Expanding Access To Research Data

Download Expanding Access To Research Data full books in PDF, epub, and Kindle. Read online Expanding Access To Research Data ebook anywhere anytime directly on your device. Fast Download speed and no annoying ads. We cannot guarantee that every ebooks is available!

Expanding Access to Research Data

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309100127
Total Pages : 133 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Expanding Access to Research Data by : National Research Council

Download or read book Expanding Access to Research Data written by National Research Council and published by National Academies Press. This book was released on 2005-12-11 with total page 133 pages. Available in PDF, EPUB and Kindle. Book excerpt: Policy makers need information about the nationâ€"ranging from trends in the overall economy down to the use by individuals of Medicareâ€"in order to evaluate existing programs and to develop new ones. This information often comes from research based on data about individual people, households, and businesses and other organizations, collected by statistical agencies. The benefit of increasing data accessibility to researchers and analysts is better informed public policy. To realize this benefit, a variety of modes for data accessâ€" including restricted access to confidential data and unrestricted access to appropriately altered public-use dataâ€"must be used. The risk of expanded access to potentially sensitive data is the increased probability of breaching the confidentiality of the data and, in turn, eroding public confidence in the data collection enterprise. Indeed, the statistical system of the United States ultimately depends on the willingness of the public to provide the information on which research data are based. Expanding Access to Research Data issues guidance on how to more fully exploit these tradeoffs. The panel's recommendations focus on needs highlighted by legal, social, and technological changes that have occurred during the last decade.

Expanding Access to Research Data

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309164958
Total Pages : 132 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Expanding Access to Research Data by : National Research Council

Download or read book Expanding Access to Research Data written by National Research Council and published by National Academies Press. This book was released on 2005-11-11 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt: Policy makers need information about the nationâ€"ranging from trends in the overall economy down to the use by individuals of Medicareâ€"in order to evaluate existing programs and to develop new ones. This information often comes from research based on data about individual people, households, and businesses and other organizations, collected by statistical agencies. The benefit of increasing data accessibility to researchers and analysts is better informed public policy. To realize this benefit, a variety of modes for data accessâ€" including restricted access to confidential data and unrestricted access to appropriately altered public-use dataâ€"must be used. The risk of expanded access to potentially sensitive data is the increased probability of breaching the confidentiality of the data and, in turn, eroding public confidence in the data collection enterprise. Indeed, the statistical system of the United States ultimately depends on the willingness of the public to provide the information on which research data are based. Expanding Access to Research Data issues guidance on how to more fully exploit these tradeoffs. The panel's recommendations focus on needs highlighted by legal, social, and technological changes that have occurred during the last decade.

Improving Access to and Confidentiality of Research Data

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309171598
Total Pages : 74 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Improving Access to and Confidentiality of Research Data by : National Research Council

Download or read book Improving Access to and Confidentiality of Research Data written by National Research Council and published by National Academies Press. This book was released on 2000-08-11 with total page 74 pages. Available in PDF, EPUB and Kindle. Book excerpt: Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risksâ€"both absolute and relativeâ€"created by researchers and research data, as well as by other data users and other types of data.

Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309136849
Total Pages : 178 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age by : Institute of Medicine

Download or read book Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age written by Institute of Medicine and published by National Academies Press. This book was released on 2009-12-17 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: As digital technologies are expanding the power and reach of research, they are also raising complex issues. These include complications in ensuring the validity of research data; standards that do not keep pace with the high rate of innovation; restrictions on data sharing that reduce the ability of researchers to verify results and build on previous research; and huge increases in the amount of data being generated, creating severe challenges in preserving that data for long-term use. Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age examines the consequences of the changes affecting research data with respect to three issues - integrity, accessibility, and stewardship-and finds a need for a new approach to the design and the management of research projects. The report recommends that all researchers receive appropriate training in the management of research data, and calls on researchers to make all research data, methods, and other information underlying results publicly accessible in a timely manner. The book also sees the stewardship of research data as a critical long-term task for the research enterprise and its stakeholders. Individual researchers, research institutions, research sponsors, professional societies, and journals involved in scientific, engineering, and medical research will find this book an essential guide to the principles affecting research data in the digital age.

Managing Scientific Information and Research Data

Author : Svetla Baykoucheva
Publisher : Chandos Publishing
ISBN 13 : 0081002378
Total Pages : 162 pages
Book Rating : 4.0/5 (81 download)

DOWNLOAD NOW!

Book Synopsis Managing Scientific Information and Research Data by : Svetla Baykoucheva

Download or read book Managing Scientific Information and Research Data written by Svetla Baykoucheva and published by Chandos Publishing. This book was released on 2015-07-14 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Innovative technologies are changing the way research is performed, preserved, and communicated. Managing Scientific Information and Research Data explores how these technologies are used and provides detailed analysis of the approaches and tools developed to manage scientific information and data. Following an introduction, the book is then divided into 15 chapters discussing the changes in scientific communication; new models of publishing and peer review; ethics in scientific communication; preservation of data; discovery tools; discipline-specific practices of researchers for gathering and using scientific information; academic social networks; bibliographic management tools; information literacy and the information needs of students and researchers; the involvement of academic libraries in eScience and the new opportunities it presents to librarians; and interviews with experts in scientific information and publishing. Promotes innovative technologies for creating, sharing and managing scientific content Presents new models of scientific publishing, peer review, and dissemination of information Serves as a practical guide for researchers, students, and librarians on how to discover, filter, and manage scientific information Advocates for the adoption of unique author identifiers such as ORCID and ResearcherID Looks into new tools that make scientific information easy to discover and manage Shows what eScience is and why it is becoming a priority for academic libraries Demonstrates how Electronic Laboratory Notebooks can be used to record, store, share, and manage research data Shows how social media and the new area of Altmetrics increase researchers’ visibility and measure attention to their research Directs to sources for datasets Provides directions on choosing and using bibliographic management tools Critically examines the metrics used to evaluate research impact Aids strategic thinking and informs decision making

Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309147824
Total Pages : 179 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age by : Institute of Medicine

Download or read book Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age written by Institute of Medicine and published by National Academies Press. This book was released on 2009-11-17 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: As digital technologies are expanding the power and reach of research, they are also raising complex issues. These include complications in ensuring the validity of research data; standards that do not keep pace with the high rate of innovation; restrictions on data sharing that reduce the ability of researchers to verify results and build on previous research; and huge increases in the amount of data being generated, creating severe challenges in preserving that data for long-term use. Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age examines the consequences of the changes affecting research data with respect to three issues - integrity, accessibility, and stewardship-and finds a need for a new approach to the design and the management of research projects. The report recommends that all researchers receive appropriate training in the management of research data, and calls on researchers to make all research data, methods, and other information underlying results publicly accessible in a timely manner. The book also sees the stewardship of research data as a critical long-term task for the research enterprise and its stakeholders. Individual researchers, research institutions, research sponsors, professional societies, and journals involved in scientific, engineering, and medical research will find this book an essential guide to the principles affecting research data in the digital age.

Vaccine Safety Research, Data Access, and Public Trust

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309095913
Total Pages : 153 pages
Book Rating : 4.3/5 (9 download)

DOWNLOAD NOW!

Book Synopsis Vaccine Safety Research, Data Access, and Public Trust by : Institute of Medicine

Download or read book Vaccine Safety Research, Data Access, and Public Trust written by Institute of Medicine and published by National Academies Press. This book was released on 2005-05-29 with total page 153 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Vaccine Safety Datalink (VSD) is a large, linked database of patient information that was developed jointly by CDC and several private managed care organizations in 1991. It includes data on vaccination histories, health outcomes, and characteristics of more than 7 million patients of eight participating health organizations. Researchers from CDC and the managed care groups have used VSD information to study whether health problems are associated with vaccinations. The subsequent VSD data sharing program was launched in 2002 to allow independent, external researchers access to information in the database. In this report, the committee that was asked to review aspects of this program recommends that two new oversight groups are needed to ensure that the policies and procedures of the VSD and its data sharing program are implemented as fairly and openly as possible.

Public Access to Federally-funded Research

Author : United States. Congress. House. Committee on Oversight and Government Reform. Subcommittee on Information Policy, Census, and National Archives
Publisher :
ISBN 13 :
Total Pages : 168 pages
Book Rating : 4.:/5 (318 download)

DOWNLOAD NOW!

Book Synopsis Public Access to Federally-funded Research by : United States. Congress. House. Committee on Oversight and Government Reform. Subcommittee on Information Policy, Census, and National Archives

Download or read book Public Access to Federally-funded Research written by United States. Congress. House. Committee on Oversight and Government Reform. Subcommittee on Information Policy, Census, and National Archives and published by . This book was released on 2011 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Sharing Clinical Trial Data

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 304 pages
Book Rating : 4.3/5 (93 download)

DOWNLOAD NOW!

Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Innovations in Federal Statistics

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 030945428X
Total Pages : 151 pages
Book Rating : 4.3/5 (94 download)

DOWNLOAD NOW!

Book Synopsis Innovations in Federal Statistics by : National Academies of Sciences, Engineering, and Medicine

Download or read book Innovations in Federal Statistics written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-04-21 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: Federal government statistics provide critical information to the country and serve a key role in a democracy. For decades, sample surveys with instruments carefully designed for particular data needs have been one of the primary methods for collecting data for federal statistics. However, the costs of conducting such surveys have been increasing while response rates have been declining, and many surveys are not able to fulfill growing demands for more timely information and for more detailed information at state and local levels. Innovations in Federal Statistics examines the opportunities and risks of using government administrative and private sector data sources to foster a paradigm shift in federal statistical programs that would combine diverse data sources in a secure manner to enhance federal statistics. This first publication of a two-part series discusses the challenges faced by the federal statistical system and the foundational elements needed for a new paradigm.

Policy Guidelines for the Development and Promotion of Open Access

Author : Swan, Alma
Publisher : UNESCO Publishing
ISBN 13 : 9230010529
Total Pages : 79 pages
Book Rating : 4.2/5 (3 download)

DOWNLOAD NOW!

Book Synopsis Policy Guidelines for the Development and Promotion of Open Access by : Swan, Alma

Download or read book Policy Guidelines for the Development and Promotion of Open Access written by Swan, Alma and published by UNESCO Publishing. This book was released on 2012-04-10 with total page 79 pages. Available in PDF, EPUB and Kindle. Book excerpt: UNESCO issued this publication to demystify the concept of open access (OA) and to provide concrete steps on putting relevant policies in place. Its focus is on scientific research from peer-reviewed journal articles. Building capacities in Member States for Open Access is a necessary but not sufficient condition for promotion of the concept. Creating an enabling policy environment for OA is therefore a priority. This publication will serve the needs of OA policy development at the government, institutional and funding agency level. The overall objective of the Policy Guidelines is to promote Open Access in Member States by facilitating understanding of all relevant issues related to Open Access. The guidelines are not prescriptive in nature, but are suggestive to facilitate knowledge-based decision-making to adopt OA policies and strengthen national research systems.

The Case for International Sharing of Scientific Data

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309301572
Total Pages : 181 pages
Book Rating : 4.3/5 (93 download)

DOWNLOAD NOW!

Book Synopsis The Case for International Sharing of Scientific Data by : National Research Council

Download or read book The Case for International Sharing of Scientific Data written by National Research Council and published by National Academies Press. This book was released on 2013-01-11 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: The theme of this international symposium is the promotion of greater sharing of scientific data for the benefit of research and broader development, particularly in the developing world. This is an extraordinarily important topic. Indeed, I have devoted much of my own career to matters related to the concept of openness. I had the opportunity to promote and help build the open courseware program at the Massachusetts Institute of Technology (MIT). This program has made the teaching materials for all 2,000 subjects taught at MIT available on the Web for anyone, anywhere, to use anytime at no cost. In countries where basic broadband was not available, we shipped it in on hard drives and compact disks. Its impact has been worldwide, but it has surely had the greatest impact on the developing world. I am also a trustee of a nonprofit organization named Ithaca that operates Journal Storage (JSTOR) and other entities that make scholarly information available at very low cost. The culture of science has been international and open for centuries. Indeed, the scientific enterprise can only work when all information is open and accessible, because science works through critical analysis and replication of results. In recent years, as some scientific data, and especially technological data, have increased in economic value frequently has caused us to be far less open with information than business and free enterprise require us to be. Indeed, the worldwide shift to what is known as open innovation is strengthening every day. Finally, since the end of World War II, the realities of modern military conflict and now terrorism have led governments to restrict information through classification. This is important, but I believe that we classify far too much information. The last thing we need today, at the beginning of the twenty-first century, is further arbitrary limitations on the free flow of scientific information, whether by policies established by governments and businesses, or by lack of information infrastructure. For all these reasons, the international sharing of scientific data is one of the topics of great interest here at the National Academies and has been the subject of many of our past reports. This is the primary reason why this symposium has been co-organized by the NRC's Policy and Global Affairs Division-the Board on International Scientific Organizations (BISO) and the Board on Research Data and Information (BRDI). The Case for International Sharing of Scientific Data: A Focus on Developing Countries: Proceedings of a Symposium summarizes the symposium.

Opening Science

Author : Sönke Bartling
Publisher : Springer
ISBN 13 : 3319000268
Total Pages : 339 pages
Book Rating : 4.3/5 (19 download)

DOWNLOAD NOW!

Book Synopsis Opening Science by : Sönke Bartling

Download or read book Opening Science written by Sönke Bartling and published by Springer. This book was released on 2013-12-16 with total page 339 pages. Available in PDF, EPUB and Kindle. Book excerpt: Modern information and communication technologies, together with a cultural upheaval within the research community, have profoundly changed research in nearly every aspect. Ranging from sharing and discussing ideas in social networks for scientists to new collaborative environments and novel publication formats, knowledge creation and dissemination as we know it is experiencing a vigorous shift towards increased transparency, collaboration and accessibility. Many assume that research workflows will change more in the next 20 years than they have in the last 200. This book provides researchers, decision makers, and other scientific stakeholders with a snapshot of the basics, the tools, and the underlying visions that drive the current scientific (r)evolution, often called ‘Open Science.’

Sharing Publication-Related Data and Materials

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309168503
Total Pages : 120 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Sharing Publication-Related Data and Materials by : National Research Council

Download or read book Sharing Publication-Related Data and Materials written by National Research Council and published by National Academies Press. This book was released on 2003-04-17 with total page 120 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biologists communicate to the research community and document their scientific accomplishments by publishing in scholarly journals. This report explores the responsibilities of authors to share data, software, and materials related to their publications. In addition to describing the principles that support community standards for sharing different kinds of data and materials, the report makes recommendations for ways to facilitate sharing in the future.

Conducting Biosocial Surveys

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309161371
Total Pages : 125 pages
Book Rating : 4.3/5 (91 download)

DOWNLOAD NOW!

Book Synopsis Conducting Biosocial Surveys by : National Research Council

Download or read book Conducting Biosocial Surveys written by National Research Council and published by National Academies Press. This book was released on 2010-09-02 with total page 125 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis-all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies.

Research Data Management

Author : Joyce M. Ray
Publisher : Purdue University Press
ISBN 13 : 1557536643
Total Pages : 448 pages
Book Rating : 4.5/5 (575 download)

DOWNLOAD NOW!

Book Synopsis Research Data Management by : Joyce M. Ray

Download or read book Research Data Management written by Joyce M. Ray and published by Purdue University Press. This book was released on 2014 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: It has become increasingly accepted that important digital data must be retained and shared in order to preserve and promote knowledge, advance research in and across all disciplines of scholarly endeavor, and maximize the return on investment of public funds. To meet this challenge, colleges and universities are adding data services to existing infrastructures by drawing on the expertise of information professionals who are already involved in the acquisition, management and preservation of data in their daily jobs. Data services include planning and implementing good data management practices, thereby increasing researchers' ability to compete for grant funding and ensuring that data collections with continuing value are preserved for reuse. This volume provides a framework to guide information professionals in academic libraries, presses, and data centers through the process of managing research data from the planning stages through the life of a grant project and beyond. It illustrates principles of good practice with use-case examples and illuminates promising data service models through case studies of innovative, successful projects and collaborations.