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Book Synopsis Rare Diseases and Orphan Products by : Institute of Medicine
Download or read book Rare Diseases and Orphan Products written by Institute of Medicine and published by National Academies Press. This book was released on 2011-04-03 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.
Author :Agency for Healthcare Research and Quality/AHRQ Publisher :Government Printing Office ISBN 13 :1587634333 Total Pages :385 pages Book Rating :4.5/5 (876 download)
Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Book Synopsis Rare Birds of North America by : Steve N. G. Howell
Download or read book Rare Birds of North America written by Steve N. G. Howell and published by Princeton University Press. This book was released on 2014-02-16 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first comprehensive illustrated guide to North America's vagrant birds Rare Birds of North America is the first comprehensive illustrated guide to the vagrant birds that occur throughout the United States and Canada. Featuring 275 stunning color plates, this book covers 262 species originating from three very different regions—the Old World, the New World tropics, and the world's oceans. It explains the causes of avian vagrancy and breaks down patterns of occurrence by region and season, enabling readers to see where, when, and why each species occurs in North America. Detailed species accounts describe key identification features, taxonomy, age, sex, distribution, and status. Rare Birds of North America provides unparalleled insights into vagrancy and avian migration, and will enrich the birding experience of anyone interested in finding and observing rare birds. Covers 262 species of vagrant birds found in the United States and Canada Features 275 stunning color plates that depict every species Explains patterns of occurrence by region and season Provides an invaluable overview of vagrancy patterns and migration Includes detailed species accounts and cutting-edge identification tips
Book Synopsis Used and Rare by : Lawrence Goldstone
Download or read book Used and Rare written by Lawrence Goldstone and published by St. Martin's Press. This book was released on 2010-04-01 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: Journey into the world of book collecting with the Goldstones-rediscover the joy of reading, laugh, and fall in love with books all over again. The idea that books had stories associated with them that had nothing to do with the stories inside them was new to us. We had always valued the history, the world of ideas contained between the covers of a book or, as in the case of The Night Visitor, some special personal significance. Now, for the first time, we began to appreciate that there was a history and a world of ideas embodied by the books themselves. Part travel story, part love story, and part memoir, Lawrence and Nancy Goldstone's Used and Rare provides a delightful love letter to book lovers everywhere.
Download or read book Rare Earth written by Peter D. Ward and published by Springer. This book was released on 2007-05-08 with total page 359 pages. Available in PDF, EPUB and Kindle. Book excerpt: What determines whether complex life will arise on a planet, or even any life at all? Questions such as these are investigated in this groundbreaking book. In doing so, the authors synthesize information from astronomy, biology, and paleontology, and apply it to what we know about the rise of life on Earth and to what could possibly happen elsewhere in the universe. Everyone who has been thrilled by the recent discoveries of extrasolar planets and the indications of life on Mars and the Jovian moon Europa will be fascinated by Rare Earth, and its implications for those who look to the heavens for companionship.
Book Synopsis Thieves of Book Row by : Travis McDade
Download or read book Thieves of Book Row written by Travis McDade and published by Oxford University Press, USA. This book was released on 2015-08-06 with total page 229 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Thieves of Book Row, Travis McDade tells the gripping tale of the worst book-theft ring in American history, and the intrepid detective who brought it down. Both a fast-paced, true-life thriller, Thieves of Book Row provides a fascinating look at the history of crime and literary culture.
Book Synopsis An Introduction to the Knowledge of Rare and Valuable Editions of the Greek and Latin Classics by : Thomas Frognall Dibdin
Download or read book An Introduction to the Knowledge of Rare and Valuable Editions of the Greek and Latin Classics written by Thomas Frognall Dibdin and published by . This book was released on 1827 with total page 598 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Voynich Manuscript written by and published by . This book was released on 2015-12-11 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: A facsimile of an object of unknown authorship that has been the source of study and speculation for centuries and remains undecipherable to this day.
Download or read book Boozehound written by Jason Wilson and published by Ten Speed Press. This book was released on 2010-09-21 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: While some may wonder, “Does the world really need another flavored vodka?” no one answers this question quite so memorably as spirits writer and raconteur Jason Wilson does in Boozehound. (By the way, the short answer is no.) A unique blend of travelogue, spirits history, and recipe collection, Boozehound explores the origins of what we drink and the often surprising reasons behind our choices. In lieu of odorless, colorless, tasteless spirits, Wilson champions Old World liquors with hard-to-define flavors—a bitter and complex Italian amari, or the ancient, aromatic herbs of Chartreuse, as well as distinctive New World offerings like lively Peruvian pisco. With an eye for adventure, Wilson seeks out visceral experiences at the source of production—visiting fields of spiky agave in Jalisco, entering the heavily and reverently-guarded Jägermeister herb room in Wolfenbüttel, and journeying to the French Alps to determine if mustachioed men in berets really handpick blossoms to make elderflower liqueur. In addition, Boozehound offers more than fifty drink recipes, from three riffs on the Manhattan to cocktail-geek favorites like the Aviation and the Last Word. These recipes are presented alongside a host of opinionated essays that cherish the rare, uncover the obscure, dethrone the overrated, and unravel the mysteries of taste, trends, and terroir. Through his far-flung, intrepid traveling and tasting, Wilson shows us that perhaps nothing else as entwined with the history of human culture is quite as much fun as booze.
Book Synopsis Old Books, Rare Friends by : Madeline B. Stern
Download or read book Old Books, Rare Friends written by Madeline B. Stern and published by Main Street Books. This book was released on 2012-05-30 with total page 307 pages. Available in PDF, EPUB and Kindle. Book excerpt: Louisa May Alcott once wrote that she had taken her pen for a bridegroom. Leona Rostenberg and Madeleine Stern, friends and business partners for fifty years, have in many ways taken up their pens and passion for literature much in the same way. The "Holmes & Watson" of the rare book business, Rostenberg and Stern are renowned for unlocking the hidden secret of Louisa May Alcott's life when they discovered her pseudonym, A.M. Barnard, along with her anonymously published "blood and thunder" stories on subjects like transvestitism, hashish smoking, and feminism. Old Books, Rare Friends describes their mutual passion for books and literary sleuthing as they take us on their earliest European book buying jaunts. Using what they call Finger-spitzengefühl, the art of evaluating antiquarian books by handling, experience, and instinct, we are treated to some of their greatest discoveries amid the mildewed basements of London's booksellers after the Blitz. We experience the thrill of finding one of the earliest known books printed in America between 1617-1619 by the Pilgrim Press and learn about the influential role of publisher-printers from the fifteenth century. Like a precious gem, Old Books, Rare Friends is a book to treasure about the companionship of two rare friends and their shared passion for old books.
Download or read book Rare Like Us written by Taylor Kane and published by Bookbaby. This book was released on 2019-09-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Taylor Kane was a daddy's girl from the moment she was born, smiling and cooing whenever her father was around and refusing to sleep until he held her in his arms. But shortly after she turned three years old, the unthinkable happened. Her father was diagnosed with a rare, genetic disease for which there was no cure. It wasn't long before he began to experience a number of bizarre and frightening symptoms, and young Taylor watched helplessly as the disease ravaged his body and mind, transforming him into a shell of the father she once knew: a man unable to walk, talk, swallow or understand what was going on around him. A man who no longer recognized her.Fast forward five years. Her beloved father now gone, nine-year-old Taylor is dealt another devastating blow when she learns that she is a genetic carrier of the disease that took her father's life. Not only will her future children have a fifty percent chance of inheriting the disease, she, too, faces the risk of developing symptoms of her own in the future. In Rare Like Us, Taylor, now a twenty-one-year-old college student, shares the invaluable lessons she learned growing up in a family plagued by a genetic disease so rare that most doctors have never seen it, much less heard of it. She recounts with raw honesty how she managed to conquer her childhood demons and come to terms with her grief and loss; how she transformed her pain into passion and purpose; and how she continues to strive to honor her father's legacy by living her life in a way that would make him proud. This compelling memoir of a young woman's resilience and determination will captivate and inspire not only those who have experienced the isolation and despair that comes with having a rare disease, but anyone who has struggled to find the silver lining in heartbreak or tragedy, or who is searching for hope in the face of an uncertain future.
Book Synopsis An Introduction to the Knowledge of Rare and Valuable Editions of the Greek and Latin Classics. Together with an Account of Polyglot Bibles, Polyglot Psalters, Hebrew Bibles, Greek Bibles and Greek Testaments, the Greek Fathers, and the Latin Fathers. By the Rev. Thomas Frognall Dibdin, D. D. ... Vol. 1. [-2.] by :
Download or read book An Introduction to the Knowledge of Rare and Valuable Editions of the Greek and Latin Classics. Together with an Account of Polyglot Bibles, Polyglot Psalters, Hebrew Bibles, Greek Bibles and Greek Testaments, the Greek Fathers, and the Latin Fathers. By the Rev. Thomas Frognall Dibdin, D. D. ... Vol. 1. [-2.] written by and published by . This book was released on 1827 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Dictionary of the English Language by : Samuel Johnson
Download or read book A Dictionary of the English Language written by Samuel Johnson and published by . This book was released on 1819 with total page 1234 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :Centers for Disease Control and Prevention CDC Publisher :Oxford University Press ISBN 13 :0190628634 Total Pages :705 pages Book Rating :4.1/5 (96 download)
Book Synopsis CDC Yellow Book 2018: Health Information for International Travel by : Centers for Disease Control and Prevention CDC
Download or read book CDC Yellow Book 2018: Health Information for International Travel written by Centers for Disease Control and Prevention CDC and published by Oxford University Press. This book was released on 2017-04-17 with total page 705 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE ESSENTIAL WORK IN TRAVEL MEDICINE -- NOW COMPLETELY UPDATED FOR 2018 As unprecedented numbers of travelers cross international borders each day, the need for up-to-date, practical information about the health challenges posed by travel has never been greater. For both international travelers and the health professionals who care for them, the CDC Yellow Book 2018: Health Information for International Travel is the definitive guide to staying safe and healthy anywhere in the world. The fully revised and updated 2018 edition codifies the U.S. government's most current health guidelines and information for international travelers, including pretravel vaccine recommendations, destination-specific health advice, and easy-to-reference maps, tables, and charts. The 2018 Yellow Book also addresses the needs of specific types of travelers, with dedicated sections on: · Precautions for pregnant travelers, immunocompromised travelers, and travelers with disabilities · Special considerations for newly arrived adoptees, immigrants, and refugees · Practical tips for last-minute or resource-limited travelers · Advice for air crews, humanitarian workers, missionaries, and others who provide care and support overseas Authored by a team of the world's most esteemed travel medicine experts, the Yellow Book is an essential resource for travelers -- and the clinicians overseeing their care -- at home and abroad.
Book Synopsis The Complete Guide to Article Writing by : Naveed Saleh
Download or read book The Complete Guide to Article Writing written by Naveed Saleh and published by Penguin. This book was released on 2013-12-17 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Master the art of article writing! The world of journalism is changing rapidly, and the modern journalist needs more than a basic knowledge of article writing to navigate it. The Complete Guide to Article Writing provides a compass for freelancers and students of journalism looking to write successfully on a wide variety of topics and for many different markets--both in print and online. From researching and interviewing to writing features, reviews, news articles, opinion pieces, and even blog posts, this one-stop guide will illuminate the intricacies of article writing so you can produce entertaining, informative, and salable articles. • Learn how to write coherently, cohesively, and concisely. • Choose the proper structure for the article you want to write. • Weave narrative and fact seamlessly into your pieces. • Develop your freelance platform with the latest in social media outlets. • Pitch your ideas like a pro. • Develop a professional relationship with editors. • And much more! Modern journalism can be a treacherous terrain, but with The Complete Guide to Article Writing as your companion, you'll not only survive the journey--you'll be able to write pieces that inform, entertain, inspire, delight--and sell!
Book Synopsis Bulletin by : New York State Museum and Science Service
Download or read book Bulletin written by New York State Museum and Science Service and published by . This book was released on 1897 with total page 666 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Rare and Blue by : Constance Van Hoven
Download or read book Rare and Blue written by Constance Van Hoven and published by Charlesbridge Publishing. This book was released on 2020-09-01 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: A variety of rare blue species--from the blue lobster to the blue black bear--are rare and unique for a reason. Travel across Earth to discover eight species that are blue in color and are either naturally rare, threatened, or endangered. Panoramic illustrations and a playful main text prompt a search for the blue species at hand, while the page-turn and informative sidebars zoom in to reveal a closer look at the species. There's a lot to uncover about the Karner blue butterfly, blue black bear, blue whale, Quitobacquito pupfish, Cerulean warbler, blue lobster, Eastern Indigo snake, and big bluestem grass. A surprise ending celebrates that planet Earth is the rarest and bluest and must be protected for the sake of all.
![Download An Introduction to the Knowledge of Rare and Valuable Editions of the Greek and Latin Classics. Together with an Account of Polyglot Bibles, Polyglot Psalters, Hebrew Bibles, Greek Bibles and Greek Testaments, the Greek Fathers, and the Latin Fathers. By the Rev. Thomas Frognall Dibdin, D. D. ... Vol. 1. [-2.] PDF Online Free](https://books.google.com/books/content/images/frontcover/ctJixpeWT38C?fife=w200-h370)
