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Genetic Testing Policy Issues For The New Millennium
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Book Synopsis Genetic Testing Policy Issues for the New Millennium by : OECD
Download or read book Genetic Testing Policy Issues for the New Millennium written by OECD and published by OECD Publishing. This book was released on 2001-01-11 with total page 79 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report provides a state-of-the art review of advances in genetic testing and of main international policy concerns drawing from the OECD workshop on "Genetic Testing: Policy Issues for the New Millennium", held in Vienna on 23-25 February 2000.
Book Synopsis Genetics Testing in the New Millennium by : Constance A. Morella
Download or read book Genetics Testing in the New Millennium written by Constance A. Morella and published by DIANE Publishing. This book was released on 2001 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hearing held by the Subcommittee on Technology. Witnesses include: Raymond G. Kammer, Director, National Institute of Standards and Technology; Dr. Francis S. Collins, Director, National Human Genome Research Institute, National Institutes of Health; Dr. William F. Raub, Deputy Assistant Secretary of Science Policy, Department of Health and Human Services (HHS); and Dr. Michael Watson, Professor of Pediatrics and Genetics, Washington University School of Medicine, Co-Chair, NIH-DoE Task Force of Genetics Testing.
Author :United States. Congress. House. Committee on Science. Subcommittee on Technology Publisher : ISBN 13 :9780160593482 Total Pages :128 pages Book Rating :4.5/5 (934 download)
Book Synopsis Genetics Testing in the New Millennium, Advances, Standards, and Implications by : United States. Congress. House. Committee on Science. Subcommittee on Technology
Download or read book Genetics Testing in the New Millennium, Advances, Standards, and Implications written by United States. Congress. House. Committee on Science. Subcommittee on Technology and published by . This book was released on 1999 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Quality Issues in Clinical Genetic Services by : Ulf Kristoffersson
Download or read book Quality Issues in Clinical Genetic Services written by Ulf Kristoffersson and published by Springer Science & Business Media. This book was released on 2010-06-25 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: Initially genetic disorders were all considered as rare diseases. At present, in the mid of 2009, the OMIM catalogue contains information on more than 12 000 entries of which about 2500 are available for clinical testing based on the identification of the responsible gene defect. However, altogether it has been estimated that about 8 percent of a population in the economically developed countries will during their lifetime suffer from a disease mainly as the result of their genetic constitution. Adding to that, it is estimated that all diseases have a genetic component, which will determine who will be at a higher than average risk for a certain disorder. Further it is postulated that in the near future, this genetic profiling could become useful in selecting an appropriate therapy adapted to the genetic constitution of the person. Thus, genetic disorders are not rare. Measuring quality of health care related processes became an issue in the 1990s, mainly in laboratory medicine, but also for hospitals and other health care systems. In many countries national authorities started to implement recommendations, guidelines or legal procedures regulating quality of health care delivery. In laboratory medicine, in parallel, the use of accreditation as a method assuring high quality standards in testing came in use. With the increasing possibilities of performing molecular genetic testing, genetic laboratories needed to become involved in this process. As many genetic disorders are rare, most laboratories worldwide offered analysis for a specific set of disorders, and, therefore, very early on a transborder flow of samples occurred. While international quality criteria (ISO) have been in existence for a number of years, the regulation of quality issues still may differ between countries. Based on their personal experience in the varying fields of quality research and clinical implementation of quality criteria in genetic services the authors of this book share their experience and give examples of the implementation of quality issues in national quality systems worldwide. This book, which is the result of the effort of many persons, is destined to aid laboratory managers and counsellors, health care managers and other stakeholders in national or international health care service to improve the services to the benefit of patients with suspected genetic disorders.
Book Synopsis Genetics, Health Care and Public Policy by : Alison Stewart
Download or read book Genetics, Health Care and Public Policy written by Alison Stewart and published by Cambridge University Press. This book was released on 2007-05-17 with total page 291 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetics, Health Care and Public Policy is an introduction to the new discipline of public health genetics. It brings together the insights of genetic and molecular science as a means of protecting and improving the health of the population. Its scope is wide and requires an understanding of genetics, epidemiology, public health and the principles of ethics, law and the social sciences. This book sets out the basic principles of public health genetics for a wide audience from those providing health care to those involved in establishing policy. The emphasis throughout the text is on providing an accessible introduction to the field. The content moves from the basic concepts, including definitions and history, through chapters on genetics, genetic technology, epidemiology, genetics in medicine, genetics in health services, ethical, legal and social implications, to the implications for health policy. It provides one-stop, introductory coverage of this rapidly developing and multidisciplinary field.
Author :Information Resources Management Association Publisher :IGI Global ISBN 13 :146663605X Total Pages :1826 pages Book Rating :4.4/5 (666 download)
Book Synopsis Bioinformatics by : Information Resources Management Association
Download or read book Bioinformatics written by Information Resources Management Association and published by IGI Global. This book was released on 2013-03-31 with total page 1826 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Bioinformatics: Concepts, Methodologies, Tools, and Applications highlights the area of bioinformatics and its impact over the medical community with its innovations that change how we recognize and care for illnesses"--Provided by publisher.
Book Synopsis Genomics and Public Health by : Bartha Maria Knoppers
Download or read book Genomics and Public Health written by Bartha Maria Knoppers and published by Martinus Nijhoff Publishers. This book was released on 2007 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: When genomics and public health are integrated into society, it will create as many responsibilities as rights for citizens, researchers, and decision makers. Indeed, the expression of genetic risk factors in both common and infectious diseases is of great interest to public health. Policy development in this area then needs to tackle crucial themes such as: research and its application to public health and genomic medicine, the authority of the state, the right to privacy, and the roles and responsibilities of citizens and the State. Considering the current fears of a world-wide pandemic, this book is a timely and insightful exploration of both research possibilities and the role of the state. It will help to understand the limits of possible state access to biobanks and data. It examines the issue of the possible use of newborn screening programmes by public health authorities. It also attempts to understand the protection of individual privacy and the public interest in the promotion of health and the prevention of disease. Moreover, do citizens have a say? Will public attitudes be different towards research in public health genomics compared to genetic testing?
Book Synopsis Genetic Testing: A Survey of Quality Assurance and Proficiency Standards by : OECD
Download or read book Genetic Testing: A Survey of Quality Assurance and Proficiency Standards written by OECD and published by OECD Publishing. This book was released on 2007-10-04 with total page 134 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report presents the results of a survey of over 800 genetic testing laboratory directors in 18 OECD countries. It provides the first detailed overview of the availability and extent of molecular genetic testing across OECD member countries.
Book Synopsis Disruptive Technologies, Innovation and Global Redesign: Emerging Implications by : Ekekwe, Ndubuisi
Download or read book Disruptive Technologies, Innovation and Global Redesign: Emerging Implications written by Ekekwe, Ndubuisi and published by IGI Global. This book was released on 2012-02-29 with total page 603 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book provides case studies as well as practical and theoretical chapters on the issues surrounding disruptive technologies, innovation, and global redesign"--Provided by publisher.
Book Synopsis The OECD Health Project Health Technologies and Decision Making by : OECD
Download or read book The OECD Health Project Health Technologies and Decision Making written by OECD and published by OECD Publishing. This book was released on 2005-10-11 with total page 155 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book analyses the barriers to, and facilitators of, evidence-based decision making in OECD health-care systems.
Download or read book Genetic Testing written by Neil F. Sharpe and published by John Wiley & Sons. This book was released on 2006-01-20 with total page 622 pages. Available in PDF, EPUB and Kindle. Book excerpt: A complete review of the issues with specific recommendations and guidelines. With over 1,000 tests commercially available, genetic testing is revolutionizing medicine. Health care professionals diagnosing and treating patients today must consider genetic factors, the risks and limitations of genetic testing, and the relevant law. Genetic Testing: Care, Consent, and Liability offers the only complete, practical treatment of the genetic, clinical, ethical, and legal issue surrounding genetic testing. The authors present protocols, policies, and models of care that are currently in use, and explain the legal framework for genetic testing and counseling that has developed in North America, particularly with regard to the law of medical malpractice. This essential book features an international roster of esteemed contributors including, Nancy P. Callanan, Bonnie S. LeRoy, Carole H. Browner, H. Mabel Preloran, Riyana Babul-Hirji, Cheryl Shuman, M.J. Esplen, Maren T. Scheuner, Dena S. Davis, JonBeckwith, Lisa Geller, Mark A. Hall, Andrew R. MacRae, David Chitayat, Roxanne Mykitiuk, Stephanie Turnham, Mireille Lacroix, Jinger G, Hoop, Edwin H, Cook, Jr., S. H. Dinwiddie, Elliot S. Gershon, C. Anthony Rupar, Lynn Holt, Bruce R. Korf, Anne Summers, S. Annie Adams, Daniel L. Van Dyke, Rhett P. Ketterling, Erik C. Thorland, Timothy Caulfield, Lorraine Sheremeta, Richard Gold, Jon F. Merz, David Castle, Peter J. Bridge, JS Parboosingh, Patricia T. Kelly, Julianne M. O'Daniel, Allyn McConkie-Rosell, Beatrice Godard, Bartha Maria Knoppers, David Weisbrot. The coverage also includes: * Genetic screening, including prenatal, neonatal, carrier, and susceptibility testing * Diagnosis, risk assessment, confidentiality, and clinical/legal issues related to follow-up * Interpreting test results and communicating them to patients * psychological considerations * Informed consent * Family history evaluations * Referral to medical geneticists and genetic counselors Genetic Testing Care, Consent, and Liability is a must-have resource for clinical geneticists, genetic counselors, specialists, family physicians, nurses, public health professionals, and medical students.
Book Synopsis Ethics and the New Genetics by : H. Daniel Monsour
Download or read book Ethics and the New Genetics written by H. Daniel Monsour and published by University of Toronto Press. This book was released on 2007-05-26 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: Everyday, new advances are being made in the science of human genetics. Accompanying progress in this area, however, are new ethical dilemmas. At a think tank sponsored by the Canadian Catholic Bioethics Institute, an interdisciplinary group of ethicists, geneticists, physicians, lawyers, and theologians gathered in an attempt to apply some features of Bernard Lonergan's notion of functional specialization to ethical debates surrounding genetics. Editor H. Daniel Monsour has brought together a series of articles presented at this think tank. The articles accomplish two tasks: first, they explore some of the advances in human genetic that continue to prompt ethical debate and outline the different stances on those issues; second, they examine those stances in the context of Roman Catholic moral and religious thought. Timely, innovative, and wide-ranging, this collection will be of interest to bioethicists and philosophers, as well as religious and Lonerganian scholars.
Book Synopsis The Ethics of Workplace Privacy by : Sven Ove Hansson
Download or read book The Ethics of Workplace Privacy written by Sven Ove Hansson and published by Peter Lang. This book was released on 2005 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years, new and more intrusive surveillance technology has found its way into workplaces. New medical tests provide detailed information about workers' biology that was previously unthinkable. An increasing number of employees work under camera surveillance. At the same time, computers allow for a detailed monitoring of our interactions with machines, and all this information can be electronically stored in an easily accessible format. What is happening in our workplaces? Has the trend towards more humane workplaces been broken? From an ethical point of view, which types and degrees of surveillance are acceptable, and which are not? From a policy point of view, what methods can be used to regulate the use of surveillance technology in workplaces? These are some of the questions that have driven the research reported in this book. Written by an interdisciplinary group of researchers in Computer Ethics, Medical Ethics and Moral Philosophy, this book provides a broad overview that covers both empirical and normative aspects of workplace privacy.
Book Synopsis Genetics and Christian Ethics by : Celia Deane-Drummond
Download or read book Genetics and Christian Ethics written by Celia Deane-Drummond and published by Cambridge University Press. This book was released on 2006 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the immediate future we are likely to witness significant developments in human genetic science. It is therefore of critical importance that Christian ethics engages with the genetics debate, since it affects not just the way we perceive ourselves and the natural world, but also has wider implications for our society. This book considers ethical issues arising out of specific practices in human genetics, including genetic screening, gene patenting, gene therapy, genetic counselling as well as feminist concerns. Genetics and Christian Ethics argues for a particular theo-ethical approach that derives from a modified version of virtue ethics, drawing particularly on a Thomistic understanding of the virtues, especially prudence or practical wisdom and justice. The book demonstrates that a theological voice is highly relevant to contested ethical debates about genetics.
Book Synopsis The Bioeconomy to 2030 Designing a Policy Agenda by : OECD
Download or read book The Bioeconomy to 2030 Designing a Policy Agenda written by OECD and published by OECD Publishing. This book was released on 2009-04-15 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describes the current status of biotechnologies and, using quantitative analyses of data, it estimates biotechnological developments to 2015. Using other inputs, it creates scenarios to 2030.
Book Synopsis The Economic Dynamics of Modern Biotechnology by : Maureen D. McKelvey
Download or read book The Economic Dynamics of Modern Biotechnology written by Maureen D. McKelvey and published by Edward Elgar Publishing. This book was released on 2004-01-01 with total page 438 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'All would agree that with more than 3, 000 new firms formed in Europe, Japan and the United States focused on biotechnology, and with elegant strides forward in our understanding of genetics, the genome, proteomics and other related fields, a true intellectual, social and industrial revolution is in the making. Maureen McKelvey et al provide fascinating data on firm formation, case studies of emerging business models and cross-regional and national comparisons. The work is a useful beginning in our understanding of an emerging phenomenon.' - James M. Utterback, Massachusetts Institute of Technology, US This book offers a novel insight into the economic dynamics of modern biotechnology, using examples from Europe to reflect global trends. The authors apply theoretical insight to a fundamental enigma of the modern learning society, namely, how and why the development of knowledge and ideas interact with market processes and the formation of industries and firms.
Book Synopsis The National Bioethics Advisory Commission by : Elisa Eiseman
Download or read book The National Bioethics Advisory Commission written by Elisa Eiseman and published by Rand Corporation. This book was released on 2003 with total page 206 pages. Available in PDF, EPUB and Kindle. Book excerpt: The National Bioethics Advisory Commission (NBAC) was established in 1995 to advise various government entities on issues arising from research on human biology and behavior. During its five-year tenure, NBAC submitted six reports to the White House containing 120 recommendations on several complex bioethical issues including the cloning of human beings and embryonic stem cell research. This study assesses NBAC's contribution to policymaking by tracking the response to NBAC's recommendations from the president, Congress, government, societies and foundations, other countries, and international groups.
