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Evaluating Quality Of Death At The End Of Life In Neonates In The Nicu
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Book Synopsis Evaluating Quality of Death at the End of Life in Neonates in the NICU by : Christine A. Fortney
Download or read book Evaluating Quality of Death at the End of Life in Neonates in the NICU written by Christine A. Fortney and published by . This book was released on 2012 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt: Abstract: End-of-life (EOL) care for neonates admitted to the Neonatal Intensive Care Unit (NICU) is understudied and practice varies widely across centers and providers. We just do not have a clear understanding of those physiologic processes and other factors that can impact the quality of a neonatal death in the NICU. By not paying close attention to, and then not appropriately treating the symptoms the critically ill neonate expresses as death approaches, we may very well be depriving these infants and their families the opportunity for the "good" death one might hope for an infant.
Book Synopsis Why is End-of-Life Care Delivery Sporadic? by : Valerie Wright
Download or read book Why is End-of-Life Care Delivery Sporadic? written by Valerie Wright and published by . This book was released on 2009 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: According to the Center for Disease Control (CDC) Infant Mortality Statistics, 28,384 infants died in the United States in 2005. These 28,384 infants are most often given resuscitative measures in the delivery room and then brought to the Neonatal Intensive Care Unit (NICU) for further care and treatment; however, all infants do not survive, and it then becomes the responsibility of the NICU staff to provide end-of-life care for the infants and their families. The purpose of this research project was to evaluate the barriers to and facilitators of providing end-of-life care in order to gain a greater understanding of why end-of-life care is often sporadic. A convenience sample of 75 NICU nurses was utilized. There was a 66.7% response rate of nurses completing The Neonatal Palliative Care Attitude Scale questionnaire. This quantitative, descriptive study explored the barriers to and facilitators of neonatal nurses providing palliative care. This research study identified five barriers and eight facilitators to palliative care practice in the NICU. The five barriers were the inability to express opinions; values and beliefs regarding palliative care; less than ideal physical environment; technological imperatives; parental demands; and finally, lack of education. The eight facilitators were supportive medical staff; parental involvement of decisions; parents informed of options; support from medical team when palliative care; and available counseling. Upon review of these barriers and facilitators outlined in this study, the NICU can thoroughly evaluate palliative care practices and make needed changes based on the results. Further research is warranted regarding palliative care education implementation in the NICU.
Book Synopsis Neonatal Palliative Care for Nurses by : Alexandra Mancini
Download or read book Neonatal Palliative Care for Nurses written by Alexandra Mancini and published by Springer Nature. This book was released on 2020-01-22 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.
Book Synopsis Preterm Birth by : Institute of Medicine
Download or read book Preterm Birth written by Institute of Medicine and published by National Academies Press. This book was released on 2007-05-23 with total page 791 pages. Available in PDF, EPUB and Kindle. Book excerpt: The increasing prevalence of preterm birth in the United States is a complex public health problem that requires multifaceted solutions. Preterm birth is a cluster of problems with a set of overlapping factors of influence. Its causes may include individual-level behavioral and psychosocial factors, sociodemographic and neighborhood characteristics, environmental exposure, medical conditions, infertility treatments, and biological factors. Many of these factors co-occur, particularly in those who are socioeconomically disadvantaged or who are members of racial and ethnic minority groups. While advances in perinatal and neonatal care have improved survival for preterm infants, those infants who do survive have a greater risk than infants born at term for developmental disabilities, health problems, and poor growth. The birth of a preterm infant can also bring considerable emotional and economic costs to families and have implications for public-sector services, such as health insurance, educational, and other social support systems. Preterm Birth assesses the problem with respect to both its causes and outcomes. This book addresses the need for research involving clinical, basic, behavioral, and social science disciplines. By defining and addressing the health and economic consequences of premature birth, this book will be of particular interest to health care professionals, public health officials, policy makers, professional associations and clinical, basic, behavioral, and social science researchers.
Book Synopsis When Children Die by : Institute of Medicine
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Book Synopsis Advances in Neonatology by : Lucky Jain
Download or read book Advances in Neonatology written by Lucky Jain and published by Clinics: Internal Medicine. This book was released on 2009 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This issue of Pediatric Clinics offers an update on Advances in Neonatology. Guest Editors Drs. Lucky Jain and David Carlton have assembled a panel of world-class experts who offer reviews on topics including Trends in birthing, gestational age, birth weight and mortality in newborns; Late Prematurity; Advances in newborn resuscitation; Approaches to infants with congenital anomalies; Advances in neonatal surgery; Respiratory failure in the term and near term infant; Mechanical ventilation of the newborn; Pulmonary hypertension in the newborn; Bronchopulmonary dysplasia; Extracorporeal membrane oxygenation; Necrotising enterocolitis; Hyperbilirubinemia; Retinopathy of Prematurity; Surgical approaches to an infant with congenital heart disease; Hypoxic ischemic encephalopathy; Neonatal sepsis; and Quality improvement in neonatology.
Book Synopsis Reducing Birth Defects by : Institute of Medicine
Download or read book Reducing Birth Defects written by Institute of Medicine and published by National Academies Press. This book was released on 2003-10-27 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each year more than 4 million children are born with birth defects. This book highlights the unprecedented opportunity to improve the lives of children and families in developing countries by preventing some birth defects and reducing the consequences of others. A number of developing countries with more comprehensive health care systems are making significant progress in the prevention and care of birth defects. In many other developing countries, however, policymakers have limited knowledge of the negative impact of birth defects and are largely unaware of the affordable and effective interventions available to reduce the impact of certain conditions. Reducing Birth Defects: Meeting the Challenge in the Developing World includes descriptions of successful programs and presents a plan of action to address critical gaps in the understanding, prevention, and treatment of birth defects in developing countries. This study also recommends capacity building, priority research, and institutional and global efforts to reduce the incidence and impact of birth defects in developing countries.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309477891 Total Pages :399 pages Book Rating :4.3/5 (94 download)
Book Synopsis Crossing the Global Quality Chasm by : National Academies of Sciences, Engineering, and Medicine
Download or read book Crossing the Global Quality Chasm written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-01-27 with total page 399 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 2015, building on the advances of the Millennium Development Goals, the United Nations adopted Sustainable Development Goals that include an explicit commitment to achieve universal health coverage by 2030. However, enormous gaps remain between what is achievable in human health and where global health stands today, and progress has been both incomplete and unevenly distributed. In order to meet this goal, a deliberate and comprehensive effort is needed to improve the quality of health care services globally. Crossing the Global Quality Chasm: Improving Health Care Worldwide focuses on one particular shortfall in health care affecting global populations: defects in the quality of care. This study reviews the available evidence on the quality of care worldwide and makes recommendations to improve health care quality globally while expanding access to preventive and therapeutic services, with a focus in low-resource areas. Crossing the Global Quality Chasm emphasizes the organization and delivery of safe and effective care at the patient/provider interface. This study explores issues of access to services and commodities, effectiveness, safety, efficiency, and equity. Focusing on front line service delivery that can directly impact health outcomes for individuals and populations, this book will be an essential guide for key stakeholders, governments, donors, health systems, and others involved in health care.
Book Synopsis Perinatal Palliative Care by : Erin M. Denney-Koelsch
Download or read book Perinatal Palliative Care written by Erin M. Denney-Koelsch and published by Springer Nature. This book was released on 2020-02-05 with total page 443 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
Book Synopsis Disease Control Priorities, Third Edition (Volume 2) by : Robert Black
Download or read book Disease Control Priorities, Third Edition (Volume 2) written by Robert Black and published by World Bank Publications. This book was released on 2016-04-11 with total page 419 pages. Available in PDF, EPUB and Kindle. Book excerpt: The evaluation of reproductive, maternal, newborn, and child health (RMNCH) by the Disease Control Priorities, Third Edition (DCP3) focuses on maternal conditions, childhood illness, and malnutrition. Specifically, the chapters address acute illness and undernutrition in children, principally under age 5. It also covers maternal mortality, morbidity, stillbirth, and influences to pregnancy and pre-pregnancy. Volume 3 focuses on developments since the publication of DCP2 and will also include the transition to older childhood, in particular, the overlap and commonality with the child development volume. The DCP3 evaluation of these conditions produced three key findings: 1. There is significant difficulty in measuring the burden of key conditions such as unintended pregnancy, unsafe abortion, nonsexually transmitted infections, infertility, and violence against women. 2. Investments in the continuum of care can have significant returns for improved and equitable access, health, poverty, and health systems. 3. There is a large difference in how RMNCH conditions affect different income groups; investments in RMNCH can lessen the disparity in terms of both health and financial risk.
Book Synopsis Contemporary Bioethics by : Mohammed Ali Al-Bar
Download or read book Contemporary Bioethics written by Mohammed Ali Al-Bar and published by Springer. This book was released on 2015-05-27 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book discusses the common principles of morality and ethics derived from divinely endowed intuitive reason through the creation of al-fitr' a (nature) and human intellect (al-‘aql). Biomedical topics are presented and ethical issues related to topics such as genetic testing, assisted reproduction and organ transplantation are discussed. Whereas these natural sources are God’s special gifts to human beings, God’s revelation as given to the prophets is the supernatural source of divine guidance through which human communities have been guided at all times through history. The second part of the book concentrates on the objectives of Islamic religious practice – the maqa' sid – which include: Preservation of Faith, Preservation of Life, Preservation of Mind (intellect and reason), Preservation of Progeny (al-nasl) and Preservation of Property. Lastly, the third part of the book discusses selected topical issues, including abortion, assisted reproduction devices, genetics, organ transplantation, brain death and end-of-life aspects. For each topic, the current medical evidence is followed by a detailed discussion of the ethical issues involved.
Download or read book Baby at Risk written by Ruth Levy Guyer and published by Capital Books. This book was released on 2006 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: A riveting and disturbing investigation of how high-tech pregnancies and medical interventions affect the lives of babies born at-risk, their families, and society at large
Book Synopsis Interdisciplinary Pediatric Palliative Care by : Joanne Wolfe
Download or read book Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Oxford University Press. This book was released on 2022-01-11 with total page 625 pages. Available in PDF, EPUB and Kindle. Book excerpt: Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspective of the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work. Advance Praise for Interdisciplinary Pediatric Palliative Care, Second Edition "This new edition is as much a testament to pediatric palliative care's remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. It is a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice." - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate Foundation "This book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as we seek to provide the most compassionate care possible." - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Children's Hospital Medical Center
Book Synopsis Neuropalliative Care by : Claire J. Creutzfeldt
Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Book Synopsis Pediatric Palliative Care by : Betty Ferrell
Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Book Synopsis Too Expensive to Treat? by : Charles C. Camosy
Download or read book Too Expensive to Treat? written by Charles C. Camosy and published by Wm. B. Eerdmans Publishing. This book was released on 2010-12-21 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: The moral status of newborn infants -- Arguments against the social quality of life model -- The "weak" social quality of life model -- A constructive proposal for reforming the treatment and care of imperiled newborns.
Book Synopsis EBOOK: Attachment Narrative Therapy by : Rudi Dallos
Download or read book EBOOK: Attachment Narrative Therapy written by Rudi Dallos and published by McGraw-Hill Education (UK). This book was released on 2006-05-16 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: What are some of the central connections between narrative, systemic and attachment therapies? How do early emotional experiences in families shape our narratives about ourselves and our families? In what ways do family attachments shape our narrative abilities, such as being able to reflect on and integrate our experiences? This book sets out a framework for practice – Attachment Narrative Therapy – that provides a new approach to working with families, couples and individuals. This is not offered as a prescriptive model but as an aid and guide to practice that draws aspects of narrative and attachment therapy into systemic work. The synthesis of these ideas offers clinicians a new integrative way to approach their practice – one in which the three approaches are used to create a greater whole than their constituent parts. The book includes: Clinical examples Personal reflections Frameworks for clinical practice Therapeutic guides that include details of the application of core techniques Extensive reading guides that offer connections to related theory and practice Attachment Narrative Therapy is essential reading for a wide variety of therapists and counsellors along with researchers and trainers in those fields. It also provides insight into good practice for health and social welfare professionals in the area of family and child welfare.
