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Associations Among Respite Care Uplifts Stress And Marital Quality Of Parents Of Children With Autism Spectrum Disorder And Down Syndrome
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Book Synopsis Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome by : Jamie Kaye Easler
Download or read book Associations Among Respite Care, Uplifts, Stress, and Marital Quality of Parents of Children with Autism Spectrum Disorder and Down Syndrome written by Jamie Kaye Easler and published by . This book was released on 2016 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study compared the relationships among respite care, uplifts, stress, and marital quality across two different groups of caregivers—102 heterosexual married couples with children with autism spectrum disorder (ASD) and 111 heterosexual married couples with children with Down syndrome (DS). This study also investigated if the effect of respite care on stress and marital quality varied as a function of the amount of uplifts these caregivers experienced. Participants completed self-report surveys. Three two-group Actor Partner Interdependence Models were estimated to calculate the direct, indirect, and partner-effects among these variables. Respite care was not related to stress for either groups of parents, but it was positively associated with husband and wife marital quality for parents of children with ASD. Uplifts were negatively associated with stress and positively associated with marital quality for both husbands and wives with children with ASD, but only for wives with children with DS. Furthermore, when husbands and wives with children with ASD reported more weekly respite hours and daily uplifts, wives tended to report more daily stress. However, as husbands and wives reported less weekly respite care and more daily uplifts, wives tended to report less daily stress. Implications for these findings are discussed.
Book Synopsis Respite Care and Marital Quality in Parents of Children with Down Syndrome by : Michelle Norton
Download or read book Respite Care and Marital Quality in Parents of Children with Down Syndrome written by Michelle Norton and published by . This book was released on 2015 with total page 88 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of a child with a disability are at greater risk than other couples for having higher stress, adjustment difficulties, and lower marital quality. Respite care has been shown to reduce stress in parents of children with disabilities. This study focused on parents who have a child with Down syndrome and their reported marital quality and respite care received. One hundred and twelve couples, each consisting of a mother and a father who lived with their child with Down syndrome, completed questionnaires included the Revised Dyadic Adjustment Scale, Experience in Close Relationships Questionnaire, Daily Hassles and Uplifts Scale, and a respite questionnaire. Results were mixed. Respite care did not predict marital quality for either wives or husbands. However, respite hours was related to wife stress, which was in turn related to wife marital quality. Respite hours was also related to husband stress, which was related to husband marital quality. In addition, wife uplifts was directly related to wife marital quality and to husband marital quality. Husband uplifts was related to husband marital quality. While not directly predicting marital quality, respite care was indirectly related to increases in marital quality through stress. Therefore, it is important that respite care be accessible and provided to parents who have a child with Down syndrome. Recommendations for policy makers and researchers are offered.
Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell
Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
Book Synopsis Respite Care by : Christine L. Salisbury
Download or read book Respite Care written by Christine L. Salisbury and published by . This book was released on 1986 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ce document fait la description des besoins de répit ou de dépannage auprés des famille d'enfant rencontrant des difficultés importantes. Certains modèles sont proposés comme la coopérative de services. Le focus est orienté sur les besoins des parents et de la famille ainsi que pour l'élaboration des systèmes d'évaluation.
Book Synopsis Parents of Autistic Children's Use of Respite Care at a Private Facility in South Africa by : Nandi Pamela Robinson
Download or read book Parents of Autistic Children's Use of Respite Care at a Private Facility in South Africa written by Nandi Pamela Robinson and published by . This book was released on 2018 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The current incidence of autism in South Africa is 1 :88 and is gradually increasing (Lindenberg, 2013). A number of South African schools that cater for learners with autistic spectrum disorder (ASD) have also emerged and aim to address the increasing demand for the assistance of both the children diagnosed with ASD and their families (American Psychiatric Association, 2013; Lindenberg, 2013). By definition, respite care is an intermittent service offered to the parents of a chronically ill child to substitute them, when they are in need of a break, from their 24/7 responsibility in caring for their child (Neufeld, Query, & Drummond, 2001). Current literature alludes to difficulties experienced by children with ASD with regards to their psychological, emotional and social functions, which suggests that there may be a very real need for respite care (Benderix, Nordstrom, & Sivberg, 2006; Desai, Divan, Wertz, & Patel, 2012; Molteno, Molteno, Finchilescu, & Dawes, 2001 ; Pengelly, Rogers, & Evans, 2009; Whitaker & Hirst, 2002; Woodgate, Ateah, & Secco, 2008). The purpose of the current study is to explore the unique experiences of parents of children diagnosed with ASD who utilise private respite care services in South Africa. Primary research question: What are the experiences of South African parents of children diagnosed with ASD who utilise private respite care in South Africa? In conducting this study, a qualitative case study method and a research design, that utilised interpretivism as paradigm, was used to capture the unique experiences of parents utilising private respite care for their child with ASD. The case study was confined to parents who had recently utilised respite care at a specific private respite care centre in South Africa. The data collection strategy encompassed semi-structured interviews in which three parents, representing three separate parenting styles, were interviewed. Measures were taken to ensure the quality of the data and ethically responsible research practice.
Book Synopsis Emerging Issues in Family Support by : Valerie J. Bradley
Download or read book Emerging Issues in Family Support written by Valerie J. Bradley and published by American Association. This book was released on 1992 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Use of Respite Care and Relieving of Family Stress in Families with Children with Autism by : Pamela S. Norton
Download or read book The Use of Respite Care and Relieving of Family Stress in Families with Children with Autism written by Pamela S. Norton and published by . This book was released on 1995 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Respite and Well-being Among Families With Children With Autism Spectrum Disorder by : Alyssa Ann Soohoo
Download or read book Respite and Well-being Among Families With Children With Autism Spectrum Disorder written by Alyssa Ann Soohoo and published by . This book was released on 2019 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Together, the study points to the need for future studies to investigate a broad range of types of respite programs for individuals with ASD and their families.
Book Synopsis Expectations and Stress Related to Choosing and Providing Treatment by : Virginia Helen Mackintosh
Download or read book Expectations and Stress Related to Choosing and Providing Treatment written by Virginia Helen Mackintosh and published by . This book was released on 2007 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Does Disability Severity Matter? The Daily Lives of Parent Caregivers of Children with Developmental Disabilities by : Meghann L. Fenn
Download or read book Does Disability Severity Matter? The Daily Lives of Parent Caregivers of Children with Developmental Disabilities written by Meghann L. Fenn and published by . This book was released on 2016 with total page 71 pages. Available in PDF, EPUB and Kindle. Book excerpt: Individuals with disabilities and their parents, even within specific disability diagnoses, have diverse life experiences and trajectories. The current study focuses on parents of individuals with developmental disabilities. Developmental disabilities (DD) are a diverse group of severe chronic conditions evident at birth or acquired during childhood that affect major life activities such as language, mobility, learning, self-help, and independent living; and include conditions such as Down syndrome, attention deficit hyperactive disorder (ADHD), autism spectrum disorders, and general developmental delays. This study builds on previous literature concerning stress, caregiving, and disability by examining the daily lives, experiences, and wellbeing of parents of children with DD. The majority of health and wellbeing research being done in this area focuses on overall or global wellbeing. Comparatively little research has examined the daily lives, experiences, and wellbeing of these parents, who exist within extremely fluid contexts that change daily. Furthermore, this study also aims to build on previous research by considering the severity of the child’s disability, in order to further contextualize and understand the complex levels of influence within these parents’ daily lives. Using data from the second wave of the National Study of Daily Experiences (NSDE), the daily diary project of the National Survey of Midlife in the United States (MIDUS), this study examined these topics further by answering three specific research questions; First, to what extent does the association between daily stressors and same-day positive and negative affect differ for parents of children with and without DD? Second, to what extent does the association between daily positive events and same-day positive and negative affect differ for parents of children with and without DD? And lastly, are these associations further moderated by the severity of the child’s disability? A total of 82 participants (Mean Age = 57.4; 59% female, 96% non-Hispanic White, 79% married, Mean Education = 14 years) were identified as parents of children with DD. A sample of 82 individuals who were parents of typically developing children were identified and matched as a comparison group based on: parent gender, parent age, number of children in the household, child age, whether the target child lives with the parent, parent marital status, and parent educational attainment. Participants completed 8 nightly telephone interviews, which included assessments of their daily stressors and positive events, as well as positive and negative affect. Results from the current study found that the daily lives of individuals with disabilities and their parents are diverse and complex. Compared to their matched counterparts, parents of children with DD experienced significantly greater increases in negative affect associated with the experience of daily stressors. In contract, parents of children with DD exhibited comparable increases in daily positive affect associated with the daily positive experiences. With respect to severity of disability, the longevity of the child’s disability diagnosis, the number of comorbid disability diagnoses, and the number of comorbid mental health diagnoses, did selectively moderate daily experience-wellbeing associations, but not in a symmetric fashion across indicators. Taken together, the daily experiences and daily wellbeing of parents caring for a child with a disability cannot be understood and defined merely by knowing their child’s disability status. Parents of children with DD may be vulnerable because of the chronic stress context of caring for a child with a disability, and they show more reactive patterns of daily wellbeing when experiencing daily stressors, however, they also show resiliency in their daily wellbeing when experiencing daily positive events. The current study attempted to better contextualize and understand the daily lives of caregiving parents by moving beyond a binary definition of disability (yes/no a disability is present), and findings suggest that severity of disability is a complex phenomenon in need of continued empirical investigation.
Download or read book Respite Care written by Shirley Cohen and published by Pro-Ed. This book was released on 1985 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder by : Ian McDonough
Download or read book Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder written by Ian McDonough and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the continuing increased incidence rate of autism spectrum disorder over the decades, there are increasing numbers of adults with autism who require varying levels of lifelong care, typically from parents. It is necessary to understand parents' lived experience of lifelong caregiving, and how their own aging process further impacts life quality. Furthermore, greater understanding of stressors, resources, appraisals, and coping among parent caregivers of children with "high functioning autism" who are transitioning into young adulthood is particularly necessary as services, needs, and experiences for both are nuanced due to functional status, deficits in the service system, and demographic disparities. Given lifespan aspects past research has not addressed, the study focused on development of a measure of parent accumulated stressors, and on interrelations of stressors, perceived social support, future time perspective, burden, satisfaction, and coping on health-related quality of life and meaning in life among 28 parents of young adults with autism. Although proposed quantitative analyses were not completed due to sample size, qualitative analyses on parent experiences and stressors revealed common themes of concern for child's future quality of life, complicated dynamics of providing help to their child overtime, and increased stress related to others' lack of understanding of their child. In total, 10 themes and multiple subthemes were identified in relation to aspects of accumulated stressors. Findings suggest parent stress with this specific population is complex, manifesting in nuanced ways at different life stages. Impacts of the COVID-19 pandemic are also explored, and implications for scientific advancement and clinical services are discussed.
Book Synopsis A New Course: A Mother's Journey Navigating Down Syndrome and Autism by : Teresa Unnerstall
Download or read book A New Course: A Mother's Journey Navigating Down Syndrome and Autism written by Teresa Unnerstall and published by Kat Biggie Press. This book was released on 2020-02-15 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shortly after Teresa gave birth to her second son, Nick, he was diagnosed with Down syndrome. Early infant and child intervention helped Nick reach developmental milestones in his own time. But there was more to come when Nick hit third grade. A wave of fire alarm-pulling along with other serious and dangerous behaviors signaled that this was something more than just Down syndrome. At last, a book that takes a deep dive into the complexities that families face raising a child with a dual diagnosis of Down syndrome and autism (DS-ASD) and other intellectual and developmental disabilities. A New Course is a hybrid of a memoir combined with valuable lessons following each chapter and in the appendix. It's a must read for families, school faculty, therapists, physicians, and support groups wanting to understand a parent's perspective and looking for answers about: Early intervention, Individual education plans (IEPs) and transition meetings, Speech, physical, and occupational therapies, Behavior support and applied behavior analysis (ABA), Toilet training and puberty issues, Wandering and elopement, Meltdowns, and Augmentative and alternative communication. Author Teresa Unnerstall provides guidance and hope steeped in more than 25 years of experience. She is a parent turned educational speaker, writer, advocate, and consultant. Her determination to find resources, support, and specialists helped her son to reach his full potential.
Book Synopsis Stress, Social Support, and Sense of Parenting Competence by : Jill Kimberly Belchic
Download or read book Stress, Social Support, and Sense of Parenting Competence written by Jill Kimberly Belchic and published by . This book was released on 1995 with total page 134 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Stress, Health Behaviors, and Health Outcomes in Caregivers of Children with Autism Spectrum Disorder by : Ashley Holub
Download or read book Stress, Health Behaviors, and Health Outcomes in Caregivers of Children with Autism Spectrum Disorder written by Ashley Holub and published by . This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) is a developmental disorder marked by communication limitations and behavioral features that vary broadly across individuals. The identification of ASD has increased by approximately 30% since 2008. As the identification of ASD continues to increase, similarly so does the number of caregivers of children with ASD, making this an important, and growing population. Since children with ASD may have a unique phenotypic profile of behaviors caregivers of children with ASD often face increased levels of stress, and experience higher levels of stress compared to other populations, including caregivers of children of other developmental disabilities. Chronic stress is a known risk factor for a wide range of chronic diseases, including cardiometabolic and mental health outcomes. Chronic stress may also influence health behaviors such as smoking, alcohol use and physical activity through coping mechanisms. The occurrence of chronic diseases and their risk factors in caregivers of children with ASD has not been well studied. There is a need to further investigate specific child behaviors as correlates of caregiver health and health behaviors. This project included two studies. The first study examined stress in caregivers of children with ASD and focused on specific child behaviors, within a locally-recruited sample of N=116 caregivers of children with ASD aged 3-17 years. Caregivers completed the Autism Behavior Inventory-Short as a measure of child behaviors, and the Parent Stress Scale as a measure of total parenting stress. We used linear regression to determine the association between specific child behaviors and caregiver stress. We hypothesized that caregivers of children with higher levels of behavioral difficulties (social-communication, mental health, repetitive behaviors) will report higher levels of self-reported stress, compared to caregivers of children with fewer behavioral difficulties. More behavioral difficulties in each domain was associated with higher levels of parental stress. For the second study, data on health behaviors and health outcomes from the National Health Interview Survey 2016-2017 cycles were used to compare caregivers of children with ASD to caregivers of typically developing children and children with other disabilities (N=10,162). For the child, information on child's diagnosis was reported by the parent. For the parent, health risk behaviors and health outcomes were self-reported. We used logistic regression to determine effects and hypothesized that caregivers of children with ASD will report more adverse health behaviors (i.e., smoking, alcohol use, less physical activity) compared to caregivers of typically developing children and caregivers of children with other disabilities. We also hypothesized that caregivers of children with ASD will have more cardiometabolic outcomes (i.e., type 2 diabetes, obesity, hypertension, high cholesterol) and more mental health symptoms compared to caregivers of typically developing children and caregivers of children with other disabilities. Compared to typically developing caregivers, caregivers of children with ASD had higher odds of physical inactivity, smoking and tobacco use, and heavy drinking, though these relationships varied when compared to other disability groups. The effect estimates for these relationships also were of low magnitude and were relativity imprecise. Similar patterns of association were shown for health outcomes compared to caregivers of children with other disabilities. Overall, our findings suggest that it is the culmination of the child's phenotype that results in increased caregiver stress, rather than individual, unique behaviors. This may support the idea that is the total experience of all behaviors that is important, including those not required for an ASD diagnosis, but that are commonly shared with other developmental disorders. Furthermore, caregivers of children with ASD had more adverse health behaviors and outcomes compared to caregivers of typically developing children, but not when compared to other disability groups, though these estimates had low magnitude and were relatively imprecise. Caregiver stress should be considered for potential interventions to improve their health. Future studies should seek to better understand why child behaviors influence caregiver stress and how caregiver stress may influence health risk behaviors and health outcomes.
Book Synopsis The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household by : Alisa Tamarrah Cook
Download or read book The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household written by Alisa Tamarrah Cook and published by . This book was released on 2021 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis "Family based respite care - a model for partnership" by : National Association For Family Based Respite Care. Conference
Download or read book "Family based respite care - a model for partnership" written by National Association For Family Based Respite Care. Conference and published by . This book was released on 1993 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
