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Author : Kathleen Burlingame
Publisher : Library Juice Press
ISBN 13 : 9781634001335
Total Pages : 0 pages
Book Rating : 4.0/5 (13 download)
Download or read book Ethics in Linked Data written by Kathleen Burlingame and published by Library Juice Press. This book was released on 2022-12 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309185572
Total Pages : 176 pages
Book Rating : 4.3/5 (91 download)
Download or read book Putting People on the Map written by National Research Council and published by National Academies Press. This book was released on 2007-02-22 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Precise, accurate spatial information linked to social and behavioral data is revolutionizing social science by opening new questions for investigation and improving understanding of human behavior in its environmental context. At the same time, precise spatial data make it more likely that individuals can be identified, breaching the promise of confidentiality made when the data were collected. Because norms of science and government agencies favor open access to all scientific data, the tension between the benefits of open access and the risks associated with potential breach of confidentiality pose significant challenges to researchers, research sponsors, scientific institutions, and data archivists. Putting People on the Map finds that several technical approaches for making data available while limiting risk have potential, but none is adequate on its own or in combination. This book offers recommendations for education, training, research, and practice to researchers, professional societies, federal agencies, institutional review boards, and data stewards.
Author : Annika Richterich
Publisher : University of Westminster Press
ISBN 13 : 1911534734
Total Pages : 156 pages
Book Rating : 4.9/5 (115 download)
Download or read book The Big Data Agenda written by Annika Richterich and published by University of Westminster Press. This book was released on 2018-04-13 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.
Author : Gry Hasselbalch
Publisher :
ISBN 13 : 9788771920178
Total Pages : 202 pages
Book Rating : 4.9/5 (21 download)
Download or read book Data Ethics written by Gry Hasselbalch and published by . This book was released on 2016 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Mike Loukides
Publisher : "O'Reilly Media, Inc."
ISBN 13 : 1492078212
Total Pages : 37 pages
Book Rating : 4.4/5 (92 download)
Download or read book Ethics and Data Science written by Mike Loukides and published by "O'Reilly Media, Inc.". This book was released on 2018-07-25 with total page 37 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the impact of data science continues to grow on society there is an increased need to discuss how data is appropriately used and how to address misuse. Yet, ethical principles for working with data have been available for decades. The real issue today is how to put those principles into action. With this report, authors Mike Loukides, Hilary Mason, and DJ Patil examine practical ways for making ethical data standards part of your work every day. To help you consider all of possible ramifications of your work on data projects, this report includes: A sample checklist that you can adapt for your own procedures Five framing guidelines (the Five C’s) for building data products: consent, clarity, consistency, control, and consequences Suggestions for building ethics into your data-driven culture Now is the time to invest in a deliberate practice of data ethics, for better products, better teams, and better outcomes. Get a copy of this report and learn what it takes to do good data science today.
Author : Jane Sandberg
Publisher : Library Juice Press
ISBN 13 : 9781634000543
Total Pages : pages
Book Rating : 4.0/5 (5 download)
Download or read book Ethical Questions in Name Authority Control written by Jane Sandberg and published by Library Juice Press. This book was released on 2018-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Explores and develops a framework for the ethical practice of name authority control, through theoretical and practice-based essays, stories, content analyses, and other methods
Author : Carolyn Adams
Publisher : Cambridge University Press
ISBN 13 : 1108619916
Total Pages : 279 pages
Book Rating : 4.1/5 (86 download)
Download or read book Sharing Linked Data for Health Research written by Carolyn Adams and published by Cambridge University Press. This book was released on 2022-06-09 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
Author : Luciano Floridi
Publisher :
ISBN 13 : 9781013273506
Total Pages : 198 pages
Book Rating : 4.2/5 (735 download)
Download or read book The Ethics of Medical Data Donation written by Luciano Floridi and published by . This book was released on 2020-10-08 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one's own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.
Author : Sherif Sakr
Publisher : Springer
ISBN 13 : 3319735152
Total Pages : 223 pages
Book Rating : 4.3/5 (197 download)
Download or read book Linked Data written by Sherif Sakr and published by Springer. This book was released on 2018-03-01 with total page 223 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes efficient and effective techniques for harnessing the power of Linked Data by tackling the various aspects of managing its growing volume: storing, querying, reasoning, provenance management and benchmarking. To this end, Chapter 1 introduces the main concepts of the Semantic Web and Linked Data and provides a roadmap for the book. Next, Chapter 2 briefly presents the basic concepts underpinning Linked Data technologies that are discussed in the book. Chapter 3 then offers an overview of various techniques and systems for centrally querying RDF datasets, and Chapter 4 outlines various techniques and systems for efficiently querying large RDF datasets in distributed environments. Subsequently, Chapter 5 explores how streaming requirements are addressed in current, state-of-the-art RDF stream data processing. Chapter 6 covers performance and scaling issues of distributed RDF reasoning systems, while Chapter 7 details benchmarks for RDF query engines and instance matching systems. Chapter 8 addresses the provenance management for Linked Data and presents the different provenance models developed. Lastly, Chapter 9 offers a brief summary, highlighting and providing insights into some of the open challenges and research directions. Providing an updated overview of methods, technologies and systems related to Linked Data this book is mainly intended for students and researchers who are interested in the Linked Data domain. It enables students to gain an understanding of the foundations and underpinning technologies and standards for Linked Data, while researchers benefit from the in-depth coverage of the emerging and ongoing advances in Linked Data storing, querying, reasoning, and provenance management systems. Further, it serves as a starting point to tackle the next research challenges in the domain of Linked Data management.
Author : Christian Chiarcos
Publisher : Springer Science & Business Media
ISBN 13 : 3642282490
Total Pages : 218 pages
Book Rating : 4.6/5 (422 download)
Download or read book Linked Data in Linguistics written by Christian Chiarcos and published by Springer Science & Business Media. This book was released on 2012-02-21 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: The explosion of information technology has led to substantial growth of web-accessible linguistic data in terms of quantity, diversity and complexity. These resources become even more useful when interlinked with each other to generate network effects. The general trend of providing data online is thus accompanied by newly developing methodologies to interconnect linguistic data and metadata. This includes linguistic data collections, general-purpose knowledge bases (e.g., the DBpedia, a machine-readable edition of the Wikipedia), and repositories with specific information about languages, linguistic categories and phenomena. The Linked Data paradigm provides a framework for interoperability and access management, and thereby allows to integrate information from such a diverse set of resources. The contributions assembled in this volume illustrate the band-width of applications of the Linked Data paradigm for representative types of language resources. They cover lexical-semantic resources, annotated corpora, typological databases as well as terminology and metadata repositories. The book includes representative applications from diverse fields, ranging from academic linguistics (e.g., typology and corpus linguistics) over applied linguistics (e.g., lexicography and translation studies) to technical applications (in computational linguistics, Natural Language Processing and information technology). This volume accompanies the Workshop on Linked Data in Linguistics 2012 (LDL-2012) in Frankfurt/M., Germany, organized by the Open Linguistics Working Group (OWLG) of the Open Knowledge Foundation (OKFN). It assembles contributions of the workshop participants and, beyond this, it summarizes initial steps in the formation of a Linked Open Data cloud of linguistic resources, the Linguistic Linked Open Data cloud (LLOD).
Author : Samiksha Shukla
Publisher : Springer Nature
ISBN 13 : 9811907528
Total Pages : 91 pages
Book Rating : 4.8/5 (119 download)
Download or read book Data Ethics and Challenges written by Samiksha Shukla and published by Springer Nature. This book was released on 2022-03-31 with total page 91 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gives a thorough and systematic introduction to Data, Data Sources, Dimensions of Data, Privacy, and Security Challenges associated with Data, Ethics, Laws, IPR Copyright, and Technology Law. This book will help students, scholars, and practitioners to understand the challenges while dealing with data and its ethical and legal aspects. The book focuses on emerging issues while working with the Data.
Author : Aidan Hogan
Publisher : Springer Nature
ISBN 13 : 303051580X
Total Pages : 689 pages
Book Rating : 4.0/5 (35 download)
Download or read book The Web of Data written by Aidan Hogan and published by Springer Nature. This book was released on 2020-09-09 with total page 689 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book’s main goals are to bring together in a concise way all the methodologies, standards and recommendations related to Data, Queries, Links, Semantics, Validation and other issues concerning machine-readable data on the Web, to describe them in detail, to provide examples of their use, and to discuss how they contribute to – and how they have been used thus far on – the “Web of Data”. As the content of the Web becomes increasingly machine readable, increasingly complex tasks can be automated, yielding more and more powerful Web applications that are capable of discovering, cross-referencing, filtering, and organizing data from numerous websites in a matter of seconds. The book is divided into nine chapters, the first of which introduces the topic by discussing the shortcomings of the current Web and illustrating the need for a Web of Data. Next, “Web of Data” provides an overview of the fundamental concepts involved, and discusses some current use-cases on the Web where such concepts are already being employed. “Resource Description Framework (RDF)” describes the graph-structured data model proposed by the Semantic Web community as a common data model for the Web. The chapter on “RDF Schema (RDFS) and Semantics” presents a lightweight ontology language used to define an initial semantics for terms used in RDF graphs. In turn, the chapter “Web Ontology Language (OWL)” elaborates on a more expressive ontology language built upon RDFS that offers much more powerful ontological features. In “SPARQL Query Language” a language for querying and updating RDF graphs is described, with examples of the features it supports, supplemented by a detailed definition of its semantics. “Shape Constraints and Expressions (SHACL/ShEx)” introduces two languages for describing the expected structure of – and expressing constraints on – RDF graphs for the purposes of validation. “Linked Data” discusses the principles and best practices proposed by the Linked Data community for publishing interlinked (RDF) data on the Web, and how these techniques have been adopted. The final chapter highlights open problems and rounds out the coverage with a more general discussion on the future of the Web of Data. The book is intended for students, researchers and advanced practitioners interested in learning more about the Web of Data, and about closely related topics such as the Semantic Web, Knowledge Graphs, Linked Data, Graph Databases, Ontologies, etc. Offering a range of accessible examples and exercises, it can be used as a textbook for students and other newcomers to the field. It can also serve as a reference handbook for researchers and developers, as it offers up-to-date details on key standards (RDF, RDFS, OWL, SPARQL, SHACL, ShEx, RDB2RDF, LDP), along with formal definitions and references to further literature. The associated website webofdatabook.org offers a wealth of complementary material, including solutions to the exercises, slides for classes, raw data for examples, and a section for comments and questions.
Author : Carolyn Adams
Publisher : Cambridge University Press
ISBN 13 : 1108426646
Total Pages : 279 pages
Book Rating : 4.1/5 (84 download)
Download or read book Sharing Linked Data for Health Research written by Carolyn Adams and published by Cambridge University Press. This book was released on 2022-06-09 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide to reform of the regulatory environment for access to government held data for research.
Author : Brent Daniel Mittelstadt
Publisher : Springer
ISBN 13 : 3319335251
Total Pages : 480 pages
Book Rating : 4.3/5 (193 download)
Download or read book The Ethics of Biomedical Big Data written by Brent Daniel Mittelstadt and published by Springer. This book was released on 2016-08-03 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
ISBN 13 : 1587634333
Total Pages : 396 pages
Book Rating : 4.5/5 (876 download)
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author : Terhi Nurmikko-Fuller
Publisher : Taylor & Francis
ISBN 13 : 1000929795
Total Pages : 144 pages
Book Rating : 4.0/5 (9 download)
Download or read book Linked Data for Digital Humanities written by Terhi Nurmikko-Fuller and published by Taylor & Francis. This book was released on 2023-08-18 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Linked Data for Digital Humanities provides insights into how digital technologies can enrich and diversify humanities scholarship and make it pioneering in the digital age. Written in non-specialist language, the book illustrates how information is captured, published, represented, accessed, and interpreted using computational systems and, in doing so, shows how technologies actively shape the way we understand what we encounter. Focusing as it does on underlying Web architecture and projects accessible online, the book has an inherently international focus. The interdisciplinary case study examples include bibliographic data from works published in England between 1470 and 1700; literature from ancient Iraq; jazz performances, predominantly from the USA in the 1930s; and even reach as far as an alien, fictional future. Whilst these case study examples span vast spatio-temporal distances, they all share a common thread in the use of the Linked Data information publication paradigm. Using existing computer science methods, as well as processes such as ontology development and database design, the book also includes reflections on practical considerations and offers advice about how to take institutional policies, socio-cultural sensitivities, and economic models into consideration when implementing Linked Data projects. Linked Data for Digital Humanities discusses technological issues in the context of Humanities scholarship, bridging disciplines and enabling informed conversations across disciplinary boundaries. It will be of interest to humanities scholars, computer and data scientists, and library and information scientists.
Author : Sören Auer
Publisher : Springer
ISBN 13 : 3319098462
Total Pages : 218 pages
Book Rating : 4.3/5 (19 download)
Download or read book Linked Open Data -- Creating Knowledge Out of Interlinked Data written by Sören Auer and published by Springer. This book was released on 2014-07-31 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: Linked Open Data (LOD) is a pragmatic approach for realizing the Semantic Web vision of making the Web a global, distributed, semantics-based information system. This book presents an overview on the results of the research project “LOD2 -- Creating Knowledge out of Interlinked Data”. LOD2 is a large-scale integrating project co-funded by the European Commission within the FP7 Information and Communication Technologies Work Program. Commencing in September 2010, this 4-year project comprised leading Linked Open Data research groups, companies, and service providers from across 11 European countries and South Korea. The aim of this project was to advance the state-of-the-art in research and development in four key areas relevant for Linked Data, namely 1. RDF data management; 2. the extraction, creation, and enrichment of structured RDF data; 3. the interlinking and fusion of Linked Data from different sources and 4. the authoring, exploration and visualization of Linked Data.
