Amish Family Care for Children with Chronic Illnesses

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Author :
Publisher :
ISBN 13 :
Total Pages : 276 pages
Book Rating : 4.:/5 (818 download)

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Book Synopsis Amish Family Care for Children with Chronic Illnesses by : Angela M. Kueny

Download or read book Amish Family Care for Children with Chronic Illnesses written by Angela M. Kueny and published by . This book was released on 2011 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: To provide culturally competent care for Amish children, this study describes provider competencies needed to understand and accommodate the child's family cultural orientation, values, beliefs, and health care practices into cooperative care planning. One of the most significant attributes for providers to understand when working with Amish families is their collectivist perspective. As collectivists, these families may place the ultimate Amish community goals of believing in God, separation from society, and traditional lifestyle choices over their own when caring for children with chronic illnesses. This is a difficult competency for health care providers who function within a larger medical legal system that requires the placement of individuals above other considerations. It is at the intersection of these two cultures that this study is situated.

Chronically Ill Children and Their Families

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Author :
Publisher : Jossey-Bass
ISBN 13 :
Total Pages : 456 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Chronically Ill Children and Their Families by : Nicholas Hobbs

Download or read book Chronically Ill Children and Their Families written by Nicholas Hobbs and published by Jossey-Bass. This book was released on 1985 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt:

When Your Child Has a Chronic Medical Illness

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Publisher : American Psychological Association
ISBN 13 : 1433833824
Total Pages : 272 pages
Book Rating : 4.4/5 (338 download)

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Book Synopsis When Your Child Has a Chronic Medical Illness by : Frank J. Sileo

Download or read book When Your Child Has a Chronic Medical Illness written by Frank J. Sileo and published by American Psychological Association. This book was released on 2021-03-09 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Silver Medal for Parenting in the Independent Publishers Awards "This is an outstanding book that addresses the challenges of chronic disease in children from multiple viewpoints with a great deal of practical knowledge. Given that Diabetes is one of the most common chronic diseases of childhood, this work will serve to guide families in navigating the sometimes challenging journey to ensure the best possible outcomes for all." - Robert Gabbay, MD, PhD, Chief Scientific and Medical Officer for the American Diabetes Association Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you’re focused on ensuring your child gets the best possible treatments for their symptoms, it’s easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Caring for Children with Chronic Illness

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Author :
Publisher : Churchill Livingstone
ISBN 13 :
Total Pages : 340 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Caring for Children with Chronic Illness by : Ruth E. K. Stein

Download or read book Caring for Children with Chronic Illness written by Ruth E. K. Stein and published by Churchill Livingstone. This book was released on 1989 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Ways to Help Chronically Ill Children

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Publisher : Mitchell Lane Publishers, Inc.
ISBN 13 : 161228129X
Total Pages : 52 pages
Book Rating : 4.6/5 (122 download)

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Book Synopsis Ways to Help Chronically Ill Children by : Tammy Gagne

Download or read book Ways to Help Chronically Ill Children written by Tammy Gagne and published by Mitchell Lane Publishers, Inc.. This book was released on 2010-12-23 with total page 52 pages. Available in PDF, EPUB and Kindle. Book excerpt: All kids get sick now and then, but children who suffer from chronic illnesses don’t recover quickly from their diseases. They have to deal with being sick for long periods of time, sometimes indefinitely. Dealing with a chronic illness is no fun. Often it means staying in the hospital or at home, away from school and friends. It can also mean enduring painful medical procedures. All of this can make a chronically ill child feel sad, scared, and lonely at times. You may wonder if there is anything you can do to help. Whether you already know a person with a chronic illness or you want to make some new friends, the best gift you can give is your time. This book discusses ten different ways that you can help a child who must deal with a chronic illness. Some of the ideas are big, others are small, but all of them can make a true difference in the life of a chronically ill child.

Home and Community Care for Chronically Ill Children

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Publisher : Oxford University Press, USA
ISBN 13 :
Total Pages : 184 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Home and Community Care for Chronically Ill Children by : James Marc Perrin

Download or read book Home and Community Care for Chronically Ill Children written by James Marc Perrin and published by Oxford University Press, USA. This book was released on 1993 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: This important book lays common ground for all who have reason and responsibility to enhance the capability of families to care for their ill children over the long term at home.

Chronic Illness in Children

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Publisher : Springer Publishing Company
ISBN 13 : 082619799X
Total Pages : 256 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Chronic Illness in Children by : Laura L. Hayman, PhD, RN, FAAN

Download or read book Chronic Illness in Children written by Laura L. Hayman, PhD, RN, FAAN and published by Springer Publishing Company. This book was released on 2002-09-05 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a research-based discussion of common childhood chronic illnesses and their etiology, diagnosis, treatment, and management. Along with information on specific diseases and conditions, such as asthma, diabetes, and arthritis, the book includes chapters on psychosocial management, focusing on family coping, stress on the child, and adherence. This is a rich resource for nurses and other health practitioners looking for an overview of children's chronic illness in an evidence-based context.

In the Shadow of Illness

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Publisher : Princeton University Press
ISBN 13 : 0691214700
Total Pages : 321 pages
Book Rating : 4.6/5 (912 download)

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Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner

Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

Raising Children With Chronic Illness

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Publisher : Covenant Books, Inc.
ISBN 13 : 1644681315
Total Pages : 111 pages
Book Rating : 4.6/5 (446 download)

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Book Synopsis Raising Children With Chronic Illness by : Dana Rogers Ph.D RN

Download or read book Raising Children With Chronic Illness written by Dana Rogers Ph.D RN and published by Covenant Books, Inc.. This book was released on 2020-11-11 with total page 111 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is an inspiring, heartfelt story of a mother's journey in raising two children who were diagnosed with very serious health problems at birth. The mother has a unique perspective as both a psychologist and registered nurse as she and her husband diligently worked to provide the best life possible for each child. The determination and perseverance this family showed in fighting for each child's very existence is quite remarkable. The youngest child who was born with a severe case of cystic fibrosis required a liver transplant as a teenager and later a double lung transplant in his early twenties. He is now thirty years of age doing well and working as a registered nurse. His older brother who had breathing trouble at birth contracted a virus later in childhood that resulted in ulcerative colitis requiring a complete colectomy. He is now thirty-two years of age. He is thriving and doing well working in the medical field. A nice dimension to the book is that each boy is interviewed and asked what it was like living with a chronic illness as a child and now as an adult. Each boy's advice to parents of chronically ill children is meant to be of support to parents in their life journey in raising their child.

Issues in the Care of Children with Chronic Illness

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Publisher :
ISBN 13 :
Total Pages : 1004 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Issues in the Care of Children with Chronic Illness by : Nicholas Hobbs

Download or read book Issues in the Care of Children with Chronic Illness written by Nicholas Hobbs and published by . This book was released on 1985 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Healing Your Child

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Publisher :
ISBN 13 : 9780967852300
Total Pages : 172 pages
Book Rating : 4.8/5 (523 download)

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Book Synopsis Healing Your Child by : Barry R. Gillespie

Download or read book Healing Your Child written by Barry R. Gillespie and published by . This book was released on 1999 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Impact of Family Centered Care on the Perception of Health in Children with Chronic Illness

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Publisher :
ISBN 13 :
Total Pages : 44 pages
Book Rating : 4.:/5 (119 download)

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Book Synopsis The Impact of Family Centered Care on the Perception of Health in Children with Chronic Illness by : Erika T. Brink

Download or read book The Impact of Family Centered Care on the Perception of Health in Children with Chronic Illness written by Erika T. Brink and published by . This book was released on 2020 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of the current study was to better understand medical provider use, or nonuse, of Family Centered Care (FCC) (Kuo et al., 2012) and how it relates to a parent's perception of the overall health of their child. Children with Special Healthcare Needs (CSHCN) and Children with Medical Complexity (CMC) face additional complexities as they interact and navigate the healthcare system. The present study sought to better understand how medical professionals can help ease the burdens these families face as they seek medical care. This study used archival data from the National Survey of Children's Health (NSCH) to conduct a linear regression. The results indicated parental perception of care contributes to 3% of the overall health of the child. Findings suggest medical providers who effectively utilize the core tenets of FCC may be able to positively influence parental perception of their child's health through the patient-provider relationship.

Growing Up with a Chronic Disease

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Publisher : Jessica Kingsley Publishers
ISBN 13 : 9781853021688
Total Pages : 260 pages
Book Rating : 4.0/5 (216 download)

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Book Synopsis Growing Up with a Chronic Disease by : Christine Eiser

Download or read book Growing Up with a Chronic Disease written by Christine Eiser and published by Jessica Kingsley Publishers. This book was released on 1993 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, drawing on theoretical and practical sources, acknowledges the potential for distress involved in caring for a sick child but also emphasizes the coping resources and skills that can be, and frequently are, adopted by families.

Primary Care of the Child with a Chronic Condition

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Publisher :
ISBN 13 :
Total Pages : 904 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Primary Care of the Child with a Chronic Condition by : Patricia Jackson Allen

Download or read book Primary Care of the Child with a Chronic Condition written by Patricia Jackson Allen and published by . This book was released on 2000 with total page 904 pages. Available in PDF, EPUB and Kindle. Book excerpt: PRIMARY CARE OF THE CHILD WITH A CHRONIC CONDITION provides pediatric health care professionals with the knowledge necessary to give comprehensive primary care to children with special needs and their families. Part I addresses the major issues common to care of all children with chronic conditions: the role of the primary care provider, the impact of a chronic condition on the childs development; the impact on the family; school issues; ethical and cultural concerns; and the financial resources needed to support the care of a child with a chronic condition. Part II identifies specific chronic conditions and the alterations in standard primary care practices needed to promote optimum health. expert contributors to provide the most accurate and current information available. Includes boxes on Clinical Manifestations, Diagnostic Criteria, Differential Diagnosis, and Treatment to highlight these important features and make it easy for the reader to access this information in the Chronic Conditions chapters. Provides comprehensive summary boxes at the end of the chronic condition chapter. Presents all conditions in a consistent format, using the following organizion: Etiology Incidence Clinical Manifestations Treatment Associated Problems Prognosis Primary Care Management: Health Care Maintenance and Common Illness Management Developmental Issues Family Concerns and Resources Provides the latest treatment information available with thoroughly revised andupdated content. Includes thorough revisions to Chapter 7, Financing Health Care for Children With Chronic Conditions, to reflect the many changes in the health care industry, including managed care. Features a new chapter on Transition into Adulthood, Chapter 8, to address this important phase of adolescent development. The chapter addresses the difficulties encountered by children with chronic conditions and coverstransition in health care, transition to independent living, transition to secondary education or vocation, laws regarding transition planning, and the role of primary care providers. Includes a new chapter on Autism, Chapter 10, to focus on the large number of children being diagnosed with autism, and includes information on mainstreaming children with autism, and how this practise is increasing. Provides pertinent web site addresses in the resource lists at the end of each chapter for additional sources of information.

Primary Care of the Child With a Chronic Condition E-Book

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Author :
Publisher : Elsevier Health Sciences
ISBN 13 : 032308088X
Total Pages : 880 pages
Book Rating : 4.3/5 (23 download)

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Book Synopsis Primary Care of the Child With a Chronic Condition E-Book by : Patricia Jackson Allen

Download or read book Primary Care of the Child With a Chronic Condition E-Book written by Patricia Jackson Allen and published by Elsevier Health Sciences. This book was released on 2009-06-25 with total page 880 pages. Available in PDF, EPUB and Kindle. Book excerpt: Written by nurse practitioners for nurse practitioners, this one-of-a-kind resource provides the expert guidance you need to provide comprehensive primary care to children with special needs and their families. It addresses specific conditions that require alterations in standard primary care and offers practical advice on managing the major issues common to children with chronic conditions. A consistent format makes it easy to locate essential information on each condition. Plus, valuable resources help you manage the issues and gaps in health care coverage that may hinder quality care. This is the only book authored by Nurse Practitioners that focuses on managing the primary health care needs of children with chronic conditions. More than 60 expert contributors provide the most current information available on specific conditions. Comprehensive summary boxes at the end of all chronic conditions chapters provide at-a-glance access to key information. Resource lists at the end of each chronic condition chapter direct you to helpful websites, national organizations, and additional sources of information that you can share with parents and families. Updated references ensure you have access to the most current, evidence-based coverage of the latest research findings and management protocols. Four new chapters — Celiac Disease, Eating Disorders, Muscular Dystrophy, and Obesity — keep you up to date with the latest developments in treating these conditions. Autism content is updated with the latest research on autism spectrum disorders, including current methods of evaluation, identification, and management. Coverage of systems of care features new information on how to help families obtain high-quality and cost-effective coordinated services within our complex health care system. Easy-to-find boxes in the chronic conditions chapters summarize important information on treatment, associated problems, clinical manifestations, and differential diagnosis.

Primary Care of the Child with a Chronic Condition

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Publisher :
ISBN 13 :
Total Pages : 824 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Primary Care of the Child with a Chronic Condition by : Judith A. Vessey

Download or read book Primary Care of the Child with a Chronic Condition written by Judith A. Vessey and published by . This book was released on 1996 with total page 824 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book does an important job by providing state-of-the-art knowledge for providers to enable them to make sensible decisions about care for children.

Ordinary Families, Special Children

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Publisher : Guilford Publications
ISBN 13 : 1462532322
Total Pages : 450 pages
Book Rating : 4.4/5 (625 download)

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Book Synopsis Ordinary Families, Special Children by : Milton Seligman

Download or read book Ordinary Families, Special Children written by Milton Seligman and published by Guilford Publications. This book was released on 2017-02-13 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: This popular clinical reference and text provides a multisystems perspective on childhood disability and its effects on family life. The volume examines how child, family, ecological, and sociocultural variables intertwine to shape the ways families respond to disability, and how professionals can promote coping, adaptation, and empowerment. Accessible and engaging, the book integrates theory and research with vignettes and firsthand reflections from family members.