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Author : People Science & Policy Ltd
Publisher :
ISBN 13 :
Total Pages : 5 pages
Book Rating : 4.:/5 (779 download)
Download or read book Biobank a Question of Trust written by People Science & Policy Ltd and published by . This book was released on 2002 with total page 5 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Medical Research Council (Great Britain)
Publisher :
ISBN 13 :
Total Pages : 46 pages
Book Rating : 4.:/5 (77 download)
Download or read book BioBank UK written by Medical Research Council (Great Britain) and published by . This book was released on 2002 with total page 46 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Mark Stranger
Publisher : Routledge
ISBN 13 : 1317075870
Total Pages : 442 pages
Book Rating : 4.3/5 (17 download)
Download or read book Principles and Practice in Biobank Governance written by Mark Stranger and published by Routledge. This book was released on 2016-04-15 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.
Author : Herbert Gottweis
Publisher : Routledge
ISBN 13 : 1134090277
Total Pages : 248 pages
Book Rating : 4.1/5 (34 download)
Download or read book Biobanks written by Herbert Gottweis and published by Routledge. This book was released on 2008-04-28 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking book makes it clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics and the reshaping of current practices in governance.
Author : Peter Dabrock
Publisher : Springer Science & Business Media
ISBN 13 : 354078845X
Total Pages : 267 pages
Book Rating : 4.5/5 (47 download)
Download or read book Trust in Biobanking written by Peter Dabrock and published by Springer Science & Business Media. This book was released on 2012-02-22 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biobanks are promising instruments of biomedical research and of transnational medicine in particular. Ethical, legal and social issues associated with biobanking, however, have recently led to a more critical view on this concept. All efforts addressing these concerns have been grounded on well-established standards of biomedical ethics such as informed consent procedures, protection of individual autonomy, benefit sharing etc. By additionally highlighting the widely neglected aspect of trust, this book aims at broadening the horizon of the ELSI-debate and thus filling a gap in current research on biobanking. The contributions of leading experts and junior researchers cover a wide field of disciplines relevant for biobanking including law, ethics, medicine, public health, social sciences, philosophy and theology.
Author : Bartha Maria Knoppers
Publisher : Martinus Nijhoff Publishers
ISBN 13 : 9789004136786
Total Pages : 674 pages
Book Rating : 4.1/5 (367 download)
Download or read book Populations and Genetics written by Bartha Maria Knoppers and published by Martinus Nijhoff Publishers. This book was released on 2003-01-01 with total page 674 pages. Available in PDF, EPUB and Kindle. Book excerpt: Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit.
Author : Heather Widdows
Publisher : Cambridge University Press
ISBN 13 : 1139479644
Total Pages : 249 pages
Book Rating : 4.1/5 (394 download)
Download or read book The Governance of Genetic Information written by Heather Widdows and published by Cambridge University Press. This book was released on 2009-09-03 with total page 249 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.
Author : Christian Lenk
Publisher : Springer Science & Business Media
ISBN 13 : 9400716737
Total Pages : 240 pages
Book Rating : 4.4/5 (7 download)
Download or read book Biobanks and Tissue Research written by Christian Lenk and published by Springer Science & Business Media. This book was released on 2011-07-30 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
Author : Margaret Sleeboom-Faulkner
Publisher : Routledge
ISBN 13 : 1135784515
Total Pages : 222 pages
Book Rating : 4.1/5 (357 download)
Download or read book Human Genetic Biobanks in Asia written by Margaret Sleeboom-Faulkner and published by Routledge. This book was released on 2008-11-19 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume investigates human genetic biobanking and its regulation in various countries in Asia, including Japan, the People’s Republic of China, the Republic of China, Hong Kong, India and Indonesia.
Author : OECD
Publisher : OECD Publishing
ISBN 13 : 9264028536
Total Pages : 156 pages
Book Rating : 4.2/5 (64 download)
Download or read book Creation and Governance of Human Genetic Research Databases written by OECD and published by OECD Publishing. This book was released on 2006-10-25 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt: Summarises proceedings of a conference looking at examples of human genetic research databases, how they are established, how they are managed and governed, how they might be commercialised, and what the policy considerations might be.
Author : Paul Atkinson
Publisher : Routledge
ISBN 13 : 1134128770
Total Pages : 566 pages
Book Rating : 4.1/5 (341 download)
Download or read book The Handbook of Genetics & Society written by Paul Atkinson and published by Routledge. This book was released on 2009-07-02 with total page 566 pages. Available in PDF, EPUB and Kindle. Book excerpt: An authoritative Handbook which offers a discussion of the social, political, ethical and economic consequences and implications of the new bio-sciences. The Handbook takes an interdisciplinary approach providing a synoptic overview of contemporary international social science research on genetics, genomics and the new life sciences. It brings together leading scholars with expertise across a wide-ranging spectrum of research fields related to the production, use, commercialisation and regulation of genetics knowledge. The Handbook is structured into seven cross-cutting themes in contemporary social science research on genetics with introductions written by internationally renowned section editors who take an interdisciplinary approach to offer fresh insights on recent developments and issues in often controversial fields of study. The Handbook explores local and global issues and critically approaches a wide range of public and policy questions, providing an invaluable reference source to a wide variety of researchers, academics and policy makers.
Author : Jan Helge Solbakk
Publisher : Springer Science & Business Media
ISBN 13 : 0387938729
Total Pages : 361 pages
Book Rating : 4.3/5 (879 download)
Download or read book The Ethics of Research Biobanking written by Jan Helge Solbakk and published by Springer Science & Business Media. This book was released on 2009-07-31 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biobanking, i.e. storage of biological samples or data emerging from such samples for diagnostic, therapeutic or research purposes, has been going on for decades. However, it is only since the mid 1990s that these activities have become the subject of considerable public attention, concern and debate. This shift in climate is due to several factors. The purpose of this book is to investigate some of the ethical, legal and social challenges raised by research biobanking in its different modern forms and formats. The issues raised by research biobanking in its modern form can be divided into four main clusters: how biological materials are entered into the bank; research biobanks as institutions; under what conditions researchers can access materials in the bank, and problems concerning ownership of biological materials and of intellectual property arising from such materials; and how the information is collected and stored, e.g. access-rights, disclosure, confidentiality, data security and data protection.
Author : Rajam Neethu
Publisher : Kluwer Law International B.V.
ISBN 13 : 9403506229
Total Pages : 342 pages
Book Rating : 4.4/5 (35 download)
Download or read book Governing Intellectual Property Rights Within Publicly Funded Biobanks written by Rajam Neethu and published by Kluwer Law International B.V.. This book was released on 2019-06-21 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out of the knowledge emanating from the use of biobank resources lies in managing intellectual property inputs and outputs effectively in keeping with the values core to such research. Focusing on the challenges of involving intellectual property rights (IPRs) particularly in the precompetitive phase of biobank-based research, the book offers an extensive understanding of the role of different IPRs and identifies the gaps in the law and its implications for biobanks. The analysis covers important aspects in relation to biobanks such as: Digital integration and biomedical data storage; Ownership of biological samples; Commercialization and benefit sharing; Partnership models; Public sector research; Disposition of samples; Consent; Cross-border exchange; Trade secrecy; Privacy; Regulatory stewardship; Business strategies; Ethical considerations over biological resources; Patenting of inventions relating to personalized medicine; Ethical parameters within patent law; and Rights regarding genetic data and databases. The book includes observations, case studies and interviews conducted by the author. In conclusion, the author offers cogent recommendations for legal interoperability of IP rules and research practices designed to enhance the ability of biobanks to share, access and reuse data. This book is the first of its kind to explore the organizational and legislative choices for biobanks particularly while engaging in the protection of research results and technology transfer within a publicly funded setting. It will be of substantial interest to all stakeholders in biobanking, especially policymakers, biobankers and researchers working in the field of health law as well as for legal practitioners, academics and patient interest groups.
Author : Nikola Biller-Andorno
Publisher : Routledge
ISBN 13 : 1317141490
Total Pages : 268 pages
Book Rating : 4.3/5 (171 download)
Download or read book Ethical Issues in Governing Biobanks written by Nikola Biller-Andorno and published by Routledge. This book was released on 2016-05-13 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.
Author : Olli Lagerspetz
Publisher : Bloomsbury Publishing
ISBN 13 : 1441109196
Total Pages : 218 pages
Book Rating : 4.4/5 (411 download)
Download or read book Trust, Ethics and Human Reason written by Olli Lagerspetz and published by Bloomsbury Publishing. This book was released on 2015-11-19 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: The variety of approaches to the concept of trust in philosophy reflects the fact that our worries are diverse, from the Hobbesian concern for the possibility of rational cooperation to Wittgenstein's treatment of the place of trust in knowledge. To speak of trust is not only to describe human action but also to take a perspective on it and to engage with it. Olli Lagerspetz breathes new life into the philosophical debate by showing how questions about trust are at the centre of any in-depth analyses of the nature of human agency and human rationality and that these issues, in turn, lie at the heart of philosophical ethics. Ideal for those grappling with these issues for the first time, Trust, Ethics and Human Reason provides a thorough and impassioned assessment of the concept of trust in moral philosophy.
Author : Alan Petersen
Publisher : Routledge
ISBN 13 : 1136821597
Total Pages : 247 pages
Book Rating : 4.1/5 (368 download)
Download or read book The Politics of Bioethics written by Alan Petersen and published by Routledge. This book was released on 2011-01-25 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent rapid advances in the biosciences have led to considerable debate about the social, ethical, and legal implications of research and its applications. The mapping of the human genome, advances in cloning techniques, the harvesting of embryonic stem cells for research, increasing use of genetic testing in healthcare, and the development of large-scale genetic databases have not only generated high expectations about new diagnostics and treatments but also considerable widespread fear about their consequences. This book offers a critical appraisal of bioethics and its implications as it pertains to the fields of health and medicine and public health, with a particular emphasis on recent technological innovations as they provide a noteworthy exemplar of the power of bioethics in shaping policies, practices and notions of societal benefits. Whereas other books have tended to examine ethical dilemmas and challenges of applying ethical principles, often in relation to a limited array of issues, this book investigates the socio-political implications of bioethics discourse and practices in relation to a range of controversial (or potentially controversial) developments. Providing a benchmark for future debate and scholarly work, this volume will be of interest to policymakers, clinicians, scholars, and others who are looking for new ways of making sense and evaluating recent developments in the field of bioethics.
Author : Christian Lenk
Publisher : Oxford University Press, USA
ISBN 13 : 0199587558
Total Pages : 217 pages
Book Rating : 4.1/5 (995 download)
Download or read book Human Tissue Research written by Christian Lenk and published by Oxford University Press, USA. This book was released on 2011-01-27 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. This multi-authored interdisciplinary text provides a fascinating insight into interlinking research perspectives and serves as a comprehensive reference to the state of play ethically and legally in Europe.
