The Experience Of Home Based Palliative Care Patients Who Are Transitioning From Sickness To Dying

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The Experience of Home-based Palliative Care Patients Who Are Transitioning from Sickness to Dying

Author : Timothy Schipke
Publisher :
ISBN 13 : 9781392197813
Total Pages : 253 pages
Book Rating : 4.1/5 (978 download)

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Book Synopsis The Experience of Home-based Palliative Care Patients Who Are Transitioning from Sickness to Dying by : Timothy Schipke

Download or read book The Experience of Home-based Palliative Care Patients Who Are Transitioning from Sickness to Dying written by Timothy Schipke and published by . This book was released on 2019 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this study was to better understand the qualitative aspects of the transition from sickness to dying utilizing narrative methodology. The study attempted to answer the research question: What is the palliative care patient's experience of the transition from the sickness to dying? This study elicited the stories of eight home-based palliative care patients regarding their experience of this transition. All of these patients suffered from one or more chronic conditions, from which they would likely die. They were recruited from a hospice that provided pre-hospice palliative care services for those approaching death but were not yet referred to hospice by their physician.The data collection process consisted of three interviews: two interviews of five open-end questions and a verification interview. The study utilized Riessman's narrative methodology and analysis procedures, using both thematic and structural analysis. Additionally, the study employed NVivo 12 qualitative data analysis software in eliciting both individual case themes and study composite themes across all eight participants.One of the primary themes derived from the meta-analysis strongly suggested a new, as yet unidentified role within the medical system, not concomitant with either the sick or dying roles. This role was identified as a chronic sick role. Furthermore, the unanticipated predominant theme of the study was the deterioration of the physical body. This study confirmed the observations within the academic literature regarding the neglect of the physical or "lived" body both in psychological and medical sociological discourse particularly in hospice and palliative care settings.Among other important insights gleaned from analysis of the narrative data was the fundamental import of death denial in its various aspects throughout this study, including participant recruitment and potential hospice gatekeeping. The Terror Management Health Model, utilized to understand the effects of mortality salience on decision making in healthcare settings, has not yet been utilized in hospice palliative care settings, where mortality salience has a major impact on both patients and clinician decision-making.This study also noted themes of depression and anxiety among participants, which indicated the potential for psychological pathology among home-based hospice palliative care patients.

Family-Based Palliative Care

Author : Jane Marie Kirschling
Publisher : Routledge
ISBN 13 : 1317739639
Total Pages : 130 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Family-Based Palliative Care by : Jane Marie Kirschling

Download or read book Family-Based Palliative Care written by Jane Marie Kirschling and published by Routledge. This book was released on 2018-10-24 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learn to interact with families in ways that promote family functioning when a family member is dying. Family-Based Palliative Care is an insightful book that aims to increase professionals’understanding of the family as client. Authoritative contributors who are experienced in working with the terminally ill present the most current theory, practice, and research related to family-based care of hospice patients. Each readable chapter includes a wealth of information that can be applied to health care settings in which holistic care is a priority. The first chapter presents a conceptual framework for caring for families of the terminally ill as well as clinical examples that are used to illustrate the application of the framework in practice. Experts describe four research studies--two qualitative studies that examine sources of stress for caregivers and identify the resources used by families to manage at home; a methodological study that explores the positive and negative aspects of family caregiving; and a case study that evaluates a hospice staff’s efforts in providing family- based care. Because little research has been done with family caregivers of terminally ill hospice patients, Family-Based Palliative Care will be essential reading for nurses, social workers, hospice staff, and other professionals whose job it is to care for the dying and their families.

Approaching Death

Author : Committee on Care at the End of Life
Publisher : National Academies Press
ISBN 13 : 0309518253
Total Pages : 457 pages
Book Rating : 4.3/5 (95 download)

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Book Synopsis Approaching Death by : Committee on Care at the End of Life

Download or read book Approaching Death written by Committee on Care at the End of Life and published by National Academies Press. This book was released on 1997-10-30 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

The Dying Process

Author : Julia Lawton
Publisher : Routledge
ISBN 13 : 1134588666
Total Pages : 244 pages
Book Rating : 4.1/5 (345 download)

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Book Synopsis The Dying Process by : Julia Lawton

Download or read book The Dying Process written by Julia Lawton and published by Routledge. This book was released on 2002-01-04 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: Taking as its focus a highly emotive area of study, The Dying Process draws on the experiences of daycare and hospice patients to provide a forceful new analysis of the period of decline prior to death. Placing the bodily realities of dying very firmly centre stage and questioning the ideology central to the modern hospice movement of enabling patients to 'live until they die', Julia Lawton shows how our concept of a 'good death' is open to interpretation. Her study examines the non-negotiable effects of a patient's bodily deterioration on their sense of self and, in so doing, offers a powerful new perspective in embodiment and emotion in death and dying. A detailed and subtle ethnographic study, The Dying Process engages with a range of deeply complex and ethically contentious issues surrounding the care of dying patients in hospices and elsewhere.

Dying in America

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309303133
Total Pages : 470 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Dying in America by : Institute of Medicine

Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Compassionate Person-Centered Care for the Dying

Author : Bonnie Freeman
Publisher : Springer Publishing Company
ISBN 13 : 0826122477
Total Pages : 297 pages
Book Rating : 4.8/5 (261 download)

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Book Synopsis Compassionate Person-Centered Care for the Dying by : Bonnie Freeman

Download or read book Compassionate Person-Centered Care for the Dying written by Bonnie Freeman and published by Springer Publishing Company. This book was released on 2015-02-23 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author’s research-based CARES Tool, a reference that synthesizes five key elements demonstrated to enable a peaceful death as free from suffering as possible: Comfort, Airway Management, Management of Restlessness and Delirium, Emotional and Spiritual Support, and Self-Care for Nurses. The book describes step-by-step how nurses can easily implement the basic tenets of the CARES Tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible.

End of Life in Care Homes

Author : Jeanne Samson Katz
Publisher : OUP Oxford
ISBN 13 : 0191587273
Total Pages : 216 pages
Book Rating : 4.1/5 (915 download)

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Book Synopsis End of Life in Care Homes by : Jeanne Samson Katz

Download or read book End of Life in Care Homes written by Jeanne Samson Katz and published by OUP Oxford. This book was released on 2003-04-03 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: In our society, the overwhelming majority of people die in later life. They typically die slowly of chronic diseases, with multiple co-existing problems over long periods of time. They spend the majority of their final years at home, but many will die in hospitals or care homes. This book explores the possibilities for improving the care of older people dying in residential care and nursing homes. It argues that there are aspects of palliative care that, given the right circumstances, are transferable to dying people in settings that are not domestic or hospice based. End of Life in Care Homes describes what happens in nursing and residential care homes when a resident is dying, how carers cope, and the practical, health and emotional challenges that carers face on top of their day-to-day work. Based on detailed research from both the UK and US, the book shows how the situation can be improved.

Fading away

Author : Betty Davies PhD.
Publisher : Routledge
ISBN 13 : 1351854194
Total Pages : 137 pages
Book Rating : 4.3/5 (518 download)

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Book Synopsis Fading away by : Betty Davies PhD.

Download or read book Fading away written by Betty Davies PhD. and published by Routledge. This book was released on 2020-03-26 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book comes out of an in-depth, qualitative study of the experiences of twenty-three families in which one parent was dying of cancer. The study attempted to better understand the impact of terminal illness on the entire family system and sought to develop a theoretical framework that would guide the assessment of and services to such families. As a result of interviews with patients, spouses and their adult children over three phases of the study, the process of ""fading away"" was identified and conceptualized in terms of various phases which contributed to this process. The book is not a research report but rather presents more generally the ideas that developed from the study, with two purposes: to increase the reader's understanding of particular experiences that families encounter when dealing with terminal illness, specifically cancer. The intended readership also includes families themselves: to propose guidelines for care to be considered by practitioners working with such families.

Living Well with a Serious Illness

Author : Robin Bennett Kanarek
Publisher : JHU Press
ISBN 13 : 1421445727
Total Pages : 225 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Living Well with a Serious Illness by : Robin Bennett Kanarek

Download or read book Living Well with a Serious Illness written by Robin Bennett Kanarek and published by JHU Press. This book was released on 2023-04-04 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand • what palliative care entails • how to access the support they need when going through a serious illness • what questions to ask medical professionals • how to navigate advanced care planning • definitions of common terminology used with end-of-life planning • the importance of spiritual care, coping strategies, and emotional support • how to become an advocate for palliative care This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spirit—the core tenet of palliative care.

Social Aspects of Care

Author : Nessa Coyle
Publisher : Oxford University Press
ISBN 13 : 0190244135
Total Pages : 137 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Social Aspects of Care by : Nessa Coyle

Download or read book Social Aspects of Care written by Nessa Coyle and published by Oxford University Press. This book was released on 2016 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Social Aspects of Care' provides an overview of financial and mental stress illness places, not just on the patient, but on the family as well. This volume contains information on how to support families in palliative care, cultural considerations important in end-of-life care, sexuality and the impactof illness, planning for the actual death, and bereavement.

Crossing Over

Author : David Barnard
Publisher : Oxford University Press
ISBN 13 : 0199748837
Total Pages : 464 pages
Book Rating : 4.1/5 (997 download)

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Book Synopsis Crossing Over by : David Barnard

Download or read book Crossing Over written by David Barnard and published by Oxford University Press. This book was released on 2000-03-02 with total page 464 pages. Available in PDF, EPUB and Kindle. Book excerpt: Crossing Over provides a unique view of patients, families, and their caregivers striving together to maintain comfort and hope in the face of incurable illness. The narratives weave together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Based on a vast amount of participant-observation and in-depth interviews, Crossing Over moves far beyond dry technical manuals for symptom control, and tired clichés about death with dignity, to depict the sights, sounds, tastes, and smells of the daily in patients homes and the palliative care unit. It captures the breathtaking diversity of people's aspirations and ideals as they face death, and the views of the professionals who care for them. Anger and fear, tenderness and reconciliation, jealousy and love, social support and falling through the cracks, unexpected courage and unshakable faith-- all of these are part of facing death in late twentieth-century North America, and this book brings them to life in an extraordinary portrait of the processes of giving and receiving palliative care.

Palliative Day Care

Author : Ronald Fisher
Publisher : CRC Press
ISBN 13 : 9780340625217
Total Pages : 259 pages
Book Rating : 4.6/5 (252 download)

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Book Synopsis Palliative Day Care by : Ronald Fisher

Download or read book Palliative Day Care written by Ronald Fisher and published by CRC Press. This book was released on 1996-03-29 with total page 259 pages. Available in PDF, EPUB and Kindle. Book excerpt: There has been a steady growth in the provision of day care services for people with life-threatening illnesses who live at home. This book includes details of the range of therapies and services that a multi-disciplinary team can provide to address the physical, emotional, psycho-social and spiritual needs of these patients and their families, thus enabling them to remain in their own homes.

Palliative Care Perspectives

Author : James Hallenbeck
Publisher : Oxford University Press, USA
ISBN 13 : 9780195165777
Total Pages : 264 pages
Book Rating : 4.1/5 (657 download)

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Book Synopsis Palliative Care Perspectives by : James Hallenbeck

Download or read book Palliative Care Perspectives written by James Hallenbeck and published by Oxford University Press, USA. This book was released on 2003 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing from his extensive clinical experience and many years of teaching, Dr. Hallenbeck has written a guide to palliative care for clinicians. Topics addressed range from an overview of death and dying to specific approaches to symptom management. As an introduction to both the art and science of palliative care, this book reflects the perspectives of one physician who has dedicated his career to this rapidly evolving field. the book links real stories of illness with practical advice, thereby delineating clinical practice in a way that reflects the daily concerns of clinicians.

Nursing Care at the End of Life

Author : Joyce V Zerwekh
Publisher : F.A. Davis
ISBN 13 : 0803620284
Total Pages : 473 pages
Book Rating : 4.8/5 (36 download)

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Book Synopsis Nursing Care at the End of Life by : Joyce V Zerwekh

Download or read book Nursing Care at the End of Life written by Joyce V Zerwekh and published by F.A. Davis. This book was released on 2005-12-28 with total page 473 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.

Dignity Therapy

Author : Harvey Max Chochinov
Publisher : OUP USA
ISBN 13 : 0195176219
Total Pages : 216 pages
Book Rating : 4.1/5 (951 download)

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Book Synopsis Dignity Therapy by : Harvey Max Chochinov

Download or read book Dignity Therapy written by Harvey Max Chochinov and published by OUP USA. This book was released on 2012-01-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Maintaining dignity for patients approaching death is a core principle of palliative care. Dignity therapy, a psychological intervention developed by Dr. Harvey Max Chochinov and his internationally lauded research group, has been designed specifically to address many of the psychological, existential, and spiritual challenges that patients and their families face as they grapple with the reality of life drawing to a close. In the first book to lay out the blueprint for this unique and meaningful intervention, Chochinov addresses one of the most important dimensions of being human. Being alive means being vulnerable and mortal; he argues that dignity therapy offers a way to preserve meaning and hope for patients approaching death. With history and foundations of dignity in care, and step by step guidance for readers interested in implementing the program, this volume illuminates how dignity therapy can change end-of-life experience for those about to die - and for those who will grieve their passing.

The Lived Experience of Dying for Hospitalized Patients Waiting to be Transferred to a Palliative Care Unit

Author : Vasiliki Bitzas
Publisher :
ISBN 13 :
Total Pages : pages
Book Rating : 4.:/5 (911 download)

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Book Synopsis The Lived Experience of Dying for Hospitalized Patients Waiting to be Transferred to a Palliative Care Unit by : Vasiliki Bitzas

Download or read book The Lived Experience of Dying for Hospitalized Patients Waiting to be Transferred to a Palliative Care Unit written by Vasiliki Bitzas and published by . This book was released on 2014 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "Background:Transitions in clinical care are often associated with changes in services and with care goals (Davidson, Dracup, Phillips, Padilla and Daly, 2007; Naylor, 2000). Although the transition from curative care to palliative care is recognized as a critical moment in the illness journey little is known about this potentially complicated transition (Schofield, Carey, Love, Nehill & Wein, 2006). More specifically, we understand little about the experience of hospitalized patients moving from acute care to palliative care. It is also not clear whether or not the notion of transition fully or accurately captures the lived experience of dying for individuals in this context. This interpretive phenomenology, influenced by the philosophy of Heidegger (1962) and the methodology of Benner (1984; 1994) sought to understand the lived experience of dying for hospitalized patients on acute care units waiting to be transferred to a palliative care ward for end of life care. Methods:An interpretive phenomenology was conducted in a tertiary care hospital situated in a multi-cultural urban center. Eleven participants were recruited and a total of 16 interviews were conducted. Participants were dying patients hospitalized on acute care wards waiting for a transfer to a palliative care unit within the same institution for end of life care. Data was collected through semi-structured interviews, observations captured in field notes and a reflexive journal. Data analysis was an iterative process in which interpretations occurred within the context of the hermeneutic circle and which emerged through frequent writing and immersion with the data. During the writing process and review of transcripts, development of summaries and phenomenological accounts, three parallel strategies were employed to guide the interpretive process: exemplars, paradigm cases and thematic analysis (Benner, Tanner & Chesla, 1996).Findings:The structure of the analysis was framed using the concepts of thrownness and situatedness (Withy, 2011) and are organized using the concepts of the situatedness of a contextual background, of a particular life and of the 'here and now'. The main findings of this inquiry are 1) participants transitioned to an awareness that they were dying prior to being told that they were by their health care providers. The impending transfer to the palliative care unit was not critical for this awareness; 2) participants' awareness of their own finitude was an experience imbued with a profound sense of aloneness; 3) the impending move to the palliative care unit was considered an opportunity for hope. At the same time, responses to the actual transfer to the palliative care unit were in part influenced by notions of control; 4) religious and spiritual beliefs offered hope and comfort but also had the potential to engender feelings of aloneness, and those participants who described themselves as non-religious found comfort in rationality and secular spirituality. Both religious and non-religious participants appear to find comfort in relinquishing control to a higher being; 5) an appreciation of embodiment is key to understanding the construct of dignity in the dying person.Conclusions:The findings of this inquiry offer a new way of understanding the lived experience of dying for hospitalized patients waiting to be transferred to a palliative care unit. These findings offer direction for future research and consideration for current theory. Clinical implications for nurses working with dying patients in acute care and palliative care settings are explored along with implications for nursing leaders and policy makers. Clinical implications for nurses could include supporting patients during the anticipated move to palliative care, creating a safe space to be with patients in their aloneness, and educating and supporting nurses to find ways of understanding and addressing the potential spiritual needs of patients." --

Crossing Over

Author : David Barnard
Publisher : Oxford University Press
ISBN 13 : 0197602274
Total Pages : 513 pages
Book Rating : 4.1/5 (976 download)

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Book Synopsis Crossing Over by : David Barnard

Download or read book Crossing Over written by David Barnard and published by Oxford University Press. This book was released on 2022-12-02 with total page 513 pages. Available in PDF, EPUB and Kindle. Book excerpt: Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients' homes and in the palliative care unit. Crossing Over moves far beyond conventional case reports in medicine, which typically concentrate narrowly on symptoms and treatments, and beyond clichés about "dying with dignity." It provides intimate views of the anger and fear, tenderness and reconciliation, jealousy and love, unexpected courage and unshakable faith, social support and "falling through the cracks," which are all part of facing death in North American society. It provides an extraordinary portrait of the processes of giving and receiving hospice and palliative care in the real world, as opposed to idealized versions in many textbooks. This edition of Crossing Over has been thoroughly revised and updated to reflect changes in hospice and palliative care and in North American society since the first edition in 2000. Chief among these are the expansion of hospice and palliative care as a field, the ravages of the COVID-19 pandemic, the wider availability of medical aid in dying, and a heightened awareness of how structural racism, classism, and other forms of discrimination shape individuals' and families' experiences right up to the close of life.