Researching Quality Of Life Among Families Of Children With Autism Spectrum Disorder

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Researching Quality of Life Among Families of Children With Autism Spectrum Disorder

Author : Gardiner
Publisher :
ISBN 13 : 9781473997080
Total Pages : pages
Book Rating : 4.9/5 (97 download)

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Book Synopsis Researching Quality of Life Among Families of Children With Autism Spectrum Disorder by : Gardiner

Download or read book Researching Quality of Life Among Families of Children With Autism Spectrum Disorder written by Gardiner and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This research methods case describes my dissertation research, which utilized a mixed-methods design to examine quality of life among families of children with autism spectrum disorder. A large group or participants completed surveys over the phone and online, and a smaller subset participated in follow-up interviews. The case presents an overview of the methodological challenges we confronted, including consideration of how best to engage diverse participants and choosing appropriate survey tools, given the unique needs of our population. We describe the strategies we employed to address these challenges and reflect on their effectiveness. In particular, we highlight a unique approach in which we hosted Knowledge Translation events that brought together individuals with autism spectrum disorder and their families with researchers, service providers, clinicians, and government representatives. These events proved critical across the research process, as they informed the original study design, served as a venue for participant recruitment, and inspired the inclusion of key questions within the interview guide. We also discuss methods of engaging hard-to-reach populations. The methodological implications of the study design and methodology are reviewed, and recommendations to future researchers are presented.

Factors Related to Quality of Life in Families of Children with Autism Spectrum Disorder

Author : Jessica R. Garrett
Publisher :
ISBN 13 :
Total Pages : 140 pages
Book Rating : 4.:/5 (915 download)

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Book Synopsis Factors Related to Quality of Life in Families of Children with Autism Spectrum Disorder by : Jessica R. Garrett

Download or read book Factors Related to Quality of Life in Families of Children with Autism Spectrum Disorder written by Jessica R. Garrett and published by . This book was released on 2014 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: Additional research using instruments with better psychometric attributes for mastery, control, and stress might provide more information on parenting children with ASD and family quality of life.

Quality of Life in Families of Children with Autism Spectrum Disorder

Author : Emily Claire Gardiner
Publisher :
ISBN 13 :
Total Pages : 180 pages
Book Rating : 4.:/5 (112 download)

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Book Synopsis Quality of Life in Families of Children with Autism Spectrum Disorder by : Emily Claire Gardiner

Download or read book Quality of Life in Families of Children with Autism Spectrum Disorder written by Emily Claire Gardiner and published by . This book was released on 2014 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Having a family member with a neurodevelopmental disorder (NDD) has significant implications for family functioning. Overall, research findings demonstrate that families of children with NDDs are less satisfied with their quality of life (QOL), across domains, than families of typically developing children, and that families of children with Autism Spectrum Disorder (ASD) are even less so. Although families of children with ASD are significantly at-risk, most research has included families of children with varied conditions, and has not examined predictors of family quality of life (FQOL) within specific NDD populations. This research gap, along with rising ASD awareness and prevalence, provides a strong rationale for devoting attention to this group specifically, and addressing the limitations that exist within this work. This research utilized a mixed-methods design to examine QOL among 84 families of children and adolescents (aged 6-18 years) with ASD living in British Columbia, and addressed three aims. First, the role of child characteristics, including adaptive functioning and behaviour problems, was examined in relation to FQOL. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level ('low,' 'moderately low,' and 'adequate'). Second, the relation between endorsed family resilience processes, based on Walsh's (2006, 2012) model, and FQOL satisfaction was examined. This revealed that greater endorsement of the 'family connectedness' and 'family communication and problem solving' processes significantly predicted FQOL when child and family demographic characteristics were accounted for. Finally, a subset (n = 15) of caregivers, representing both high and low levels of FQOL satisfaction, participated in a qualitative interview, during which they shared their perceptions of FQOL, both generally and in relation to specific topics, elaborated on service delivery experiences, and reflected on sources of family resilience. The findings are discussed in light of previous research, and the associated practice implications, as well as opportunities for future research, are highlighted.

Emerging Programs for Autism Spectrum Disorder

Author : Neophytos Papaneophytou
Publisher : Academic Press
ISBN 13 : 0323859771
Total Pages : 592 pages
Book Rating : 4.3/5 (238 download)

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Book Synopsis Emerging Programs for Autism Spectrum Disorder by : Neophytos Papaneophytou

Download or read book Emerging Programs for Autism Spectrum Disorder written by Neophytos Papaneophytou and published by Academic Press. This book was released on 2021-06-10 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: Emerging Programs for Autism Spectrum Disorder: Improving Communication, Behavior, and Family Dynamics brings forward a hybrid and a transdisciplinary methodology to identify methods used to diagnose, treat, and manage those with autism within personal and social constructs and values building exemplary international experiences from across the globe. Luminary experts offer their superb level of expertise through their research, experience, and clinical work. The book addresses all the aspects of care, lifespan, and lifestyle issues from treatment to living. It will emphasize issues related to neurodiversity, individuality, best practices, and support of people on the Autism Spectrum and their families. In addition, this book includes specific case studies, highlighting family experiences and the application of best practices by therapists thereof. Provides a multidisciplinary approach of the diagnosis, management and treatment of autism spectrum disorders Includes specific case studies highlighting family experiences Emphasizes issues related to neurodiversity, individuality and improving quality of life

But You Look Good

Author : Wayne Connell
Publisher : Invisible Disabilities Association
ISBN 13 : 9780692258453
Total Pages : 84 pages
Book Rating : 4.2/5 (584 download)

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Book Synopsis But You Look Good by : Wayne Connell

Download or read book But You Look Good written by Wayne Connell and published by Invisible Disabilities Association. This book was released on 2014-09-14 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!

The Kidscreen Questionnaires

Author : Ulrike Ravens-Sieberer
Publisher :
ISBN 13 : 9783899673340
Total Pages : 231 pages
Book Rating : 4.6/5 (733 download)

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Book Synopsis The Kidscreen Questionnaires by : Ulrike Ravens-Sieberer

Download or read book The Kidscreen Questionnaires written by Ulrike Ravens-Sieberer and published by . This book was released on 2006 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt:

A Comprehensive Book on Autism Spectrum Disorders

Author : Mohammad-Reza Mohammadi
Publisher : BoD – Books on Demand
ISBN 13 : 9533074949
Total Pages : 491 pages
Book Rating : 4.5/5 (33 download)

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Book Synopsis A Comprehensive Book on Autism Spectrum Disorders by : Mohammad-Reza Mohammadi

Download or read book A Comprehensive Book on Autism Spectrum Disorders written by Mohammad-Reza Mohammadi and published by BoD – Books on Demand. This book was released on 2011-09-15 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of the book is to serve for clinical, practical, basic and scholarly practices. In twentyfive chapters it covers the most important topics related to Autism Spectrum Disorders in the efficient way and aims to be useful for health professionals in training or clinicians seeking an update. Different people with autism can have very different symptoms. Autism is considered to be a "spectrum" disorder, a group of disorders with similar features. Some people may experience merely mild disturbances, while the others have very serious symptoms. This book is aimed to be used as a textbook for child and adolescent psychiatry fellowship training and will serve as a reference for practicing psychologists, child and adolescent psychiatrists, general psychiatrists, pediatricians, child neurologists, nurses, social workers and family physicians. A free access to the full-text electronic version of the book via Intech reading platform at http://www.intechweb.org is a great bonus.

Prevention Science and Research in Intellectual and Developmental Disabilities

Author :
Publisher : Academic Press
ISBN 13 : 0323850723
Total Pages : 314 pages
Book Rating : 4.3/5 (238 download)

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Book Synopsis Prevention Science and Research in Intellectual and Developmental Disabilities by :

Download or read book Prevention Science and Research in Intellectual and Developmental Disabilities written by and published by Academic Press. This book was released on 2021-11-22 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Prevention Science and Research in Intellectual and Developmental Disabilities, Volume 61 highlights the WHOs emphasis on the importance of adopting a public health approach. Chapters in the book include A Prevention Science Approach to Promoting Health for Those with Developmental Disabilities, From Surviving to Thriving: A New Conceptual Model to Advance Interventions to Support People with FASD Across the Lifespan, Disability-related Abuse in People with Intellectual and Developmental Disabilities: Considerations Across the Lifespan, Two Sides of the Same Coin: A Qualitative Study of Multiple Stakeholder Perspectives on Factors Affecting Implementation of Evidence-Based Practices for Children with Autism in Elementary Schools, and more. Other topics discussed include Family-Focused Interventions as Prevention and Early Intervention of Behavioral Problems in Children with Autism Spectrum Disorder, Body weight improvements associated with nutritional intervention for adults with IDD living in group homes: A randomized controlled trial, Lifestyle Intervention Adaptation to Promote Healthy Eating and Physical Activity of Youth with Intellectual and Developmental Disability, Cultural Adaptations of the Parents Taking Action Program for Youth with Autism Spectrum Disorder, and more. Includes a framework for integrating a prevention science approach into IDD research Provides examples of prevention science research with IDD populations Illustrates how some are implementing and adapting preventive interventions for those with IDD

Handbook of Life Course Health Development

Author : Neal Halfon
Publisher : Springer
ISBN 13 : 3319471430
Total Pages : 667 pages
Book Rating : 4.3/5 (194 download)

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Book Synopsis Handbook of Life Course Health Development by : Neal Halfon

Download or read book Handbook of Life Course Health Development written by Neal Halfon and published by Springer. This book was released on 2017-11-20 with total page 667 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is open access under a CC BY 4.0 license. This handbook synthesizes and analyzes the growing knowledge base on life course health development (LCHD) from the prenatal period through emerging adulthood, with implications for clinical practice and public health. It presents LCHD as an innovative field with a sound theoretical framework for understanding wellness and disease from a lifespan perspective, replacing previous medical, biopsychosocial, and early genomic models of health. Interdisciplinary chapters discuss major health concerns (diabetes, obesity), important less-studied conditions (hearing, kidney health), and large-scale issues (nutrition, adversity) from a lifespan viewpoint. In addition, chapters address methodological approaches and challenges by analyzing existing measures, studies, and surveys. The book concludes with the editors’ research agenda that proposes priorities for future LCHD research and its application to health care practice and health policy. Topics featured in the Handbook include: The prenatal period and its effect on child obesity and metabolic outcomes. Pregnancy complications and their effect on women’s cardiovascular health. A multi-level approach for obesity prevention in children. Application of the LCHD framework to autism spectrum disorder. Socioeconomic disadvantage and its influence on health development across the lifespan. The importance of nutrition to optimal health development across the lifespan. The Handbook of Life Course Health Development is a must-have resource for researchers, clinicians/professionals, and graduate students in developmental psychology/science; maternal and child health; social work; health economics; educational policy and politics; and medical law as well as many interrelated subdisciplines in psychology, medicine, public health, mental health, education, social welfare, economics, sociology, and law.

Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder

Author : Tiana C Cypher
Publisher :
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.:/5 (134 download)

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Book Synopsis Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder by : Tiana C Cypher

Download or read book Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder written by Tiana C Cypher and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participants were 23 caregivers of children between the ages of four to twenty-two years old who are diagnosed with autism spectrum disorder and attend the Autism Society of North Carolina (ASNC) Social Recreation program in Winterville, Wilmington, and Newport. The present study evaluated the quality of life in parents of children with autism spectrum disorder, as well as the utilization and availability of resources for their child and the family. Data was collected using an online Qualtrics survey sent out to families by email. The survey consisted of questions regarding demographics, questions from the Questionnaire for Each Treatment regarding the treatments their child with autism receives, and questions from the Family Quality of Life Scale by the Beach Center on Disability. Overall results revealed that parenting is the most satisfying domain of quality of life, and disability related support was the least satisfactory for the parents. Results suggest that families with disability need to identify and enroll their children in early intervention programs and recreation program that help with children's development. The government and school programs should also strive to offer educative sessions for parents and families with children with autism to enhance their contribution outside of school hours.

The Oxford Handbook of Positive Psychology and Disability

Author : Michael L. Wehmeyer
Publisher : Oxford University Press, USA
ISBN 13 : 0195398785
Total Pages : 561 pages
Book Rating : 4.1/5 (953 download)

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Book Synopsis The Oxford Handbook of Positive Psychology and Disability by : Michael L. Wehmeyer

Download or read book The Oxford Handbook of Positive Psychology and Disability written by Michael L. Wehmeyer and published by Oxford University Press, USA. This book was released on 2013-09-19 with total page 561 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook is the first comprehensive text on positive psychology and disability. Emphasizing paradigmatic changes in understanding disability, the text covers traditional disciplines in positive psychology; and applications of positive psychology to domains like education or work.

Handbook of Treatments for Autism Spectrum Disorder

Author : Johnny L. Matson
Publisher : Springer
ISBN 13 : 3319617389
Total Pages : 497 pages
Book Rating : 4.3/5 (196 download)

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Book Synopsis Handbook of Treatments for Autism Spectrum Disorder by : Johnny L. Matson

Download or read book Handbook of Treatments for Autism Spectrum Disorder written by Johnny L. Matson and published by Springer. This book was released on 2017-10-03 with total page 497 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook provides a comprehensive review of the numerous factors associated with treatments for children, youth, and adults with autism spectrum disorder (ASD). It offers in-depth analysis of evidence-based treatments for young children, providing coverage on interventions within social skills training, school curricula, communication and speech training, and augmentative communication. It also covers treatments for adolescents and adults, including vocational programs, social integration programs, and mental health resources. Chapters also review several popular interventions such as functional behavior analysis, sensory integration therapy, early intensive behavioral interventions (EIBI), and floor time. In addition, the Handbook discusses standards of practice, focusing on ethical issues, review boards, training concerns, and informed consent. Topics featured in the Handbook include: Training for parents of individuals diagnosed with ASD. Treatment of socially reinforced problem behavior. Comorbid challenging behaviors. Post-secondary education supports and programs for adults. The TEACCH Program for people with ASD. Treatment of addiction in adults with ASD. Diet and nutrition based treatments targeted at children with ASD. The Handbook of Treatments for Autism Spectrum Disorder is a must-have reference for researchers, clinicians/professionals, and graduate students in clinical child, school, and developmental psychology, child and adolescent psychiatry, and social work as well as rehabilitation medicine/therapy, behavioral therapy, pediatrics, and educational psychology.

Autism and the Family: Understanding and Supporting Parents and Siblings

Author : Kate E. Fiske
Publisher : W. W. Norton & Company
ISBN 13 : 0393710564
Total Pages : 275 pages
Book Rating : 4.3/5 (937 download)

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Book Synopsis Autism and the Family: Understanding and Supporting Parents and Siblings by : Kate E. Fiske

Download or read book Autism and the Family: Understanding and Supporting Parents and Siblings written by Kate E. Fiske and published by W. W. Norton & Company. This book was released on 2017-02-07 with total page 275 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ready-to-implement resources and approaches for effective professional care in school and clinical settings. The reverberations of autism spectrum disorders among parents and siblings can be complex. Parents may grapple with the impact of their child's initial diagnosis, wrestle with the tension between their professional ambitions and family obligations, and labor to maintain a healthy union with their partners. Brothers and sisters may be given less attention, asked to assume a more adult role than they feel ready for, or strive for meaningful connection and communication with their sibling and parents. Although the energy of clinicians, teachers, and other professionals working with individuals with autism spectrum disorder is often focused intensively on the child who is diagnosed, the practitioner can also be an invaluable resource for the child's family. Drawing upon clinical research and firsthand family interviews, this book helps clinicians understand the experiences of parents and siblings of a child with ASD from the time of diagnosis through adulthood. It provides clear recommendations for sensitive, informed professional support. Step-by-step in each chapter, Fiske elucidates such vital subjects as: Understanding the experience of diagnosis Recognizing patterns of parent stress over time Appreciating and navigating the effects of ASD on relationships between parents Involving and providing support for siblings Integrating grandparents and other extended family in care and treatment Understanding a family's culture Identifying and developing effective coping strategies Building a strong rapport with parents and family Guiding parents in the treatment of autism And many more, including key takeaways for assisting families in managing feelings of grief and guilt, navigating support options, treatment resources, and related financial concerns, and calibrating the division of labor in the home. Autism and the Family supplies all the foundations necessary for professionals to understand the full impact of ASD on the child, siblings, and parents and cultivate an empathic, supportive approach to treatment for the entire family.

Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD)

Author : Kerry Ryan Thompson
Publisher :
ISBN 13 :
Total Pages : 179 pages
Book Rating : 4.:/5 (11 download)

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Book Synopsis Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) by : Kerry Ryan Thompson

Download or read book Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) written by Kerry Ryan Thompson and published by . This book was released on 2017 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is expressed quite differently from person to person due to the spectrum of symptoms an individual may experience. Developmentally, children who have ASD manage issues with communication and restricted or repetitive behaviors that impact their activities of daily living and/or overall functioning (American Psychiatric Association, 2013). The ongoing care and assistance for children with ASD from their caregivers is vital to help them achieve and maintain optimal quality of life. Given the pervasive needs of children with ASD, caregivers have a unique role in providing for their child, as compared to caregivers of children without disabilities. The present study explored the caregiver in a family with a child with ASD. Applying a family systems perspective, Bishop's (2005a, 2005b) Disability Centrality Model constructs (i.e. role impact, relationship satisfaction, mastery) were used to explain caregiver and family quality of life. In addition, family quality of life was measured in such a way to incorporate Bishop's idea of centrality, or the importance an individual places on certain areas of life. A three-step statistical analysis was completed in order to better measure this conceptualization. This study included 204 caregivers who met the criteria for the study (i.e., caregiver of a child with ASD under the age of 18; self-reported reading level of 6th grade or above). Hayes' regression based path-analytic framework, PROCESS v2.16 was used to determine the explained variance of caregiver and family quality of life. In addition, correlational and moderation analyses were tested. Results suggested that the caregiver's perceived quality of life is positively correlated with the caregiver's perceived family quality of life. In addition, results indicated that the proposed path analyses explained 52.3% of the variance in caregiver quality of life, 44.4% variance for the weighted family quality of life model, and between 23.1-45.2% variance in the five-individual family quality of life-satisfaction domains (i.e, family interaction, parenting, emotional well-being, physical/material well-being, disability-related support). Finally, to better understand the impact of importance on quality of life, a three-step statistical analysis found that importance was significant when used as a weighted measurement of family quality of life that took the importance and satisfaction in consideration in their relation to one another; however, importance was not significant as a moderator between the relationship of caregiver relationship satisfaction and family quality of life. The findings in this study expand the current literature on caregivers of children with ASD, caregiver quality of life, and family quality of life. In addition, this study demonstrated the viability of strengths-based models of caregiver and family quality of life using Disability Centrality Model constructs through a family systems perspective for a sample of caregivers of children with ASD. Future implications for rehabilitation research and practice are discussed.

Children With Autism Spectrum Disorder

Author : Shayna Brianne Svihovec
Publisher :
ISBN 13 : 9780355307719
Total Pages : 124 pages
Book Rating : 4.3/5 (77 download)

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Book Synopsis Children With Autism Spectrum Disorder by : Shayna Brianne Svihovec

Download or read book Children With Autism Spectrum Disorder written by Shayna Brianne Svihovec and published by . This book was released on 2017 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: This study was designed to explore the relationship between the quality of life of children on the autism spectrum and the services they are receiving. Although there are groups of people who do not believe that children on the spectrum are in need of treatment, therapies have become the expected following a diagnosis of autism spectrum disorder. The aim of this study was to identify whether certain types of therapies and services were associated with better quality of life for children with autism.An anonymous survey was distributed online to individuals within the autism spectrum disorder community. Participants were parents of one child on the spectrum (2--12 years old); 47 individuals completed the survey. Results indicated that certain therapies are associated with reported improvement in some categories but not others. Applied Behavioral Analysis therapy was associated with reported ability to communicate, happiness in public, and happiness at school. Speech therapy was associated with reported improvement in a child's ability to perform physical tasks. Understanding the relationship between the types of service received or the amount of time participating in services and reported improvement levels in various areas of life will inform health care professionals' perspective regarding the value of therapies. Genetic counselors serve a unique role because they are often the team member first connecting with the family and helping initiate services. This research broadens the understanding of the impact that therapies may have on quality of life and enhance the ability of professionals to provide guidance to families.

POSITIVE EXPERIENCES AND MEANINGFUL INTERVENTIONS OF PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER

Author : Tina Marie Giazzoni-Fialko
Publisher :
ISBN 13 :
Total Pages : 85 pages
Book Rating : 4.:/5 (128 download)

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Book Synopsis POSITIVE EXPERIENCES AND MEANINGFUL INTERVENTIONS OF PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER by : Tina Marie Giazzoni-Fialko

Download or read book POSITIVE EXPERIENCES AND MEANINGFUL INTERVENTIONS OF PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER written by Tina Marie Giazzoni-Fialko and published by . This book was released on 2011 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt: While there is wealth of quantitative research exploring interventions for children with Autism Spectrum Disorders (ASD), these studies insufficiently address how the Quality of Life (QOL) of children with ASD is impacted by interventions. Studies that explore social participation tend to address easily measurable aspects of socialization, but do not adequately address the quality of interactions. The challenges of raising a child with ASD are numerous. Alongside difficulties, parents report positive aspects of raising a child with ASD, which are underexplored in the literature. This study sought to better understand these issues by using a grounded theory method. Five parents of children with ASD were interviewed. Four major themes emerged. The theme of "Flow of life," described the interconnected experience of parents together with their children as they planned for the near and distant future and considered the QOL of their children. The second theme, "Circumstances," included challenges and positive experiences of families. "Helping the flow, joys" was the third theme, capturing situations that helped parents navigate around challenges. Finally, "Social participation" captured the experiences of everyday social activities and provided a sense of supports for families. The themes were integrated, using the framework of the Kawa model, which represents life experiences through the illustration of a river. The model was modified and additional components were added to accurately represent the experiences of families that emerged from this research and may be a useful tool for parents to explore the most meaningful and relevant interventions for their children with ASD.

A Full Life with Autism

Author : Chantal Sicile-Kira
Publisher : St. Martin's Press
ISBN 13 : 0230393616
Total Pages : 257 pages
Book Rating : 4.2/5 (33 download)

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Book Synopsis A Full Life with Autism by : Chantal Sicile-Kira

Download or read book A Full Life with Autism written by Chantal Sicile-Kira and published by St. Martin's Press. This book was released on 2012-03-27 with total page 257 pages. Available in PDF, EPUB and Kindle. Book excerpt: A guide for helping our children lead meaningful and independent lives as they reach adulthood In the next five years, hundreds of thousands of children with autism spectrum disorder will reach adulthood. And while diagnosis and treatment for children has improved in recent years, parents want to know: What happens to my child when I am no longer able to care for or assist him? Autism expert Chantal Sicile-Kira and her son Jeremy offer real solutions to a host of difficult questions, including how young adults of different abilities and their parents can: *navigate this new economy where adult service resources are scarce *cope with the difficulties of living apart from the nuclear family *find, and keep a job that provides meaning, stability and an income *create and sustain fulfilling relationships