Indigenous Peoples, Consent and Benefit Sharing

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Author :
Publisher : Springer Science & Business Media
ISBN 13 : 9048131235
Total Pages : 375 pages
Book Rating : 4.0/5 (481 download)

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Book Synopsis Indigenous Peoples, Consent and Benefit Sharing by : Rachel Wynberg

Download or read book Indigenous Peoples, Consent and Benefit Sharing written by Rachel Wynberg and published by Springer Science & Business Media. This book was released on 2009-09-30 with total page 375 pages. Available in PDF, EPUB and Kindle. Book excerpt: Indigenous Peoples, Consent and Benefit Sharing is the first in-depth account of the Hoodia bioprospecting case and use of San traditional knowledge, placing it in the global context of indigenous peoples’ rights, consent and benefit-sharing. It is unique as the first interdisciplinary analysis of consent and benefit sharing in which philosophers apply their minds to questions of justice in the Convention on Biological Diversity (CBD), lawyers interrogate the use of intellectual property rights to protect traditional knowledge, environmental scientists analyse implications for national policies, anthropologists grapple with the commodification of knowledge and, uniquely, case experts from Asia, Australia and North America bring their collective expertise and experiences to bear on the San-Hoodia case.

The Custodians of Biodiversity

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Publisher : Routledge
ISBN 13 : 1136582177
Total Pages : 240 pages
Book Rating : 4.1/5 (365 download)

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Book Synopsis The Custodians of Biodiversity by : Manuel Ruiz

Download or read book The Custodians of Biodiversity written by Manuel Ruiz and published by Routledge. This book was released on 2012-03-15 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Globally, local and indigenous approaches to conserving biodiversity, crop improvement, and managing precious natural resources are under threat. Many communities have to deal with 'biopiracy,' for example. As well, existing laws are usually unsuitable for protecting indigenous and traditional knowledge and for recognizing collective rights, such as in cases of participatory plant breeding, where farmers, researchers and others join forces to improve existing crop varieties or develop new ones, based on shared knowledge and resources. This book addresses these issues. It outlines the national and international policy processes that are currently underway to protect local genetic resources and related traditional knowledge and the challenges these initiatives have faced. In particular these themes are addressed within the context of the Convention of Biological Diversity and the International Treaty on Plant Genetic Resources for Food and Agriculture. The authors broaden the policy and legal debates beyond the sphere of policy experts to include the knowledge-holders themselves. These are the 'custodians of biodiversity': farmers, herders and fishers in local communities. Their experience in sharing access and benefits to genetic resources is shown to be crucial for the development of effective national and international agreements. The book presents and analyzes this experience, including case studies from China, Cuba, Honduras, Jordan, Nepal, Peru and Syria. Copublished with the International Development Research Centre (IDRC).

Sharing Clinical Research Data

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Publisher : National Academies Press
ISBN 13 : 0309268745
Total Pages : 157 pages
Book Rating : 4.3/5 (92 download)

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Book Synopsis Sharing Clinical Research Data by : Institute of Medicine

Download or read book Sharing Clinical Research Data written by Institute of Medicine and published by National Academies Press. This book was released on 2013-06-07 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pharmaceutical companies, academic researchers, and government agencies such as the Food and Drug Administration and the National Institutes of Health all possess large quantities of clinical research data. If these data were shared more widely within and across sectors, the resulting research advances derived from data pooling and analysis could improve public health, enhance patient safety, and spur drug development. Data sharing can also increase public trust in clinical trials and conclusions derived from them by lending transparency to the clinical research process. Much of this information, however, is never shared. Retention of clinical research data by investigators and within organizations may represent lost opportunities in biomedical research. Despite the potential benefits that could be accrued from pooling and analysis of shared data, barriers to data sharing faced by researchers in industry include concerns about data mining, erroneous secondary analyses of data, and unwarranted litigation, as well as a desire to protect confidential commercial information. Academic partners face significant cultural barriers to sharing data and participating in longer term collaborative efforts that stem from a desire to protect intellectual autonomy and a career advancement system built on priority of publication and citation requirements. Some barriers, like the need to protect patient privacy, pre- sent challenges for both sectors. Looking ahead, there are also a number of technical challenges to be faced in analyzing potentially large and heterogeneous datasets. This public workshop focused on strategies to facilitate sharing of clinical research data in order to advance scientific knowledge and public health. While the workshop focused on sharing of data from preplanned interventional studies of human subjects, models and projects involving sharing of other clinical data types were considered to the extent that they provided lessons learned and best practices. The workshop objectives were to examine the benefits of sharing of clinical research data from all sectors and among these sectors, including, for example: benefits to the research and development enterprise and benefits to the analysis of safety and efficacy. Sharing Clinical Research Data: Workshop Summary identifies barriers and challenges to sharing clinical research data, explores strategies to address these barriers and challenges, including identifying priority actions and "low-hanging fruit" opportunities, and discusses strategies for using these potentially large datasets to facilitate scientific and public health advances.

Sharing Clinical Trial Data

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Author :
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 236 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Servicewide Benefits-sharing

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Publisher :
ISBN 13 :
Total Pages : 608 pages
Book Rating : 4.3/5 (555 download)

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Book Synopsis Servicewide Benefits-sharing by :

Download or read book Servicewide Benefits-sharing written by and published by . This book was released on 2009 with total page 608 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Principles and Obstacles for Sharing Data from Environmental Health Research

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Author :
Publisher : National Academies Press
ISBN 13 : 030937085X
Total Pages : 115 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Principles and Obstacles for Sharing Data from Environmental Health Research by : National Academies of Sciences, Engineering, and Medicine

Download or read book Principles and Obstacles for Sharing Data from Environmental Health Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-05-29 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.

Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re-use across Societies

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Author :
Publisher : OECD Publishing
ISBN 13 : 9264660658
Total Pages : 138 pages
Book Rating : 4.2/5 (646 download)

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Book Synopsis Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re-use across Societies by : OECD

Download or read book Enhancing Access to and Sharing of Data Reconciling Risks and Benefits for Data Re-use across Societies written by OECD and published by OECD Publishing. This book was released on 2019-11-26 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: This report examines the opportunities of enhancing access to and sharing of data (EASD) in the context of the growing importance of artificial intelligence and the Internet of Things. It discusses how EASD can maximise the social and economic value of data re-use and how the related risks and challenges can be addressed. It highlights the trade-offs, complementarities and possible unintended consequences of policy action – and inaction. It also provides examples of EASD approaches and policy initiatives in OECD countries and partner economies.

Accessing and Sharing the Benefits of the Genomics Revolution

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Publisher : Springer Science & Business Media
ISBN 13 : 1402058225
Total Pages : 213 pages
Book Rating : 4.4/5 (2 download)

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Book Synopsis Accessing and Sharing the Benefits of the Genomics Revolution by : Peter W.B. Phillips

Download or read book Accessing and Sharing the Benefits of the Genomics Revolution written by Peter W.B. Phillips and published by Springer Science & Business Media. This book was released on 2007-05-09 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume explores the legal, economic and political debate over intellectual property rights for traditional knowledge and genetic resources, analyzing theory and practice of access and benefits sharing around the world. The book investigates current flashpoints — the battle between Monsanto and Percy Schmeiser over farmers’ rights; disputes over coexistence of genetically modified and organic produce; and ownership and control of human genetic materials stored in human gene banks around the world.

Sharing the Costs and Benefits of Energy and Resource Activity

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Author :
Publisher : Oxford University Press
ISBN 13 : 0198767951
Total Pages : 481 pages
Book Rating : 4.1/5 (987 download)

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Book Synopsis Sharing the Costs and Benefits of Energy and Resource Activity by : Lila Katz Barrera-Hernández

Download or read book Sharing the Costs and Benefits of Energy and Resource Activity written by Lila Katz Barrera-Hernández and published by Oxford University Press. This book was released on 2016 with total page 481 pages. Available in PDF, EPUB and Kindle. Book excerpt: Energy and resource activities bring benefits for many, but also impose costs on communities. This book uses cases studies from across the globe to examine the emergence of 'sharing' and the legal measures which seek to balance the costs of energy and resources projects.

Sharing water, sharing benefits

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Author :
Publisher : UNESCO
ISBN 13 : 9231041673
Total Pages : 284 pages
Book Rating : 4.2/5 (31 download)

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Book Synopsis Sharing water, sharing benefits by : Wolf, Aaron T.

Download or read book Sharing water, sharing benefits written by Wolf, Aaron T. and published by UNESCO. This book was released on 2010-06-06 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Handbook of Global Bioethics

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Publisher : Springer
ISBN 13 : 9789400725119
Total Pages : 0 pages
Book Rating : 4.7/5 (251 download)

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Book Synopsis Handbook of Global Bioethics by : Henk A.M.J. ten Have

Download or read book Handbook of Global Bioethics written by Henk A.M.J. ten Have and published by Springer. This book was released on 2013-10-07 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: As the first of its kind, this handbook presents state-of-the-art information and analysis concerning the state of affairs in bioethics in around 40 countries. The country reports point out the most important discussions as well as the emerging topics in the field. Readers can orientate themselves quickly with regard to the various relevant issues, institutional structures and expertise available in these countries. The authorship of this reference work is truly global as it involves contributions from the best authors with innate knowledge of the bioethics situation in these countries.

Accessing Biodiversity and Sharing the Benefits

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Author :
Publisher : IUCN
ISBN 13 : 2831708168
Total Pages : 332 pages
Book Rating : 4.8/5 (317 download)

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Book Synopsis Accessing Biodiversity and Sharing the Benefits by : Santiago Carrizosa

Download or read book Accessing Biodiversity and Sharing the Benefits written by Santiago Carrizosa and published by IUCN. This book was released on 2004 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book aims to address the lack of information on the experiences of others by providing a comparative analysis of national access and benefit-sharing laws and policies in the 41 Pacific Rim countries that signed the CBD. It provides key insights on the main characteristics of selected access and benefit-sharing (ABS) policies and laws, their development, and implementation process. It contains a detailed comparative analysis of existing laws and policies. It presents four case studies of countries with regulations in place and contrasts them with four case studies of countries that are struggling to develop their regulations. It ends by discussing options of an international regime on ABS and a summary analysis of the main lessons and recommendations from the study.

Sharing the benefits around large dams in West Africa

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Author :
Publisher : IIED
ISBN 13 :
Total Pages : 83 pages
Book Rating : 4./5 ( download)

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Book Synopsis Sharing the benefits around large dams in West Africa by :

Download or read book Sharing the benefits around large dams in West Africa written by and published by IIED. This book was released on with total page 83 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Access to Plant Genetic Resources and the Equitable Sharing of Benefits

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Author :
Publisher : Bioversity International
ISBN 13 : 9290432853
Total Pages : 90 pages
Book Rating : 4.2/5 (94 download)

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Book Synopsis Access to Plant Genetic Resources and the Equitable Sharing of Benefits by : International Plant Genetic Resources Institute

Download or read book Access to Plant Genetic Resources and the Equitable Sharing of Benefits written by International Plant Genetic Resources Institute and published by Bioversity International. This book was released on 1996 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 6th session of the FAO Commission on Plant Genetic Resources requested that IPGRI study the feasibility of possible systems for the exchange of plant genetic resources for food and agriculture (PGRFA)1 and the equitable sharing of benefits. The following report is the result of that study. It seeks to provide the Commission with a set of options and their implications and thus to inform international negotiationsconncerning the revision of the International Undertaking on Plant Genetic Tesources. As part of the study process a wide series of consultations was held with major stakeholder groups. A fundamental justification for conserving and characterizing PGRFA is their potential for use in the development of improved crop varieties. These improved varieties are necessary to meet the food needs of a growing population and the demands of changing agro-ecological and social conditions.

Sharing the non-monetary benefits of agricultural biodiversity - Issues in Genetic Resources No. 5, September 2001

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Author :
Publisher : Bioversity International
ISBN 13 : 9290434864
Total Pages : 14 pages
Book Rating : 4.2/5 (94 download)

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Book Synopsis Sharing the non-monetary benefits of agricultural biodiversity - Issues in Genetic Resources No. 5, September 2001 by : Ruth Raymond

Download or read book Sharing the non-monetary benefits of agricultural biodiversity - Issues in Genetic Resources No. 5, September 2001 written by Ruth Raymond and published by Bioversity International. This book was released on 2001 with total page 14 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Implications of the Net Fiscal Benefits Criterion for Cost Sharing in Flood Control Projects

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Author :
Publisher :
ISBN 13 :
Total Pages : 138 pages
Book Rating : 4.:/5 (359 download)

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Book Synopsis The Implications of the Net Fiscal Benefits Criterion for Cost Sharing in Flood Control Projects by : Mathematica, Inc

Download or read book The Implications of the Net Fiscal Benefits Criterion for Cost Sharing in Flood Control Projects written by Mathematica, Inc and published by . This book was released on 1971 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Equitable Sharing

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Publisher : Lexington Books
ISBN 13 : 0739184377
Total Pages : 247 pages
Book Rating : 4.7/5 (391 download)

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Book Synopsis Equitable Sharing by : Thomas Kleven

Download or read book Equitable Sharing written by Thomas Kleven and published by Lexington Books. This book was released on 2013-12-16 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: Equitable Sharing: Distributing the Benefits and Detriments of Democratic Society argues that a principle of equitable sharing—one that requires the benefits and detriments of social life to be fairly distributed among all members of society—is fundamental to the concept of democracy and is implicit in the founding documents of the democratic society the United State purports to be. To illustrate the centrality of equitable sharing to democracy, this book examines the political philosophies of John Locke, John Stuart Mill, and John Rawls. Locke’s libertarianism, Mill’s utilitarianism, and Rawls’ egalitarianism represent major strains of Western democratic theory, and all contain a principle of equitable sharing in some form. To illustrate the centrality of equitable sharing to U.S. society, the book examines the Declaration of Independence and the Constitution. While these documents do not set forth a particular version of equitable sharing, they contain elements of all of Locke’s, Mill’s and Rawls’ philosophies and evidence a commitment to equitable sharing as fundamental to the democratic society they contemplate. The task of U.S. society throughout its existence has been to engage in an on-going dialogue that gives life to the commitment to equitable sharing set forth in its founding documents. As the elected representatives of the people and the repository of the powers through which to implement much of what equitable sharing requires, the primary responsibility for implementation rests with the legislative branch. This book argues that the Supreme Court, interacting with the public and the legislature, also has a meaningful role to play in the dialogue over the requirements of equitable sharing and can play this role in a manner consistent with democratic principles. This point is illustrated through a discussion of several contemporary issues: same sex marriage, racial integration in public schools, health care, and the regulation of the electoral process.