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Resources And Quality Of Life In Caregivers Of Children With Autism Spectrum Disorder
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Book Synopsis Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder by : Tiana C Cypher
Download or read book Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder written by Tiana C Cypher and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participants were 23 caregivers of children between the ages of four to twenty-two years old who are diagnosed with autism spectrum disorder and attend the Autism Society of North Carolina (ASNC) Social Recreation program in Winterville, Wilmington, and Newport. The present study evaluated the quality of life in parents of children with autism spectrum disorder, as well as the utilization and availability of resources for their child and the family. Data was collected using an online Qualtrics survey sent out to families by email. The survey consisted of questions regarding demographics, questions from the Questionnaire for Each Treatment regarding the treatments their child with autism receives, and questions from the Family Quality of Life Scale by the Beach Center on Disability. Overall results revealed that parenting is the most satisfying domain of quality of life, and disability related support was the least satisfactory for the parents. Results suggest that families with disability need to identify and enroll their children in early intervention programs and recreation program that help with children's development. The government and school programs should also strive to offer educative sessions for parents and families with children with autism to enhance their contribution outside of school hours.
Book Synopsis The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD) by : Fabienne Bain
Download or read book The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD) written by Fabienne Bain and published by . This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Handbook of Quality of Life for Individuals with Autism Spectrum Disorder by : Justin B. Leaf
Download or read book Handbook of Quality of Life for Individuals with Autism Spectrum Disorder written by Justin B. Leaf and published by Springer Nature. This book was released on 2022-06-01 with total page 477 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook offers a comprehensive examination of wide-ranging issues relevant to adults diagnosed with autism spectrum disorder. Coverage includes a detailed review of such issues as psychiatric comorbidity, family relationships, education, living in different settings (e.g., group homes, community), meaningful and effective interventions, functional goals (e.g., social, language, vocational, and adaptive behaviors), and curriculum. In addition the book provides unique perspectives of parents as well as individuals diagnosed with autism spectrum disorder who have reached adulthood. Key areas of coverage include: Transitioning adults diagnosed with autism spectrum disorder from educational settings to vocational settings. Strategies that can help create independence for adults diagnosed with autism spectrum disorder. Effective approaches to address issues relating to sexuality for adults diagnosed with autism spectrum disorder. The effectiveness of early intensive behavioral intervention to help adults diagnosed with autism spectrum disorder. Handbook of Quality of Life for Individuals with Autism Spectrum Disorder is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in clinical child and school psychology, social work, behavioral therapy and related disciplines, including clinical medicine, clinical nursing, counseling, speech and language pathology, and special education.
Book Synopsis Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns by : Colleen M. Harker
Download or read book Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns written by Colleen M. Harker and published by . This book was released on 2018 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the unique demands of raising a child with autism spectrum disorder (ASD), it is necessary to understand the impact on the quality of life (QoL) of their caregivers. Though QoL is considered an important outcome in health services research (Moons et al., 2006; Oliveira, Carvalho, & Esteves 2016), there is a lack of knowledge about QoL in caregivers of children with ASD or caregivers of children for whom there are ASD concerns, but no formal diagnosis. The objectives of the current study were to (1) Examine how having a young child with ASD or ASD concerns affects caregiver QoL, relative to children with other developmental concerns and typical development; (2) Examine profiles across QoL domains within each caregiver group to determine which QoL domains were most impacted relative to other domains; (3) Examine to what extent three levels of determinants contribute to caregiver QoL: family demographic (child age, family income, caregiver employment status, number of children in the home), psychological (parenting stress), and health care (family-centered care); and 4) (Exploratory) Examine the extent to which family centered care moderates the relation between parenting stress and QoL. The sample was drawn from a larger NIH study examining screening and referral practices for children with ASD in primary care provider (PCP) practices and early intervention (EI) agencies in Washington State. The sample was comprised of three groups: caregivers of children with ASD or ASD concerns (ASD/ASD Concerns; n = 42), caregivers of children with other developmental concerns (Other Concerns; n = 34), and caregivers of children with typical development (No Concerns; n = 112). Caregivers completed a measure of family demographics, parenting stress, family-centered care, and QoL at their time of entry in the study. Results indicated that caregivers in the ASD/ASD Concerns group reported significantly lower Psychological and Social QoL than caregivers in the Other Concerns group and the No Concerns group, and significantly lower Environmental QoL and Physical QoL than caregivers in the No Concerns group (Objective 1). For caregivers in the ASD/ASD Concerns group, Social QoL was significantly lower than Environmental and Physical QoL and Psychological QoL was significantly lower than Environmental QoL (Objective 2). Income, parenting stress, and family-centered care were significant predictors for all four QoL domains, while the number of children residing in the home was a significant predictor for Physical QoL only. There was also a significant group by stress interaction for Environmental QoL, such that there was a stronger negative relationship between parenting stress and Environmental QoL for caregivers in the ASD/ASD Concerns group compared to caregivers in the No Concerns group (Objective 3). Family-centered care did not moderate the relationship between parenting stress and QoL as predicted (Objective 4). Overall, these findings suggest that future research is needed to determine how to provide additional support to all caregivers, particularly low-income families and caregivers who are experiencing high levels of parenting stress and low levels of family-centered care.
Book Synopsis Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) by : Kerry Ryan Thompson
Download or read book Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) written by Kerry Ryan Thompson and published by . This book was released on 2017 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is expressed quite differently from person to person due to the spectrum of symptoms an individual may experience. Developmentally, children who have ASD manage issues with communication and restricted or repetitive behaviors that impact their activities of daily living and/or overall functioning (American Psychiatric Association, 2013). The ongoing care and assistance for children with ASD from their caregivers is vital to help them achieve and maintain optimal quality of life. Given the pervasive needs of children with ASD, caregivers have a unique role in providing for their child, as compared to caregivers of children without disabilities. The present study explored the caregiver in a family with a child with ASD. Applying a family systems perspective, Bishop's (2005a, 2005b) Disability Centrality Model constructs (i.e. role impact, relationship satisfaction, mastery) were used to explain caregiver and family quality of life. In addition, family quality of life was measured in such a way to incorporate Bishop's idea of centrality, or the importance an individual places on certain areas of life. A three-step statistical analysis was completed in order to better measure this conceptualization. This study included 204 caregivers who met the criteria for the study (i.e., caregiver of a child with ASD under the age of 18; self-reported reading level of 6th grade or above). Hayes' regression based path-analytic framework, PROCESS v2.16 was used to determine the explained variance of caregiver and family quality of life. In addition, correlational and moderation analyses were tested. Results suggested that the caregiver's perceived quality of life is positively correlated with the caregiver's perceived family quality of life. In addition, results indicated that the proposed path analyses explained 52.3% of the variance in caregiver quality of life, 44.4% variance for the weighted family quality of life model, and between 23.1-45.2% variance in the five-individual family quality of life-satisfaction domains (i.e, family interaction, parenting, emotional well-being, physical/material well-being, disability-related support). Finally, to better understand the impact of importance on quality of life, a three-step statistical analysis found that importance was significant when used as a weighted measurement of family quality of life that took the importance and satisfaction in consideration in their relation to one another; however, importance was not significant as a moderator between the relationship of caregiver relationship satisfaction and family quality of life. The findings in this study expand the current literature on caregivers of children with ASD, caregiver quality of life, and family quality of life. In addition, this study demonstrated the viability of strengths-based models of caregiver and family quality of life using Disability Centrality Model constructs through a family systems perspective for a sample of caregivers of children with ASD. Future implications for rehabilitation research and practice are discussed.
Book Synopsis Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder by : Rahul Khanna
Download or read book Burden of Care and Health-related Quality of Life Among Caregivers of Children with Autism Spectrum Disorder written by Rahul Khanna and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Evidence-Based Practices for Supporting Individuals with Autism Spectrum Disorder by : Laura C. Chezan
Download or read book Evidence-Based Practices for Supporting Individuals with Autism Spectrum Disorder written by Laura C. Chezan and published by Rowman & Littlefield. This book was released on 2022-08-10 with total page 469 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides resources for the identification, selection, implementation, and evaluation of evidence-based practices to promote positive outcomes for learners with autism spectrum disorder (ASD) across the lifespan and to enhance their quality of life. The decision-making process for identifying and selecting evidence-based practices to address the academic, behavioral, and social needs of this population of learners is discussed, followed by a systematic description of the implementation and evaluation of evidence-based practices within the context of ongoing assessment and data-based decision making. The authors present evidence-based training models for solving the common dilemmas of selecting, implementing, and evaluating evidence-based practices. Finally, the book underlines the importance of developing collaborative partnerships with families and other professionals to better address the needs of learners with autism spectrum disorder.
Book Synopsis Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder by : Dawn M. Turnage
Download or read book Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder written by Dawn M. Turnage and published by . This book was released on 2019 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keywords: Stress, Coping, Autism Spectrum Disorder, Caregiver
Download or read book Autism written by Michael Fitzgerald and published by BoD – Books on Demand. This book was released on 2017-04-12 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book opens with a discussion of neurodiversity and an elaboration of the diagnosis of autism. It then examines factors correlating with autism, including sex bias, month of birth, migration and impact of infant feeding. The next section is on the impact of autism. The neurobiology and genetic section deals with epigenetics and intracellular pathways associated with etiology. The development and behaviour section deals with proprioceptive profiles and joint attention in autism. The final section focuses on interventions including mindfulness, animal assisted activity, social/cultural perspective on autism intervention and physical activity. The book is relevant to all professionals and researchers working with persons with autism, including psychiatrists/psychologists, speech and language therapists, occupational therapists, teachers, nurses and care workers.
Book Synopsis The effects of caregiver support and quality of life for parents of children with autism spectrum disorder by : Armash Derzakarian
Download or read book The effects of caregiver support and quality of life for parents of children with autism spectrum disorder written by Armash Derzakarian and published by . This book was released on 2016 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household by : Alisa Tamarrah Cook
Download or read book The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household written by Alisa Tamarrah Cook and published by . This book was released on 2021 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Teaching and Behavior Support for Children and Adults with Autism Spectrum Disorder by : James K. Luiselli
Download or read book Teaching and Behavior Support for Children and Adults with Autism Spectrum Disorder written by James K. Luiselli and published by Oxford University Press. This book was released on 2011-03-22 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: The number of children diagnosed with autism has increased dramatically in the last decade, and a growing number of behavior analysts, psychologists, educators, and speech pathologists-to name a few-are just starting to regularly treat individuals with autism. Children and adults with autism spectrum disorder (ASD) require specialized instruction and behavior support to teach them critical skills and establish a meaningful quality of life. However, these objectives can only be achieved if professional and paraprofessional service providers have access to the most effective evidence-based and empirically supported methods for teaching children with autism. Similarly, practitioners must know about effective intervention methods that can be implemented to reduce and eliminate problem behaviors frequently displayed by people who have ASD. This guide is an indispensible asset, appropriate for any behavioral specialist, on all aspects of this increasingly prevalent disorder. Teaching and Behavior Support for Children and Adults with Autism Spectrum Disorder brings together contributed chapters on assessment, instruction, and behavioral intervention procedures unique to the autism population. Each chapter covers a single topic according to a uniform format, which will ease comprehension and facilitate procedural adaptation in "real world" settings such as school, home, and the community. Usable advice and methods for teaching difficult skills, such as self-care, verbal language, and communication, are provided. Authored by recognized experts, the concise and readable chapters also feature forms, illustrations, summary tables, and resource lists to further guide practitioners in selecting "best practice" methods. Taking into account specific settings, different age groups, and practitioner experience, this book will serve as a resource for educators, psychologists, and behavior specialists in the field of autism education and treatment, and as an educational tool for those enrolled in university classes training to become practitioners.
Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell
Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
Book Synopsis Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders by : Celine A. Saulnier
Download or read book Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders written by Celine A. Saulnier and published by John Wiley & Sons. This book was released on 2018-05-01 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide to adaptive behaviors across a range of neurodevelopmental disorders Adaptive behavior assessment measures independent living skills, including communication, social skills, personal care, and practical work skills. For individuals with intellectual disabilities, evaluation of these skills is a critical tool for measuring eligibility and can identify specific skills that must be learned before effective educational interventions can be implemented. Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders describes the role of adaptive behavior in assessment and treatment, and provides clear guidance for measurement. Case samples provide real-world illustration of behaviors and assessment, and systematic comparison of various measures are presented and explained to better inform planning. Individual chapters outline specific adaptive behaviors across a range of neurodevelopmental disorders, giving clinicians, practitioners, students, and researchers a better understanding of diagnostic differentials and how to place independent skill programming in treatment and intervention. Plan intervention and treatment based on accessible measurement guidelines across a range of disorders Gain a deeper understanding of adaptive functioning specific to ADHD, autism spectrum disorders, disruptive behavior disorders, and genetic disorders Compare and contrast current measures to evaluate their strengths, weaknesses, and areas of overlap Quickly locate essential information with Rapid Reference and Caution boxes For individuals with neurodevelopmental disorders, adaptive behaviors are the keys to independence; without them, these individuals will perpetually struggle with achieving optimum independence without the basic skills needed to function at home, in school, and in the community. Assessment allows these skills to be factored in to treatment and intervention planning, and can help improve the outcomes of other intervention methods. Essentials of Adaptive Behavior Assessment of Neurodevelopmental Disorders clarifies the assessment of these important behaviors, helping clinicians make more informed decisions around diagnosis, education, and treatment planning.
Book Synopsis Caregiver Burden and Health-related Quality of Life in Receiving a Diagnosis of an Autism Spectrum Disorder by : Melissa Louise Stuart
Download or read book Caregiver Burden and Health-related Quality of Life in Receiving a Diagnosis of an Autism Spectrum Disorder written by Melissa Louise Stuart and published by . This book was released on 2007 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder by : Ian McDonough
Download or read book Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder written by Ian McDonough and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the continuing increased incidence rate of autism spectrum disorder over the decades, there are increasing numbers of adults with autism who require varying levels of lifelong care, typically from parents. It is necessary to understand parents' lived experience of lifelong caregiving, and how their own aging process further impacts life quality. Furthermore, greater understanding of stressors, resources, appraisals, and coping among parent caregivers of children with "high functioning autism" who are transitioning into young adulthood is particularly necessary as services, needs, and experiences for both are nuanced due to functional status, deficits in the service system, and demographic disparities. Given lifespan aspects past research has not addressed, the study focused on development of a measure of parent accumulated stressors, and on interrelations of stressors, perceived social support, future time perspective, burden, satisfaction, and coping on health-related quality of life and meaning in life among 28 parents of young adults with autism. Although proposed quantitative analyses were not completed due to sample size, qualitative analyses on parent experiences and stressors revealed common themes of concern for child's future quality of life, complicated dynamics of providing help to their child overtime, and increased stress related to others' lack of understanding of their child. In total, 10 themes and multiple subthemes were identified in relation to aspects of accumulated stressors. Findings suggest parent stress with this specific population is complex, manifesting in nuanced ways at different life stages. Impacts of the COVID-19 pandemic are also explored, and implications for scientific advancement and clinical services are discussed.
Book Synopsis Questionnaire on Resources and Stress by : Jean Holroyd
Download or read book Questionnaire on Resources and Stress written by Jean Holroyd and published by . This book was released on 1987-01-01 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt:
