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Author :
Publisher :
ISBN 13 : 9780903561136
Total Pages : 121 pages
Book Rating : 4.5/5 (611 download)
Download or read book Wheelchair Provision for Children and Adults with Muscular Dystrophy and Other Neuromuscular Conditions written by and published by . This book was released on 2006 with total page 121 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Leon I. Charash
Publisher : Routledge
ISBN 13 : 1317765656
Total Pages : 264 pages
Book Rating : 4.3/5 (177 download)
Download or read book Muscular Dystrophy and Other Neuromuscular Diseases written by Leon I. Charash and published by Routledge. This book was released on 2014-09-19 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: Here is a thoughtful new book for professionals who assist persons afflicted with neuromuscular disorders to help them and their families adapt to lifestyle changes accompanying the onset of these disorders. Health care professionals provide strategies to maintain the psychosocial well-being of children and adults with neuromuscular disorders which, in addition to physical damage, also assault the sense of self and challenge the individual’s ability to move and communicate. Chapters describe the psychosocial aspects of a variety of neuromuscular diseases such as Duchenne and myotonic muscular dystrophy, multiple sclerosis, amyotrophic lateral sclerosis, Friedeich’s ataxia, and Charcot-Marie-Tooth disease. The distinctive characteristics of each disease are examined with special attention given to the natural history, treatment, management, and psychosocial issues of the specific disorder. Beyond the clinical and research importance of Muscular Dystrophy and Other Neuromuscular Diseases, it also addresses the anxiety, doubts, and questions felt by patients with chronic progressive disabilities and their families. This helpful guide is unique in the way it features the interaction of professionals in the social services, psychology, religion, and various medical specialties in the care and treatment of these patients. Professionals in all of these disciplines, as well as the patients and families afflicted by these disorders, will benefit from this valuable resource.
Author : David Hilton-Jones
Publisher : Oxford University Press, USA
ISBN 13 : 0199580359
Total Pages : 202 pages
Book Rating : 4.1/5 (995 download)
Download or read book Neuromuscular Disorders in the Adult written by David Hilton-Jones and published by Oxford University Press, USA. This book was released on 2011-01-13 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical handbook for anyone caring for people with progressive disability due to muscle wasting conditions.
Author : Gabbitas
Publisher : Kogan Page Publishers
ISBN 13 : 074946416X
Total Pages : 594 pages
Book Rating : 4.7/5 (494 download)
Download or read book Schools for Special Needs 2011-2012 written by Gabbitas and published by Kogan Page Publishers. This book was released on 2011-10-03 with total page 594 pages. Available in PDF, EPUB and Kindle. Book excerpt: Special needs provision continues to be the focus of much attention. Growing emphasis on the importance of meeting individual and often highly complex needs means that finding the right school for a child can be a complicated process. Schools for Special Needs explains the full system of special needs education in the UK, and offers parents and carers a comprehensive range of information and advice on key areas of concern, along with the details of more than 2,000 establishments. The book provides commentary from experts in all sectors of special education, and includes: advice on assessment and identification of needs, statementing and school choice; the role of the local authority; the Special Educational Needs Codes of Practice; guidance on further and higher education; and indexes listing schools according to type of need.
Author : Kate Stone
Publisher : John Wiley & Sons
ISBN 13 : 9780470510407
Total Pages : 272 pages
Book Rating : 4.5/5 (14 download)
Download or read book Occupational Therapy and Duchenne Muscular Dystrophy written by Kate Stone and published by John Wiley & Sons. This book was released on 2007-09-27 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a practical guide for Occupational Therapists and others who provide services to people who have Duchenne muscular dystrophy. The goal of the book is to deepen the readers understanding of the support that occupational therapists can offer to families who are affected by this condition. Written by experienced occupational therapists with a special interest in Duchenne muscular dystrophy. The book will provide information and support to therapists who may be working in isolation, or who rarely work with this client group. It is for the experienced therapist as well as the student. Each chapter of this book gives a clear and comprehensive description of different aspects of occupational therapy assessments and interventions.
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309170931
Total Pages : 458 pages
Book Rating : 4.3/5 (91 download)
Download or read book Neurological, Psychiatric, and Developmental Disorders written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-01 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.
Author : George Karpati
Publisher : Cambridge University Press
ISBN 13 : 9780521650625
Total Pages : 800 pages
Book Rating : 4.6/5 (56 download)
Download or read book Disorders of Voluntary Muscle written by George Karpati and published by Cambridge University Press. This book was released on 2001-07-12 with total page 800 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rewritten and redesigned, this remains the one essential text on the diseases of skeletal muscle.
Author : Philippa Harpin
Publisher :
ISBN 13 : 9780903561044
Total Pages : pages
Book Rating : 4.5/5 (61 download)
Download or read book Adaptations Manual written by Philippa Harpin and published by . This book was released on 2003-01-01 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Aziz Shaibani
Publisher : Oxford University Press
ISBN 13 : 0197632580
Total Pages : 785 pages
Book Rating : 4.1/5 (976 download)
Download or read book A Video Atlas of Neuromuscular Disorders written by Aziz Shaibani and published by Oxford University Press. This book was released on 2024 with total page 785 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Video Atlas of Neuromuscular Disorders is the essential reference on adult neuromuscular disorders and their diagnosis and treatment. Perfect for preparing for the neurology and neuromuscular boards, this book and accompanying videos have become an invaluable resource for neurology and neuromuscular training programs, while catering to the too-busy and often-overwhelmed modern doctor with its straightforward structure and language.
Author : Basil T. Darras
Publisher : Elsevier
ISBN 13 : 0124171273
Total Pages : 1156 pages
Book Rating : 4.1/5 (241 download)
Download or read book Neuromuscular Disorders of Infancy, Childhood, and Adolescence written by Basil T. Darras and published by Elsevier. This book was released on 2014-12-03 with total page 1156 pages. Available in PDF, EPUB and Kindle. Book excerpt: Neuromuscular disorders are diagnosed across the lifespan and create many challenges especially with infants, children and adolescents. This new edition of the definitive reference, edited by the established world renowned authorities on the science, diagnosis and treatment of neuromuscular disorders in childhood is a timely and needed resource for all clinicians and researchers studying neuromuscular disorders, especially in childhood. The Second Edition is completely revised to remain current with advances in the field and to insure this remains the standard reference for clinical neurologists and clinical research neurologists. The Second Edition retains comprehensive coverage while shortening the total chapter count to be an even more manageable and effective reference. Carefully revised new edition of the classic reference on neuromuscular disorders in infancy, childhood and adolescence. Definitive coverage of the basic science of neuromuscular disease and the latest diagnosis and treatment best practices. Includes coverage of clinical phenomenology, electrophysiology, histopathology, molecular genetics and protein chemistry
Author : National Organization for Rare Disorders
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 9780781730631
Total Pages : 982 pages
Book Rating : 4.7/5 (36 download)
Download or read book NORD Guide to Rare Disorders written by National Organization for Rare Disorders and published by Lippincott Williams & Wilkins. This book was released on 2003 with total page 982 pages. Available in PDF, EPUB and Kindle. Book excerpt: NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.
Author : Gabbitas Educational Consultants
Publisher :
ISBN 13 : 9780749449872
Total Pages : 682 pages
Book Rating : 4.4/5 (498 download)
Download or read book Schools for special needs 2007-2008 written by Gabbitas Educational Consultants and published by . This book was released on 2007 with total page 682 pages. Available in PDF, EPUB and Kindle. Book excerpt: The definitive guide to special needs education in the UK, fully revised and updated for this new edition. Special needs provision has changed rapidly in recent years, and finding the right school is increasingly complicated for parents and their supporting professionals. Schools for Special Needs explains the system and the application/selection processes involved, and offers parents comprehensive independent advice on how to identify the need for special education and how to make the right choices. With details of over 2,000 establishments and guidance from experts in all sectors of special education, this book is an indispensable aid to all those (professional and laypeople) investigating the legal and practical aspects of ensuring suitable educational provision for children and young people at all stages in education.
Author : Alan E. H. Emery
Publisher : OUP Oxford
ISBN 13 : 0191503665
Total Pages : 300 pages
Book Rating : 4.1/5 (915 download)
Download or read book Duchenne Muscular Dystrophy written by Alan E. H. Emery and published by OUP Oxford. This book was released on 2015-02-19 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Duchenne Muscular Dystrophy, an inherited and progressive muscle wasting disease, is one of the most common single gene disorders found in the developed world. In this fourth edition of the classic monograph on the topic, Alan Emery and Francesco Muntoni are joined by Rosaline Quinlivan, Consultant in Neuromuscular Disorders, to provide a thorough update on all aspects of the disorder. Recent understanding of the nature of the genetic defect responsible for Duchenne Muscular Dystrophy and isolation of the protein dystrophin has led to the development of new theories for the disease's pathogenesis. This new edition incorporates these advances from the field of molecular biology, and describes the resultant opportunities for screening, prenatal diagnosis, genetic counselling and from recent pioneering work with anti-sense oligonucleotides, the possibility of effective RNA therapy. Although there is still no cure for the disorder, there have been significant developments concerning the gene basis, publication of standards of care guidelines, and improvements in management leading to significantly longer survival, particularly with cardio-pulmonary care. The authors also investigate other forms of pharmacological, cellular and gene therapies. Duchenne Muscular Dystrophy will be essential reading not only for scientists and clinicians, but will also appeal to therapists and other professionals involved in the care of patients with muscular dystrophy.
Author : Kevan Chandler
Publisher : Worthy Books
ISBN 13 : 1546014691
Total Pages : 304 pages
Book Rating : 4.5/5 (46 download)
Download or read book We Carry Kevan written by Kevan Chandler and published by Worthy Books. This book was released on 2019-04-23 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: A story about friendships and commitment to one another so incredible you wouldn't believe it if it wasn't true. Kevan is just one of the guys. It's impossible to know him and not become a little more excited about life. He is an inspiring man permeated by joy, unafraid of sorrow, full of vitality and life! His sense of humor is infectious and so is his story. He grew up, he says, at "belt-buckle level" and stayed there until Kevan's beloved posse decided to leave his wheelchair at the Atlanta airport, board a plane for France, and have his friends carry him around Europe to accomplish their dream to see the world together! Kevan's beloved posse traveled to Paris, England, and Ireland where, in the climax of their adventure, they scale 600 feet up to the 1,400-year-old monastic fortress of Skellig Michael. In We Carry Kevan the reader sits with Kevan, one head-level above everyone else for the first time in his life and enjoys camaraderie unlike anything most people ever experience. Along the way they encounter the curiosity and beauty of strangers, the human family disarmed by grace, and the constant love of God so rich and beautiful in the company of good friends. We Carry Kevan displays the profound power of friendship and self-sacrifice.
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309472245
Total Pages : 351 pages
Book Rating : 4.3/5 (94 download)
Download or read book Opportunities for Improving Programs and Services for Children with Disabilities written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-08-06 with total page 351 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.
Author : World Health Organization
Publisher :
ISBN 13 : 9789241564182
Total Pages : 325 pages
Book Rating : 4.5/5 (641 download)
Download or read book World Report on Disability written by World Health Organization and published by . This book was released on 2011 with total page 325 pages. Available in PDF, EPUB and Kindle. Book excerpt: The World Report on Disability suggests more than a billion people totally experience disability. They generally have poorer health, lower education and fewer economic opportunities and higher rates of poverty than people without disabilities. This report provides the best available evidence about what works to overcome barriers to better care and services.
Author : Joan C. Arvedson
Publisher : Plural Publishing
ISBN 13 : 1944883525
Total Pages : 619 pages
Book Rating : 4.9/5 (448 download)
Download or read book Pediatric Swallowing and Feeding written by Joan C. Arvedson and published by Plural Publishing. This book was released on 2019-07-26 with total page 619 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Swallowing and Feeding: Assessment and Management, Third Edition provides information to practitioners interested in and involved with children who demonstrate swallowing and feeding disorders. Since the 2002 publication of the second edition, there has been an exponential increase in the number of medically fragile and complex children with swallowing/feeding disorders. A corresponding proliferation in the related basic and clinical research has resulted in the increased appreciation of the complicated inter-relationships between structures and systems that contribute to swallowing/feeding development, function, and disorders. Case studies throughout the book provide examples for decision making and highlight salient points. New to the Third Edition: * Maureen A. Lefton-Greif, PhD, CCC-SLP, BCS-S, is welcomed as co-editor. She brings extensive research expertise and clinical practice in pediatric dysphagia and feeding. * All chapters contain significant updated evidence-based research and clinical information. * New chapters focus on the genetic testing and conditions associated with swallowing and feeding disorders, and the pulmonary manifestations and management of aspiration. * World Health Organization (WHO) description of an International Classification of Functioning, Disability, and Health (ICF) sets the stage for an in-depth discussion of clinical feeding evaluation procedures, interpretation, and management decision making. Pediatric Swallowing and Feeding continues to be the leading text on pediatric dysphagia that provides practical information for clinicians seeing children with swallowing and feeding disorders. The overall importance of an appropriate fund of knowledge and shared experience employing team approaches is emphasized throughout this third edition as in the earlier editions of this book. From the Foreword: "The Editors have recognized the advances and changes in the understanding in the information now available for the care of pediatric swallowing and feeding challenges. They have recruited an outstanding group of contributors for this newest edition. There are numerous critically important updates and additions in the third edition. They have included World Health Organizations International Classification of Functioning, Disability and Health is the functional basis in all areas of the book. This text has its importance as there has been an increased number of children with complex medical and healthcare conditions which are risk for feeding and swallowing disorders. This edition stresses the need for team approaches and also documents the use of “virtual” teams ...Pediatric Swallowing and Feeding: Assessment and Management, Third Edition is the fundamental holistic source for all healthcare providers providing the care for swallowing and feeding in children. This book will be utilized by all caring for children with feeding and swallowing problems throughout the world. The previous editions have been and now this updated third edition continues to be the standard source for the information concerning diagnosis and care of these children." —Robert J. Ruben, MD, FAAP, FACS Distinguished University Professor Departments of Otorhinolaryngology – Head and Neck Surgery and Pediatrics Albert Einstein College of Medicine Montefiore Medical Center Bronx, New York
