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Family Centered Care In Childhood Disability
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Book Synopsis Family-centered Care for Children Needing Specialized Health and Developmental Services by : Terri L. Shelton
Download or read book Family-centered Care for Children Needing Specialized Health and Developmental Services written by Terri L. Shelton and published by . This book was released on 1994 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)
Book Synopsis Family-centered Early Intervention by : Sharon A. Raver
Download or read book Family-centered Early Intervention written by Sharon A. Raver and published by Brookes Publishing Company. This book was released on 2014-12-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aligned with DEC recommended practices and CEC standards! A must for future early interventionists.
Book Synopsis Family-Centered Care in Childhood Disability by : Livio Provenzi
Download or read book Family-Centered Care in Childhood Disability written by Livio Provenzi and published by Springer Nature. This book was released on 2023-08-04 with total page 235 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book presents a comprehensive and well-organized overview of the family-centered care approaches for child disability, and provides multi-professional contributions from the fields of psychiatry, psychology, and rehabilitation science. The volume is divided into three main sections, that highlights the theoretical basis, research evidence, and clinical implications of the family-centered approach to child care. Active engagement of parents in the therapeutic and rehabilitative journey of their children with disability is key to the success of early interventions and their long-term benefits. Research and clinical experiences in healthcare services around the world suggest that early supportive programs may promote children’s development at its best, with both clinical benefits and economic advantages for the healthcare system. This volume will appeal to a wide readership, from clinicians and researchers in child disability and rehabilitation, to students and professionals in the fields of psychiatry, psychology, and rehabilitation science.
Book Synopsis Partnering with Parents by : Barry Trute
Download or read book Partnering with Parents written by Barry Trute and published by University of Toronto Press. This book was released on 2013-02-07 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Internationally recognized as the gold standard in providing services to children with special needs and their family members, family-centred practice has developed substantially over the past two decades. However, there has not been until now a basic practice text for guiding professional education and skill building across diverse areas. Filling this significant gap, Partnering with Parents is a primer on family-centred practice for professionals working in children’s health and developmental services. The material in this textbook spans interdisciplinary training across key child service sectors (particularly child development, child mental health, and children’s health). The authors identify and discuss the key principles of the model as it is practiced in Canada, with a focus on working alliances, empowerment methods, and the development of social support resources. Providing examples of the application of family-centred practice in a wide range of service settings, Partnering with Parents will be useful for the social workers, nurses, psychologists, and allied health professionals who work together in complex service situations.
Book Synopsis Contemporary Issues in Early Childhood by : Children's Issues Coalition
Download or read book Contemporary Issues in Early Childhood written by Children's Issues Coalition and published by Ian Randle Publishers. This book was released on 2003 with total page 145 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caribbean Childhoods: From Research to Action is an annual publication produced by the Children s Issues Coalition at the University of the West Indies, Mona. The series seeks to provide an avenue for the dissemination of research and experiences on children s health, development, behaviour and education, and to provide a forum for the discussion of these issues.
Book Synopsis Crossing the Quality Chasm by : Institute of Medicine
Download or read book Crossing the Quality Chasm written by Institute of Medicine and published by National Academies Press. This book was released on 2001-07-19 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: Second in a series of publications from the Institute of Medicine's Quality of Health Care in America project Today's health care providers have more research findings and more technology available to them than ever before. Yet recent reports have raised serious doubts about the quality of health care in America. Crossing the Quality Chasm makes an urgent call for fundamental change to close the quality gap. This book recommends a sweeping redesign of the American health care system and provides overarching principles for specific direction for policymakers, health care leaders, clinicians, regulators, purchasers, and others. In this comprehensive volume the committee offers: A set of performance expectations for the 21st century health care system. A set of 10 new rules to guide patient-clinician relationships. A suggested organizing framework to better align the incentives inherent in payment and accountability with improvements in quality. Key steps to promote evidence-based practice and strengthen clinical information systems. Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Book Synopsis Family-Centered Care in Childhood Disability by : Livio Provenzi
Download or read book Family-Centered Care in Childhood Disability written by Livio Provenzi and published by Springer. This book was released on 2024-08-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book presents a comprehensive and well-organized overview of the family-centered care approaches for child disability, and provides multi-professional contributions from the fields of psychiatry, psychology, and rehabilitation science. The volume is divided into three main sections, that highlights the theoretical basis, research evidence, and clinical implications of the family-centered approach to child care. Active engagement of parents in the therapeutic and rehabilitative journey of their children with disability is key to the success of early interventions and their long-term benefits. Research and clinical experiences in healthcare services around the world suggest that early supportive programs may promote children’s development at its best, with both clinical benefits and economic advantages for the healthcare system. This volume will appeal to a wide readership, from clinicians and researchers in child disability and rehabilitation, to students and professionals in the fields of psychiatry, psychology, and rehabilitation science.
Book Synopsis Enabling and Empowering Families by : Carl J. Dunst
Download or read book Enabling and Empowering Families written by Carl J. Dunst and published by . This book was released on 1988 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Blend of theory and practice, with pointers for applying the principles and case studies illustrating how to apply them.
Book Synopsis Family Consequences of Children’s Disabilities by : Denis P. Hogan
Download or read book Family Consequences of Children’s Disabilities written by Denis P. Hogan and published by Russell Sage Foundation. This book was released on 2012-04-01 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
Book Synopsis Early Childhood Intervention by : Hanan Sukkar
Download or read book Early Childhood Intervention written by Hanan Sukkar and published by Routledge. This book was released on 2016-12-01 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: Early childhood is considered a critical but often vulnerable period in a child’s development where early identification and intervention can be crucial for improving children’s developmental outcomes. Systems and family-centred perspectives are vital to support families and build their capacities to lead normalized lives with improved family quality of life. This book explores the family-centred practices and systems factors which influence families’ experiences raising children with complex needs. It also considers the ways in which professionals can work with families to build and support parent and child competence. Conceptual and practical work from Australia, Canada, Europe and the United States present descriptions of and implications for different family system frameworks and early-childhood programs. Contributors in this edited volume bring together contemporary information that bridges the research to practice gap in supporting families of young children with disabilities or delays. Chapters include: Early Intervention for Young Children with Developmental Delays: Contributions of the Developmental Systems Approach Family Composition and Family Needs in Australia: What Makes a Family? Working with Families in Early Childhood Intervention: Family-Centred Practices in an Individualised Funding Landscape Family Systems and Family-Centred Intervention Practices in Portugal and Spain: Iberian Reflections on Early Childhood Intervention This book will attract the attention scholars of Parenting and Families; Child Development and Childcare.
Book Synopsis Handbook of Early Childhood Special Education by : Brian Reichow
Download or read book Handbook of Early Childhood Special Education written by Brian Reichow and published by Springer. This book was released on 2016-06-21 with total page 589 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook discusses early childhood special education (ECSE), with particular focus on evidence-based practices. Coverage spans core intervention areas in ECSE, such as literacy, motor skills, and social development as well as diverse contexts for services, including speech-language pathology, physical therapy, and pediatrics. Contributors offer strategies for planning, implementing, modifying, and adapting interventions to help young learners extend their benefits into the higher grades. Concluding chapters emphasize the importance of research in driving evidence-based practices (EBP). Topics featured in the Handbook include: Family-centered practices in early childhood intervention. The application of Response to Intervention (RtI) in young children with identified disabilities. Motor skills acquisition for young children with disabilities. Implementing evidence-based practices in ECSE classrooms. · Cultural, ethnic, and linguistic implications for ECSE. The Handbook of Early Childhood Special Education is a must-have resource for researchers, professors, upper-level undergraduate and graduate students, clinicians, and practitioners across such disciplines as child and school psychology, early childhood education, clinical social work, speech and physical therapy, developmental psychology, behavior therapy, and public health.
Book Synopsis Healthcare-Associated Infections in Children by : J. Chase McNeil
Download or read book Healthcare-Associated Infections in Children written by J. Chase McNeil and published by Springer. This book was released on 2018-10-30 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: With advances in technology and medical science, children with previously untreatable and often fatal conditions, such as congenital heart disease, extreme prematurity and pediatric malignancy, are living longer. While this is a tremendous achievement, pediatric providers are now more commonly facing challenges in these medical complex children both as a consequence of their underlying disease and the delivery of medical care. The term healthcare-associated infections (HAIs) encompass both infections that occur in the hospital and those that occur as a consequence of healthcare exposure and medical complexity in the outpatient setting. HAIs are associated with substantial morbidity and mortality for the individual patient as well as seriously taxing the healthcare system as a whole. In studies from the early 2000s, over 11% of all children in pediatric intensive care units develop HAIs and this figure increases substantially if neonatal intensive care units are considered. While progress has been made in decreasing the rates of HAI in the hospital, these infections remain a major burden on the medical system. In a study published in 2013, the annual estimated costs of the five most common HAIs in the United States totaled $9.8 billion. An estimated 648,000 patients developed HAIs in hospitals within the US in 2011 and children with healthcare-associated bloodstream infection have a greater than three-fold increased risk of death. While a number of texts discuss HAIs in the broader context of infectious diseases or pediatric infectious diseases (such as Mandell’s Principles and Practice of Infectious Diseases or Long and Pickering’s Principles and Practice of Pediatric Infectious Diseases) no single text specifically focuses on the epidemiology, diagnosis and management of HAI in children. Many infectious diseases texts are organized based on the microbiology of infection and from this starting point then discussing the clinical syndromes associated with the organism of interest. For instance, a chapter on Staphylococcus aureus may contain a brief discussion of the role of S. aureus in surgical site infections in the wider context of all staphylococcal disease. For clinicians caring for children at the bedside, however, the clinical syndrome is typically appreciated and intervention necessary prior to organism identification. We propose a text that details both the general principles involved in HAIs and infection prevention but also provides a problem oriented approach. Such a text would be of interest to intensivists, neonatologists, hospitalists, oncologists, infection preventionists and infectious diseases specialists. The proposed text will be divided into three principle sections: 1) Basic Principles of Infection Control and Prevention, 2) Major Infectious Syndromes and 3) Infections in Vulnerable Hosts. Chapters in the Major Infectious Syndromes section will include discussion of the epidemiology, microbiology, clinical features, diagnosis, medical management (or surgical management as appropriate) and prevention of the disease entity of interest. Chapters will seek to be evidenced based as much as possible drawing from the published medical literature as well as from clinical practice guidelines (such as those from the Infectious Diseases Society of America) when applicable. We intend to include tables, figures and algorithms as appropriate to assist clinicians in the evaluation and management of these often complex patients. Finally, we intend to invite authors to participate in this project from across a number of medical specialties including infectious diseases, infection control, critical care, oncology and surgery to provide a multidisciplinary understanding of disease. It is our intent to have many chapters be co-written by individuals in different subspecialties; for instance, a chapter on ventilator-associated pneumonia may be co-written by both infectious disease and critical care medicine specialists. Such a unique text has the potential to provide important guidance for clinicians caring for these often fragile children.
Book Synopsis From Neurons to Neighborhoods by : National Research Council
Download or read book From Neurons to Neighborhoods written by National Research Council and published by National Academies Press. This book was released on 2000-11-13 with total page 610 pages. Available in PDF, EPUB and Kindle. Book excerpt: How we raise young children is one of today's most highly personalized and sharply politicized issues, in part because each of us can claim some level of "expertise." The debate has intensified as discoveries about our development-in the womb and in the first months and years-have reached the popular media. How can we use our burgeoning knowledge to assure the well-being of all young children, for their own sake as well as for the sake of our nation? Drawing from new findings, this book presents important conclusions about nature-versus-nurture, the impact of being born into a working family, the effect of politics on programs for children, the costs and benefits of intervention, and other issues. The committee issues a series of challenges to decision makers regarding the quality of child care, issues of racial and ethnic diversity, the integration of children's cognitive and emotional development, and more. Authoritative yet accessible, From Neurons to Neighborhoods presents the evidence about "brain wiring" and how kids learn to speak, think, and regulate their behavior. It examines the effect of the climate-family, child care, community-within which the child grows.
Book Synopsis Guidelines on the Provision of Manual Wheelchairs in Less Resourced Settings by : World Health Organization, WHO
Download or read book Guidelines on the Provision of Manual Wheelchairs in Less Resourced Settings written by World Health Organization, WHO and published by . This book was released on 2008 with total page 127 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guidelines focus on manual wheelchairs and the needs of long-term wheelchair users. The recommendations are targeted at those involved in wheelchair services, ranging from design and planning, to providing or supplying wheelchairs and their maintenance.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309472245 Total Pages :351 pages Book Rating :4.3/5 (94 download)
Book Synopsis Opportunities for Improving Programs and Services for Children with Disabilities by : National Academies of Sciences, Engineering, and Medicine
Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Book Synopsis Understanding Families by : Marci J. Hanson
Download or read book Understanding Families written by Marci J. Hanson and published by Brookes Publishing Company. This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Meet the needs of today's diverse American families with the second edition of this cornerstone textbook for early childhood professionals. With timely NEW information on demographic changes, cultural and linguistic diversity, effects of the recession, and infant mental health.
