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Social Support And Quality Of Life Of Parents Of Cerebral Palsied Children
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Book Synopsis Enabling and Empowering Families by : Carl J. Dunst
Download or read book Enabling and Empowering Families written by Carl J. Dunst and published by . This book was released on 1988 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: Blend of theory and practice, with pointers for applying the principles and case studies illustrating how to apply them.
Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 548 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Book Synopsis Family Consequences of Children’s Disabilities by : Denis P. Hogan
Download or read book Family Consequences of Children’s Disabilities written by Denis P. Hogan and published by Russell Sage Foundation. This book was released on 2012-04-01 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
Book Synopsis Enhancing the Quality of Life of People with Intellectual Disabilities by : Ralph Kober
Download or read book Enhancing the Quality of Life of People with Intellectual Disabilities written by Ralph Kober and published by Springer Science & Business Media. This book was released on 2010-09-24 with total page 435 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains a series of articles, written by international experts in the fields of intellectual disability and quality of life, that explore a broad range of issues that impact on the quality of life of people with intellectual disabilities and their families. The book commences with a general discussion on defining quality of life and family quality of life and the appropriateness of using these constructs in the field of intellectual disability, and is followed by an analysis on the effects of living arrangements and employment on quality of life. The book concludes with discussions on the unique issues facing children with intellectual disabilities and people living in developing countries and the effect these issues have upon their quality of life.
Author :National Academies of Sciences, Engineering, and Medicine Publisher :National Academies Press ISBN 13 :0309388570 Total Pages :525 pages Book Rating :4.3/5 (93 download)
Book Synopsis Parenting Matters by : National Academies of Sciences, Engineering, and Medicine
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Book Synopsis Epidemiology and Disease Prevention by : John Yarnell
Download or read book Epidemiology and Disease Prevention written by John Yarnell and published by Oxford University Press, USA. This book was released on 2013-05-23 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition of Epidemiology and Disease Prevention summarizes the natural history of the major disease groups, explaining and applying core epidemiological principles and practices with the help of case studies, questions, and references to the most important sources of information in the field.
Book Synopsis Cerebral Palsy by : Pinar Kuru Bektaşoğlu
Download or read book Cerebral Palsy written by Pinar Kuru Bektaşoğlu and published by BoD – Books on Demand. This book was released on 2023-03-22 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cerebral palsy is a debilitating disease that affects the everyday life of patients and their caregivers. Understanding its pathophysiology, preventing avoidable factors, and effectively treating the disease with the most appropriate approach is paramount in the management of patients with cerebral palsy. This book presents up-to-date information about the etiology, pathophysiology, social aspects, and optimum care and treatment alternatives of this chronic condition.
Book Synopsis Handbook of Quality of Life for Individuals with Autism Spectrum Disorder by : Justin B. Leaf
Download or read book Handbook of Quality of Life for Individuals with Autism Spectrum Disorder written by Justin B. Leaf and published by Springer Nature. This book was released on 2022-06-01 with total page 477 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook offers a comprehensive examination of wide-ranging issues relevant to adults diagnosed with autism spectrum disorder. Coverage includes a detailed review of such issues as psychiatric comorbidity, family relationships, education, living in different settings (e.g., group homes, community), meaningful and effective interventions, functional goals (e.g., social, language, vocational, and adaptive behaviors), and curriculum. In addition the book provides unique perspectives of parents as well as individuals diagnosed with autism spectrum disorder who have reached adulthood. Key areas of coverage include: Transitioning adults diagnosed with autism spectrum disorder from educational settings to vocational settings. Strategies that can help create independence for adults diagnosed with autism spectrum disorder. Effective approaches to address issues relating to sexuality for adults diagnosed with autism spectrum disorder. The effectiveness of early intensive behavioral intervention to help adults diagnosed with autism spectrum disorder. Handbook of Quality of Life for Individuals with Autism Spectrum Disorder is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in clinical child and school psychology, social work, behavioral therapy and related disciplines, including clinical medicine, clinical nursing, counseling, speech and language pathology, and special education.
Book Synopsis Social Behavior and Skills in Children by : Johnny L. Matson
Download or read book Social Behavior and Skills in Children written by Johnny L. Matson and published by Springer Science & Business Media. This book was released on 2009-09-18 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: That children are capable of pathology—not only such conditions as ADHD and learning disabilities, but also such "adult" disorders as anxiety and depression—stands as a defining moment in psychology’s recent history. Within this recognition is the understanding that the social skills deficits that accompany these disorders must be targeted for assessment and treatment to ensure optimal functioning in school, with peers, and in later transitions to puberty and adulthood. Social Behavior and Skills in Children cuts across disciplinary lines to clarify the scope of assessment options and interventions for a wide range of disorders. A panel of leading scholars reviews current research, discusses social deficits unique to specific disorders, and identifies evidence-based best practices in one authoritative, approachable reference. This volume: Discusses theoretical models of social skills as they relate to assessment and treatment. Analyzes the etiology of social behavior problems in children and the relation between these problems and psychopathology. Reviews 48 norm-referenced measures of social skills in children. Examines the range of evidence-based social skills interventions. Addresses challenging behaviors, such as aggression and self-injury. Focuses on specific conditions, including developmental disabilities, conduct disorders, ADHD, chronic medical illness, depression, anxiety, and severe psychopathology. Social Behavior and Skills in Children is an essential reference for university libraries as well as a must-have volume for researchers, graduate students, and clinicians in child, and school psychology, special education, and other related fields.
Book Synopsis Measuring Health-Related Quality of Life in Children and Adolescents by : Dennis Drotar
Download or read book Measuring Health-Related Quality of Life in Children and Adolescents written by Dennis Drotar and published by Psychology Press. This book was released on 2014-06-03 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Book Synopsis Well-being and Quality of Life by : Mukadder Mollaoglu
Download or read book Well-being and Quality of Life written by Mukadder Mollaoglu and published by BoD – Books on Demand. This book was released on 2017-09-06 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chapters in this book focus on the physical, social, and emotional components of the concept of quality of life. How diseases affect the quality of life of people is mainly discussed. The influence of diseases on quality of life in age-specific periods such as childhood, youth, and old age is also emphasized. In some non-disease-related environmental factors, specific social phenomena have also been analyzed. I hope that current research and research results in the book will be used to increase the quality of life by health professionals. This book will attract not only health workers but also environmentalists and social scientists and behavioral scientists.
Book Synopsis Families, Disability, and Empowerment by : George H. S. Singer
Download or read book Families, Disability, and Empowerment written by George H. S. Singer and published by Brookes Publishing Company. This book was released on 1993 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Psychological and Social Impact of Illness and Disability by : Irmo Marini, PhD, DSc, CRC, CLCP
Download or read book The Psychological and Social Impact of Illness and Disability written by Irmo Marini, PhD, DSc, CRC, CLCP and published by Springer Publishing Company. This book was released on 2017-12-28 with total page 600 pages. Available in PDF, EPUB and Kindle. Book excerpt: Praise for the Sixth Edition: "Adds an important international perspective on illness and disability. The personal narratives help bring the real world of people who are [survivors] to the forefront of the scientific discourse." —Doody's Medical Reviews Now in its seventh edition, this bestselling classic continues to be the most comprehensive and diverse text available on the psychosocial aspects of illness and disability. It is substantially revised to reflect the growing disparity between the haves and the have-nots and incorporates social justice issues throughout the text. In addition to new and updated information integrated throughout the book, the seventh edition features two new chapters addressing social justice in regards to depression and disability, and the psychosocial aspects of grief, death, and dying. Additionally, the text now includes an Instructor’s Manual and PowerPoint slides. Combining a mix of seminal work from rehabilitation counseling legends with current theoretical and treatment approaches, the book provides a practical, real-life perspective and offers broad and inclusive coverage of the day-to-day challenges of working with a diverse and marginalized population. Additionally, the text analyzes barriers to enabling patients with disabilities and improving their quality of life. Chapter objectives, review questions, and personal narratives in each chapter facilitate in-depth learning. New to the Seventh Edition: Completely updated to incorporate social justice issues, from the medical and psychosocial aspects of combat trauma to the impact of mental and physical disabilities on immigrants, refugees and asylum-seekers, throughout Includes two new chapters addressing Social Justice/Depression and Disability and the Psychosocial Aspects of Grief, Death, and Dying Includes an Instructor’s Manual and PowerPoint slides Enhanced coverage of topics concerning diverse and marginalized populations, including Women with Disabilities, Sexuality and Disabilities, LBGTQ Issues, Aging with Disabilities, Trauma, and more Key Features: Presents the most comprehensive and diverse coverage of psychosocial aspects of disability of any text Emphasizes the negative impact of societal attitudes and treatment of disabled individuals on their psychological adjustment to disability Examines both seminal and current thinking and treatment approaches Provides a bridge between theory and practice with abundant narratives Includes objectives and reviews questions in each chapter
Book Synopsis Families and People with Mental Retardation and Quality of Life by : Ann P. Turnbull
Download or read book Families and People with Mental Retardation and Quality of Life written by Ann P. Turnbull and published by AAMR. This book was released on 2004 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: Revision of papers presented at the Eloisa de Lorenzo Symposium on Family Quality of Life, held July 30-Aug. 1, 2000, in Seattle, Wash.
Book Synopsis The Oxford Handbook of Positive Psychology and Disability by : Michael L. Wehmeyer
Download or read book The Oxford Handbook of Positive Psychology and Disability written by Michael L. Wehmeyer and published by Oxford University Press, USA. This book was released on 2013-09-19 with total page 561 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook is the first comprehensive text on positive psychology and disability. Emphasizing paradigmatic changes in understanding disability, the text covers traditional disciplines in positive psychology; and applications of positive psychology to domains like education or work.
Book Synopsis Disability is not Inability by : Nathaniel Amanze
Download or read book Disability is not Inability written by Nathaniel Amanze and published by African Books Collective. This book was released on 2020-07-24 with total page 572 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about people with disabilities (PWDs) and the extraordinary talents they have that can contribute towards the world economy generally and that of Southern and Central Africa in particular. The papers selected for this book were presented at an international conference that was held at the University of Botswana from 16th to 19th October 2018. The conference was held in order to address the injustices, discrimination and exclusion that people with disabilities face in their daily life. The papers discuss the need to train families and leaders in disability awareness, for clear national policies, the funding needed to address issues that affect PWDs, inclusive education, and the need to create a conducive environment and the implementation of policies, strategies and programmes. The book also points to the importance of sharing stories and experiences of success as a strategy of empowering PDWs.
Download or read book Letter to Louis written by Alison White and published by Faber & Faber. This book was released on 2018-01-16 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: AS HEARD ON BBC RADIO 4'A searingly honest depiction of raising a disabled child . . . Intimate, sometimes heartbreaking and often funny, this letter of love is essential reading.' Mail on Sunday'It's so good - a beautiful piece of writing that really did have me gripped from the first page. What an achievement.' Cathy Rentenbrink, bestselling author of The Last Act of Love'Heartbreaking . . . beautifully written . . . in equal measure, admirable, uplifting, terrifying.' Louise Doughty, ObserverThis is a memoir about hope - hope in others, hope in systems, and hope for the future.I've never quite known where to begin when someone asks me what I've been up to. I've never quite known how to explain what our daily life is like. I wanted to write how it is in order to give others a greater understanding of disability and caring. And to be totally honest, I wanted to write something that would make people consider being Louis's friend.So here is me introducing you: Louis, this is your story. Readers, this is my son.
