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Author : Annie Meyer Wilkinson
Publisher :
ISBN 13 :
Total Pages : 224 pages
Book Rating : 4.:/5 (352 download)
Download or read book The Lived Experience of Hope in Parents of Critically Ill Children written by Annie Meyer Wilkinson and published by . This book was released on 1996 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Arleen L. Hodge
Publisher :
ISBN 13 :
Total Pages : 204 pages
Book Rating : 4.:/5 (241 download)
Download or read book The Lived Experience of Hope in Families of the Critically Ill written by Arleen L. Hodge and published by . This book was released on 1991 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Cynthia Sue Brunsman
Publisher :
ISBN 13 :
Total Pages : 380 pages
Book Rating : 4.3/5 (129 download)
Download or read book A Phenomenological Study of the Lived Experience of Hope in Families with Chronically Ill Child written by Cynthia Sue Brunsman and published by . This book was released on 1988 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Amanda M. Gengler
Publisher : NYU Press
ISBN 13 : 1479864625
Total Pages : 255 pages
Book Rating : 4.4/5 (798 download)
Download or read book "Save My Kid" written by Amanda M. Gengler and published by NYU Press. This book was released on 2020-01-21 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In “Save My Kid,” Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children’s critical illnesses. She also uncovers the role that emotional goals—deeply rooted in the culture of illness and medicine—play in medical decision-making, healthcare interactions, and the end of children’s lives. A deeply compassionate read, “Save My Kid” is an inside look at inequality in healthcare among those with the most at stake.
Author : Rick and Sheree Drabek
Publisher : Xlibris Corporation
ISBN 13 : 1462898092
Total Pages : 99 pages
Book Rating : 4.4/5 (628 download)
Download or read book Little Blessings written by Rick and Sheree Drabek and published by Xlibris Corporation. This book was released on 2011-07-12 with total page 99 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you experiencing feelings of shock, anger, or depression because your child or a child close to you has been diagnosed with a terminal illness? Are you having trouble making the right medical decisions? Do you feel like you just can’t do it all on your own? Are you struggling with what the future holds for your ill child? Most support networks for parents and families of terminally ill children are not able to provide first-hand knowledge into the physical, emotional, and spiritual needs of those caring for the child. Through their own experiences with a terminally ill child, Rick and Sheree Drabek guide you through many of the decisions you might face and encourage you to discover all of the blessings in your life.
Author : Duane R. Bidwell
Publisher : Beacon Press
ISBN 13 : 0807024708
Total Pages : 194 pages
Book Rating : 4.8/5 (7 download)
Download or read book After the Worst Day Ever written by Duane R. Bidwell and published by Beacon Press. This book was released on 2024-03-19 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who care for chronically ill children, a new understanding of hope that equips adults to better nurture pediatric hope among sick kids—articulated by the children themselves As anyone with a chronic illness knows, hope can sometimes be hard to come by. For parents and caregivers of children with serious illness, there can be a real struggle to move beyond one's own grief, fear, and suffering to see what hope means for these kids. Duane Bidwell, a scholar, minister, and former hospital chaplain who has struggled with serious illness himself, spent time with 48 chronically ill children in dialysis units and transplant clinics around the United States. Chronically ill kids, he found, don’t adhere to popular or scholarly understandings of hope. They experience hope as a sense of well-being in the present, not a promise of future improvement, an ability to set goals, or the absence of illness and suffering. With this mindset, these kids suggest a new understanding of pediatric hope, saying hope becomes concrete when they (1) realize community, (2) claim power, (3) attend to Spirit, (4) choose trust, and (5) maintain identity. Offering textured portraits of children with end-stage kidney disease, After the Worst Day Ever illustrates in their words how sick children experience, maintain, and turn toward hope even when illness cannot be cured and severely limits quality of life. Their insights reveal how the adults in a sick child's world—parents, chaplains, medical professionals, teachers, and others—can nurture hope. They also shift our understanding of hope from an internal resource located “inside” an individual to a shared, communal experience that becomes a resource for individuals. Rich and moving, Bidwell’s work helps us imagine anew what it means to sustain hope despite inescapable suffering and the limits of chronic illness.
Author : Christopher Johnson
Publisher :
ISBN 13 : 9780882822846
Total Pages : 228 pages
Book Rating : 4.8/5 (228 download)
Download or read book Your Critically Ill Child written by Christopher Johnson and published by . This book was released on 2007 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains how and where to find medical treatments and technology how to navigate the medical labyrinth, and provides vital checklists and advice for parents.
Author : Stuart J. Youngner
Publisher : Oxford University Press
ISBN 13 : 0190628642
Total Pages : 489 pages
Book Rating : 4.1/5 (96 download)
Download or read book The Oxford Handbook of Ethics at the End of Life written by Stuart J. Youngner and published by Oxford University Press. This book was released on 2016-09-13 with total page 489 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook explores the topic of death and dying from the late twentieth to the early twenty-first centuries, with particular emphasis on the United States. In this period, technology has radically changed medical practices and the way we die as structures of power have been reshaped by the rights claims of African Americans, women, gays, students, and, most relevant here, patients. Respecting patients' values has been recognized as the essential moral component of clinical decision-making. Technology's promise has been seen to have a dark side: it prolongs the dying process. For the first time in history, human beings have the ability control the timing of death. With this ability comes a responsibility that is awesome and inescapable. How we understand and manage this responsibility is the theme of this volume. The book comprises six sections. Section I examines how the law has helped shape clinical practice, emphasizing the roles of rights and patient autonomy. Section II focuses on specific clinical issues, including death and dying in children, continuous sedation as a way to relieve suffering at the end of life, and the problem of prognostication in patients who are thought to be dying. Section III considers psychosocial and cultural issues. Section IV discusses death and dying among various vulnerable populations such as the elderly and persons with disabilities. Section V deals with physician-assisted suicide and active euthanasia (lethal injection). Finally, Section VI looks at hospice and palliative care as a way to address the psychosocial and ethical problems of death and dying.
Author : Andrew J. Howell
Publisher : Springer
ISBN 13 : 3319150073
Total Pages : 122 pages
Book Rating : 4.3/5 (191 download)
Download or read book Understanding Other-Oriented Hope written by Andrew J. Howell and published by Springer. This book was released on 2015-01-28 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Brief integrates the literature and research on other-oriented hope. It discusses the position of other-oriented hope as one manifestation of the broader attribute of other-interest and argues the importance of other-interest in well-being. The Brief examines definitions and attributes of other-oriented hope, based upon theoretical and empirical understandings of hope more generally. Thereafter it reviews both qualitative and quantitative research findings concerning the occurrence of other-oriented hope in several domains, including other-oriented hope among parents of ill children, other-oriented hope among caregivers and other-oriented hope among the elderly. Several theoretical frameworks for understanding the phenomenon of other-oriented hope are considered, as are the functions of and elements comprising, other-oriented hope. The differentiation of other-oriented hope and related concepts, such as compassion and love, is considered. Finally, the brief examines the application of other-oriented hope to practical work in counselling and caregiving and outlines several directions for future work on other-oriented hope.
Author : Perry A. Carlson
Publisher :
ISBN 13 : 9781423509158
Total Pages : 89 pages
Book Rating : 4.5/5 (91 download)
Download or read book Levels of Hope in Parents of Chronically Ill Children written by Perry A. Carlson and published by . This book was released on 2002-08-01 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: The concept of hope is a common facet of human existence that most, if not all, share in the journey through life. Hope is a process that relates to areas of rational thought, relationships, experiences, and the spiritual or transcendent realm. In the scientific literature, hope has been positively correlated with quality of life and health outcomes. Functionally, hope has been viewed as a prerequisite to coping, as a coping strategy, and as an outcome in and of itself. As such, it is an important consideration in dealing with patients and their families. In the United States approximately 10.3 million children are faced with some type of chronic illness. Parents of these children face added challenges that bring additional burdens of care and stress. Hope has been shown to be involved in coping with stress, but there is very little in the current literature about levels of hope in caregivers and even less dealing with parental hope. This study measures the levels of hope in parents of chronically ill children and examines the possible correlation between the level of disability the parents perceive in relation to their chronically ill child and the parents' level of hope.
Author : Scott E. Eveloff
Publisher : iUniverse
ISBN 13 : 059513307X
Total Pages : 138 pages
Book Rating : 4.5/5 (951 download)
Download or read book Both Sides of the White Coat written by Scott E. Eveloff and published by iUniverse. This book was released on 2000-10-30 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is the result of seven years of fear, uncertainty, and hardship as a family has attempted to cope with a child's unexpected life-threatening illness. This story differs from that of many other families coping with childhood illness in that we as parents already had intimate "insider" knowledge of serious illness. I was a specialist in critical care and pulmonary medicine when our son was born, while his mother Ruth was a practicing pediatrician. It was an ironic combination for two parents who were soon coping with their own newborn's critical condition. The past seven years have seen our family sink from the depths of desperation then rise to cautious optimism as Andrew currently is physically disable with congenital muscular dystrophy but is as thriving and happy as any other seven-year-old boy. I have taken the insights gained through such an extraordinary combination of professional and personal experience and have created a guide for other parents overwhelmed by a child's illness and intimidated by the medical establishment. Parents will relate to our personal story, and will hopefully benefit from and become empowered by my insights as both a physician and parent.
Author : Matthew W. Gallagher
Publisher : Oxford University Press
ISBN 13 : 0199399328
Total Pages : 401 pages
Book Rating : 4.1/5 (993 download)
Download or read book The Oxford Handbook of Hope written by Matthew W. Gallagher and published by Oxford University Press. This book was released on 2017-11-01 with total page 401 pages. Available in PDF, EPUB and Kindle. Book excerpt: The scientific study of hope has flourished in the past twenty years since C.R. Snyder first proposed a model of hope that defined it as "a positive motivational state that is based on an interactively derived sense of successful (1) goal-directed energy (agency) and (2) planning to meet goals (pathways)." Hope has long been a topic of interest for philosophers, psychologists, educators, and physicians and in the past few decades researchers from various disciplines and from around the world have studied how hope relates to superior academic performance, improved outcomes in the workplace, and improved psychological and physical health in individuals of all ages. The Oxford Handbook of Hope will provide a comprehensive update on the past 25 years of hope research while simultaneously providing an outline of what leading hope researchers believe the future of hope research to be. The Handbook will be targeted towards researchers, professors, and advanced students interested in learning about current status and future directions of the science of hope. It will provide a comprehensive overview of the science of hope and will also be able to serve as a textbook for advanced seminars for undergraduates and graduate students interested in one of the most robust areas of positive psychology research.
Author : Betty R. Ferrell
Publisher : Oxford University Press
ISBN 13 : 0199332355
Total Pages : 1249 pages
Book Rating : 4.1/5 (993 download)
Download or read book Oxford Textbook of Palliative Nursing written by Betty R. Ferrell and published by Oxford University Press. This book was released on 2014-12-01 with total page 1249 pages. Available in PDF, EPUB and Kindle. Book excerpt: This landmark text is the key resource for nurses working in the field of palliative care. Edited by renowned nursing experts, and written by a dynamic team of internationally known authorities in nursing and palliative medicine, the Oxford Textbook of Palliative Nursing covers the gamut of principles of care from the time of initial diagnosis of a terminal disease to the end of a patient's life and beyond. The text is distinctively developed to highlight the nurse's vital role as part of an integrated palliative care team. Various care settings are discussed including the hospital, ICU, home care, and hospice. Chapters focus on the practical aspects of nursing care, including symptom assessment, patient teaching, family support, psychosocial aspects of palliation, and spiritual care. New to the fourth edition are chapters on the National Consensus Project for Quality Palliative Care Guidelines, palliative care of veterans, palliative care in rural settings, disaster situations, palliative care in Eastern Europe, and palliative care in the Philippines.
Author : Imogen Goold
Publisher : Bloomsbury Publishing
ISBN 13 : 1509924914
Total Pages : 397 pages
Book Rating : 4.5/5 (99 download)
Download or read book Parental Rights, Best Interests and Significant Harms written by Imogen Goold and published by Bloomsbury Publishing. This book was released on 2019-11-28 with total page 397 pages. Available in PDF, EPUB and Kindle. Book excerpt: This timely collection brings together philosophical, legal and sociological perspectives on the crucial question of who should make decisions about the fate of a child suffering from a serious illness. In particular, the collection looks at whether the current 'best interests' threshold is the appropriate boundary for legal intervention, or whether it would be more appropriate to adopt the 'risk of significant harm' approach proposed in Gard. It explores the roles of parents, doctors and the courts in making decisions on behalf of children, actively drawing on perspectives from the clinic as well as academia and practice. In doing so, it teases out the potential risks of inappropriate state intrusion in parental decision-making, and considers how we might address them.
Author : Mary Fran Hazinski
Publisher : Elsevier Health Sciences
ISBN 13 : 0323020402
Total Pages : 1174 pages
Book Rating : 4.3/5 (23 download)
Download or read book Nursing Care of the Critically Ill Child written by Mary Fran Hazinski and published by Elsevier Health Sciences. This book was released on 2012-05-08 with total page 1174 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now completely up to date to meet the needs of today's pediatric nurses, Mary Fran Hazinski's Nursing Care of the Critically Ill Child, 3rd Edition, remains the foundational text of pediatric critical care nursing. Known for its outstanding organization and clear descriptions, this comprehensive reference details the unique care required for critically ill children with thorough discussions of physiology, pathophysiology, pharmacology, collaborative management, and nursing management. Ten new chapters, new advanced practice content, and new nurse contributors and reviewers ensure that this classic text continues to be the essential resource for the care of critically ill children. Details differences in caring for critically ill children as compared with caring for adults: how to modify assessment procedures, consider aspects of psychosocial development, and examine developmental aspects of various body systems. Provides comprehensive coverage of physiology, pathophysiology, pharmacology, and nursing management related to care of the critically ill child. Includes detailed Nursing Care Plans for select disorders. Contains helpful appendices such as pediatric drug dosages, central venous catheter care, and pediatric fluid requirements. Features Evolve online resources with additional content for further study of related topics, including tables for ease of recollection of material and additional references. Contains 10 all-new chapters, including Pharmacokinetics and Pharmacodynamics; Shock, Cardiac Arrest, and Resuscitation; Mechanical Support of Cardiopulmonary Function; Fluid, Electrolyte, and Endocrine Problems; Immunology and Infectious Disorders; Transplantation and Organ Donation; Toxicology/Poisonings; Fundamentals of Quality Improvement and Patient Safety; Clinical Informatics; and Ethical Issues in Pediatric Critical Care Features nurse contributors and reviewers for every chapter, making this edition a truly collaborative text. Provides information vital to the advanced practice nurse, such as assessment tools and severity of illness management. Includes numerous Pearls that highlight practical wisdom from experts in pediatric critical care nursing.
Author : Nathaniel Pidgeon
Publisher :
ISBN 13 :
Total Pages : 236 pages
Book Rating : 4.E/5 ( download)
Download or read book The Life, Experience, and Journal of Nathaniel Pidgeon, City Missionary written by Nathaniel Pidgeon and published by . This book was released on 1857 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Heather Harpham
Publisher : Henry Holt and Company
ISBN 13 : 125013157X
Total Pages : 320 pages
Book Rating : 4.2/5 (51 download)
Download or read book Happiness: A Memoir written by Heather Harpham and published by Henry Holt and Company. This book was released on 2017-08-01 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Reese’s Book Club x Hello Sunshine’s April 2018 book pick A shirt-grabbing, page-turning love story that follows a one-of-a-kind family through twists of fate that require nearly unimaginable choices. Happiness begins with a charming courtship between hopelessly attracted opposites: Heather, a world-roaming California girl, and Brian, an intellectual, homebody writer, kind and slyly funny, but loath to leave his Upper West Side studio. Their magical interlude ends, full stop, when Heather becomes pregnant—Brian is sure he loves her, only he doesn't want kids. Heather returns to California to deliver their daughter alone, buoyed by family and friends. Mere hours after Gracie's arrival, Heather's bliss is interrupted when a nurse wakes her, "Get dressed, your baby is in trouble." This is not how Heather had imagined new motherhood – alone, heartsick, an unexpectedly solo caretaker of a baby who smelled "like sliced apples and salted pretzels" but might be perilously ill. Brian reappears as Gracie's condition grows dire; together Heather and Brian have to decide what they are willing to risk to ensure their girl sees adulthood. The grace and humor that ripple through Harpham's writing transform the dross of heartbreak and parental fears into a clear-eyed, warm-hearted view of the world. Profoundly moving and subtly written, Happiness radiates in many directions--new, romantic love; gratitude for a beautiful, inscrutable world; deep, abiding friendship; the passion a parent has for a child; and the many unlikely ways to build a family. Ultimately it's a story about love and happiness, in their many crooked configurations.
