Author : Norah Louise Johnson
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (632 download)
Book Synopsis Understanding Relationships in Health Related Quality of Life for Parents of Children with Autism Spectrum Disorder by : Norah Louise Johnson
Download or read book Understanding Relationships in Health Related Quality of Life for Parents of Children with Autism Spectrum Disorder written by Norah Louise Johnson and published by . This book was released on 2009 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Nurses encounter many parents of children with autism spectrum disorder (ASD). Both parents are under stress that ultimately impacts their health related quality of life (HRQL). Few studies assess the mediators of parenting stress on HRQL for both parents. This study explored the relationship of parenting stress, family functioning and HRQL for parenting dyads of children with ASD. Lazarus and Folkman's (1984) Transactional Model of Stress and Coping and Lakey and Cohen's (2000) Social Support Theory framed the study. Implementing a cross sectional, descriptive design, 387 parents (n=64 dyads) of ASD-affected children, from 46 states, completed web-based surveys. Demographics, the Feetham Family Functioning Survey (FFFS), Parenting Stress Scale: Autism (PSS:A), and the Rand 36 HRQL measure were collected. The FFFS discrepancy score (D), quantified differences between expectation and reality. The Rand 36 has a mental (MCS) and a physical (PCS) component scale. A non-parametric Wilcoxon test was used to compare fathers and mothers. Pearson correlation and linear regression were used to analyze relationships. Females' family functioning discrepancy scores between 'what is' and 'should be' family functioning were significantly wider than males, p=.002. The MCS of both parents and the PCS of female parents were negatively related to the stress variables and D scores. For females, higher care-giving stress was related to lower female PCS (p