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The Clinical Presentation Of Parkinsons Disease And The Dyadic Relationship Between Patients And Carers
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Book Synopsis The Clinical Presentation of Parkinson's Disease and the Dyadic Relationship between Patients and Carers by : Barbara Politynska
Download or read book The Clinical Presentation of Parkinson's Disease and the Dyadic Relationship between Patients and Carers written by Barbara Politynska and published by Cambridge Scholars Publishing. This book was released on 2014-10-17 with total page 655 pages. Available in PDF, EPUB and Kindle. Book excerpt: Providing care for someone with a neurodegenerative condition such as Parkinson's disease requires an integrated approach, taking into account the needs of the person with the disorder and family members most closely involved in their care. This is only possible with an understanding of the complex nature of Parkinson's disease, extending beyond the management of the motor disorder. It also requires an appreciation of the significant neuropsychological changes accompanying the disease, which ...
Book Synopsis Quality of Life and Caregiver Burden in Parkinson's Disease by : Sarah Eilzabeth Simms
Download or read book Quality of Life and Caregiver Burden in Parkinson's Disease written by Sarah Eilzabeth Simms and published by . This book was released on 2012 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Parkinson's disease is common in older adult populations, with an increasing prevalence with age. Many psychosocial factors have been shown to be associated with quality of life, however there has been limited research investigating the role of illness appraisals, despite this existing for other chronic health conditions. The literature review examined experiences of caring for a spouse with Parkinson's disease. A critical thematic synthesis of qualitative research was conducted with rigorous quality appraisal. Negative consequences to caring were evident with social restrictions and loss of previous identities and a shared future identified. However, a sense of resilience emanated throughout the studies. Ambivalence was an emergent theme, with spouses reporting a need for increased professional support but stated difficulties discussing issues, particularly those regarding end of life. Increased community support and resource is required with a dyadic focus, including both spouse and patient. The empirical study focussed on quality of life and caregiver burden in Parkinson's disease and the role of patients' and carers' illness appraisals. A cross-sectional self-report design was utilised. Illness appraisals were demonstrated to be key predictors of quality of life and burden, after controlling for biomedical variables, and the importance of consideration of both patient and carer appraisals for these outcome measures was highlighted. Clinical implications of the findings are discussed with suggestions for future research. The critical appraisal discussed reflections on the research process addressing key areas, including origins of the project and development of research ideas, ethical submission, data collection and analyses, whilst making reference to specific learning points.
Book Synopsis Patient Education for People with Parkinson's Disease and their Carers by : Marcia Smith Pasqualini
Download or read book Patient Education for People with Parkinson's Disease and their Carers written by Marcia Smith Pasqualini and published by Wiley. This book was released on 2006-10-24 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This manual provides the information and materials needed to conduct an eight-session patient education programme for people with Parkinson’s disease and their carers, complementing medical treatment. This programme was developed within an interdisciplinary European consortium, comprising research and clinical centres in Germany, Spain, Finland, Italy, The Netherlands, Estonia and the United Kingdom. In addition to dealing with the motor symptoms of Parkinson’s disease, many people also struggle with the psychological and social effects. In fact, people at every stage of the disease can be faced with problems such as depression, anxiety, stressful social interactions, and difficulties communicating, all of which can disrupt their lives. This programme draws upon basic psychological principles and presents specific strategies that people can use to manage these difficulties. The ultimate goal of the programme is to empower people with Parkinson’s disease and their carers to improve their own quality of life. Although the programme is standardised, flexibility is built into the programme to facilitate its use in different cultures, and with different types of patient and carer groups. Patient Education for People with Parkinson’s Disease and Their Carers: A Manaual is essential reading for all health care professionals and trained volunteers working with people with Parkinson’s disease and their carers.
Book Synopsis Self-management support to handle everyday life with Parkinson´s disease by : Carina Hellqvist
Download or read book Self-management support to handle everyday life with Parkinson´s disease written by Carina Hellqvist and published by Linköping University Electronic Press. This book was released on 2020-04-27 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: Being diagnosed with Parkinson´s disease (PD) is a life-altering experience. The long-term condition requires continuous adjustments to the everyday life not only of the person affected, but also for care partners. There is still insufficient knowledge on how best to support this process of acceptance and adjustment to encourage self-management. Aims: The aim of this thesis is to enhance the knowledge and understanding of self-management for persons with PD (PwPD) and their care partners. Furthermore, to investigate whether the self-management intervention Swedish National Parkinson School can be used as a tool to support self-management, and how nurses specialised in the care of persons with Parkinson´s disease can tailor their support to encourage self-management in everyday life. Method and design: Both qualitative and quantitative designs and methods were used in the three studies included in this thesis. Participants included a total of 209 persons. Of these, 127 were persons with PD and 75 were care partners. Participants with PD were largely in the middle stages of the disease. The time since diagnosis ranged from less than one year to over 20 years, and most participants had lived with the disease for around five years. Participants were cared for at five separate outpatient clinics, both geriatric and neurological, in three county and two university hospitals across Sweden. Data collection included observations, interviews, self-reported questionnaires and audio-recordings of the National Parkinson School in clinical care. The overall results of this thesis were obtained using a qualitative approach, where the results of the three studies were analysed using qualitative thematic analysis as described by Braun and Clarke (2006). Results: In combining the results of the separate studies through thematic analysis three distinct but interrelated themes were evident. These described the processes and efforts of persons to accept, manage and adjust to everyday life with PD. The theme “A changed reality” involves participants´ descriptions of how life changed after the diagnosis of PD. For many this was a shock, and both the person affected and their care partners experienced a variety of emotions such as anger, denial and hopelessness. It changed their personal identities, their perception of themselves as individuals and as a couple. They worried about what the future would hold, and the uncertainty was hard to accept and handle. One strategy for processing and beginning to acknowledge the new situation involved speaking openly about the diagnosis. The second theme “Finding a new path”, involves a description of how, after accepting or at least acknowledging, their new reality, participants started to find ways of managing the impact of PD on everyday life, incorporating it into their current life and identity. Many felt new knowledge was needed and turned to books and websites on PD. An intervention which was appreciated in terms of providing tools for self-observation and self-knowledge was the Swedish National Parkinson School. Participants later used these techniques to communicate and observe symptoms and healthcare needs. Being an active participant in life and performing activities such as physical exercise or other activities they enjoyed were also used as a strategy to feel satisfaction in life. Participants frequently worked out self-care and compensatory strategies to handle everyday tasks. Another strategy they found comforting and helpful involved retaining a positive mind-set and believing that a good future lay ahead. In the third category “The companions”, the participants described self-management in everyday life as a task they performed together. Management of PD was considered the shared responsibility of the person affected and the care partner, but was also influenced by others such as family members and close friends. The Swedish National Parkinson School provided knowledge as a form of common ground for the person affected and the care partner. During the Swedish National Parkinson School, the social interaction involved in exchanging experiences and feeling support from others in the same situation was considered helpful and was much appreciated. Conclusions: Management of PD in everyday life involves both the person affected and the care partner. After the initial emotional reactions, alongside feelings of lost identity and an altered life, persons started to look to the future and were ready to find ways of handling the changed conditions of their everyday lives. Persons with PD and their care partners were now willing to learn more about PD and to find tools and strategies to help them manage its impact on their everyday lives. During this phase, they appreciated the support of the Swedish National Parkinson School intervention. In the intervention, they would meet others in the same situation to find support and exchange experiences. They also turn to healthcare for support in the process of self-management in everyday life. Nurses working specifically to support PwPD and their CP will need to tailor support taking into account the disease trajectory as well as the psychological processes involved in accepting and adjusting to PD to best fit the unique needs and wishes of every person with PD and their care partner.
Book Synopsis Neuropalliative Care by : Claire J. Creutzfeldt
Download or read book Neuropalliative Care written by Claire J. Creutzfeldt and published by Springer. This book was released on 2018-10-01 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.
Book Synopsis Dementia with Lewy Bodies by : John O'Brien
Download or read book Dementia with Lewy Bodies written by John O'Brien and published by CRC Press. This book was released on 2005-11-29 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: Filling a noticeable gap in the market for a new text solely focused on Dementia with Lewy Bodies, this book discusses cutting-edge topics covering the condition from diagnosis to management, as well as what is known about the neurobiological changes involved. With huge progress having been made over the last decade in terms of the disorder
Book Synopsis Psychotherapy in Later Life by : Rajesh R. Tampi
Download or read book Psychotherapy in Later Life written by Rajesh R. Tampi and published by Cambridge University Press. This book was released on 2020-01-16 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical, how-to-guide on choosing and delivering evidence-based psychological therapies to adults in later life. This book provides the latest, peer reviewed evidence for using psychotherapy among older adults, and will appeal to a wide range of readers including patients, caregivers, trainees and clinicians.
Book Synopsis Sexual Dysfunction in Parkinson's Disease by :
Download or read book Sexual Dysfunction in Parkinson's Disease written by and published by Academic Press. This book was released on 2022-04-07 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sexual Dysfunction in Parkinson's Disease, Volume 182, the latest release in the International Review of Neurobiology series, highlights new advances in the field with this new volume presenting interesting chapters on a variety of trending and important topics, including Prevalence, clinical presentations and impact on relationship, Pathophysiology, Scales for assessing sexual dysfunction in Parkinson's disease, Diagnostic work up: Laboratory and biomarkers, Management strategies, ICD DDS and sex dysfunction, Non-motor fluctuations and sex dysfunction, Exploring Sexual Dysfunction in Care Homes, and The impact of non-motor symptoms burden on sexual functions. - Provides the authority and expertise of leading contributors from an international board of authors - Presents the latest release in the International Review of Neurobiology series - Updated release includes the latest information regarding Sexual Dysfunction in Parkinson's Disease
Book Synopsis Key Aspects of Elder Care by : Sandra G. Funk
Download or read book Key Aspects of Elder Care written by Sandra G. Funk and published by . This book was released on 1992 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Key Aspects books, each of which has won a Book-of-the-Year Award from the American Journal of Nursing, are designed to move the ideas and findings of nursing research into the practice setting. Each volume distills dozens of studies into a readable, jargon-free format with immediate relevance to nursing practice, and includes suggestions for implementation.
Book Synopsis Parkinson's Disease and Related Disorders by : Peter Riederer
Download or read book Parkinson's Disease and Related Disorders written by Peter Riederer and published by Springer Science & Business Media. This book was released on 2006-11-23 with total page 484 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book gives a comprehensive overview on current clinical and basic research issues related to Parkinson’s disease and its related disorders. The book is the result of the 16th International Congress of Parkinson’s Disease and Related disorders congress 2005. Its contents are suitable for neurologists, psychiatrists, neurosurgeons, basic researchers, geneticians and patients as well as their relatives.
Book Synopsis Parkinsonism and Related Disorders by : E. Ch. Wolters
Download or read book Parkinsonism and Related Disorders written by E. Ch. Wolters and published by Vu University Press. This book was released on 2013-03 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This overview of neurological movement disorders studies not only the etiology and pathophysiology of the signs and symptoms of these disorders but also the diagnostic procedures, differential diagnostic problems, and, above all, pharmaco-therapeutical and neurosurgical strategies. A practical resource for medical and allied health professionals, this book provides the essential tools for recognizing and understanding various disorders in daily practice, discussing and interpreting clinical manifestations, and selecting adequate therapeutical strategies. A CD-ROM showing the clinical manifestations of many of the detailed movement disorders is also included.
Download or read book Brain and Art written by Bruno Colombo and published by Springer Nature. This book was released on 2019-08-29 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book analyzes and discusses in detail art therapy, a specific tool used to sustain health in affective developments, rehabilitation, motor skills and cognitive functions. Art therapy is based on the assumption that the process of making art (music, dance, painting) sparks emotions and enhances brain activity. Art therapy is used to encourage personal growth, facilitate particular brain areas or activity patterns, and improve neural connectivity. Treating neurological diseases using artistic strategies offers us a unique option for engaging brain structural networks that enhance the brain’s ability to form new connections. Based on brain plasticity, art therapy has the potential to increase our repertoire for treating neurological diseases. Neural substrates are the basis of complex emotions relative to art experiences, and involve a widespread activation of cognitive and motor systems. Accordingly, art therapy has the capacity to modulate behavior, cognition, attention and movement. In this context, art therapy can offer effective tools for improving general well-being, quality of life and motivation in connection with neurological diseases. The book discusses art therapy as a potential group of techniques for the treatment of neurological disturbances and approaches the relationship between humanistic disciplines and neurology from a holistic perspective, reflecting the growing interest in this interconnection.
Book Synopsis Ten Days to Self-Esteem by : David D. Burns
Download or read book Ten Days to Self-Esteem written by David D. Burns and published by Harper Collins. This book was released on 2013-04-16 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do you wake up dreading the day? Do you feel ciscouraged with what you've accomplished in life? Do you want greater self-esteem, productivity, and joy in daily living? If so, you will benefit from this revolutionary way of brightening your moods without drugs or lengthy therapy. All you need is your own common sense and the easy-to-follow methods revealed in this book by one of the country's foremost authorities on mood and personal relationship problems. In Ten Days to Self-esteem, Dr. David Burns presents innovative, clear, and compassionate methods that will help you identify the causes of your mood slumps and develop a more positive outlook on life. You will learn that You feel the way you think: Negative feelings like guilt, anger, and depression do not result from the bad things that happen to you, but from the way you think about these events. This simple but revolutionary idea can change your life! You can change the way you feel: You will discover why you get depressed and learn how to brighten your outlook when you're in a slump. You can enjoy greater happiness, productivity, and intimacy—without drugs or lengthy therapy. Can a self-help book do all this? Studies show that two thirds of depressed readers of Dr. Burns's classic bestseller, Feeling Good: The New Mood Therapy,experienced dramatic felief in just four weeks without psychotherapy or antidepressant medications. Three-year follow-up studies revealed that readers did not relapse but continued to enjoy their positive outlook. Ten Days to Self-esteem offers a powerful new tool that provides hope and healing in ten easy steps. The methods are based on common sense and are not difficult to apply. Research shows that they really work! Feeling good feels wonderful. You owe it to yourself to feel good!
Download or read book Brain Informatics written by Mufti Mahmud and published by Springer Nature. This book was released on 2020-09-18 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book constitutes the refereed proceedings of the 13th International Conference on Brain Informatics, BI 2020, held in Padua, Italy, in September 2020. The conference was held virtually due to the COVID-19 pandemic. The 33 full papers were carefully reviewed and selected from 57 submissions. The papers are organized in the following topical sections: cognitive and computational foundations of brain science; investigations of human information processing systems; brain big data analytics, curation and management; informatics paradigms for brain and mental health research; and brain-machine intelligence and brain-inspired computing.
Book Synopsis Critiquing Nursing Research 2nd Edition by : John Cutcliffe
Download or read book Critiquing Nursing Research 2nd Edition written by John Cutcliffe and published by Andrews UK Limited. This book was released on 2014-10-13 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition of Quay Books' bestselling title retains all of the successful features of the first, plus additional material including a chapter on European psychiatric research. Foreword by Kevin Gournay.
Book Synopsis Autonomic Neurology by : Eduardo E. Benarroch
Download or read book Autonomic Neurology written by Eduardo E. Benarroch and published by Oxford University Press. This book was released on 2014-04-03 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: The purpose of this book is to present a focused approach to the pathophysiology, diagnosis, and management of the most common autonomic disorders that may present to the clinical neurologist. Autonomic Neurology is divided into 3 sections. The first section includes 5 chapters reviewing the anatomical and biochemical mechanisms of central and peripheral nervous system control of autonomic function, principles of autonomic pharmacology, and a clinical and laboratory approach to the diagnosis of autonomic disorders. The second section focuses on the pathophysiology and management of orthostatic hypotension, postural tachycardia, baroreflex failure; syncope, disorders of sweating, neurogenic bladder and sexual dysfunction, gastrointestinal dysmotility, and autonomic hyperactivity. The final section is devoted to specific autonomic disorders, including central neurodegenerative disorders; common peripheral neuropathies with prominent autonomic failure; painful small fiber neuropathies; autoimmune autonomic ganglionopathies and neuropathies; focal brain disorders; focal spinal cord disorders; and chronic pain disorders with autonomic manifestations. This book is the product of the extensive experience of its contributors in the evaluation and management of the many patients with autonomic symptoms who are referred for neurologic consultation at Mayo Clinic in Rochester, Minnesota. Autonomic Neurology focuses on clinical scenarios and presentation of clinical cases and includes several figures showing the results of normal and abnormal autonomic testing in typical conditions. Its abundance of tables summarizing the differential diagnosis, testing, and management of autonomic disorders also help set this book apart from other books focused on the autonomic nervous system.
Book Synopsis Physical Therapy Effectiveness by : Mario Bernardo-Filho
Download or read book Physical Therapy Effectiveness written by Mario Bernardo-Filho and published by . This book was released on 2020 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
