Hospice In America

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The Crisis of US Hospice Care

Author : Harold Braswell
Publisher : Johns Hopkins University Press
ISBN 13 : 9781421429823
Total Pages : 0 pages
Book Rating : 4.4/5 (298 download)

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Book Synopsis The Crisis of US Hospice Care by : Harold Braswell

Download or read book The Crisis of US Hospice Care written by Harold Braswell and published by Johns Hopkins University Press. This book was released on 2019-11-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Exploring the failure of hospice in America to care for patients and families at the end of life. Hospice is the dominant form of end-of-life care in the United States. But while the US hospice system provides many forms of treatment that are beneficial to dying people and their families, it does not encompass what is commonly referred to as long-term care, which includes help with the activities of daily living: feeding, bathing, general safety, and routine hygienic maintenance. Frequently, such care is carried out by an informal network of unpaid caregivers, such as the person's family or loved ones, who are often ill-prepared to offer this type of support. In The Crisis of US Hospice Care, Harold Braswell argues that the stress of providing long-term care typically overwhelms family members and that overdependence on familial caregiving constitutes a crisis of US hospice care that limits the freedom of dying people. Arguing for the need to focus on the time just before death, Braswell examines how the relationship of hospice to familial caregiving evolved. He traces the history of hospice over the past fifty years and describes the choice that people dying with inadequate familial support face between a neglectful home environment and an impersonal nursing home. A nuanced look at the personal and political dimensions that shape long-term, end-of-life care, this historical and ethnographic study demonstrates that the crisis in US hospice care can be alleviated only by establishing the centrality of hospice to American freedom. Providing a model for the transformative work that is required going forward, The Crisis of US Hospice Care illustrates the potential of hospice for facilitating a new way of living our last days and for having the best death possible.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Living with Grief Since COVID-19

Author : Kenneth Doka
Publisher :
ISBN 13 : 9781893349193
Total Pages : pages
Book Rating : 4.3/5 (491 download)

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Book Synopsis Living with Grief Since COVID-19 by : Kenneth Doka

Download or read book Living with Grief Since COVID-19 written by Kenneth Doka and published by . This book was released on 2021-02-25 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive review of grief and loss issues facing professionals and families due to the COVID-19 pandemic.

Hospice in America

Author : Josefina Magno
Publisher : iUniverse
ISBN 13 : 0595456510
Total Pages : 154 pages
Book Rating : 4.5/5 (954 download)

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Book Synopsis Hospice in America by : Josefina Magno

Download or read book Hospice in America written by Josefina Magno and published by iUniverse. This book was released on 2007-09 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: Josefina B. Magno, M.D was the First Executive Director of the National Hospice Organization of the United States (NHO). During her lifetime, hospices and palliative care services grew to over 8000 in 100 countries - many with her help. "Jo" Magno recalls for us the inspiring stories of her childhood, marriage, becoming a widow, and surviving cancer - all steps leading her to become a hospice physician. She remembers her first patients - Ruth, Florence, Eugene and others. She recounts the struggles and obstacles she overcame with the wonderful volunteers and staff and friends she worked with in Northern Virginia, Michigan, Texas, and around the world to pioneer changes in care for the terminally ill. Jo's Catholic faith sustained her and gave her courage in her work and personal life. She attributed any success to God and the inspiration of the saints she loved- Saint Josemaria Escriva and Saint Joseph - to whom she dedicated all her work. "What an amazing story of faith and accomplishment. On Capital Hospice's 30th anniversary and on behalf of the over 50,000 patients cared for, we celebrate and appreciate Jo's inspiration." -Malene Davis, President and CEO of Capital Hospice

Hospice Care, a Growing Concept in the United States

Author : United States. General Accounting Office
Publisher :
ISBN 13 :
Total Pages : 44 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Hospice Care, a Growing Concept in the United States by : United States. General Accounting Office

Download or read book Hospice Care, a Growing Concept in the United States written by United States. General Accounting Office and published by . This book was released on 1979 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Medicare Hospice Benefits

Author :
Publisher :
ISBN 13 :
Total Pages : 6 pages
Book Rating : 4.:/5 (285 download)

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Book Synopsis Medicare Hospice Benefits by :

Download or read book Medicare Hospice Benefits written by and published by . This book was released on 1993 with total page 6 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Religious Understandings of a Good Death in Hospice Palliative Care

Author : Harold Coward
Publisher : State University of New York Press
ISBN 13 : 1438442750
Total Pages : 354 pages
Book Rating : 4.4/5 (384 download)

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Book Synopsis Religious Understandings of a Good Death in Hospice Palliative Care by : Harold Coward

Download or read book Religious Understandings of a Good Death in Hospice Palliative Care written by Harold Coward and published by State University of New York Press. This book was released on 2012-06-13 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the 2012 AJN (American Journal of Nursing) Book of the Year Award in the Hospice and Palliative Care category In the 1960s, English physician and committed Christian Cicely Saunders introduced a new way of treating the terminally ill that she called "hospice care." Emphasizing a holistic and compassionate approach, her model led to the rapid growth of a worldwide hospice movement. Aspects of the early hospice model that stressed attention to the religious dimensions of death and dying, while still recognized and practiced, have developed outside the purview of academic inquiry and consideration. Meanwhile, global migration and multicultural diversification in the West have dramatically altered the profile of contemporary hospice care. In response to these developments, this volume is the first to critically explore how religious understandings of death are manifested and experienced in palliative care settings. Contributors discuss how a "good death" is conceived within the major religious traditions of Christianity, Islam, Hinduism, Judaism, Buddhism, Chinese religion, and Aboriginal spirituality. A variety of real-world examples are presented in case studies of a Buddhist hospice center in Thailand, Ugandan approaches to dying with HIV/AIDS, Punjabi extended-family hospice care, and pediatric palliative care. The work sheds new light on the significance of religious belief and practice at the end of life, at the many forms religious understanding can take, and at the spiritual pain that so often accompanies the physical pain of the dying person.

Becoming Dead Right

Author : Frances Shani Parker
Publisher : Loving Healing Press
ISBN 13 : 1932690352
Total Pages : 212 pages
Book Rating : 4.9/5 (326 download)

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Book Synopsis Becoming Dead Right by : Frances Shani Parker

Download or read book Becoming Dead Right written by Frances Shani Parker and published by Loving Healing Press. This book was released on 2007-01-01 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Becoming Dead Right" guides readers through the general and "how to" information maze that prepares them for dealing with death. This book is filled with poetry, stories, wisdom, and common sense that can help baby boomers, students, caregivers, and policy makers understand that society can make important changes that can ensure safe, dignified, individualized care at the end of ones life.

The Good Death

Author : Ann Neumann
Publisher : Beacon Press
ISBN 13 : 0807076996
Total Pages : 250 pages
Book Rating : 4.8/5 (7 download)

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Book Synopsis The Good Death by : Ann Neumann

Download or read book The Good Death written by Ann Neumann and published by Beacon Press. This book was released on 2017-02-07 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver—cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father’s death a good death? The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to “pro-life” groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death. What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What’s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems. In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death’s wake.

The Best Care Possible

Author : Ira Byock
Publisher : Penguin
ISBN 13 : 1583335129
Total Pages : 338 pages
Book Rating : 4.5/5 (833 download)

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Book Synopsis The Best Care Possible by : Ira Byock

Download or read book The Best Care Possible written by Ira Byock and published by Penguin. This book was released on 2013-03-05 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.

Hospice Palliative Home Care and Bereavement Support

Author : Lorraine Holtslander
Publisher : Springer
ISBN 13 : 303019535X
Total Pages : 272 pages
Book Rating : 4.0/5 (31 download)

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Book Synopsis Hospice Palliative Home Care and Bereavement Support by : Lorraine Holtslander

Download or read book Hospice Palliative Home Care and Bereavement Support written by Lorraine Holtslander and published by Springer. This book was released on 2019-07-17 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach./div The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.

Caregiving

Author : Douglas C. Smith
Publisher : Turner Publishing Company
ISBN 13 : 0470336889
Total Pages : 138 pages
Book Rating : 4.4/5 (73 download)

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Book Synopsis Caregiving by : Douglas C. Smith

Download or read book Caregiving written by Douglas C. Smith and published by Turner Publishing Company. This book was released on 2008-05-02 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: One of America's leading hospice experts offers practical, easy-to-follow advice for caregivers and a holistic approach to treating the infirm or the terminally ill. Author Douglas C. Smith organizes his material around "A Bill of Patient's Rights," a unique system he has taught to thousands throughout the country. He explains that the caregiver should enable patients to retain these rights: to be in control * to have a sense of purpose * to know the truth to be comfortable * to touch and be touched * to laugh to cry and express anger * to explore the spiritual to have a sense of family Included are easy-to-follow techniques and practical tools for improving care: assessment techniques dialogues meditations life reviews breathing exercises body revitalization methods ways that patients can evaluate and improve their own care and many others. Filled with inspirational stories and effective guidance, Caregiving also addresses how to communicate with difficult patients and those in denial, how to facilitate non-stressful family interaction, and other important topics. It will be invaluable to parents and children caring for their elders; physicians and nurses; social workers and home health aides; members of the clergy; and all facing the challenge of enriching patients' lives and spirits. Visit us online at http://www.mcp.com/mgr/macmillan

The Hospice Alternative

Author : United States. Congress. Senate. Special Committee on Aging
Publisher :
ISBN 13 :
Total Pages : 86 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis The Hospice Alternative by : United States. Congress. Senate. Special Committee on Aging

Download or read book The Hospice Alternative written by United States. Congress. Senate. Special Committee on Aging and published by . This book was released on 1982 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Five Invitations

Author : Frank Ostaseski
Publisher : Flatiron Books
ISBN 13 : 1250074665
Total Pages : 305 pages
Book Rating : 4.2/5 (5 download)

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Book Synopsis The Five Invitations by : Frank Ostaseski

Download or read book The Five Invitations written by Frank Ostaseski and published by Flatiron Books. This book was released on 2017-03-14 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: The cofounder of the Zen Hospice Project and pioneer behind the compassionate care movement shares an inspiring exploration of the lessons dying has to offer about living a fulfilling life. Death is not waiting for us at the end of a long road. Death is always with us, in the marrow of every passing moment. She is the secret teacher hiding in plain sight, helping us to discover what matters most. Life and death are a package deal. They cannot be pulled apart and we cannot truly live unless we are aware of death. The Five Invitations is an exhilarating meditation on the meaning of life and how maintaining an ever-present consciousness of death can bring us closer to our truest selves. As a renowned teacher of compassionate caregiving and the cofounder of the Zen Hospice Project, Frank Ostaseski has sat on the precipice of death with more than a thousand people. In The Five Invitations, he distills the lessons gleaned over the course of his career, offering an evocative and stirring guide that points to a radical path to transformation. The Five Invitations: -Don’t Wait -Welcome Everything, Push Away Nothing -Bring Your Whole Self to the Experience -Find a Place of Rest in the Middle of Things -Cultivate Don’t Know Mind These Five Invitations show us how to wake up fully to our lives. They can be understood as best practices for anyone coping with loss or navigating any sort of transition or crisis; they guide us toward appreciating life’s preciousness. Awareness of death can be a valuable companion on the road to living well, forging a rich and meaningful life, and letting go of regret. The Five Invitations is a powerful and inspiring exploration of the essential wisdom dying has to impart to all of us.

Pediatric Palliative Care

Author : Betty Ferrell
Publisher :
ISBN 13 : 0190244186
Total Pages : 161 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Pediatric Palliative Care by : Betty Ferrell

Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Peaceful Passages

Author : Janet Wehr
Publisher : Quest Books
ISBN 13 : 0835631923
Total Pages : 222 pages
Book Rating : 4.8/5 (356 download)

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Book Synopsis Peaceful Passages by : Janet Wehr

Download or read book Peaceful Passages written by Janet Wehr and published by Quest Books. This book was released on 2015-10-01 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: Joy is a word rarely associated with death. Yet joy is ultimately the effect in this collection of stories about Janet Wehr’s experiences in witnessing the death of her patients during her fifteen years as a hospice nurse. Her first-hand account gives illuminating and comforting insight into the spiritual aspect of what occurs in the transition between life and death, highlighting the importance of the mind-body-spirit connection as it manifests in the dying process. It also gives a candid impression of hospices and hospice nurses and the services they can provide. All of Janet’s forty-six personal stories are true, fascinating, heart-felt, and thought-provoking. Through her authentic examples, readers gain understanding, hope, and a sense of peace about what is, after all, an inevitable experience for us all. And with that sense of peace, comes joy. This book is endorsed by the President of Hospice of America and will be used as a training manual by that organization.