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The Caregivers Tale
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Book Synopsis The Caregiver's Tale by : Ann Burack-Weiss
Download or read book The Caregiver's Tale written by Ann Burack-Weiss and published by Columbia University Press. This book was released on 2006 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. The text will offer insight and comfort to individuals caring for a loved one and is a valuable resource for all healthcare professionals.
Download or read book Caregiver written by Dr. Douglas Courtney and published by Courtney Press. This book was released on 2024-06-11 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A true story. A love story. A sad story. A story of hope. A story of despair. This is a husband’s remembrance of the seven years he spent as a caregiver for his wife. It recalls the first halting moments of concern shared in a simple kitchen under the glare of florescent lighting. The tale unfolding on the emotionally devastating, life ending news of dementia and possible Alzheimer’s. As the couple begin their terrible journey towards the predictable conclusion the caregiver seeks to provide all that he promised her. The husband is new to the whole medical community. Family doctors, neurologists, gerontologists, and an array of ‘ists’ need to be understood, categorized, and cataloged for current and future care. He must navigate all the various state, federal, and local agencies to apply for and gain assistance in her care. The husband must ensure enough funds and monies are acquired for long-term care and support with little to no income or savings. He and his wife must adjust, finalize, and accept the change in trajectory of a life lived together for almost 50 years. Bills, mortgages, and daily life costs themselves are adjusted, discarded, and changed as the quality of a now short life has to be balanced against what was planned, hoped, and what reality can now accomplish. As both go through the irregularly timed changes in ability and memory loss the caregiver recounts past lives, hopes, and dreams of her and him. He replays their discussions on her disease, her understandings and her sense of loss. The husband recounts the loss of dignity for both her and him. But in the middle of all the sadness and chaos, moments of happiness, joy, and love are shared. In the end it is a tragic love story many have endured. One very few men have recounted. It is a story of how a man took care of his wife as she dealt with the dreadful disease of Alzheimer’s. It is a story of how he kept the promise to keep her at home until he could do so no more. It is a recounting of how he walked the path and shared her journey until its inevitable end.
Download or read book The Caregivers written by Nell Lake and published by Simon and Schuster. This book was released on 2014-02-11 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: A moving, intimate, and compassionate book that chronicles the experiences of a group of long-term caregivers—spouses, parents, and friends of the elderly and ill—illuminating critical issues of old age, end-of-life care, medical reform, and social policy—and “providing comfort in the time-honored form of shared experience” (The Minneapolis Star-Tribune). In 2010, journalist Nell Lake began sitting in on the weekly meetings of a local hospital’s caregivers support group. Soon members invited her into their lives. For two years, she brought empathy, insight, and an eye for detail to understanding Penny, a fifty-year-old botanist caring for her aging mother; Daniel, a survivor of Nazi Germany who tends his ailing wife; William, whose wife suffers from Alzheimer’s; and others with whom all caregivers will identify. Witnessing acts of devotion and frustration, lessons in patience and in letting go, Lake illuminates the intimate exchanges of caregiving and care-receiving and considers important and timely social issues: How can we care for the aging, ill, and dying with skill and compassion, even as the costs and labors of care increase? How might the medical profession take into account the needs of caregivers as well as patients? In The Caregivers Nell Lake shares a thoughtful and tenderly reported depiction of the real-life predicaments that evoke these crucial questions. With more and more people spending their late years ill and frail, and 43 million Americans already caring for family members over age fifty, this is an important chronicle of a widely shared experience and a public concern. “The Caregivers is as elegantly constructed as a novel, but more than that, Lake writes about these people with such warmth and vividness that they feel as memorable as our favorite fictional characters. It is a beautifully written account” (The Boston Globe).
Download or read book A Caregiver's Story written by Ann Brandt and published by iUniverse. This book was released on 2007-12 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: "One caregiver's chronicles of the journey she took with her husband, as they battled his brain tumor. Beautifully written."-Naomi Berkowitz, Executive Director, American Brain Tumor Association Just one year after battling a little-known illness called Guillain Barre, Ann Brandt faced another challenge when her husband was diagnosed with a rare, debilitating, and aggressive form of brain cancer. Lacking in resources or formal instruction, Brandt relied heavily on her faith and memories of how her husband cared for her during her illness to navigate them both through the difficult times ahead. In A Caregiver's Story, Brandt approaches the complexities of caregiving in a personal and empowering way that offers sound spiritual as well as practical advice to make caregiving more manageable. She includes invaluable, up-to-date information about: Working with doctors and getting a second opinion Choosing a treatment plan Maintaining your life and sanity while offering good care Finding support groups and conferences Dealing with emotional and financial issues Making a connection between prayer and healing Brandt offers a loving, encouraging environment to help steer you through difficult times and delivers much-needed support and comfort. For caregivers, family members, and friends alike, A Caregiver's Story provides the support you deserve.
Book Synopsis My Mother Has Alzheimer's and My Dog Has Tapeworms A Caregiver's Tale by : R Lynn Barnett
Download or read book My Mother Has Alzheimer's and My Dog Has Tapeworms A Caregiver's Tale written by R Lynn Barnett and published by Lulu.com. This book was released on 2015-10-07 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about how we dealt with my mom with Alzheimer's. It's written with humor and heart.
Book Synopsis Heeding the Caregiver Call by : Dr. Barbara Ella Milton Jr.
Download or read book Heeding the Caregiver Call written by Dr. Barbara Ella Milton Jr. and published by Xlibris Corporation. This book was released on with total page 355 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the fall of 2015, Barbara Sr. called her only child to ask for her help. Unbeknownst to her family, Barbara Sr. was already in the grips of Alzheimer’s. This book tells the story of Barbara Jr.’s journey as her mother’s caregiver and shares insights into the physical, emotional, financial, and spiritual impacts of caregiving while fighting her own cancer. It also provides practical information to others who assume caregiving roles for their loved ones. Follow this mother and daughter’s journey through resentments and regrets, forgiveness and faith, laughter and love. Barbara Jr. promised her mother on her deathbed that she would tell her story. Here it is.
Book Synopsis The Long Goodbye by : John W. Wilson
Download or read book The Long Goodbye written by John W. Wilson and published by . This book was released on 2020-11 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: I'm a caregiver. The patient is my wife. She has frontotemporal dementia, or FTD. What's captured here, in this book, are my thoughts and reactions over time as I came to terms with her disease. These mini-essays represent a curated selection of writings I've been publishing on social media since 2014. In the beginning, they were simply observations about the natural world of the Texas Hill Country. Gradually, however, my wife's disease came to occupy center stage; as it did, the essays became the public face of our life.
Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Book Synopsis Prisoners Without Bars by : Donna O'Donnell Figurski
Download or read book Prisoners Without Bars written by Donna O'Donnell Figurski and published by BQB Publishing. This book was released on 2018-11-01 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Laugh! Cry! G-A-S-P!" This heart-wrenching and triumphant love story is a tale of advocacy and caregiving. Donna's husband, David, stumbled into their bedroom, his hand covering a blood-filled eye from a brain hemorrhage. Donna called 9-1-1. David slipped into a coma. At that moment, Donna was thrust onto the path of caregiver for her best friend and the love of her life. In her debut memoir, Donna shares how a neurosurgeon said that David would make a "great organ donor." She writes of arrogant doctors, uncaring visitors, insensitive ambulance drivers, and problematic nurses. She also tells of the many compassionate doctors, nurses, therapists, staff, strangers, family members, and friends who helped them on their journey. Donna compellingly describes her ability to appear positive as she experiences the horror of making life-or-death decisions. As her world crashes, she credits laughter as her lifesaver. More than thirteen years later, Donna and David are living a "new normal" together.
Book Synopsis Confessions of an Imperfect Caregiver by : Bobbi Carducci
Download or read book Confessions of an Imperfect Caregiver written by Bobbi Carducci and published by . This book was released on 2014-07-26 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Bobbi Carducci's life was about to change. Her ill father-in-law 's odd behavior was a mystery when he came to live with her and Mike. For the next seven years Bobbi did everything she could to save him from himself-while he tried to convince everyone that he didn't need her and that she was crazy. "Brutally honest and written from the heart, Carducci's intimate chronicle of caring for her father-in-law is a poignant story of strength, compassion, and humor that will linger with you long after you read the last page. Highly recommended for anyone caring for an elderly parent." Jan Neuharth, author of the Hunt Country Suspense novels "Confessions of an Imperfect Caregiver, perfectly encapsulates the human experience, not just the caregiver's. When we live in a world of worry, stress and self-doubt, where do we find the strength to go on? Bobbi's retelling of her caregiving years unfolds in a beautiful answer to the questions posed by sickness, health, care, and loss." Alexandra Axel, Media Director, The Caregiver Space Bobbi is an award winning author and multi published short story writer. Her work has appeared in numerous anthologies and publications, in print and online. Bobbi's website and blog can be found at www.bobbicarducci.com and theimperfectcaregiver.com. Bobbi also blogs monthly for TheCaregiverSpace.org and AgingCare.com.
Download or read book Untethered written by Phyllis Peters and published by . This book was released on 2013-11 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Untethered: A Caregiver's Tale is that rare thing, funny fiction about a serious subject. It tells the story of Tom, a baby boomer with aging parents who need to be watched over, his young wife Mel, and a number of stray seniors who seem to have walked out of a P. G. Wodehouse story. Engaging and moving, this novel will keep you reading past your bedtime." -Wyn Cooper, author of Chaos is the New Calm "You can't avoid death, taxes, and caring for the elderly." -Mark V. Olsen & Will Scheffer, producers/creators, Getting On Tom Conklin is a workaday administrator and proud baby boomer. His recent divorce has just ended in marriage to Mel-a sexy, younger French colleague-as he begins caring for his aging and increasingly difficult parents. When his formerly upstanding dad gets arrested for assault with an old dial phone, Tom tries to persuade his parents to sign over their power of attorney, to stop driving, or to take up a comparatively safe hobby like genital tattooing. Denial, however, becomes Tom's most powerful adversary. With Mel's desire for children proving a game changer, his pot-smoking, French great-grandmother-in-law moving in, and his elderly neighbors challenging his very sense of self, Tom escapes into magical thinking. Buying into local lore sends him searching for real buried treasure, but meaningful, emotional treasure proves much more elusive. Untethered: A Caregiver's Tale is full-length fiction as comic relief. It celebrates the modern family at its funniest and most vulnerable, offering cathartic fun aimed not at the caregiven, but in praise of the caregiver. Untethered: A Caregiver's Tale is now a feature of the fundraising efforts for the Accelerating Medicines Partnership (AMP) via the Foundation for the National Institutes of Health. 100% of the profits from the sale of the book will be donated to the AMP's efforts at eradicating Alzheimer's. Please visit www.untetheredcaregiver.com to learn more.
Book Synopsis A Tale of Two Sisters by : Bonnie Kronberger
Download or read book A Tale of Two Sisters written by Bonnie Kronberger and published by . This book was released on 2019-08-12 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is the tale of two sisters being held captive by their loved ones. The role of caregiver was thrust upon them, without invitation or consent, and they found themselves on the road to the worst of times and miraculously, the best of times. Linda's caregiving challenges came to an end just as Bonnie's came to light, yet they have chosen to weave their vignettes and stories back and forth. Linda's tale unfolds gradually as God shows her, through significant flashbacks, how He had already prepared her for her assignment. Bonnie's tale is straight-forward, with practical, creative caregiving insights gained through the Lord's very present on-the-job training. Their circumstances were different, but both give amazing examples of how Alzheimer's brought surprising blessings. They experienced unexpected times of joy as their caregiving journey drew them closer to the Lord's heart--even though they were reluctant caregivers.
Book Synopsis Medical Caregiving and Identity in Pennsylvania's Anthracite Region, 1880–2000 by : Karol K. Weaver
Download or read book Medical Caregiving and Identity in Pennsylvania's Anthracite Region, 1880–2000 written by Karol K. Weaver and published by Penn State Press. This book was released on 2015-10-13 with total page 189 pages. Available in PDF, EPUB and Kindle. Book excerpt: While much has been written about immigrant traditions, music, food culture, folklore, and other aspects of ethnic identity, little attention has been given to the study of medical culture, until now. In Medical Caregiving and Identity in Pennsylvania’s Anthracite Region, 1880–2000, Karol Weaver employs an impressive range of primary sources, including folk songs, patent medicine advertisements, oral history interviews, ghost stories, and jokes, to show how the men and women of the anthracite coal region crafted their gender and ethnic identities via the medical decisions they made. Weaver examines communities’ relationships with both biomedically trained physicians and informally trained medical caregivers, and how these relationships reflected a sense of “Americanness.” She uses interviews and oral histories to help tell the story of neighborhood healers, midwives, Pennsylvania German powwowers, medical self-help, and the eventual transition to modern-day medicine. Weaver is able to show not only how each of these methods of healing was shaped by its patrons and their backgrounds but also how it helped mold the identities of the new Americans who sought it out.
Book Synopsis The Soul of Caregiving (Revised Edition): A Caregiver's Guide to Healing and Transformation by : Edward M. Smink
Download or read book The Soul of Caregiving (Revised Edition): A Caregiver's Guide to Healing and Transformation written by Edward M. Smink and published by Wise Media Group. This book was released on 2021-10-28 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: 2022 Revised Edition Who are the caregivers? We all are, for at the heart of being human is the capacity to care, to reach out to others and explore the relationships we build. The Soul of Caregiving is about us, and how we, as caregivers, serve, even sacrifice, for those in need. I invite you to explore with me how we can partake in a kind of sacred journey exploring our experiences as caregivers. Who will be your guide on this journey? Unlike other pilgrims who have a guide assigned to them, you will soon discover it is your own Soul guiding you. We may be professionally skilled to meet the needs of others, but we must also learn to stop and rest. It is not a waste of time, but rather, a necessity. We need time to ponder, reflect, and grow from our experiences. Not an easy endeavor amid a whirlwind of activity. We, as caregivers, experience vulnerability, helplessness, fears, and pain over the traumatic events we experience because we care. We care about those whom we are called to serve. Compassion fatigue arises because we care. Overview of the Chapters Chapter 1 begins by outlying the tension most caregivers experience: the tension their own needs and the needs of those they care for. I call this tension the Dance of Caregiving. Chapter 2 discusses the importance of discovering interior strengths and values where one discovers Soul. Chapter 3 emphasizes caregivers do not care in a vacuum, as there are broad cultural boundaries and expectations which affect them and shape their behaviors. Chapter 4 describes The Archetype of Caregiving, both its strengths and shadow sides. This archetype also relates to several other leadership archetypes, which are also discussed. Chapter 5 discusses hospitality. This chapter positions the caregiver as the host who experiences three different dimensions of hospitality: to host the stranger, to listen to the stories of the guest, and to reflect on their reactions and experiences. Chapter 6 address the frailty of humankind and the notion that we are wounded healers. Chapter 7 addresses the art of reflection as a fundamental skill for caregivers. Chapter 8 argues that the essential actions of a caregiver are spiritual. Chapter 9 explores how the ordinary becomes spiritual as inner strengths and values give birth to meaning, insight, and transformation. Chapter 10 explores compassion fatigue and its two sisters, secondary traumatic stress disorder and burnout. In this chapter, we learn how to recover from compassion fatigue and burnout by building compassion resilience. At the end of each chapter, the reader is invited to ponder and reflect. Your insights are the gold hidden beneath the sands of confusion. Mining these insights will lead to a greater understanding of your strengths and values. The questions at the end of each chapter help facilitate this process.
Book Synopsis The Caregiver's Tale by : Ann Burack-Weiss
Download or read book The Caregiver's Tale written by Ann Burack-Weiss and published by Columbia University Press. This book was released on 2006-03-14 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. The Caregiver's Tale offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals. Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents. Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo Oë, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.
Download or read book Lewy, Mom, and Me written by Peggy Bushy and published by Createspace Independent Publishing Platform. This book was released on 2016-11-18 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: In her seventies, Peggy Bushy's mother, Francesca, started telling unbelievable stories. She claimed that people were invading her home and trying to kill her. She also became anxious and reclusive. For several discouraging years, Bushy searched in vain for a reason for her mother's behavior. Finally, Francesca was diagnosed with Lewy body dementia. Although it's the third-most-common cause of dementia, Bushy was unable to find much information on the disease, and the medical community was frustratingly unhelpful. Lewy, Mom, and Me is the book that Bushy wished had been available when her mother was first diagnosed. It details her personal journey of discovery, with all its challenges and revelations, and is written in a compassionate, empathetic style that will comfort any reader dealing with a parent's decline. Bushy explains how she learned to accept the changes in her mother and to support Francesca emotionally as she grappled with her frightening illness. She also describes what was involved in caring for her mother first at home, then in long-term care, and finally in hospice. Part memoir and part survival guide, this compelling testimony offers support and information for family caregivers of aging parents.
Book Synopsis Dementia Sucks by : Tracey S. Lawrence
Download or read book Dementia Sucks written by Tracey S. Lawrence and published by Post Hill Press. This book was released on 2018-05-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The surprising true story of one woman’s journey through the nightmare of losing both parents to dementia, as she learns that a sense of humor is mandatory for survival. “Not buying it, huh?” My mother acknowledged her assertion that the woman she pointed out at the rehab center as being her dead husband was a bit of a stretch. But this was the kind of conversation I had with Mom as her cognitive abilities declined and her psychosis fully bloomed. The true, heart-wrenching, and yet hilarious stories at the center of Dementia Sucks were borne of a journal and blog that author Tracey Lawrence kept as her mother transformed from classic Jewish mother, to mildly forgetful Floridian grandma, to geriatric delinquent removed by police for knife-play at a rehabilitation facility. Really. Tracey’s journey takes her from being an established graphic artist in northern New Jersey through bouts of full-time, hands-on caregiving of both her aging parents. She discusses many of the common challenges families face, and provides a humorous and highly educational perspective on her emotionally charged ride through geriatric illnesses, doctors, hospitals, insurance, facilities, family dynamics, and much more. Anyone who has family members they care about will want to read this book. Whether dementia visits or not, some aspect of Tracey’s caregiving journey will likely resonate with, amuse, and enlighten you. The trick to surviving loss after loss is to find the humor in it all and avoid punching anyone, least of all yourself. This irreverent look shows you the way.
