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Childrens Participation And Decision Making In Medical Matters
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Book Synopsis Children's Participation and Decision-Making in Medical Matters by : Helena von Troil
Download or read book Children's Participation and Decision-Making in Medical Matters written by Helena von Troil and published by Nordic Council of Ministers. This book was released on 2013-12-12 with total page 65 pages. Available in PDF, EPUB and Kindle. Book excerpt: According to international and national agreements and conventions children have a right to express their views in all matters affecting them. However it is one thing to state that children have a right to express their views and another to stipulate to what extent they have a right to participate in decision-making about their medical treatment, participation in medical research or in clinical trials. At the conference Children’s Participation and Decision-making in Medical Matters, organized 2012 by the Nordic Committee on Bioethics, various participants discussed how this right should be interpreted and applied in different contexts and situations. This conference summary highlights the main themes of the conference.
Book Synopsis Ethical Conduct of Clinical Research Involving Children by : Institute of Medicine
Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Book Synopsis Pediatric Palliative Care by : Betty Ferrell
Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Book Synopsis Child Perspectives and Children’s Perspectives in Theory and Practice by : Dion Sommer
Download or read book Child Perspectives and Children’s Perspectives in Theory and Practice written by Dion Sommer and published by Springer Science & Business Media. This book was released on 2009-12-24 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent decades have seen a growing emphasis, in a number of professional contexts, on acknowledging and acting on the views of children. This trend was given added weight by the UN Convention on the Rights of the Child, ratified in 1990. Today, seeking the perspective of the child has become an essential process in all sorts of tasks, from framing new legislation to regulating professions. This book answers the fundamental question of what it is that constitutes a ‘child perspective’, and how this might differ from the perspectives of children themselves. The answers to such questions have important implications for building progressive and developmental adult-child relationships. However, theoretical and empirical treatments of child perspectives and children’s perspectives are very diverse and idiosyncratic, and the standard reference work has yet to be written. Thus, this work is an attempt to fill the gap in the literature by searching for and defining key formulations of potential child perspectives within parts of the so-called ‘new child paradigm’. This has been derived from childhood sociology, contextual-relational developmental psychology, interpretative humanistic psychology and developmental pedagogy. The highly experienced authors develop a comprehensive professional child perspective paradigm that integrates recent theory and empirical child research. With its clear presentation of underlying theories and suggested applications, this book illustrates a child-oriented understanding of specific relevance to both child-care and preschool educational practice.
Book Synopsis Children’s Competence to Consent by : Gary B. Melton
Download or read book Children’s Competence to Consent written by Gary B. Melton and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Promoting Adherence to Medical Treatment in Chronic Childhood Illness by : Dennis Drotar
Download or read book Promoting Adherence to Medical Treatment in Chronic Childhood Illness written by Dennis Drotar and published by Psychology Press. This book was released on 2000-08 with total page 515 pages. Available in PDF, EPUB and Kindle. Book excerpt: This interdisciplinary edited volume addresses critical gaps in scientific understanding of adherence/compliance to treatment regimens in chronic health conditions for children & Ados.
Book Synopsis Child and Youth Participation in Policy, Practice and Research by : Deirdre Horgan
Download or read book Child and Youth Participation in Policy, Practice and Research written by Deirdre Horgan and published by Routledge. This book was released on 2021-12-23 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book showcases rights based participatory approaches to policy-making, practice and research with children and youth. Throughout its three parts, the book conceptualises a rights-based participatory approach; showcases constructive and innovative rights based participatory approaches across the domains of research, policy and practice; and interrogates the challenges and complexities in the implementation of such an approach. In recent times, Ireland has been at the forefront of promoting and implementing participatory approaches to policy-making, practice and research focused on children and youth. This edited volume is a timely opportunity to capture previously undocumented learning generated from a wide range of innovative participatory initiatives implemented in Ireland. In capturing this learning, real world guidance will be provided to international policy-makers, practitioners and researchers working with children and youth. This book is essential reading for those interested in a rights based participatory approach, for those who want to appropriately and meaningfully engage children and youth in research, and for those wishing to maximise the contribution of children and youth in policy-making.
Book Synopsis Children's Constitutional Rights in the Nordic Countries by : Trude Haugli
Download or read book Children's Constitutional Rights in the Nordic Countries written by Trude Haugli and published by Brill Nijhoff. This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study explores whether and how enshrining children's rights in national constitutions improves implementation and enforcement of those rights by comparing Danish, Finnish, Icelandic, Norwegian and Swedish law.
Book Synopsis Doing Research with Children by : Anne D Greig
Download or read book Doing Research with Children written by Anne D Greig and published by SAGE. This book was released on 2012-11-16 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Third Edition of Doing Research with Children is practical introduction to the process of designing, doing and writing up research with children and young people. At the centre is a commitment to engaging with children and young people as active research participants rather than as passive subjects. In the new edition, you′ll find up to date information on the fast-changing political and ethical debates around research with children and young people as well as guidance on how to carry out research yourself. Divided into three sections, the new edition covers: -the main theories and approaches of research with children and young people -expanded guidance on research ethics -techniques for conducting both qualitative and quantitative research -more on analysing your research -a brand new chapter on communicating your research findings. This is a must-have guide for students and practitioners who are engaging in research with children and young people.
Book Synopsis Young People’s Participation by : Bruselius-Jensen, Maria
Download or read book Young People’s Participation written by Bruselius-Jensen, Maria and published by Policy Press. This book was released on 2021-03-29 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt: Young people’s participation is an urgent policy and practice concern across countries and context. This book showcases original research evidence and analysis to consider how, under what conditions and for what purposes young people participate in different parts of Europe. Focusing on the interplay between the concepts of youth, inequality and participation, this book explores how structural changes, including economic austerity, neoliberal policies and new patterns of migration, affect the conditions of young people’s participation and its aims. With contributions from a range of subject experts, including young people themselves, the book challenges current policies and practices on young people’s participation. It asks how young people can be better supported to take part in social change and decision-making and what can be learnt from young people’s own initiatives.
Book Synopsis The Best Interests of the Child in Healthcare by : Sarah Elliston
Download or read book The Best Interests of the Child in Healthcare written by Sarah Elliston and published by Routledge. This book was released on 2007-11-06 with total page 565 pages. Available in PDF, EPUB and Kindle. Book excerpt: Topical and compelling, this volume provides an excellent re-evaluation of the ‘best interests’ test in the healthcare arena; the ways in which it has developed, the inherent difficulties in its use and its interpretation in legal cases concerning the medical care of children. Comprehensively covering both the English and Scottish position within the context of the European Convention of human Rights and the UN Convention on the Rights of the Child, the author examines a wide range of healthcare situations, from the commonly occurring to the unusual, offering a detailed analysis of legislation, case law, cases and their implications. It includes discussions on: the extent to which a child’s body can be examined, operated on and affected by medicines, devices or procedures intended to bring about medical change the appropriate scope of parental choice and authority and at what stage of their development children should be allowed to make their own decisions the response to situations where the interests of children may be in conflict – the cases of conjoined twins or the donation of organs to siblings. This work is a key resource for postgraduates and researchers working and studying in the fields of law, healthcare and medicine.
Book Synopsis Transforming the Workforce for Children Birth Through Age 8 by : National Research Council
Download or read book Transforming the Workforce for Children Birth Through Age 8 written by National Research Council and published by National Academies Press. This book was released on 2015-07-23 with total page 587 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.
Book Synopsis Ethical Considerations for Research on Housing-Related Health Hazards Involving Children by : Institute of Medicine
Download or read book Ethical Considerations for Research on Housing-Related Health Hazards Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2005-11-10 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.
Book Synopsis Embedding Young People's Participation in Health Services by : Brady, Louca-Mai
Download or read book Embedding Young People's Participation in Health Services written by Brady, Louca-Mai and published by Policy Press. This book was released on 2020-10-07 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is increasing interest in young people’s participation in the design and delivery of health services. But young people’s views are not consistently sought or acknowledged, and they are still often marginalised in healthcare encounters. Drawing on original research and a diverse range of practice examples, Brady explores the potential for inclusive and diverse approaches to young people’s participation in health services from the perspectives of young people, health professionals and other practitioners. She presents a practical new framework, embedded in children’s rights, that shows how young people’s participation can be integrated into services in ways that are meaningful, effective and sustainable.
Book Synopsis Pediatric Bioethics by : Geoffrey Miller
Download or read book Pediatric Bioethics written by Geoffrey Miller and published by Cambridge University Press. This book was released on 2010 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume offers a theoretical and practical overview of the ethics of pediatric medicine. It serves as a fundamental handbook and resource for pediatricians, nurses, residents in training, graduate students, and practitioners of ethics and healthcare policy. Written by a team of leading experts, Pediatric Bioethics addresses those difficult ethical questions concerning the clinical and academic practice of pediatrics, including an approach to recognizing boundaries when confronted with issues such as end of life care, life-sustaining treatment, extreme prematurity, pharmacotherapy, and research. Thorny topics such as what constitutes best interests, personhood, or distributive justice and public health concerns such as immunization and newborn genetic screening are also addressed.
Book Synopsis Promoting Children's Participation in Democratic Decision-making by : Gerison Lansdown
Download or read book Promoting Children's Participation in Democratic Decision-making written by Gerison Lansdown and published by . This book was released on 2001 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: Listening to children and considering seriously what they have to say has not been a widely adopted practice throughout the world. Since the adoption of the Convention on the Rights of the Child (CRC), 'child participation' has received much attention. National and local governments, UN agencies, organizations and community groups have started to explore the concepts of participation, partnership and empowerment. This publication makes a case for a commitment to respecting children's rights, and draws on research on a wide range of international initiatives. In doing so, it seeks to provide guidelines in working with children as partners.
