatric medicine. It serves as a fundamental handbook and resource for pediatricians, nurses, residents in training, graduate students, and practitioners of ethics and healthcare policy. Written by a team of leading experts, Pediatric Bioethics addresses those difficult ethical questions concerning the clinical and academic practice of pediatrics, including an approach to recognizing boundaries when confronted with issues such as end of life care, life-sustaining treatment, extreme prematurity, pharmacotherapy, and research. Thorny topics such as what constitutes best interests, personhood, or distributive justice and public health concerns such as immunization and newborn genetic screening are also addressed.

Children and Their Families

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Publisher : Lippincott Williams & Wilkins
ISBN 13 : 0781760720
Total Pages : 1759 pages
Book Rating : 4.7/5 (817 download)

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Book Synopsis Children and Their Families by : Vicky R. Bowden

Download or read book Children and Their Families written by Vicky R. Bowden and published by Lippincott Williams & Wilkins. This book was released on 2010 with total page 1759 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children and Their Families: The Continuum of Care provides a unique interdisciplinary perspective that underscores the nurse's role in planning, coordinating, and working with all members of a pediatric health care team. It shows students how to make critical judgments and assessments to manage the care of children in a variety of community settings, including homes, schools, and medical centers. From infancy through adolescence, this text thoroughly covers the health promotion, surveillance, and maintenance needs of children. In this edition, threaded case studies follow a community of pediatric clients and continue throughout the chapter to show the interrelated dynamics of pediatric nursing care. A companion Website includes journal articles, NCLEX®-style chapter review questions, a Spanish-English audio glossary, Watch and Learn videos, a fluids and electrolytes tutorial, and much more.

Children As Research Subjects : Science, Ethics, and Law

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Publisher : Oxford University Press, USA
ISBN 13 : 9780199771424
Total Pages : 290 pages
Book Rating : 4.7/5 (714 download)

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Book Synopsis Children As Research Subjects : Science, Ethics, and Law by : Program in Medical Ethics Michael A. Grodin Director

Download or read book Children As Research Subjects : Science, Ethics, and Law written by Program in Medical Ethics Michael A. Grodin Director and published by Oxford University Press, USA. This book was released on 1994-02-08 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced? These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme. As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.

Doing Research with Children and Young People

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Author :
Publisher : SAGE
ISBN 13 : 9780761943815
Total Pages : 308 pages
Book Rating : 4.9/5 (438 download)

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Book Synopsis Doing Research with Children and Young People by : Sandy Fraser

Download or read book Doing Research with Children and Young People written by Sandy Fraser and published by SAGE. This book was released on 2004 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Doing Research with Children and Young People introduces researchers to the key considerations involved in working with children and young people.