Digital Healthcare And Expertise

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Digital Health and Patient Data

Author : Disa Lee Choun
Publisher : CRC Press
ISBN 13 : 1000620719
Total Pages : 152 pages
Book Rating : 4.0/5 (6 download)

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Book Synopsis Digital Health and Patient Data by : Disa Lee Choun

Download or read book Digital Health and Patient Data written by Disa Lee Choun and published by CRC Press. This book was released on 2022-08-03 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patients with unmet needs will continue to increase as no viable nor adequate treatment exists. Meanwhile, healthcare systems are struggling to cope with the rise of patients with chronic diseases, the ageing population and the increasing cost of drugs. What if there is a faster and less expensive way to provide better care for patients using the right digital solutions and transforming the growing volumes of health data into insights? The increase of digital health has grown exponentially in the last few years. Why is there a slow uptake of these new digital solutions in the healthcare and pharmaceutical industries? One of the key reasons is that patients are often left out of the innovation process. Their data are used without their knowledge, solutions designed for them are developed without their input and healthcare professionals refuse their expertise. This book explores what it means to empower patients in a digital world and how this empowerment will bridge the gap between science, technology and patients. All these components need to co-exist to bring value not only to the patients themselves but to improve the healthcare ecosystem. Patients have taken matters into their own hands. Some are equipped with the latest wearables and applications, engaged in improving their health using data, empowered to make informed decisions and ultimately are experts in their disease(s). They are the e-patients. The other side of the spectrum are patients with minimal digital literacy but equally willing to donate their data for the purpose of research. Finding the right balance when using digital health solutions becomes as critical as the need to develop a disease-specific solution. For the first time, the authors look at healthcare and technologies through the lens of patients and physicians via surveys and interviews in order to understand their perspective on digital health, analyse the benefits for them, explore how they can actively engage in the innovation process, and identify the threats and opportunities the large volumes of data create by digitizing healthcare. Are patients truly ready to know everything about their health? What is the value of their data? How can other stakeholders join the patient empowerment movement? This unique perspective will help us re-design the future of healthcare - an industry in desperate need for a change.

Healthcare Digital Transformation

Author : Edward W. Marx
Publisher : CRC Press
ISBN 13 : 1000097757
Total Pages : 130 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Healthcare Digital Transformation by : Edward W. Marx

Download or read book Healthcare Digital Transformation written by Edward W. Marx and published by CRC Press. This book was released on 2020-08-02 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a reference guide for healthcare executives and technology providers involved in the ongoing digital transformation of the healthcare sector. The book focuses specifically on the challenges and opportunities for health systems in their journey toward a digital future. It draws from proprietary research and public information, along with interviews with over one hundred and fifty executives in leading health systems such as Cleveland Clinic, Partners, Mayo, Kaiser, and Intermountain as well as numerous technology and retail providers. The authors explore the important role of technology and that of EHR systems, digital health innovators, and big tech firms in the ongoing digital transformation of healthcare. Importantly, the book draws on the accelerated learnings of the healthcare sector during the COVID-19 pandemic in their digital transformation efforts to adopt telehealth and virtual care models. Features of this book: Provides an understanding of the current state of digital transformation and the factors influencing the ongoing transformation of the healthcare sector. Includes interviews with executives from leading health systems. Describes the important role of emerging technologies; EHR systems, digital health innovators, and more. Includes case studies from innovative health organizations. Provides a set of templates and frameworks for developing and implementing a digital roadmap. Based on best practices from real-life examples, the book is a guidebook that provides a set of templates and frameworks for digital transformation practitioners in healthcare.

Digital Health Entrepreneurship

Author : Sharon Wulfovich
Publisher : Springer
ISBN 13 : 3030127192
Total Pages : 226 pages
Book Rating : 4.0/5 (31 download)

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Book Synopsis Digital Health Entrepreneurship by : Sharon Wulfovich

Download or read book Digital Health Entrepreneurship written by Sharon Wulfovich and published by Springer. This book was released on 2019-06-20 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents a hands on approach to the digital health innovation and entrepreneurship roadmap for digital health entrepreneurs and medical professionals who are dissatisfied with the existing literature on or are contemplating getting involved in digital health entrepreneurship. Topics covered include regulatory affairs featuring detailed guidance on the legal environment, protecting digital health intellectual property in software, hardware and business processes, financing a digital health start up, cybersecurity best practice, and digital health business model testing for desirability, feasibility, and viability. Digital Health Entrepreneurship is directed to clinicians and other digital health entrepreneurs and stresses an interdisciplinary approach to product development, deployment, dissemination and implementation. It therefore provides an ideal resource for medical professionals across a broad range of disciplines seeking a greater understanding of digital health innovation and entrepreneurship.

Digital Healthcare and Expertise

Author : Claudia Egher
Publisher : Springer Nature
ISBN 13 : 9811691789
Total Pages : 264 pages
Book Rating : 4.8/5 (116 download)

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Book Synopsis Digital Healthcare and Expertise by : Claudia Egher

Download or read book Digital Healthcare and Expertise written by Claudia Egher and published by Springer Nature. This book was released on 2022-12-02 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book explores how expertise about bipolar disorder is performed on American and French digital platforms by combining insights from STS, medical sociology and media studies. It addresses topical questions, including: How do different stakeholders engage with online technologies to perform expertise about bipolar disorder? How does the use of the internet for processes of knowledge evaluation and production allow for people diagnosed with bipolar disorder to reposition themselves in relation to medical professionals? How do cultural markers shape the online performance of expertise about bipolar disorder? And what individualizing or collectivity-generating effects does the internet have in relation to the performance of expertise? The book constitutes a critical and nuanced intervention into dominant discourses which approach the internet either as a quick technological fix or as a postmodern version of Pandora’s box, sowing distrust among people and threatening unified conceptualizations and organized forms of knowledge.

Digital Innovations in Healthcare Education and Training

Author : Stathis Th Konstantinidis
Publisher : Academic Press
ISBN 13 : 0128131454
Total Pages : 214 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Digital Innovations in Healthcare Education and Training by : Stathis Th Konstantinidis

Download or read book Digital Innovations in Healthcare Education and Training written by Stathis Th Konstantinidis and published by Academic Press. This book was released on 2020-09-08 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: Digital Innovations in Healthcare Education and Training discusses and debates the contemporary knowledge on the evolution of digital education, learning and the web and its integration and role within modern healthcare education and training. The book encompasses topics such as healthcare and medical education theories and methodologies, social learning as a formal and informal digital innovation, and the role of semantics in digital education. In addition, it examines how simulation, serious games, and virtual patients change learnings in healthcare, and how learning analytics and big data in healthcare education leads to personalized learning. Online pedagogy principles and applications, participatory educational design and educational technology as health intervention are bridged together to complement this collaborative effort. This book is a valuable resource for a broad audience, both technical and non-technical, including healthcare and medical tutors, health professionals, clinicians, web scientists, engineers, computer scientists and any other relevant professional interested in using and creating digital innovations for healthcare education and training. Provides contemporary knowledge on the evolution of learning technologies and the web and its integration and role within modern healthcare education and training Discusses the latest digital innovation in healthcare education and training, thus enabling all type of readers to apply best practices Encompasses a cross-theme, scholarly explanation based on successful cases which provides a deep knowledge experience into digital innovation in healthcare education and training

The Role of Telehealth in an Evolving Health Care Environment

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309262054
Total Pages : 159 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis The Role of Telehealth in an Evolving Health Care Environment by : Institute of Medicine

Download or read book The Role of Telehealth in an Evolving Health Care Environment written by Institute of Medicine and published by National Academies Press. This book was released on 2012-11-20 with total page 159 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1996, the Institute of Medicine (IOM) released its report Telemedicine: A Guide to Assessing Telecommunications for Health Care. In that report, the IOM Committee on Evaluating Clinical Applications of Telemedicine found telemedicine is similar in most respects to other technologies for which better evidence of effectiveness is also being demanded. Telemedicine, however, has some special characteristics-shared with information technologies generally-that warrant particular notice from evaluators and decision makers. Since that time, attention to telehealth has continued to grow in both the public and private sectors. Peer-reviewed journals and professional societies are devoted to telehealth, the federal government provides grant funding to promote the use of telehealth, and the private technology industry continues to develop new applications for telehealth. However, barriers remain to the use of telehealth modalities, including issues related to reimbursement, licensure, workforce, and costs. Also, some areas of telehealth have developed a stronger evidence base than others. The Health Resources and Service Administration (HRSA) sponsored the IOM in holding a workshop in Washington, DC, on August 8-9 2012, to examine how the use of telehealth technology can fit into the U.S. health care system. HRSA asked the IOM to focus on the potential for telehealth to serve geographically isolated individuals and extend the reach of scarce resources while also emphasizing the quality and value in the delivery of health care services. This workshop summary discusses the evolution of telehealth since 1996, including the increasing role of the private sector, policies that have promoted or delayed the use of telehealth, and consumer acceptance of telehealth. The Role of Telehealth in an Evolving Health Care Environment: Workshop Summary discusses the current evidence base for telehealth, including available data and gaps in data; discuss how technological developments, including mobile telehealth, electronic intensive care units, remote monitoring, social networking, and wearable devices, in conjunction with the push for electronic health records, is changing the delivery of health care in rural and urban environments. This report also summarizes actions that the U.S. Department of Health and Human Services (HHS) can undertake to further the use of telehealth to improve health care outcomes while controlling costs in the current health care environment.

Consumer Informatics and Digital Health

Author : Margo Edmunds
Publisher : Springer
ISBN 13 : 3319969064
Total Pages : 408 pages
Book Rating : 4.3/5 (199 download)

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Book Synopsis Consumer Informatics and Digital Health by : Margo Edmunds

Download or read book Consumer Informatics and Digital Health written by Margo Edmunds and published by Springer. This book was released on 2019-01-17 with total page 408 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique collection synthesizes insights and evidence from innovators in consumer informatics and highlights the technical, behavioral, social, and policy issues driving digital health today and in the foreseeable future. Consumer Informatics and Digital Health presents the fundamentals of mobile health, reviews the evidence for consumer technology as a driver of health behavior change, and examines user experience and real-world technology design challenges and successes. Additionally, it identifies key considerations for successfully engaging consumers in their own care, considers the ethics of using personal health information in research, and outlines implications for health system redesign. The editors’ integrative systems approach heralds a future of technological advances tempered by best practices drawn from today’s critical policy goals of patient engagement, community health promotion, and health equity. Here’s the inside view of consumer health informatics and key digital fields that students and professionals will find inspiring, informative, and thought-provoking. Included among the topics: • Healthcare social media for consumer informatics • Understanding usability, accessibility, and human-centered design principles • Understanding the fundamentals of design for motivation and behavior change • Digital tools for parents: innovations in pediatric urgent care • Behavioral medicine and informatics in the cancer community • Content strategy: writing for health consumers on the web • Open science and the future of data analytics • Digital approaches to engage consumers in value-based purchasing Consumer Informatics and Digital Health takes an expansive view of the fields influencing consumer informatics and offers practical case-based guidance for a broad range of audiences, including students, educators, researchers, journalists, and policymakers interested in biomedical informatics, mobile health, information science, and population health. It has as much to offer readers in clinical fields such as medicine, nursing, and psychology as it does to those engaged in digital pursuits.

Health, Technology and Society

Author : Andrew Webster
Publisher : Springer Nature
ISBN 13 : 9811543542
Total Pages : 338 pages
Book Rating : 4.8/5 (115 download)

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Book Synopsis Health, Technology and Society by : Andrew Webster

Download or read book Health, Technology and Society written by Andrew Webster and published by Springer Nature. This book was released on 2020-07-06 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book celebrates and captures examples of the excellent scholarship that Palgrave’s Health, Technology, and Society Series has published since 2006, and reflects on how the field has developed over this time. As a collection of readings drawn from twenty-two books, it is organized around five themes: Innovation, Responsibility, Locus of Care, Knowledge Production, and Regulation and Governance. Structured in this way, the book gives the reader a concise but nonetheless rich guide to the core issues and debates within the field. Complementing these narratives, the original authors have provided new reflection pieces on their texts and on their current work. This then is a book which in part looks back but also looks forward to emerging issues at the intersection of health, technology, and society. It uniquely encompasses and presents a range of expertise in a novel way that is both timely and accessible for students and others new to the field.

Digital Health

Author : Shabbir Syed-Abdul
Publisher : Elsevier
ISBN 13 : 0128200782
Total Pages : 234 pages
Book Rating : 4.1/5 (282 download)

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Book Synopsis Digital Health by : Shabbir Syed-Abdul

Download or read book Digital Health written by Shabbir Syed-Abdul and published by Elsevier. This book was released on 2020-11-14 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt: Digital Health: Mobile and Wearable Devices for Participatory Health Applications is a key reference for engineering and clinical professionals considering the development or implementation of mobile and wearable solutions in the healthcare domain. The book presents a comprehensive overview of devices and appropriateness for the respective applications. It also explores the ethical, privacy, and cybersecurity aspects inherent in networked and mobile technologies. It offers expert perspectives on various approaches to the implementation and integration of these devices and applications across all areas of healthcare. The book is designed with a multidisciplinary audience in mind; from software developers and biomedical engineers who are designing these devices to clinical professionals working with patients and engineers on device testing, human factors design, and user engagement/compliance. Presents an overview of important aspects of digital health, from patient privacy and data security to the development and implementation of networks, systems, and devices Provides a toolbox for stakeholders involved in the decision-making regarding the design, development, and implementation of mHealth solutions Offers case studies, key references, and insights from a wide range of global experts

Roadmap to Successful Digital Health Ecosystems

Author : Evelyn Hovenga
Publisher : Academic Press
ISBN 13 : 0128236396
Total Pages : 612 pages
Book Rating : 4.1/5 (282 download)

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Book Synopsis Roadmap to Successful Digital Health Ecosystems by : Evelyn Hovenga

Download or read book Roadmap to Successful Digital Health Ecosystems written by Evelyn Hovenga and published by Academic Press. This book was released on 2022-02-12 with total page 612 pages. Available in PDF, EPUB and Kindle. Book excerpt: Roadmap to Successful Digital Health Ecosystems: A Global Perspective presents evidence-based solutions found on adopting open platforms, standard information models, technology neutral data repositories, and computable clinical data and knowledge (ontologies, terminologies, content models, process models, and guidelines), resulting in improved patient, organizational, and global health outcomes. The book helps engaging countries and stakeholders take action and commit to a digital health strategy, create a global environment and processes that will facilitate and induce collaboration, develop processes for monitoring and evaluating national digital health strategies, and enable learnings to be shared in support of WHO’s global strategy for digital health. The book explains different perspectives and local environments for digital health implementation, including data/information and technology governance, secondary data use, need for effective data interpretation, costly adverse events, models of care, HR management, workforce planning, system connectivity, data sharing and linking, small and big data, change management, and future vision. All proposed solutions are based on real-world scientific, social, and political evidence. Provides a roadmap, based on examples already in place, to develop and implement digital health systems on a large-scale that are easily reproducible in different environments Addresses World Health Organization (WHO)-identified research gaps associated with the feasibility and effectiveness of various digital health interventions Helps readers improve future decision-making within a digital environment by detailing insights into the complexities of the health system Presents evidence from real-world case studies from multiple countries to discuss new skills that suit new paradigms

The Digital Reconstruction of Healthcare

Author : Paul Cerrato
Publisher : CRC Press
ISBN 13 : 1000397238
Total Pages : 150 pages
Book Rating : 4.0/5 (3 download)

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Book Synopsis The Digital Reconstruction of Healthcare by : Paul Cerrato

Download or read book The Digital Reconstruction of Healthcare written by Paul Cerrato and published by CRC Press. This book was released on 2021-06-07 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt: The complex challenges facing healthcare require innovative solutions that can make patient care more effective, easily available, and affordable. One such solution is the digital reconstruction of medicine that transitions much of patient care from hospitals, clinics, and offices to a variety of virtual settings. This reconstruction involves telemedicine, hospital-at-home services, mobile apps, remote sensing devices, clinical data analytics, and other cutting-edge technologies. The Digital Reconstruction of Healthcare: Transitioning from Brick and Mortar to Virtual Care takes a deep dive into these tools and how they can transform medicine to meet the unique needs of patients across the globe. This book enables readers to peer into the very near future and prepare them for the opportunities afforded by the digital shift in healthcare. It is also a wake-up call to readers who are less than enthusiastic about these digital tools and helps them to realize the cost of ignoring these tools. It is written for a wide range of medical professionals including: Physicians, nurses, and entrepreneurs who want to understand how to use or develop digital products and services IT managers who need to fold these tools into existing computer networks at hospitals, clinics, and medical offices Healthcare executives who decide how to invest in these platforms and products Insurers who need to stay current on the latest trends and the evidence to support their cost effectiveness Filled with insights from international experts, this book also features Dr. John Halamka’s lessons learned from years of international consulting with government officials on digital health. It also taps into senior research analyst Paul Cerrato’s expertise in AI, data analytics, and machine learning. Combining these lessons learned with an in-depth analysis of clinical informatics research, this book aims to separate hyped AI "solutions" from evidence-based digital tools. Together, these two pillars support the contention that these technologies can, in fact, help solve many of the seemingly intractable problems facing healthcare providers and patients.

Opportunities and Challenges in Digital Healthcare Innovation

Author : Sandhu, Kamaljeet
Publisher : IGI Global
ISBN 13 : 1799832759
Total Pages : 261 pages
Book Rating : 4.7/5 (998 download)

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Book Synopsis Opportunities and Challenges in Digital Healthcare Innovation by : Sandhu, Kamaljeet

Download or read book Opportunities and Challenges in Digital Healthcare Innovation written by Sandhu, Kamaljeet and published by IGI Global. This book was released on 2020-06-26 with total page 261 pages. Available in PDF, EPUB and Kindle. Book excerpt: Digital health has faced obstacles from poor IT systems implementation to lack of consumer acceptance. Very little is known about the management, development, and design of digital health projects, the level of IT adoption, and the role of digital leadership that is needed to successfully drive health projects. Digital health, if successfully implemented, offers tremendous opportunities in health data analytics for consumers of health services and service providers that include health information portability, personalization of health information by consumers, easy access and usefulness of health information, and better management of electronic data records by health institutions and the government. Research suggests that despite assurances provided to consumers, digital information security and digital health innovation have been a challenge and are only slowly being accepted. Opportunities and Challenges in Digital Healthcare Innovation is an innovative research publication that identifies digital health innovation opportunities and obstacles and proposes frameworks and conceptual models for digital health innovation that empowers consumers of digital health to use the information to make informed decisions and choices. Highlighting topics such as data analytics, health regulations, and telehealth, this book is ideal for IT consultants, medical software developers, data scientists, hospital administrators, medical practitioners, policymakers, academicians, researchers, and students.

Diabetes Digital Health

Author : David C. Klonoff
Publisher : Elsevier
ISBN 13 : 0128174862
Total Pages : 311 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Diabetes Digital Health by : David C. Klonoff

Download or read book Diabetes Digital Health written by David C. Klonoff and published by Elsevier. This book was released on 2020-04-04 with total page 311 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diabetes Digital Health brings together the multifaceted information surrounding the science of digital health from an academic, regulatory, industrial, investment and cybersecurity perspective. Clinicians and researchers who are developing and evaluating mobile apps for diabetes patients will find this essential reading, as will industry people whose companies are developing mobile apps and sensors. Provides valuable information for clinicians, researchers and industry about the design and evaluation of patient-facing diabetes adherence technologies Highlights cutting-edge topics that are presented and discussed at the Digital Diabetes Congress

The Digital Reconstruction of Healthcare

Author : Paul Cerrato
Publisher : Himss Publishing
ISBN 13 : 9781032015132
Total Pages : 176 pages
Book Rating : 4.0/5 (151 download)

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Book Synopsis The Digital Reconstruction of Healthcare by : Paul Cerrato

Download or read book The Digital Reconstruction of Healthcare written by Paul Cerrato and published by Himss Publishing. This book was released on 2021-06-08 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: The complex challenges facing healthcare are being met by the transitioning much patient care from hospitals, clinics, and offices to virtual settings. The digital reconstruction of medicine includes telemedicine, mobile apps, sensing devices, and other technologies. The book explores how these tools are meeting patient needs across the globe.

Artificial Intelligence in Healthcare

Author : Adam Bohr
Publisher : Academic Press
ISBN 13 : 0128184396
Total Pages : 385 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Artificial Intelligence in Healthcare by : Adam Bohr

Download or read book Artificial Intelligence in Healthcare written by Adam Bohr and published by Academic Press. This book was released on 2020-06-21 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: Artificial Intelligence (AI) in Healthcare is more than a comprehensive introduction to artificial intelligence as a tool in the generation and analysis of healthcare data. The book is split into two sections where the first section describes the current healthcare challenges and the rise of AI in this arena. The ten following chapters are written by specialists in each area, covering the whole healthcare ecosystem. First, the AI applications in drug design and drug development are presented followed by its applications in the field of cancer diagnostics, treatment and medical imaging. Subsequently, the application of AI in medical devices and surgery are covered as well as remote patient monitoring. Finally, the book dives into the topics of security, privacy, information sharing, health insurances and legal aspects of AI in healthcare. Highlights different data techniques in healthcare data analysis, including machine learning and data mining Illustrates different applications and challenges across the design, implementation and management of intelligent systems and healthcare data networks Includes applications and case studies across all areas of AI in healthcare data

Healthcare and Big Data

Author : Mary F.E. Ebeling
Publisher : Springer
ISBN 13 : 1137502215
Total Pages : 170 pages
Book Rating : 4.1/5 (375 download)

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Book Synopsis Healthcare and Big Data by : Mary F.E. Ebeling

Download or read book Healthcare and Big Data written by Mary F.E. Ebeling and published by Springer. This book was released on 2016-09-27 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.

The Digitization of Healthcare

Author : Loick Menvielle
Publisher : Springer
ISBN 13 : 1349951730
Total Pages : 454 pages
Book Rating : 4.3/5 (499 download)

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Book Synopsis The Digitization of Healthcare by : Loick Menvielle

Download or read book The Digitization of Healthcare written by Loick Menvielle and published by Springer. This book was released on 2017-08-11 with total page 454 pages. Available in PDF, EPUB and Kindle. Book excerpt: Combining conceptual, pragmatic and operational approaches, this edited collection addresses the demand for knowledge and understanding of IT in the healthcare sector. With new technology outbreaks, our vision of healthcare has been drastically changed, switching from a ‘traditional’ path to a digitalized one. Providing an overview of the role of IT in the healthcare sector, The Digitization of Healthcare illustrates the potential benefits and challenges for all those involved in delivering care to the patient. The incursion of IT has disrupted the value chain and changed business models for companies working in the health sector, and also raised ethical issues and new paradigms about delivering care. This book illustrates the rise of patient empowerment through the development of patient communities such as PatientLikeMe, and medical collaborate platforms such as DockCheck, thus providing a necessary tool to patients, caregivers and academics alike.