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The Alzheimers Family
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Book Synopsis The Inheritance by : Niki Kapsambelis
Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.
Book Synopsis The Complete Family Guide to Dementia by : Thomas F. Harrison
Download or read book The Complete Family Guide to Dementia written by Thomas F. Harrison and published by Guilford Publications. This book was released on 2022-08-10 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category
Book Synopsis The Emotional Journey of the Alzheimer's Family by : Robert B. Santulli, MD
Download or read book The Emotional Journey of the Alzheimer's Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Book Synopsis When Someone You Know Is Living in a Dementia Care Community by : Rachael Wonderlin
Download or read book When Someone You Know Is Living in a Dementia Care Community written by Rachael Wonderlin and published by Johns Hopkins University Press. This book was released on 2016-11-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide to help family and friends navigate the emotional and practical challenges they face when someone they love is living in community care. Life changes dramatically for the entire family when the decision is made to move a person who has dementia from home to community care. Rachael Wonderlin, a gerontologist, dementia care expert, and popular dementia care blogger, helps caregivers cope with the difficult behaviors, emotions, and anxieties that both they and their loved one may experience. Writing from her own practice and drawing on the latest research in gerontology and dementia, Wonderlin explains the different kinds of dementia, details the wide range of care communities available for people who have dementia, and speaks empathetically to the worry and guilt many families feel. "Do not let anyone make you feel like you have taken the 'easy way out' by choosing a dementia care community," she writes. "You are still going to deal with a lot of challenging behaviors, concerns, and questions regarding your loved one's care." When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident? An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.
Download or read book Pathways written by Kae Hammond and published by Kae Hammond. This book was released on 2012-04-10 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Possibly the best rescue plan you've ever read.If you are caring for someone with Alzheimers Disease or Related Dementias,PathwaysPathwaysPathways"You have straightened out the curves and turns and false roads of the family caregiver maze. Accurate, useful, dependable, relevant, and reliable. You have done a yeoman's job and all of us who care for a person with dementia will be better for your efforts. PathwaysContact Us:For more information or immediate assistance, contact us at (877) 699-3456 or visit www.dementiahelpcenter.com
Book Synopsis Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) by : National Institute on Aging
Download or read book Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019) written by National Institute on Aging and published by Lulu.com. This book was released on 2019-04-13 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
Download or read book The 36-Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.
Book Synopsis Talking to Alzheimer's by : Claudia Strauss
Download or read book Talking to Alzheimer's written by Claudia Strauss and published by . This book was released on 2001 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Simple ways to connect when you visit with a family member or friend.
Book Synopsis Practical Dementia Care by : Peter V. Rabins
Download or read book Practical Dementia Care written by Peter V. Rabins and published by Oxford University Press. This book was released on 2006-01-19 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a comprehensive yet practical guide to the care and management of patients with dementia from the time of diagnosis to the end of life. It is intended for the increasing number of physicians, nurses, psychologists, social workers, rehabilitation therapists, and long-term care givers responsible for the care of individuals with dementia. For the Second Edition, the authors have added a chapter on mild cognitive impairment. The sections that received the most extensive revision or expansion include those on drug therapy; the pathophysiology of several causes of dementia; psychiatric symptoms of dementia and their treatment (especially drug treatment); and dementia in special environments (especially assisted living and nursing homes).
Book Synopsis Creating Moments of Joy Along the Alzheimer's Journey by : Jolene Brackey
Download or read book Creating Moments of Joy Along the Alzheimer's Journey written by Jolene Brackey and published by Purdue University Press. This book was released on 2016-11-15 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.
Book Synopsis Six Steps to Managing Alzheimer's Disease and Dementia by : Andrew E. Budson MD
Download or read book Six Steps to Managing Alzheimer's Disease and Dementia written by Andrew E. Budson MD and published by Oxford University Press. This book was released on 2021-08-23 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.
Book Synopsis Dancing with Granddad by : Linda Bozzo
Download or read book Dancing with Granddad written by Linda Bozzo and published by . This book was released on 2020-08-15 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: For parents and children looking for a way to open a dialogue on how Alzheimer's disease can affect their loved ones.
Book Synopsis The Problem of Alzheimer's by : Jason Karlawish
Download or read book The Problem of Alzheimer's written by Jason Karlawish and published by St. Martin's Press. This book was released on 2021-02-23 with total page 269 pages. Available in PDF, EPUB and Kindle. Book excerpt: A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.
Book Synopsis Alzheimer's Family Support Groups by : Lillian Middleton
Download or read book Alzheimer's Family Support Groups written by Lillian Middleton and published by . This book was released on 1984 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis One Family's Journey Through Alzheimer's by : Mary B. Walsh
Download or read book One Family's Journey Through Alzheimer's written by Mary B. Walsh and published by . This book was released on 2000 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mary B. Walsh and her husband made a promise to his grandmother that she would never be placed in a nursing home. After the family moved to Pennsylvania, she was diagnosed with Alzheimer's, and the family held to its promise of care. Told with humor, love, and compassion, this is the story of how that decision affected the entire family. It is a book that will encourage anyone in a similar situation and show that despite the illness, the rest of life does not stop.
Book Synopsis Alzheimer's. Dementia. What Now? by : Jim Henry
Download or read book Alzheimer's. Dementia. What Now? written by Jim Henry and published by Higherlife Development Service. This book was released on 2020-08-31 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you are caring for or supporting a loved one with Alzheimer's or dementia you know that is not an easy journey. This book will give you practical advice mixed with spiritual wisdom and counsel gained from personal experience. The authors, Jim Henry and Deb Terry, have personally walked through the loss of a spouse and a parent to this disease. From their experiences they will help you through 18 Central Questions that you will undoubtably face from early onset through advanced stages. You will gain strength and comfort as you become the most effective caregiver possible while also taking care of yourself along the way.
Book Synopsis Alzheimer's Disease by : Dr. Roger A. Brumback, MD
Download or read book Alzheimer's Disease written by Dr. Roger A. Brumback, MD and published by Demos Medical Publishing. This book was released on 2005-09-01 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt: Of the estimated 5 million Americans who have Alzheimer's disease, more than 7 in 10 live at home, primarily cared for by family and friends. Alzheimer's Disease: The Dignity Within: A Handbook for Caregivers, Family, and Friends was written in a workbook format aimed at increasing the caregiver's knowledge of the disease. As a result, these caregivers - whether family members, friends or health professionals - will be better equipped to nurture the dignity within people living with Alzheimer's and feel more confident doing so. The book is a tool for caregivers that will impact not only the way they relate to persons with Alzheimer's disease, but other relationships as well. It contains information on how to take care of a person with Alzheimer's disease by mapping out each stage of the disease and showing what can be done from a caregiving standpoint at these various stages. In addition, the book discusses how important it is for caregivers to take care of themselves. It educates readers with easy-to-understand charts and sketches on what physically happens to the brain during the progression of Alzheimer's. Its five sections focus on the nature of Alzheimer's disease and on being a caregiver, covering topics such as tips for caregivers; challenges and solutions; changes in the brain that are responsible for the problems associated with the disease; and much, much more. However, the most important tenet of the book is that we can better care for people with Alzheimer's by recognizing and nurturing the essence within a person living through the different stages of the disease. Both caregivers and people affected by Alzheimer's can live with a sense of dignity, importance, and self-esteem.
