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Author : Gerardus Blokdyk
Publisher :
ISBN 13 : 9780655131380
Total Pages : 0 pages
Book Rating : 4.1/5 (313 download)
Download or read book Genomics Data Sharing Complete Self-Assessment Guide written by Gerardus Blokdyk and published by . This book was released on 2018 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomics data sharing Complete Self-Assessment Guide.
Author : Jennifer B. Mccormick
Publisher : Academic Press
ISBN 13 : 0128198044
Total Pages : 232 pages
Book Rating : 4.1/5 (281 download)
Download or read book Genomic Data Sharing written by Jennifer B. Mccormick and published by Academic Press. This book was released on 2022-11-29 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges. Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing. Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others Features chapter contributions from international leaders in genomic data sharing
Author : Marcelo Corrales Compagnucci
Publisher : Springer Nature
ISBN 13 : 9819965403
Total Pages : 211 pages
Book Rating : 4.8/5 (199 download)
Download or read book The Law and Ethics of Data Sharing in Health Sciences written by Marcelo Corrales Compagnucci and published by Springer Nature. This book was released on 2024-01-02 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing – broadly defined as the exchange of health-related data among multiple controllers and processors – has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of “open data” and “open innovation.” The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today. Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
Author : Manuel Corpas
Publisher : Frontiers Media SA
ISBN 13 : 2889711277
Total Pages : 146 pages
Book Rating : 4.8/5 (897 download)
Download or read book Personal Genomes: Accessing, Sharing, and Interpretation written by Manuel Corpas and published by Frontiers Media SA. This book was released on 2021-08-02 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : World Health Organization
Publisher : World Health Organization
ISBN 13 : 9240076565
Total Pages : 28 pages
Book Rating : 4.2/5 (4 download)
Download or read book Considerations for developing a national genomic surveillance strategy or action plan for pathogens with pandemic and epidemic potential written by World Health Organization and published by World Health Organization. This book was released on 2023-08-18 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: Policy considerations to strengthen genomic surveillance for pathogens with pandemic and epidemic potential is a support tool that provides key consideration and a proposed stepwise approach for countries to develop a national genomic surveillance strategy or action plan for pathogens with pandemic and epidemic potential. This document is intended for use by all stakeholders at the national and subnational level relevant to the development and implementation of the strategy or action plan, including health authorities, One Health partners, donors, public health officers, academia, the private sector and laboratory specialists.
Author : World Health Organization
Publisher : World Health Organization
ISBN 13 : 9240084770
Total Pages : 58 pages
Book Rating : 4.2/5 (4 download)
Download or read book Global genomic surveillance strategy for pathogens with pandemic and epidemic potential 2022–2032 written by World Health Organization and published by World Health Organization. This book was released on 2023-12-04 with total page 58 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Gerardus Blokdyk
Publisher :
ISBN 13 : 9780655130116
Total Pages : 0 pages
Book Rating : 4.1/5 (31 download)
Download or read book Digital Data Storage Complete Self-Assessment Guide written by Gerardus Blokdyk and published by . This book was released on with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 304 pages
Book Rating : 4.3/5 (93 download)
Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Author : Laura V. Milko
Publisher : Frontiers Media SA
ISBN 13 : 2832507344
Total Pages : 324 pages
Book Rating : 4.8/5 (325 download)
Download or read book DNA-based Population Screening for Precision Public Health written by Laura V. Milko and published by Frontiers Media SA. This book was released on 2022-11-28 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Dhavendra Kumar
Publisher : Academic Press
ISBN 13 : 0127999221
Total Pages : 358 pages
Book Rating : 4.1/5 (279 download)
Download or read book Medical and Health Genomics written by Dhavendra Kumar and published by Academic Press. This book was released on 2016-06-04 with total page 358 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical and Health Genomics provides concise and evidence-based technical and practical information on the applied and translational aspects of genome sciences and the technologies related to non-clinical medicine and public health. Coverage is based on evolving paradigms of genomic medicine—in particular, the relation to public and population health genomics now being rapidly incorporated in health management and administration, with further implications for clinical population and disease management. Provides extensive coverage of the emergent field of health genomics and its huge relevance to healthcare management Presents user-friendly language accompanied by explanatory diagrams, figures, and many references for further study Covers the applied, but non-clinical, sciences across disease discovery, genetic analysis, genetic screening, and prevention and management Details the impact of clinical genomics across a diverse array of public and community health issues, and within a variety of global healthcare systems
Author : Nina Pereza
Publisher : Frontiers Media SA
ISBN 13 : 2889761932
Total Pages : 91 pages
Book Rating : 4.8/5 (897 download)
Download or read book The Importance of Genetic Literacy and Education in Medicine written by Nina Pereza and published by Frontiers Media SA. This book was released on 2022-05-24 with total page 91 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Paula Boddington
Publisher : Springer Science & Business Media
ISBN 13 : 3642236995
Total Pages : 242 pages
Book Rating : 4.6/5 (422 download)
Download or read book Ethical Challenges in Genomics Research written by Paula Boddington and published by Springer Science & Business Media. This book was released on 2012-03-12 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: New developments in science and technology have resulted in shifting ethical challenges in many areas including in genomics research. This book enables those who are involved in genomics research, whether as researcher, participant or policy maker, to understand the ethical issues currently developing in this field and to participate actively in these important debates. A clear account is given of how science and technology are outstripping the capacity of previous ethical regulations to cope with current issues, together with practical illustrations of possible ways forward. Key ethical ideas are presented, drawing on the history of research regulation and on an account of the particular challenges arising in the field of genomics. The book uses a grounded, practical approach to explaining ethical concepts and issues which is geared to enhancing interdisciplinary dialogue. Its broad approach to ethical issues includes relevant considerations from social psychology and there is a particular emphasis on understanding the problems of ethical regulations and practice in the institutional and social context of research. A glossary and numerous text boxes explaining relevant terms and key ideas help to make the work an invaluable resource for both beginners and experts in the field.
Author : Dov Greenbaum
Publisher : Frontiers Media SA
ISBN 13 : 2832510353
Total Pages : 249 pages
Book Rating : 4.8/5 (325 download)
Download or read book COVID-19 pandemics: Ethical, legal and social issues written by Dov Greenbaum and published by Frontiers Media SA. This book was released on 2023-01-02 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Phillips Andelka M. Phillips
Publisher : Edinburgh University Press
ISBN 13 : 1474422616
Total Pages : 164 pages
Book Rating : 4.4/5 (744 download)
Download or read book Buying your Self on the Internet written by Phillips Andelka M. Phillips and published by Edinburgh University Press. This book was released on 2019-07-17 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines the rise of the direct-to-consumer genetic testing industry (DTC) and its use of 'wrap' contracts. It uses the example of DTC to show the challenges that disruptive technologies pose for societies and for regulation. It also uses the wrap contracts of DTC companies to explore broader issues with online contracting.
Author : Alison Brettle
Publisher : Facet Publishing
ISBN 13 : 1856047407
Total Pages : 209 pages
Book Rating : 4.8/5 (56 download)
Download or read book Changing Roles and Contexts for Health Library and Information Professionals written by Alison Brettle and published by Facet Publishing. This book was released on 2011-11-23 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: This timely edited collection examines the evolving role of health professionals and explores the role they play in the context of where they work. It aims to encourage and inspire health information professionals worldwide to take on new opportunities and ensure their continued development and recognition as valuable assets in the changing health care environment. Library and information professionals working in the health sector face many challenges. Rapid developments in information technology and the provision of information, coupled with organizational developments and the widespread adoption of evidence-based practice have ensured constant change for a number of years. How have library and information professionals met this challenge and how has this affected the roles they play? Will developments in services render the hospital librarian obsolete? Is there a need for academic health librarians amongst the Google generation of students? The key topics covered in the book are: • providing information • facilitating access to information and managing knowledge • building capacity • undertaking research and evaluation • supporting research and practice • exploiting technology • evidence-based practice. Readership: Information workers and other health professionals, as well as students on librarianship and information studies courses.
Author : Stephen D. Krau
Publisher : Elsevier Health Sciences
ISBN 13 : 0323261116
Total Pages : 188 pages
Book Rating : 4.3/5 (232 download)
Download or read book Genomics, An Issue of Nursing Clinics written by Stephen D. Krau and published by Elsevier Health Sciences. This book was released on 2013-12-28 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: This issue of Nursing Clinics of North America is Guest Edited by Stephen D. Krau, PhD, RN, CNE, from Vanderbilt University and will focus on genomics. Article topics will include Genetic and Genomic Testing, Integrating Genomics into Research, Genomic Assessments and Interventions in Psychiatric Nursing Practice, Genomics in Critical Care, Cardiomyopathy and Genetics, Genetics and Chronic Diseases, Genomics and Patients with Rare Chronic Diseases, Epigenetics and the implications for disease processes, Impact of Genetics on Oncology Nursing, and Pharmacogenetics.
Author :
Publisher : World Health Organization
ISBN 13 : 9240018441
Total Pages : 94 pages
Book Rating : 4.2/5 (4 download)
Download or read book Genomic sequencing of SARS-CoV-2 written by and published by World Health Organization. This book was released on 2021-01-08 with total page 94 pages. Available in PDF, EPUB and Kindle. Book excerpt:
