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The Lived Experience Of Fathers Caring For Their Child With Cystic Fibrosis
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Book Synopsis The Lived Experience of Fathers Caring for Their Child with Cystic Fibrosis by : Jana Shardonofsky
Download or read book The Lived Experience of Fathers Caring for Their Child with Cystic Fibrosis written by Jana Shardonofsky and published by . This book was released on 2018 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cystic fibrosis (CF) is a life-shortening genetic disease with many treatment requirements that necessitate the participation of a caregiver, especially if the patient is a child. Most studies of the quality of life of caregivers of children with CF have focused on the mental health of mothers, reflecting a biased underlying assumption that mothers are the primary caregivers. The aim of this study was to explore the experience of fathers caring for a child with CF. Twenty fathers of children with CF were studied by use of a semistructured interview using Husserl’s descriptive phenomenology. Six themes emerged from the interviews: feeling overwhelmed, feeling isolated, experiencing altered family dynamics, actively seeking resources, experiencing financial strain, and feeling hope. Fathers of children with CF reported distressing experiences in connection with their child’s diagnosis of CF and during the course of their child’s disease, but they also a had strong feelings of hope for the future.
Book Synopsis Family Nursing by : Dorothy A. Whyte
Download or read book Family Nursing written by Dorothy A. Whyte and published by . This book was released on 1994 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: This publication is the outcome of several years' work on families caring for a child with cystic fibrosis (CF). Four case studies provide a portrayal of the efforts of parents to come to terms with the diagnosis and its implications, and trace the crisis points in the long haul of the illness.
Book Synopsis Burns and Grove's The Practice of Nursing Research - E-Book by : Jennifer R. Gray
Download or read book Burns and Grove's The Practice of Nursing Research - E-Book written by Jennifer R. Gray and published by Elsevier Health Sciences. This book was released on 2020-07-21 with total page 883 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW! Extensively updated content reflects the most current quantitative and qualitative approaches to nursing research, as well as the most current research tools and techniques used in the digital era. NEW! Updated research examples throughout incorporate the best examples of current literature, with increased emphasis on international examples to reflect the increasingly global nature of nursing research. NEW! Increased use of visuals includes the addition of more illustrations, tables, and boxes to help break up long passages of text for today’s more visually oriented learners of all levels. NEW! Revised chapters offer improved clarity and usability in the areas of research problems and purpose, quantitative research design, quantitative methodology, and qualitative methodology. NEW! Increased emphasis on hospital magnet status reflects the effect this status has on improving nursing competency and quality outcomes. UPDATED! Coverage of certain qualitative research content has been de-emphasized to reflect the decreased use of certain methodologies (e.g., historical research) and to allow the introduction of additional methodologies that are growing in use.
Book Synopsis Dads, Kids, and Fitness by : William Marsiglio
Download or read book Dads, Kids, and Fitness written by William Marsiglio and published by Rutgers University Press. This book was released on 2016-10-31 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now more than ever, American dads act as hands-on caregivers who are devoted to keeping themselves and their families healthy. Yet, men are also disproportionately likely to neglect their own health care, diets, and exercise routines—bad habits that they risk passing on to their children. In Dads, Kids, and Fitness, William Marsiglio challenges dads to become more health-conscious in how they live and raise their children. His conclusions are drawn not only from his revealing interviews with a diverse sample of dads and pediatric healthcare professionals, but also from his own unique personal experiences—as a teenage father who, thirty-one years later, became a later-life dad to a second son. Marsiglio’s research highlights the value of treating dads as central players in what he calls the social health matrix, which can serve both healthy children and those with special needs. He also outlines how schools, healthcare facilities, religious groups, and other organizations can help dads make a positive imprint on their families’ health, fitness, and well-being. Anchored in compelling life stories of joy, tragedy, and resilience, Dads, Kids, and Fitness extends and deepens public conversation about health at a pivotal historical moment. Its progressive message breathes new life into discussions about fathering, manhood, and health.
Book Synopsis Fathers' Perspectives on Managing the Care of Their Children with Cystic Fibrosis by : Catherine Claire Hayes
Download or read book Fathers' Perspectives on Managing the Care of Their Children with Cystic Fibrosis written by Catherine Claire Hayes and published by . This book was released on 2004 with total page 193 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Qualitative Research in Nursing by : Helen Streubert Speziale
Download or read book Qualitative Research in Nursing written by Helen Streubert Speziale and published by Lippincott Williams & Wilkins. This book was released on 2011 with total page 496 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Qualitative Research in Nursing is a user-friendly text that systematically provides a sound foundation for understanding a wide range of qualitative research methodologies, including triangulation. It approaches nursing education, administration, and practice and gives step-by-step details to instruct students on how to implement each approach. Features include emphasis on ethical considerations and methodological triangulation, instrument development and software usage; critiquing guidelines and questions to ask when evaluating aspects of published research; and tables of published research that offer resources for further reading"--Provided by publisher.
Book Synopsis The Experience of Families Caring for a Child with Cystic Fibrosis by : Dorothy A. Whyte
Download or read book The Experience of Families Caring for a Child with Cystic Fibrosis written by Dorothy A. Whyte and published by . This book was released on 1989 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Making Sense of Research in Nursing, Health and Social Care by : Pam Moule
Download or read book Making Sense of Research in Nursing, Health and Social Care written by Pam Moule and published by SAGE. This book was released on 2020-10-28 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is research and how does it work in the context of nursing, health and social care? This introductory guide provides you with a concise overview of the different research methods and terminology that you will come across when undertaking research in any course related to nursing, health and social care. The book′s easy-to-follow structure takes you from research novice to confident researcher, helping you to make sense of research and understand how it is implemented in healthcare practice. The new edition includes: Updates in light of the 2018 NMC standards, with more information on the impact of GDPR, consent and vulnerable groups, Personal and Public Involvement (PPI), and work-based projects. Improved case examples of real research, with more on group work, poster presentations, research output and dissemination, literature reviews, and dissertations. Upgraded activities that include reflective exercises, critical appraisal tools, a dissemination plan, and a glossary, all in the book. This is essential reading for undergraduate and postgraduate students within the health and therapy professions, nurses, midwives, physiotherapists, radiographers, occupational therapists, speech and language therapists, and paramedics.
Book Synopsis Maternal-Child Nursing - E-Book by : Emily Slone McKinney
Download or read book Maternal-Child Nursing - E-Book written by Emily Slone McKinney and published by Elsevier Health Sciences. This book was released on 2021-09-03 with total page 1451 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW! Next Generation NCLEX® (NGN) examination-style case studies expose students to how content will be tested in the exam; case studies are either single-situation or unfolding studies. NEW! Updated Drug Guides summarize the latest information on medications.
Book Synopsis Communication Skills for Children's Nurses by : Veronica Lambert
Download or read book Communication Skills for Children's Nurses written by Veronica Lambert and published by McGraw-Hill Education (UK). This book was released on 2012-10-16 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This excellent text will help nurses develop an awareness of a range of communication frameworks and how they might be utilised in contemporary child health nursing to communicate with children, their families, fellow healthcare professionals and each other in their day to day working lives... It should be on every student's reading list!" Dr Edward Alan Glasper, Professor of Children's and Young People's Nursing, The University of Southampton, UK "This is an important and much needed book. Logical and well presented, it has episodes of reflection which can be implemented, and activities that provide exemplars about communication that will enhance learning. I particularly found useful the chapters on the legal and ethical aspects, research and communicating with children using technology." Linda Shields, Professor of Nursing - Tropical Health, James Cook University and Townsville Health Service District, Australia This guide will help children's nurses tocommunicate with confidence, sensitivity and effectiveness; to meet the individual needs of children and their families. The book explores different aspects of communicating in this challenging environment using vignettes, examples, practice insights and tips. The book emphasises the importance of listening to and respecting children’s views and rights, in addition to respecting parent responsibility, rights and duty to act in the child's best interests. The authors show how a balance between protective exclusion and facilitated inclusion is core to communicating with children and families. Key topics covered include: Communicating during challenging and sensitive times The importance of being culturally sensitive and self-aware Meeting the needs of vulnerable and disadvantaged children Engaging with children who experience difficulty in communicating Ethical and legal dimensions of communicating with families Appreciating the nature of ‘voice’ in research with children Contributors: Stacey Atkinson, Frances Binns, Debbie Fallon, Noirín Hayes, Paula Hicks, Philomena Keogh, Ursula Kilkelly, Philip Larkin, Joan Livesley, Emer Murphy, Colman Noctor, Eileen Savage, Joanna Smith, Vicky Stewart and Janet Wray.
Book Synopsis "Talking to CF Mums" by : Penelope Kay Davies
Download or read book "Talking to CF Mums" written by Penelope Kay Davies and published by . This book was released on 2000 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years, a considerable amount of research has examined the emotional effects on children with chronic or life threatening illness. However, very little research has concentrated on the social impact on the carers of children who require long term care. This study examines the topic "Talking to CF Mums", in an endeavour to understand the experiences of mothers who care for people with Cystic Fibrosis (CF). This is a qualitative phenomenological study that uses personal biographies, drawn from in-depth interviews, to examine the experience of the mothers. Multiple biographies, identified by Strauss and colleagues, have been used as a framework to present the experiences of the women in this study. The primary focus of this study is to record and interpret the reality of the way in which being the mother of a person with CF, the carer experience, impacts on her life. Mothers as carers are subjected to a range of stresses in their efforts to come to terms with the diagnosis of their CF child. Their lives change forever, as do their relationships with the people around them. Mothers use a rnage of coping strategies in their daily lives to overcome the stress they experience. Changes brought about by the diagnosis of a genetically inherited condition that is not physically visible, but that is life long and life threatening, are extremely stressful. Problems that arise because of lack of access to information from professionals caring for their children add to the difficultires parents experience. This study recommends that the carer's experiences of anomalies in communication and understanding between parents and professionals must be addressed to share the power of ownership of information that will reassure parents that they are valued as part of the team caring for the child.
Book Synopsis Cystic Fibrosis Transition Into Adult Care by : Jessica Manning
Download or read book Cystic Fibrosis Transition Into Adult Care written by Jessica Manning and published by . This book was released on 2014 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Resiliency Perspective of the Lived Experience of Parenting Infants and Young Children with Cystic Fibrosis in the Context of Early Lung Disease Surveillance by : Cindy Branch-Smith
Download or read book A Resiliency Perspective of the Lived Experience of Parenting Infants and Young Children with Cystic Fibrosis in the Context of Early Lung Disease Surveillance written by Cindy Branch-Smith and published by . This book was released on 2016 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Parenthood and Mental Health by : Sam Tyano
Download or read book Parenthood and Mental Health written by Sam Tyano and published by John Wiley & Sons. This book was released on 2010-04-06 with total page 484 pages. Available in PDF, EPUB and Kindle. Book excerpt: Across all cultures parenting is the foundation of family life. It is the domain where adult mental health meets infant development. Beginning in pregnancy, parenting involves many conscious and unconscious processes which have recently been shown to affect a child's development significantly. This book focuses on pregnancy and the first year of life, providing a thorough account of the points of encounter between adult and infant psychiatry. In a fresh and comprehensive way, it summarises knowledge about early parenting, including a critical analysis of parenting, what it means to be a "good enough parent", and its relationship to infant, parent and family outcomes. In addition to the psychiatric dimension, the book emphasises the biological aspects of parenting, parental psychopathology and normal and abnormal infant development. Praise for Parenting and Mental Health: “Tyano, Keren, Herrman and Cox have edited a thoughtfully prepared guide on normal and abnormal parenting. They have, with enormous skill and wisdom, helped to unite the important aspects of pregnancy, infant and childhood development and parenting for adult and child and adolescent psychiatrists. World-class internationally recognized clinicians and researchers help make this book useful throughout the world. This is a masterful, culturally sensitive and important book which provides a long overdue and much needed guide on relationships among children, parents and families.” —Michelle Riba, M.D., M.S., Professor and Associate Chair for Integrated Medical and Psychiatric Services, Department of Psychiatry, University of Michigan, USA “During recent decades, progress in the field of infant mental health has been revolutionary; at the same time, there has been rapid development in women’s mental health. By bringing these two together, this pioneering book leads its readers to the vital new focal point around perinatal mental health. The book integrates the origins of developmental psychiatry in attachment and systemic contexts and shows concretely how relationship experiences and biology interact when new life begins. After describing the fascinating world of early parenting, the book focuses on problems, difficulties and disorders during this phase of life and above all on how to support, intervene and treat disorders in parenting. When infants, mothers and fathers are understood in a holistic way, professionals in many fields will be able to promote the transmission of meaningful life through parenthood and parenting.” —Tuula Tamminen, Professor of Child Psychiatry, University of Tampere, Finland; Past-President of World Association for Infant Mental Health, President of European Society for Child and Adolescent Psychiatry Cover design by Reouth Keren
Book Synopsis The Experiences of Parents with Cystic Fibrosis by : Hazel Barker
Download or read book The Experiences of Parents with Cystic Fibrosis written by Hazel Barker and published by . This book was released on 2013 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care by : Annah N. Abrams
Download or read book Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care written by Annah N. Abrams and published by Springer. This book was released on 2015-11-16 with total page 413 pages. Available in PDF, EPUB and Kindle. Book excerpt: This textbook walks clinicians through the psychosocial issues and challenges faced by children and adolescents with cancer and their families. Through a developmental lens, the text provides guidance and resources that will enable clinicians to understand the physical and emotional impact of the disease from diagnosis onwards, to work with families in distress, and to diagnose and treat a range of behavioral, psychological, and psychiatric issues. The book also addresses the burgeoning fields of social media, complementary therapies, palliative care, and survivorship. Among the variety of useful resources supplied are assessment tools, websites, and additional reading materials. The psychosocial issues that arise for children and their families during the course of treatment are an important yet often overlooked aspect of pediatric oncology care. The reader will find that Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care covers these issues at the forefront of clinical care in a direct and approachable way, integrating research literature with practical clinical guidance.
Book Synopsis The CF Warrior Project by : Andy C. Lipman
Download or read book The CF Warrior Project written by Andy C. Lipman and published by Booklogix. This book was released on 2019-05-15 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
