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A Phenomenological Study Of The Lived Experiences Of Parents Of Young Children With Autism Receiving Special Education Services
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Book Synopsis A Phenomenological Study of the Lived Experiences of Parents of Young Children with Autism Receiving Special Education Services by :
Download or read book A Phenomenological Study of the Lived Experiences of Parents of Young Children with Autism Receiving Special Education Services written by and published by . This book was released on 2017 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the past two decades reported rates of autism have steadily risen. The current incidence is 1 in 68 children. While autism can be reliably diagnosed at 18 months in most children with the condition, specialized autism treatment rarely begins before a child's third or fourth birthday. As screening and diagnosis procedures improve so does the need for effective early interventions for autism. Researchers and professionals have expressed a growing concern over the need for effective early interventions for infants and toddlers with autism. At the same time, there is a dearth of qualitative research exploring the needs and experiences of parents with a very young child with autism. Employing a phenomenological framework, the purpose of this study was to investigate the lived experiences of parents of a young child with autism receiving early special education services. Unstructured interviews and photo elicitation were used to generate rich, detailed descriptions of the phenomenon. Data analysis from photographic images and narrative dialogues illuminated six essential themes across participants: (a) parents as pioneers: forging the way for future families; (b) making the journey as a family; (c) navigating uncharted service systems; (d) overcoming challenges and obstacles; (e) resilience, ingenuity and hope; and (f) reflecting on the first three years and looking forward. Participants expressed that they felt this study gave them a "voice" in the research literature. This study is one of the first to investigate the lived experiences of parents as they seek and secure autism services for their child under five with autism.
Book Synopsis Qualitative Research in Education by : Marilyn Lichtman
Download or read book Qualitative Research in Education written by Marilyn Lichtman and published by Taylor & Francis. This book was released on 2023-01-31 with total page 471 pages. Available in PDF, EPUB and Kindle. Book excerpt: The fourth edition of this reader-friendly book offers an accessible introduction to conducting qualitative research in education. The text begins with an introduction to the history, context, and traditions of qualitative research, and then walks readers step-by-step through the research process. Lichtman outlines research planning and design, as well as the methodologies, techniques, and strategies to help researchers make the best use of their qualitative investigation. Throughout, chapters touch on important issues that impact this research process such as ethics and subjectivity and making use of technology. The fourth edition has been thoroughly revised and updated featuring new examples, an increased focus on virtual and digital data collection, and the latest approaches to qualitative research. Written in a practical, conversational style and full of real-world scenarios drawn from across education, this book is a practical compendium on qualitative research in education ideal for graduate and advanced undergraduate research methods courses and early career researchers alike. Hear Marilyn discuss what inspired her to write this fourth edition and what readers can expect. In this podcast episode of The Qualitative Report, she discusses the various types of qualitative research and what defines quality and rigor as well as current issues in education and how qualitative research methods can be used to address them. Finally, she shares her thoughts about technology and the future of qualitative research.
Book Synopsis A Phenomenological Study of Parents Accessing and Receiving Professional Care for Their Child with Autism Spectrum Disorder (ASD) During the COVID-19 Outbreak in Washington State by : Patrick M. Barry
Download or read book A Phenomenological Study of Parents Accessing and Receiving Professional Care for Their Child with Autism Spectrum Disorder (ASD) During the COVID-19 Outbreak in Washington State written by Patrick M. Barry and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: COVID-19 changes and restrictions have necessitated a change in the way schools, mental health providers, medical providers, and other educational and therapy services provide for children with autism. This study explores, in-depth, the experience of parents of children with ASD as they have navigated the COVID-19 required changes to professional treatment and services for children with ASD and their families. Research suggests that raising a child with an autism spectrum disorder (ASD) can be an overwhelming experience for parents and families, and greater family burden is positively associated with the number of unmet professional help service needs. As services were moved to online or discontinued during COVID-19 in Washington state, participants experienced a reduced access to care and describe in this study how it impacted their families. Specifically, parents and children preferred professional supports that were in person and when treating the child, participants appreciated a whole family approach where they were included in the therapy process but were not compelled to provide the therapy. Parents added that the further isolation that lockdowns, move to online therapies, online schooling, and shutting down of parks, and other venues had an outsized negative impact on them and their family. The systemic family impact of the COVID-19 mitigation efforts by providers of professional supports were significant to parents and varied across delivery methods, age of the children, parental transgenerational challenges, and other significant factors.
Book Synopsis Recent Advances in Technologies for Inclusive Well-Being by : Anthony Lewis Brooks
Download or read book Recent Advances in Technologies for Inclusive Well-Being written by Anthony Lewis Brooks and published by Springer Nature. This book was released on 2021-03-16 with total page 551 pages. Available in PDF, EPUB and Kindle. Book excerpt: In a time of ongoing pandemic when well-being is a priority this volume presents latest works across disciplines associated to Virtual Patients, Gamification and Simulation. Chapters herein present international perspectives with authors from around the globe contributing to this impactful third edition to the series following a 2014 Springer book on Technologies for Inclusive Well-Being and a 2017 Springer book Recent Advances in Technologies for Inclusive Well-Being. Digital technologies are pervasive in life and the contributions herein focus on specific attributes and situations, especially in training and treatment programmes spanning across ranges of diagnosis, conditions, ages, and targeted impacts. This volume purposefully does not cover all (even if that was possible) aspects on how virtual interactive space can align to statial computing, which in turn can align with related embodied entities (whatever the terms used e.g. Virtual, Augmented, Extended, Mixed Realities) along with AI, Deep Learning etc. It also doesn’t cover what some may refer to as ‘trendy terms’ such as 360 degree, video, WebXR, cryptocurrency, blockchain, virtual goods, AR museums, travel and teleportation...however, what is covered in this book, and the prior volumes it builds upon (as above), is a sharing and questioning of advancing technologies for inclusive well-being through research and practices from an avant-garde perspective.
Book Synopsis How to Design Studies and Write Research Proposals - E-BOOK by : Kader Parahoo
Download or read book How to Design Studies and Write Research Proposals - E-BOOK written by Kader Parahoo and published by Elsevier Health Sciences. This book was released on 2024-03-15 with total page 293 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you’re writing a research proposal for the first time, this is the book for you. It’s the only text on the market that guides you through the entire process, from designing a research study to submitting a successful proposal. It covers everything from formulating the research question to selecting the research methodology, collecting data, and navigating ethics, all supported with plenty of practical tips, real life examples and checklists for honing your proposal. How to Design Studies and Write Research Proposals is written by nursing research expert Professor Kader Parahoo, whose work is loved by students for its accessible writing style and practical approach. Takes readers through all the steps of the research process from developing research questions to research impact Deals with quantitative, qualitative and mixed methods studies Provides examples of real proposals, most of which are freely accessible online Makes reference to research studies and research proposals from a wide range of countries Provides examples from the fields of nursing, allied health sciences and social work Provides detailed checklists of items to include in proposals, at the end of each chapter Provides useful references and links that readers can access to further explore issues raised in the text. Written in a language and style that makes research easier to understand
Book Synopsis Advancing Self-Directed Learning in Higher Education by : Mncube, Dumsani Wilfred
Download or read book Advancing Self-Directed Learning in Higher Education written by Mncube, Dumsani Wilfred and published by IGI Global. This book was released on 2023-05-01 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: Self-directed learning (SDL) is considered a core concept in problem-based learning (PBL) and student-centered learning. More importantly, the current face-to-face model of curriculum implementation faces many challenges that seem to question its dominance over other models. The violent nature of the COVID-19 pandemic has again vindicated SDL practitioners and research enthusiasts to continue seeking solutions that will enhance skills to cope in a rapidly changing technological, globalized world. However, the higher education sector is challenged when promoting SDL due to a slow pace of digital integration since the education system is not fully transformed. This has necessitated an urgent need for global discourse on how universities globally are implementing SDL strategies to enhance the quality of curriculum delivery. Advancing Self-Directed Learning in Higher Education provides insight into various strategic approaches that could be adopted for the successful implementation of SDL in higher education. It is written for professionals who want to improve their understanding of how to improve student teaching and learning and the quality of curriculum implementation in higher education. In this realm, this book provides ideas to its readers about the approaches pertaining to strategy and innovative measures, practical implementations, and tools in the field of curriculum and SDL. Covering topics such as educational technology, intentional education practice theory, and student experience, this premier reference source is an essential resource for teachers, policymakers, lecturers, research scholars, students of higher education, administrators, librarians, academicians, and researchers.
Book Synopsis The Lived Experiences of Parents Raising a Child with Autism Spectrum Disorder by : Thomas DeGeorge
Download or read book The Lived Experiences of Parents Raising a Child with Autism Spectrum Disorder written by Thomas DeGeorge and published by . This book was released on 2018 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents who have a child who has been diagnosed with Autism Spectrum Disorder (ASD) embark on two journeys, pragmatic and emotional. The pragmatic journey encompasses the day-to-day management of schedules, therapy sessions, finances, siblings, school meetings extended family supports, and social relationships. The emotional journey involves denial, grief, anger, conflict in marital relationships, confusion, and hopelessness. Typical counseling experiences offered to parent often centers on the pragmatic journey and neglects the emotional journey. This study presents a phenomenological study to assess the lived experiences of parents who have raised a child with ASD and describes how their emotional needs were addressed during the parental journey of raising a child with ASD. This phenomenological study will elucidate the essential structure of the lived experience of parents as they adjust to their child's diagnosis of ASD. The findings in this study include the effect on marriages, extended families, siblings, and social relationships. From these shared lived experiences, counselors can learn to be supportive and informed concerning the needs and desires of parents while raising a child with ASD
Book Synopsis Getting Services for Your Child on the Autism Spectrum by : Matthew G. Foley
Download or read book Getting Services for Your Child on the Autism Spectrum written by Matthew G. Foley and published by Jessica Kingsley Publishers. This book was released on 2002-02-25 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: For any parent of a child on the autism spectrum, obtaining educational and other services for their child is an ongoing and often intractable problem. This book tells the story of two parents of a child first diagnosed with Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS), whose initial experiences with the education system were not unlike those of most parents of a child with a disability. Their role soon changed from parents to parent/professionals when they realized that the professionals were not sure how to respond to their son's special needs. This book describes their experiences in obtaining educational services and information about the disability community, what they learned from those experiences and what other parents can do to help their own child. The book provides honest, open, and practical advice, which will be invaluable to anyone whose child is diagnosed with an autism spectrum condition, and to all those professionals who work with them.
Book Synopsis Parents of Children with Autism by : Juliette de Wolfe
Download or read book Parents of Children with Autism written by Juliette de Wolfe and published by Springer. This book was released on 2014-07-10 with total page 191 pages. Available in PDF, EPUB and Kindle. Book excerpt: In a readable and highly accessible ethnographic account that is shaped by the stories of families and the voices of parents, De Wolfe examines how parents of children with autism navigate the educational and medical systems, understand their own and their children's bodies, and support and educate one another.
Book Synopsis Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Setting by : Faye McRavion
Download or read book Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Setting written by Faye McRavion and published by . This book was released on 2022 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this transcendental phenomenological study was to understand, as a lived experience, the parents’ quality of life (QoL) with young adult children diagnosed with autism spectrum disorder (ASD) residing on a college campus. In addition, this study helped understand parent experiences related to factors about transition and their QoL. For parents of adult children with ASD in a college residency setting, many stressful and challenging times were attributed to their child living outside the home, which ultimately impacted parental stress and the parents’ QoL. The theory guiding this study is the Schlossberg Transition Theory (1981), and the 4 S Transition model of assimilation and appraisal was used to conceptualize the framework. The central research question for this study was designed to understand the lived experiences of parents with young adult ASD children living in a college residency setting and the impact stress and transition had on their QoL. The research sub-questions were designed to understand better parenting a young adult child with ASD and the significant challenges as resources and support systems were limited. A transcendental phenomenological approach was used for this study, and data collection included questionnaires, semi-structured individual interviews, and a single focus group interview. Data analysis was manually collected and included bracketing, open coding, and thematic analysis. The analysis yielded four major themes: Relinquishing Control, Fear of the Unknown, Evolution Within Transition, and Campus Support. In addition, findings from this study also revealed how to support families with adult children affected by autism and enrich the education of professionals who work with them in higher education.
Book Synopsis A Phenomenological Study of the Lived Experiences of Mothers of Children with Autism who Have Undergone Neurofeedback Treatment by : Dorothy A. Byrne
Download or read book A Phenomenological Study of the Lived Experiences of Mothers of Children with Autism who Have Undergone Neurofeedback Treatment written by Dorothy A. Byrne and published by . This book was released on 2005 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Electroencephalogram (EEG) biofeedback, also called neurobiofeedback or neurofeedback therapy, has been demonstrated to be an effective treatment to correct neuronal misfiring for a variety of disorders, including some complex symptomatology characteristic of autism. Autism is a serious life-long neurological developmental disability with unknown etiology that has complex and varied symptomatology in three primary dimensions of impairment: (1) qualitative impairment in reciprocal social interaction; (2) impairment in communication and imaginative activity; and, (3) markedly restricted repertoire of activities and interests. Many children with autism are highly attuned or even painfully sensitive to certain sounds, textures, tastes, and smells. Parents of children with autism are faced with the possibility of parenting a child who may need constant supervision all of his or her life. Meanwhile the daily life experiences of managing the manifest behaviors characteristic of the diagnosis provide a lived reality that any family would call "a nightmare." A qualitative research design of the phenomenological tradition has been employed to investigate differences in the lived experiences of mothers of children with autism who have undergone neurofeedback treatment. The vivid descriptions provided by the mothers investigated demonstrate that, in fact, the practice of neurofeedback therapy has made a profound and positive difference in the complex varied symptomatology of autism of the children in this study; the daily lives of these children with autism and the lives of their family members have been dramatically affected.
Book Synopsis Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Residential Setting by : Faye McRavion
Download or read book Understanding the Quality of Life of Parents Whose Young Adult Children Diagnosed with Asperger's Syndrome Live in a College Residential Setting written by Faye McRavion and published by . This book was released on 2022 with total page 175 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this transcendental phenomenological study was to understand, as a lived experience, the parents’ quality of life (QoL) with young adult children diagnosed with autism spectrum disorder (ASD) residing on a college campus. In addition, this study helped understand parent experiences related to factors about transition and their QoL. For parents of adult children with ASD in a college residency setting, many stressful and challenging times were attributed to their child living outside the home, which ultimately impacted parental stress and the parents’ QoL. The theory guiding this study is the Schlossberg Transition Theory (1981), and the 4 S Transition model of assimilation and appraisal was used to conceptualize the framework. The central research question for this study was designed to understand the lived experiences of parents with young adult ASD children living in a college residency setting and the impact stress and transition had on their QoL. The research sub-questions were designed to understand better parenting a young adult child with ASD and the significant challenges as resources and support systems were limited. A transcendental phenomenological approach was used for this study, and data collection included questionnaires, semi-structured individual interviews, and a single focus group interview. Data analysis was manually collected and included bracketing, open coding, and thematic analysis. The analysis yielded four major themes: Relinquishing Control, Fear of the Unknown, Evolution Within Transition, and Campus Support. In addition, findings from this study also revealed how to support families with adult children affected by autism and enrich the education of professionals who work with them in higher education.
Book Synopsis "People Think It's Easy Because I Smile, But It's Not Easy" by : Shaniqua J. Bradley
Download or read book "People Think It's Easy Because I Smile, But It's Not Easy" written by Shaniqua J. Bradley and published by . This book was released on 2020 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Grounded in Resilience Theory (Masten et al., 1990; Masten, 2001; Walsh, 1996; Walsh, 2002; Walsh 2003a, Walsh 2003b) with a specific focus on parental resilience (Gavidia-Payne et al., 2015), this qualitative phenomenological study explored the lived experiences of low-income single parent families (FASP) with at least one adolescent aged 11 through 21 who was enrolled in special education classes in school and was engaging in risk behaviors. Two central research questions were addressed. The first focused on the lived experiences of FASP and the second focused on their perspectives on how schools can better support these families. Data for this study were collected through 6 face-to-face, in-depth, semi-structured interviews. Three major themes emerged from their experiences: Life adjustment, The child is the priority, and Perseverance revealing their experience to be one of resilience. Participants also shared and provided insight on their perspectives regarding how schools can better support families such as theirs. Findings revealed that school systems are not collaborating with parents as schools should. Findings highlight the need for further research with this population in the context of resilience. Suggestions for schools and communities working with such families are discussed.
Book Synopsis A Phenomenological Study of Parents of Autistic Children's Experiences with Safety by : Tania Celia
Download or read book A Phenomenological Study of Parents of Autistic Children's Experiences with Safety written by Tania Celia and published by . This book was released on 2019 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism is a complex problem with a significant global burden with increasing prevalence. Autism is a complex disorder with varying presentations. Autistic children are most often cared for by parents who, at the time their child is diagnosed, are overwhelmed and have limited knowledge of autism and the potential safety issues that exist. Safety may not be an immediate consideration while they learn to cope with the diagnosis and what it means for them and their family. It is unknown if healthcare providers are communicating enough about safety issues specific to autism to give these parents appropriate anticipatory guidance during check-ups. A review of the literature reveals limited recommendations for the education of parents of autistic children about how to manage safety concerns specific to autism or what safety issues to anticipate once their child has been diagnosed with autism. During this phenomenological study, parents of autistic children were interviewed. The study explored the safety issues they have experienced with their child and where they obtained information about safety specific to autism. Ricoeur's hermeneutic phenomenology method was used to interpret the data. Two underlying structures which demonstrated the trajectory of the experience were: lost/ finding our way and battle-ready/battle weary. The phenomenological themes within battle weary included: living with fear, living with uncertainty, and living with disappointment. The participants provided recommendations for other parents and healthcare providers to help keep autistic children safe. This study illustrates the unique perspective of parents of autistic children concerning safety.
Book Synopsis A Phenomenological Study of the Experiences of Parents as They Choose the Appropriate Classroom for Their Child with High-functioning Autism Spectrum Disorder by : Lorie Mick
Download or read book A Phenomenological Study of the Experiences of Parents as They Choose the Appropriate Classroom for Their Child with High-functioning Autism Spectrum Disorder written by Lorie Mick and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this qualitative phenomenological study is to explore the experiences and challenges of parents as they choose an appropriate classroom setting for their child with highfunctioning autism spectrum disorder (HFASD) at an elementary school. Parents of students with HFASD must grapple with this decision each year at their child’s annual IEP review meeting. The theory guiding this study is Knowles’ adult learning theory. Adult learning theory states that adults use both their personal experiences and intrinsic motivation to discover information that they need to make a decision. Ten parents of elementary-aged children diagnosed with HFASD were selected as participants in this study in an attempt to combine their shared experiences with this phenomenon. The data collected for this research included interviews, participant journals, and a focus group. Data analysis followed van Manen’s hermeneutic circle. In hermeneutic phenomenology, the focus is on the researcher’s interactions with the data. The themes found in this study were the prior experiences of parents, successful outcomes for students with HFASD, level of functioning, and personal factors. Ultimately, the findings of the study revealed that parents of students with HFASD feel like they are equal partners with the IEP team but have a varying degree of confidence in their role as decision-makers. The full experience of the parents including their thought processes, challenges, and opinions were extracted from the data collection process. These findings show a strong connection to the Knowles adult learning theory.
Book Synopsis The Lived Experience of Parents Who Have a Child Diagnosed with a Developmental Disability Who Received Early Intervention Services in Thailand by : Plern Pratoommas
Download or read book The Lived Experience of Parents Who Have a Child Diagnosed with a Developmental Disability Who Received Early Intervention Services in Thailand written by Plern Pratoommas and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Parent Perspectives of Inclusion for Children with Autism Spectrum Disorders by : Rebecca A. Mack
Download or read book Parent Perspectives of Inclusion for Children with Autism Spectrum Disorders written by Rebecca A. Mack and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this transcendental phenomenological study was to explore the experiences with inclusion for parents of students with autism spectrum disorder (ASD) and combined intellectual impairment in elementary schools in the United States. The theory guiding this study is Bandura’s theory on social cognitive learning as it applies to students with disabilities learning from observing their peers without disabilities. This study design was a transcendental phenomenological qualitative design to explore multiple parents’ unique experiences with the same phenomenon—inclusion for their child with ASD. Participants were chosen using criterion and snowball sampling from social media groups and live across the United States. Data were collected via interviews, focus groups, and document analysis. The data were analyzed using the modified Stevick Colaizzi-Keen method from Moustakas. The data analysis led to four major themes: (a) adult support in inclusion, (b) peer relationships, (c) “closing the gap,” and (d) IEP participation. These results indicate an ongoing need for teachers to communicate and include parents in the decision-making processes for children with ASD and intellectual impairments. Keywords: autism spectrum disorder, intellectual impairment, inclusion, elementary school
