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Caring For Your Disabled Child
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Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309448093 Total Pages :367 pages Book Rating :4.3/5 (94 download)
Book Synopsis Families Caring for an Aging America by : National Academies of Sciences, Engineering, and Medicine
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 548 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Book Synopsis Special Children, Challenged Parents by : Robert A. Naseef
Download or read book Special Children, Challenged Parents written by Robert A. Naseef and published by Brookes Publishing Company. This book was released on 2001 with total page 324 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
Book Synopsis Caring for a Disabled Child by : Abigail Knight
Download or read book Caring for a Disabled Child written by Abigail Knight and published by Straightforward co Ltd. This book was released on 2007-04-25 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: This latest Revised Edition, builds on the previous editions by updating essential information relating to the law and practice surrounding caring for a disabled child. The book is used extensively by advice workers and also parents of disabled children and has proved an invaluable and indispensable guide.
Book Synopsis What I Would Tell You by : Julie Keon
Download or read book What I Would Tell You written by Julie Keon and published by . This book was released on 2015-04 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309472245 Total Pages :351 pages Book Rating :4.3/5 (94 download)
Book Synopsis Opportunities for Improving Programs and Services for Children with Disabilities by : National Academies of Sciences, Engineering, and Medicine
Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Book Synopsis Caring for Children Who Have Severe Neurological Impairment by : Julie M. Hauer
Download or read book Caring for Children Who Have Severe Neurological Impairment written by Julie M. Hauer and published by JHU Press. This book was released on 2013-08-01 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hauer offers hope and practical coping strategies in equal measure.
Download or read book Troop 6000 written by Nikita Stewart and published by Ballantine Books. This book was released on 2020-05-19 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: The inspiring true story of the first Girl Scout troop founded for and by girls living in a shelter in Queens, New York, and the amazing, nationwide response that it sparked “A powerful book full of powerful women.”—Chelsea Clinton Giselle Burgess was a young mother of five trying to provide for her family. Though she had a full-time job, the demands of ever-increasing rent and mounting bills forced her to fall behind, and eviction soon followed. Giselle and her kids were thrown into New York City’s overburdened shelter system, which housed nearly 60,000 people each day. They soon found themselves living at a Sleep Inn in Queens, provided by the city as temporary shelter; for nearly a year, all six lived in a single room with two beds and one bathroom. With curfews and lack of amenities, it felt more like a prison than a home, and Giselle, at the mercy of a broken system, grew fearful about her family’s future. She knew that her daughters and the other girls living at the shelter needed to be a part of something where they didn’t feel the shame or stigma of being homeless, and could develop skills and a community they could be proud of. Giselle had worked for the Girl Scouts and had the idea to establish a troop in the shelter, and with the support of a group of dedicated parents, advocates, and remarkable girls, Troop 6000 was born. New York Times journalist Nikita Stewart settled in with Troop 6000 for more than a year, at the peak of New York City’s homelessness crisis in 2017, getting to know the girls and their families and witnessing both their triumphs and challenges. In Troop 6000, readers will feel the highs and lows as some families make it out of the shelter while others falter, and girls grow up with the stress and insecurity of not knowing what each day will bring and not having a place to call home, living for the times when they can put on their Girl Scout uniforms and come together. The result is a powerful, inspiring story about overcoming the odds in the most unlikely of places. Stewart shows how shared experiences of poverty and hardship sparked the political will needed to create the troop that would expand from one shelter to fifteen in New York City, and ultimately inspired the creation of similar troops across the country. Woven throughout the book is the history of the Girl Scouts, an organization that has always adapted to fit the times, supporting girls from all walks of life. Troop 6000 is both the intimate story of one group of girls who find pride and community with one another, and the larger story of how, when we come together, we can find support and commonality and experience joy and success, no matter how challenging life may be.
Book Synopsis Patient Safety and Quality by : Ronda Hughes
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Book Synopsis Dental Care for Children with Special Needs by : Travis M. Nelson
Download or read book Dental Care for Children with Special Needs written by Travis M. Nelson and published by Springer. This book was released on 2019-02-19 with total page 295 pages. Available in PDF, EPUB and Kindle. Book excerpt: This concise manual offers best practice guidance on dental treatment of pediatric patients with special health care needs (CSHCN). The straightforward approaches described will enable clinicians to deliver high-quality, patient-centered care to children with intellectual and developmental disabilities. Readers will find up-to-date information on case-based treatment planning, alternative caries management strategies, the use of behavioral and pharmacological interventions to facilitate delivery of quality treatment, and a team approach to care. Practical clinical tips are provided on how to achieve and maintain oral health, including good oral hygiene and nutrition. A systematic framework for patient assessment and interaction with medical colleagues will assist readers in understanding when dental protocols must be altered. Other important topics include techniques for effective communication with CSHCN, behavioral strategies to improve treatment acceptance, the role of occupational therapy techniques, the sensory adapted dental environment, and the use protective stabilization.
Book Synopsis What Will Happen to My Special Needs Child when I Am Gone by : Susan Jules
Download or read book What Will Happen to My Special Needs Child when I Am Gone written by Susan Jules and published by . This book was released on 2020-10-22 with total page 238 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ever wondered what will happen to your Special Needs Child when you are gone? Has the thought of your Child's future kept you awake at night? Have you been fraught with worry thinking about your Child's employment and medical evaluations after you have passed away? If you have said yes to any of the questions above then this book "What will happen to my Special Needs Child when I am gone?" is for you. This book was born when the Author Susan Jules couldn't find a single resource that had all the answers at one place regarding her Child's future after she is no longer around. It took her 12 long months of long nights, social juggling, research and meetings, emails with attorneys, counselors, therapists, tax professionals, Social workers, financial advisors, and planners to get this book to fruition. This book answers all the questions regarding the child's care, development assessment, funding, treatments, employment, governmental benefits, estate planning, Life Insurance, Letter of Intent, Last Will and Testament, and more in a clear and concise manner. Take a look at a few of the testimonials from parents who have read this book. Forget Special Needs, this is a book which every family with a child should have and follow the instructions laid out, so that our children's lives are enriched long after we are gone, because at the end that is what you intend to accomplish - Amanda T from Trenton, Ohio. There are few books explaining the Path forward for Special Needs after the death of their parents and/or guardians. This book fills a real gap - Kimberly A from Fall River, Massachusetts. This book is extremely useful for families with neurotypical children and in families where there is a mixture of special needs and neuro-typical children. It is invaluable and provides solace and information - Michelle W from Woonsocket, Rhode Island. A book sorely needed in these challenging times. In fact, I was reminded of life's frailties during Covid Pandemic and I am glad this book helped me put my fears at ease - Tomer C from LA, California. Here's exactly what you get in the book "What will happen to my Special Needs Child when I am gone?" Information about Legalities surrounding the care for special needs children. Broaching the topic of mortality with your special needs child. Issues that arise after the death of a parent. How to draw up your last Will and testament. How to do your Estate planning. How to draft a Letter of intent/written care plan. How to open a Special needs trust. How to set up Life Insurance. How do you document emergency contacts, medical data/history, accounts, and passwords? What kind of Legal protection do you need to have in place? How to Review your child's guardianship? How do you secure continued growth and development of your child? And much more This information has been presented in Bite-Sized portions so that it is easy for you to take action and get all the tasks completed. And lastly, and most importantly what you will get is PEACE OF MIND that your Child's Future would be SECURE and that they will be taken care of, long after you are gone. And your child will continue enjoying the SAME lifestyle he or she is used to. About the Author Susan Jules is a single parent and a mother of a 16-year-old Special Needs Child. She is very passionate about Special Needs Education and is quite involved in the activities of her child's school. She lives with her son and her dog Ranger on a small far
Book Synopsis Planning for the Future by : L. Mark Russell
Download or read book Planning for the Future written by L. Mark Russell and published by . This book was released on 2006 with total page 603 pages. Available in PDF, EPUB and Kindle. Book excerpt: A handbook of information for parents as they plan for their child's life after their own deaths. Easy to understand, describes step-by-step all of the elements that parents must consider to provide a happy and fulfilling life for their child with a disability--Cover.
Download or read book Inclusion Works! written by Faye Ong and published by Hippocrene Books. This book was released on 2009 with total page 100 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Difference in the Family by : Helen Featherstone
Download or read book A Difference in the Family written by Helen Featherstone and published by New York : Basic Books. This book was released on 1980 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Chicken Soup for the Soul Children with Special Needs by : Jack Canfield
Download or read book Chicken Soup for the Soul Children with Special Needs written by Jack Canfield and published by Simon and Schuster. This book was released on 2012-08-07 with total page 265 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising a child with special needs is a lifelong commitment that is as unique as each person who embarks on it. Written by a variety of authors who share in this distinctive relationship, Chicken Soup for the Soul Children with Special Needs offers a glimpse into the lives of others who are on a similar path. These stories provide insight, comfort, and connection with others who have walked this powerful and transformational journey. The authors of these candid stories relate their own experiences of adjusting, reaching out, and flourishing and share their universal worries, their tears, and the laughter that come with this extraordinary relationship. Most important, through these stories, you will be guided with the wisdom of fellow parents, caregivers, and those with special needs to help you be the very best parent or caregiver you can be.
Download or read book Kids Beyond Limits written by Anat Baniel and published by Penguin. This book was released on 2012-03-27 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discover the revolutionary way to harness the brain's capacity to heal itself Supported by the latest brain research, The Anat Baniel Method uses simple, gentle movements and focus to help any child, who has been diagnosed with autism, Asperger's Syndrome, ADHD, Cerebral Palsy or other developmental disorders. In this supportive and hands-on book, Anat Baniel guides parents through the nine essentials of the method, each one designed to harness the brain's capacity to heal itself -- with remarkable and sometimes immediate results. By shifting the focus to connecting rather than "fixing," this powerful yet simple method helps both children and parents to de- stress, focus, and grow. Most of all, the it helps all children maximize their potential, no matter what their diagnosis.