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Author : Kathie Kobler
Publisher :
ISBN 13 : 9781934654361
Total Pages : 367 pages
Book Rating : 4.6/5 (543 download)
Download or read book Conversations in Perinatal, Neonatal, and Pediatric Palliative Care written by Kathie Kobler and published by . This book was released on 2017 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Rana Limbo, PhD, RN, CPLC, FAAN
Publisher : Springer Publishing Company
ISBN 13 : 082613842X
Total Pages : 440 pages
Book Rating : 4.8/5 (261 download)
Download or read book Handbook of Perinatal and Neonatal Palliative Care written by Rana Limbo, PhD, RN, CPLC, FAAN and published by Springer Publishing Company. This book was released on 2019-11-11 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions Supplemental image bank included
Author : Paola Lago
Publisher : Frontiers Media SA
ISBN 13 : 2889711412
Total Pages : 116 pages
Book Rating : 4.8/5 (897 download)
Download or read book Perinatal Palliative Care written by Paola Lago and published by Frontiers Media SA. This book was released on 2021-08-03 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Erin M. Denney-Koelsch
Publisher : Springer Nature
ISBN 13 : 3030347516
Total Pages : 443 pages
Book Rating : 4.0/5 (33 download)
Download or read book Perinatal Palliative Care written by Erin M. Denney-Koelsch and published by Springer Nature. This book was released on 2020-02-05 with total page 443 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
Author : Brian S. Carter
Publisher : JHU Press
ISBN 13 : 1421402130
Total Pages : 769 pages
Book Rating : 4.4/5 (214 download)
Download or read book Palliative Care for Infants, Children, and Adolescents written by Brian S. Carter and published by JHU Press. This book was released on 2011-10-15 with total page 769 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
Author : Beth Perry Black, PhD, RN
Publisher : Springer Publishing Company
ISBN 13 : 0826129277
Total Pages : 420 pages
Book Rating : 4.8/5 (261 download)
Download or read book Perinatal and Pediatric Bereavement in Nursing and Other Health Professions written by Beth Perry Black, PhD, RN and published by Springer Publishing Company. This book was released on 2015-09-10 with total page 420 pages. Available in PDF, EPUB and Kindle. Book excerpt: [This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. --Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation
Author : Alexandra Mancini
Publisher : Springer Nature
ISBN 13 : 303031877X
Total Pages : 407 pages
Book Rating : 4.0/5 (33 download)
Download or read book Neonatal Palliative Care for Nurses written by Alexandra Mancini and published by Springer Nature. This book was released on 2020-01-22 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.
Author : Betty R. Ferrell
Publisher : Oxford University Press
ISBN 13 : 0190244208
Total Pages : 192 pages
Book Rating : 4.1/5 (92 download)
Download or read book Pediatric Palliative Care written by Betty R. Ferrell and published by Oxford University Press. This book was released on 2015-08-03 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Author : Karen Pridham, PhD, RN, FAAN
Publisher : Springer Publishing Company
ISBN 13 : 0826140440
Total Pages : 463 pages
Book Rating : 4.8/5 (261 download)
Download or read book Guided Participation in Pediatric Nursing Practice written by Karen Pridham, PhD, RN, FAAN and published by Springer Publishing Company. This book was released on 2018-05-28 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first book about Guided Participation written for nurses This authoritative publication delivers an in-depth examination of Guided Participation (GP), a dynamic process of teaching and learning that parents and guardians have used for generations to help their charges become self-reliant. GP is helping another person become competent by providing expertise working alongside the learner. For the nurse specifically, this means educating and working alongside parents and children within an environment that supports health. Consistent with client- and family-centered practice, this fresh approach to nurse/client teaching is drawn a broad span of disciplines, including education, social and cultural anthropology, relationship-based attachment-caregiving theory, and developmental science. Written for students and practitioners who wish to incorporate GP into their practice, and for managers, administrators, and policy makers who support its implementation, this resource demonstrates the value of GP as a new and emerging health care model that integrates care across health care settings. The text describes, step-by-step, how to practice GP discusses support systems to maintain GP past the initial treatment. With abundant case studies, examples and research findings, chapters analyze how GP can promote health, prevent acute and chronic illness, and adjust old patterns of living and behaviors. Key Features: Includes video clips that illustrate how guided participation is applied in a variety of clinical practice settings Provides access to self-directed online instruction Links to online journal, case studies, additional chapters, and references Features downloadable parent checklists and teaching guides Discusses effective application of Guided Participation to all aspects of pediatric nursing care in a variety of practice settings Includes numerous case studies and examples with specific components identified to help readers learn theory and related concepts Learn to apply guided participation by joining the case-based online course offered at University of Wisconsin-Madison!
Author : Elaine Wittenberg
Publisher : Oxford University Press
ISBN 13 : 0190201711
Total Pages : 544 pages
Book Rating : 4.1/5 (92 download)
Download or read book Textbook of Palliative Care Communication written by Elaine Wittenberg and published by Oxford University Press. This book was released on 2015-10-23 with total page 544 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Textbook of Palliative Care Communication is the authoritative text on communication in palliative care, providing a compilation of international and interdisciplinary perspectives. The volume was uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, and unites clinicians with academic researchers interested in the study of communication. By featuring practical conversation and curriculum tools stemming from research, this text integrates scholarship and inquiry into translatable content that others can use to improve their practice, teach skills to others, and engage in patient-centered communication. The volume begins by defining communication, explicating debatable issues in research, and highlighting specific approaches to studying communication in a palliative care context. Chapters focus on health literacy and cultural communication, patient and family communication, barriers and approaches to discussing palliative care with specific patient populations, discussing pain, life support, advance care planning, and quality of life topics such as sexuality, spirituality, hope, and grief. Team communication in various care settings is outlined and current research and education for healthcare professionals are summarized. Unique to this volume are chapters on conducting communication research, both qualitatively and quantitatively, to promote further research in palliative care.
Author : Betty Rolling Ferrell
Publisher : Oxford University Press
ISBN 13 : 0190862386
Total Pages : 935 pages
Book Rating : 4.1/5 (98 download)
Download or read book Oxford Textbook of Palliative Nursing written by Betty Rolling Ferrell and published by Oxford University Press. This book was released on 2019-02-15 with total page 935 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Oxford Textbook of Palliative Nursing remains the most comprehensive treatise on the art and science of palliative care nursing available. Dr. Betty Rolling Ferrell and Dr. Judith A. Paice have invited 162 nursing experts to contribute 76 chapters addressing the physical, psychological, social, and spiritual needs pertinent to the successful palliative care team. Organized within 7 Sections, this new edition covers the gamut of principles of care: from the time of initial diagnosis of a serious illness to the end of a patient's life and beyond. This fifth edition features several new chapters, including chapters on advance care planning, organ donation, self-care, global palliative care, and the ethos of palliative nursing. Each chapter is rich with tables and figures, case examples for improved learning, and a strong evidence-based practice to support the highest quality of care. The book offers a valuable and practical resource for students and clinicians across all settings of care. The content is relevant for specialty hospice agencies and palliative care programs, as well as generalist knowledge for schools of nursing, oncology, critical care, and pediatric. Developed with the intention of emphasizing the need to extend palliative care beyond the specialty to be integrated in all settings and by all clinicians caring for the seriously ill, this new edition will continue to serve as the cornerstone of palliative care education.
Author : Nora Swan-Foster
Publisher : Routledge
ISBN 13 : 1000176746
Total Pages : 285 pages
Book Rating : 4.0/5 (1 download)
Download or read book Art Therapy and Childbearing Issues written by Nora Swan-Foster and published by Routledge. This book was released on 2020-09-22 with total page 285 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text introduces readers to the diverse and unique ways art therapy is used with women who are undergoing various stages of the childbearing process, including conception, pregnancy, miscarriage, childbirth, and postpartum. Art Therapy and Childbearing Issues discusses a range of topics including the role of transference/countertransference, attachment and maternal tasks, and neuropsychology. The book also addresses several motifs that are outside cultural norms of pregnancy and childbearing, such as racial sociopolitical issues, grief and loss, palliative care, midwifery, menstruation, sex-trafficking, disadvantaged populations, and incarceration. Each chapter offers research, modalities, case studies and suggestions on how to work in this field in a new way, accompanied by visual representations of different therapy methods and practices. The approachable style will appeal to a range of readers who will come away with a new awareness of art therapy and a greater knowledge of how to work with women as they enter and exit this universal, psychobiological experience.
Author : Stefan J. Friedrichsdorf
Publisher : MDPI
ISBN 13 : 3038973505
Total Pages : 253 pages
Book Rating : 4.0/5 (389 download)
Download or read book Pediatric Palliative Care written by Stefan J. Friedrichsdorf and published by MDPI. This book was released on 2019-02-08 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Author : Claire J. Creutzfeldt
Publisher : Springer
ISBN 13 : 3319932152
Total Pages : 312 pages
Book Rating : 4.3/5 (199 download)
Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Author : Mary Jo Kreitzer
Publisher : Weil Integrative Medicine Libr
ISBN 13 : 019085104X
Total Pages : 745 pages
Book Rating : 4.1/5 (98 download)
Download or read book Integrative Nursing written by Mary Jo Kreitzer and published by Weil Integrative Medicine Libr. This book was released on 2018 with total page 745 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fully updated and revised, the second edition of Integrative Nursing is a complete roadmap to integrative patient care, providing a guide to whole person/whole systems assessment and clinical interventions for individuals, families, and communities. Treatment strategies described in this version employ the full complement of evidence-informed methodologies in a tailored, person-centered approach to care. This text explores concepts, skills, and theoretical frameworks that can be used by healthcare leaders interested in creating and implementing an integrative model of care within institutions and systems, featuring exemplar nurse-led initiatives that have transformed healthcare systems. This volume covers the foundations of the field; the most effective ways to optimize wellbeing; principles of symptom management for many common disorders like sleep, anxiety, pain, and cognitive impairment; the application of integrative nursing techniques in a variety of clinical settings and among a diverse patient population; and integrative practices around the world and how it impacts planetary health. The academic rigor of the text is balanced by practical and relevant content that can be readily implemented into practice for both established professionals as well as students enrolled in undergraduate or graduate nursing programs. Integrative medicine is defined as healing-oriented medicine that takes account of the whole person (body, mind, and spirit) as well as all aspects of lifestyle; it emphasizes the therapeutic relationship and makes use of appropriate therapies, both conventional and alternative. Series editor Andrew Weil, MD, is Professor and Director of the Arizona Center for Integrative Medicine at the University of Arizona. Dr. Weil's program was the first such academic program in the U.S., and its stated goal is "to combine the best ideas and practices of conventional and alternative medicine into cost effective treatments without embracing alternative practices uncritically."
Author : Carlo V. Bellieni
Publisher : Springer Nature
ISBN 13 : 3030962563
Total Pages : 194 pages
Book Rating : 4.0/5 (39 download)
Download or read book A New Holistic-Evolutive Approach to Pediatric Palliative Care written by Carlo V. Bellieni and published by Springer Nature. This book was released on 2022-05-26 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book illustrates why a holistic approach is important in Pediatric Palliative Care (PPC). Readers will learn this approach has a “horizontal” axis, featuring the patients’ mental and physical needs, as well as their environments. It has also a “vertical axis”: the evolutive changes of the patients throughout their development and their illness, their aspirations and fears. An evolutive (or dynamic) approach is mandatory. Each child/parent has a different experience of illness and a different path to recovery that is influenced by their age, gender, culture, but also by the state of their grief. To take care of them, we need to know the state of the subjects we are dealing with throughout their evolution in age (children) and in sorrow (both children and parents). Jung’s and Piaget’ schemes will be of support. This book also helps caregivers to know what ethics is. It teaches a new insight on the word “ethics”: not a series of principles or norms, but an approach based on humanistic virtues. Two criteria will be proposed to this aim: an ethics based on the refusal of inauthentic behaviors (or those behaviors that are copies of animals or machines) and a new criterion that even children have some ethical duties (not based on rules, but on naturally acceptance that their sight is modulated by the presence of their parents and friends). This ethical approach is explained to caregivers in a practical mode, ready for clinical exigencies. This book is also unique because it demonstrates that PPC also involves the true care of caregivers. It will explain how to approach, measure and overcome caregivers’ burn-out. Special attention is devoted to the approach to babies’ and children’s pharmacological and non-pharmacological analgesia and sedation. Pain assessment methods will be illustrated, as well as the development of a PPC web on the territory. This text includes perinatal and neonatal PPC. The book will be of valuable support to all those intensivists, pediatricians, nurses, psychologists, physiotherapists and healthcare professionals working in PPC units.
Author : Amy Kuebelbeck
Publisher : JHU Press
ISBN 13 : 1421446715
Total Pages : 445 pages
Book Rating : 4.4/5 (214 download)
Download or read book A Gift of Time written by Amy Kuebelbeck and published by JHU Press. This book was released on 2023-09-05 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now updated and expanded—a gentle and comprehensive guide for parents expecting a baby with a prenatal diagnosis of a life-limiting condition. When prenatal testing reveals that a baby is expected to die before or shortly after birth, many parents choose to proceed with the pregnancy and embrace the time they are able to have with their baby, before birth as well as afterward. With compassion and support, A Gift of Time walks these parents step-by-step through this challenging and emotional experience—from receiving the diagnosis to coping with the pregnancy and making plans for the baby's birth and peaceful death. The second edition of this gentle guide offers inspiration and reassurance through the voices of numerous parents who have walked this path with their beloved baby. Their moving experiences are stories not only of grief but of joy and peace. This edition: • Expands the content substantially to incorporate new research and guidelines • Features additional vignettes from more than 160 parents about their experiences and coping strategies • Offers encouragement and more practical ideas for moving forward, including updated guidance for decision-making and ideas for embracing the time with the baby, from before birth to after death • Describes the importance of perinatal hospice and palliative care, which has continued to grow worldwide since the first edition was published, and how to access this care Drawing from parent experiences and published research, this new edition is full of practical suggestions for parents as well as health care professionals. Caring and thoughtful, A Gift of Time helps parents navigate this difficult news and the journey that follows.
