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Stress Coping And Quality Of Life Among Parental Caregivers Of Children With Autism Spectrum Disorder
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Book Synopsis Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder by : Dawn M. Turnage
Download or read book Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder written by Dawn M. Turnage and published by . This book was released on 2019 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keywords: Stress, Coping, Autism Spectrum Disorder, Caregiver
Book Synopsis A Comprehensive Book on Autism Spectrum Disorders by : Mohammad-Reza Mohammadi
Download or read book A Comprehensive Book on Autism Spectrum Disorders written by Mohammad-Reza Mohammadi and published by BoD – Books on Demand. This book was released on 2011-09-15 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of the book is to serve for clinical, practical, basic and scholarly practices. In twentyfive chapters it covers the most important topics related to Autism Spectrum Disorders in the efficient way and aims to be useful for health professionals in training or clinicians seeking an update. Different people with autism can have very different symptoms. Autism is considered to be a "spectrum" disorder, a group of disorders with similar features. Some people may experience merely mild disturbances, while the others have very serious symptoms. This book is aimed to be used as a textbook for child and adolescent psychiatry fellowship training and will serve as a reference for practicing psychologists, child and adolescent psychiatrists, general psychiatrists, pediatricians, child neurologists, nurses, social workers and family physicians. A free access to the full-text electronic version of the book via Intech reading platform at http://www.intechweb.org is a great bonus.
Book Synopsis Parenting Stress by : Kirby Deater-Deckard
Download or read book Parenting Stress written by Kirby Deater-Deckard and published by Yale University Press. This book was released on 2008-10-01 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt: All parents experience stress as they attempt to meet the challenges of caring for their children. This comprehensive book examines the causes and consequences of parenting distress, drawing on a wide array of findings in current empirical research. Kirby Deater-Deckard explores normal and pathological parenting stress, the influences of parents on their children as well as children on their parents, and the effects of biological and environmental factors. Beginning with an overview of theories of stress and coping, Deater-Deckard goes on to describe how parenting stress is linked with problems in adult and child health (emotional problems, developmental disorders, illness); parental behaviors (warmth, harsh discipline); and factors outside the family (marital quality, work roles, cultural influences). The book concludes with a useful review of coping strategies and interventions that have been demonstrated to alleviate parenting stress.
Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell
Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
Book Synopsis Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder by : Ian McDonough
Download or read book Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder written by Ian McDonough and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the continuing increased incidence rate of autism spectrum disorder over the decades, there are increasing numbers of adults with autism who require varying levels of lifelong care, typically from parents. It is necessary to understand parents' lived experience of lifelong caregiving, and how their own aging process further impacts life quality. Furthermore, greater understanding of stressors, resources, appraisals, and coping among parent caregivers of children with "high functioning autism" who are transitioning into young adulthood is particularly necessary as services, needs, and experiences for both are nuanced due to functional status, deficits in the service system, and demographic disparities. Given lifespan aspects past research has not addressed, the study focused on development of a measure of parent accumulated stressors, and on interrelations of stressors, perceived social support, future time perspective, burden, satisfaction, and coping on health-related quality of life and meaning in life among 28 parents of young adults with autism. Although proposed quantitative analyses were not completed due to sample size, qualitative analyses on parent experiences and stressors revealed common themes of concern for child's future quality of life, complicated dynamics of providing help to their child overtime, and increased stress related to others' lack of understanding of their child. In total, 10 themes and multiple subthemes were identified in relation to aspects of accumulated stressors. Findings suggest parent stress with this specific population is complex, manifesting in nuanced ways at different life stages. Impacts of the COVID-19 pandemic are also explored, and implications for scientific advancement and clinical services are discussed.
Download or read book Autism written by Michael Fitzgerald and published by BoD – Books on Demand. This book was released on 2017-04-12 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book opens with a discussion of neurodiversity and an elaboration of the diagnosis of autism. It then examines factors correlating with autism, including sex bias, month of birth, migration and impact of infant feeding. The next section is on the impact of autism. The neurobiology and genetic section deals with epigenetics and intracellular pathways associated with etiology. The development and behaviour section deals with proprioceptive profiles and joint attention in autism. The final section focuses on interventions including mindfulness, animal assisted activity, social/cultural perspective on autism intervention and physical activity. The book is relevant to all professionals and researchers working with persons with autism, including psychiatrists/psychologists, speech and language therapists, occupational therapists, teachers, nurses and care workers.
Book Synopsis Adolescents and Adults with Autism Spectrum Disorders by : Fred R. Volkmar
Download or read book Adolescents and Adults with Autism Spectrum Disorders written by Fred R. Volkmar and published by Springer Science & Business. This book was released on 2014-04-18 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: The research on children with autism spectrum disorders (ASD) is extensive and growing. Although these conditions are recognized as affecting the entire lifespan, the literature on ASD after childhood is limited and has not been brought together in a single volume in over a decade. Adolescents and Adults with Autism Spectrum Disorders fills this knowledge gap by focusing on needs and difficulties unique to these stages of development. Expert contributors offer cogent reviews of complex issues, from education to employment, leisure activities to illegal behaviors, mental health issues to medical health concerns. The latest findings in key areas, such as psychosocial and residential treatments, social skills programs, epidemiology, the impact of ASD on families, are examined in detail. Throughout the volume, coverage focuses on areas requiring improved models of assessment, updated data, new interventions and increased support services. Featured topics include: Transition from high school to adulthood for adolescents and young adults with ASD. Innovative programming to support college students with ASD. Romantic relationships, sexuality and ASD. Treatment of mental health comorbidities. Assessment and treatment planning in adults with ASD. The range of outcomes and challenges in middle and later life. Adolescents and Adults with Autism Spectrum Disorders is a must-have reference for a wide range of clinicians and practitioners – as well as researchers and graduate students – in clinical child, school and developmental psychology; child and adolescent psychiatry; social work; rehabilitation medicine/therapy; education and general practice/family medicine. It will also serve as an important resource for parents and caregivers with its focus on translating the current state of knowledge relevant to understanding adolescents and adults with ASD into practical and relevant recommendations on how best to support them.
Book Synopsis Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns by : Colleen M. Harker
Download or read book Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns written by Colleen M. Harker and published by . This book was released on 2018 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the unique demands of raising a child with autism spectrum disorder (ASD), it is necessary to understand the impact on the quality of life (QoL) of their caregivers. Though QoL is considered an important outcome in health services research (Moons et al., 2006; Oliveira, Carvalho, & Esteves 2016), there is a lack of knowledge about QoL in caregivers of children with ASD or caregivers of children for whom there are ASD concerns, but no formal diagnosis. The objectives of the current study were to (1) Examine how having a young child with ASD or ASD concerns affects caregiver QoL, relative to children with other developmental concerns and typical development; (2) Examine profiles across QoL domains within each caregiver group to determine which QoL domains were most impacted relative to other domains; (3) Examine to what extent three levels of determinants contribute to caregiver QoL: family demographic (child age, family income, caregiver employment status, number of children in the home), psychological (parenting stress), and health care (family-centered care); and 4) (Exploratory) Examine the extent to which family centered care moderates the relation between parenting stress and QoL. The sample was drawn from a larger NIH study examining screening and referral practices for children with ASD in primary care provider (PCP) practices and early intervention (EI) agencies in Washington State. The sample was comprised of three groups: caregivers of children with ASD or ASD concerns (ASD/ASD Concerns; n = 42), caregivers of children with other developmental concerns (Other Concerns; n = 34), and caregivers of children with typical development (No Concerns; n = 112). Caregivers completed a measure of family demographics, parenting stress, family-centered care, and QoL at their time of entry in the study. Results indicated that caregivers in the ASD/ASD Concerns group reported significantly lower Psychological and Social QoL than caregivers in the Other Concerns group and the No Concerns group, and significantly lower Environmental QoL and Physical QoL than caregivers in the No Concerns group (Objective 1). For caregivers in the ASD/ASD Concerns group, Social QoL was significantly lower than Environmental and Physical QoL and Psychological QoL was significantly lower than Environmental QoL (Objective 2). Income, parenting stress, and family-centered care were significant predictors for all four QoL domains, while the number of children residing in the home was a significant predictor for Physical QoL only. There was also a significant group by stress interaction for Environmental QoL, such that there was a stronger negative relationship between parenting stress and Environmental QoL for caregivers in the ASD/ASD Concerns group compared to caregivers in the No Concerns group (Objective 3). Family-centered care did not moderate the relationship between parenting stress and QoL as predicted (Objective 4). Overall, these findings suggest that future research is needed to determine how to provide additional support to all caregivers, particularly low-income families and caregivers who are experiencing high levels of parenting stress and low levels of family-centered care.
Book Synopsis The Influence of Coping Processes and Social Supports on Stress and Quality of Life Outcomes of Parents of Children with Autism Spectrum Disorders by : Ann Marie Liesen
Download or read book The Influence of Coping Processes and Social Supports on Stress and Quality of Life Outcomes of Parents of Children with Autism Spectrum Disorders written by Ann Marie Liesen and published by . This book was released on 2012 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study investigated the relationship between stress and quality of life satisfaction for parents of children with autism spectrum disorder, and how coping styles and social support impacts this relationship. Four hundred eighty four parents of children with autism spectrum disorder residing in the United States completed an online survey consisting of parent demographics, child demographics, the Perceived Stress Scale (PSS-10) to measure perceived stress, a modified version of the Brief-COPE to measure four coping styles (cognitive reframing, engagement, distraction, disengagement), the Medical Outcome Study Social Support Survey (MOS-SSS) to measure perceived social support, and the Beach Center Family Quality of Life Scale (FQOL) to measure quality of life satisfaction. This study tested a series of hypotheses using hierarchial multiple regression analysis to examine a) the main effects of stress, coping styles, and social support on quality of life satisfaction, and b) the moderating effect of coping styles and social support on the relationship between stress and quality of life. A post hoc analysis was also conducted to test if social support mediated the effect of stress on quality of life. Data supported a significant negative effect of stress and distraction coping on quality of life and a significant positive effect of cognitive reframing and social support on quality of life. Engagement and disengagement coping had no effect. The four coping styles and social support did not moderate the negative impact of stress on quality of life. The post hoc analysis revealed that social support partially mediated the effect of stress on quality suggesting that part of the negative effect of stress on quality of life was due to the negative impact of stress on social support which reduced quality of life. The implications for clinical practices, service providers, and educational intuitions are discussed, and recommendations for future research are provided.
Book Synopsis Stress and Coping in Autism by : M. Grace Baron
Download or read book Stress and Coping in Autism written by M. Grace Baron and published by Oxford University Press, USA. This book was released on 2006 with total page 484 pages. Available in PDF, EPUB and Kindle. Book excerpt: Publisher description
Book Synopsis The Role of Caregiving on Quality of Life of Parents with Children Having Autism in Taiwan by : Hsiu-Shuo Hu
Download or read book The Role of Caregiving on Quality of Life of Parents with Children Having Autism in Taiwan written by Hsiu-Shuo Hu and published by . This book was released on 2008 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis New insights into stress coping and resilience by : Chong Chen
Download or read book New insights into stress coping and resilience written by Chong Chen and published by Frontiers Media SA. This book was released on 2023-08-02 with total page 153 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Understanding Relationships in Health Related Quality of Life for Parents of Children with Autism Spectrum Disorder by : Norah Louise Johnson
Download or read book Understanding Relationships in Health Related Quality of Life for Parents of Children with Autism Spectrum Disorder written by Norah Louise Johnson and published by . This book was released on 2009 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Nurses encounter many parents of children with autism spectrum disorder (ASD). Both parents are under stress that ultimately impacts their health related quality of life (HRQL). Few studies assess the mediators of parenting stress on HRQL for both parents. This study explored the relationship of parenting stress, family functioning and HRQL for parenting dyads of children with ASD. Lazarus and Folkman's (1984) Transactional Model of Stress and Coping and Lakey and Cohen's (2000) Social Support Theory framed the study. Implementing a cross sectional, descriptive design, 387 parents (n=64 dyads) of ASD-affected children, from 46 states, completed web-based surveys. Demographics, the Feetham Family Functioning Survey (FFFS), Parenting Stress Scale: Autism (PSS:A), and the Rand 36 HRQL measure were collected. The FFFS discrepancy score (D), quantified differences between expectation and reality. The Rand 36 has a mental (MCS) and a physical (PCS) component scale. A non-parametric Wilcoxon test was used to compare fathers and mothers. Pearson correlation and linear regression were used to analyze relationships. Females' family functioning discrepancy scores between 'what is' and 'should be' family functioning were significantly wider than males, p=.002. The MCS of both parents and the PCS of female parents were negatively related to the stress variables and D scores. For females, higher care-giving stress was related to lower female PCS (p
Book Synopsis Handbook of Treatments for Autism Spectrum Disorder by : Johnny L. Matson
Download or read book Handbook of Treatments for Autism Spectrum Disorder written by Johnny L. Matson and published by Springer. This book was released on 2017-10-03 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook provides a comprehensive review of the numerous factors associated with treatments for children, youth, and adults with autism spectrum disorder (ASD). It offers in-depth analysis of evidence-based treatments for young children, providing coverage on interventions within social skills training, school curricula, communication and speech training, and augmentative communication. It also covers treatments for adolescents and adults, including vocational programs, social integration programs, and mental health resources. Chapters also review several popular interventions such as functional behavior analysis, sensory integration therapy, early intensive behavioral interventions (EIBI), and floor time. In addition, the Handbook discusses standards of practice, focusing on ethical issues, review boards, training concerns, and informed consent. Topics featured in the Handbook include: Training for parents of individuals diagnosed with ASD. Treatment of socially reinforced problem behavior. Comorbid challenging behaviors. Post-secondary education supports and programs for adults. The TEACCH Program for people with ASD. Treatment of addiction in adults with ASD. Diet and nutrition based treatments targeted at children with ASD. The Handbook of Treatments for Autism Spectrum Disorder is a must-have reference for researchers, clinicians/professionals, and graduate students in clinical child, school, and developmental psychology, child and adolescent psychiatry, and social work as well as rehabilitation medicine/therapy, behavioral therapy, pediatrics, and educational psychology.
Book Synopsis Stress and Coping Among Parents Or Caregivers Raising a Child with an Autism Spectrum Disorder (ASD) by : Elizabeth Alvarez (Graduate student)
Download or read book Stress and Coping Among Parents Or Caregivers Raising a Child with an Autism Spectrum Disorder (ASD) written by Elizabeth Alvarez (Graduate student) and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Relationship Between Stress and Self-efficacy in Primary Caregivers of Children Diagnosed with Autism by : Danielle R. Fields
Download or read book The Relationship Between Stress and Self-efficacy in Primary Caregivers of Children Diagnosed with Autism written by Danielle R. Fields and published by . This book was released on 2021 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents of children diagnosed with autism spectrum disorder have historically experienced stress levels that exceed those of other parents. This study sought to identify the relationships that existed between the independent variables of Family Quality of Life (FQOL), child independence, and caregiver resilience and the dependent variable of caregiver stress, as well as the extent to which those independent variables could predict stress. The study then analyzed the relationship that existed between caregiver stress and caregiver self-efficacy. Research revealed that while significant relationships existed between caregiver stress and the independent variables of FQOL, child independence, and caregiver resilience, the independent variables could not predict stress. The study also found that the relationship between caregiver stress and self-efficacy was not significant.
Book Synopsis Parenting Stress in Caregivers of Young Children with Concerns about ASD Prior to a Formal Diagnostic Evaluation by : Trent D. DesChamps
Download or read book Parenting Stress in Caregivers of Young Children with Concerns about ASD Prior to a Formal Diagnostic Evaluation written by Trent D. DesChamps and published by . This book was released on 2019 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt: Robust findings demonstrate that parents of children with autism spectrum disorder (ASD) experience high levels of parenting stress that are related to negative outcomes for families. Although the majority of research on parenting stress has focused on parents of children with a current ASD diagnosis, parents of young children with concerns about ASD-related behaviors also face many unique challenges before the child receives a formal ASD diagnostic evaluation. However, no study to date has examined patterns of parenting stress among parents of children with ASD concerns prior to a formal ASD diagnosis. Therefore, the current study investigated longitudinal trajectories of parenting stress among parents of young children with ASD concerns compared to parents of children with non-ASD developmental concerns (e.g., language delay), and parents of children with no developmental concerns. Known predictors of parenting stress were also examined. Results revealed that parents of children with ASD concerns experienced consistently higher levels of parenting stress across early child development compared to parents of children with non-ASD developmental concerns and children with no concerns. Additionally, parenting efficacy, parent psychological functioning, parent social quality of life, and child social communication behaviors predicted levels of parenting stress for all parents.
