Quality Of Life Measurement In Neurodegenerative And Related Conditions

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Quality of Life Measurement in Neurodegenerative and Related Conditions

Author : Crispin Jenkinson
Publisher : Cambridge University Press
ISBN 13 : 1139491342
Total Pages : 207 pages
Book Rating : 4.1/5 (394 download)

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Book Synopsis Quality of Life Measurement in Neurodegenerative and Related Conditions by : Crispin Jenkinson

Download or read book Quality of Life Measurement in Neurodegenerative and Related Conditions written by Crispin Jenkinson and published by Cambridge University Press. This book was released on 2011-02-03 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.

Individual Quality of Life

Author : Charles Richard Boddington Joyce
Publisher : Taylor & Francis
ISBN 13 : 9789057024252
Total Pages : 258 pages
Book Rating : 4.0/5 (242 download)

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Book Synopsis Individual Quality of Life by : Charles Richard Boddington Joyce

Download or read book Individual Quality of Life written by Charles Richard Boddington Joyce and published by Taylor & Francis. This book was released on 1999 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy & health economics. The importance of individual quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables. It is a fundamental belief of the editors of this book that the primary focus of quality of life is & must continue to be the individual, who alone can define it & assess its changing personal significances. The individual perspective is of vital importance not only to patients but to their doctors too, & is more & more frequently proposed as the most meaningful measure of outcome in clinical research, especially in non-remitting or chronic conditions. Workers who wish to consider wider aspects of influences on the illnesses suffered by individuals & the health care that they receive will find much to stimulate them in the methods of documentation proposed in this book. Those mainly concerned with population samples rather than individuals may also find the sensitive methods of investigation proposed here not only to be applicable to their own areas of interest, but also rewarding in perhaps unexpected ways.

Health Status Measurement in Neurological Disorders

Author : Crispin Jenkinson
Publisher : CRC Press
ISBN 13 : 1315348306
Total Pages : 224 pages
Book Rating : 4.3/5 (153 download)

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Book Synopsis Health Status Measurement in Neurological Disorders by : Crispin Jenkinson

Download or read book Health Status Measurement in Neurological Disorders written by Crispin Jenkinson and published by CRC Press. This book was released on 2020-01-31 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The use of home detoxification enables health care workers to avoid episodes of in-patient care, with its inherent high costs and secondary problems of label attachment and possible stigmatization. Patients, their carers (professional, voluntary and domestic), families and friends all involved in this 'at-home' process, thereby leading to empowerment and increased compliance. This book provides practical advice and guidance. If all the procedures here are followed, the care worker of whatever discipline is unlikely to encounter major difficulties. Alcohol Home Detoxification and Assessment provides the kind of model increasingly required for the move towards community care of people with a whole range of conditions, and will enable professionals to organize the process with confidence.

Individual Quality of Life

Author : Joyce
Publisher : Psychology Press
ISBN 13 : 1135852162
Total Pages : 247 pages
Book Rating : 4.1/5 (358 download)

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Book Synopsis Individual Quality of Life by : Joyce

Download or read book Individual Quality of Life written by Joyce and published by Psychology Press. This book was released on 2013-01-11 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy and health economics. The importance of "individual" quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables. The editors of this book believe that the primary focus of quality of life is and must continue to be the individual, who alone can define it and assess its changing personal significance. The challenge of presenting this belief

Quality

Author : Ivan Barofsky
Publisher : Springer Science & Business Media
ISBN 13 : 1441998195
Total Pages : 508 pages
Book Rating : 4.4/5 (419 download)

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Book Synopsis Quality by : Ivan Barofsky

Download or read book Quality written by Ivan Barofsky and published by Springer Science & Business Media. This book was released on 2011-10-02 with total page 508 pages. Available in PDF, EPUB and Kindle. Book excerpt: Quality, as exemplified by Quality-of-life (QoL) assessment, is frequently discussed among health care professionals and often invoked as a goal for improvement, but somehow rarely defined, even as it is regularly assessed. It is understood that some medical patients have a better QoL than others, but should the QoL achieved be compared to an ideal state, or is it too personal and subjective to gauge? Can a better understanding of the concept help health care systems deliver services more effectively? Is QoL worth measuring at all? Integrating concepts from psychology, philosophy, neurocognition, and linguistics, this book attempts to answer these complex questions. It also breaks down the cognitive-linguistic components that comprise the judgment of quality, including description, evaluation, and valuations, and applies them to issues specific to individuals with chronic medical illness. In this context, quality/QoL assessment becomes an essential contributor to ethical practice, a critical step towards improving the nature of social interactions. The author considers linear, non-linear, and complexity-based models in analyzing key methodology and content issues in health-related QoL assessment. This book is certain to stimulate debate in the research and scientific communities. Its forward-looking perspective takes great strides toward promoting a common cognitive-linguistic model of how the judgment of quality occurs, thereby contributing important conceptual and empirical tools to its varied applications, including QoL assessment.

Guide to Assessment Scales in Parkinson’s Disease

Author : Pablo Martinez-Martin
Publisher : Springer
ISBN 13 : 1907673881
Total Pages : 96 pages
Book Rating : 4.9/5 (76 download)

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Book Synopsis Guide to Assessment Scales in Parkinson’s Disease by : Pablo Martinez-Martin

Download or read book Guide to Assessment Scales in Parkinson’s Disease written by Pablo Martinez-Martin and published by Springer. This book was released on 2014-10-16 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Guide assesses the key clinimetric attributes in the assessment of Parkinson's Disease (PD), with the intention to offer rapid and pragmatic information on the most relevant scales used in PD. Parkinson’s disease affects approximately 4 million people globally and is most commonly seen in people over the age of 50. The disease is a progressive disorder of the nervous system, and presents a number of movement and cognitive symptoms, thereby greatly affecting a patients quality of life. The use of scales for assessment in neurological disorders such as PD arises from the need to quantify disorders and states (such constructs as disability, symptoms, quality of life). Assessment scales are often categorised into two categories: generic (i.e. those scales usable in any health condition), and specific (i.e. scales developed for exclusive use in PD). They can have a variety of components: single-item and multi-item or composite scale; unidimensional and multidimensional; and as disease-centered and patient-centered measures. The creation and validation of scales is complex, with scales undergoing numerous studies to assess criteria such as acceptability, reliability, and responsiveness. In the process of validation of a scale the following attributes should be tested to ascertain whether a scale is an effective instrument of measurement.

Assessing Quality of Life in Alzheimer's Disease

Author : Steven Mark Albert
Publisher : Springer Publishing Company
ISBN 13 :
Total Pages : 216 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Assessing Quality of Life in Alzheimer's Disease by : Steven Mark Albert

Download or read book Assessing Quality of Life in Alzheimer's Disease written by Steven Mark Albert and published by Springer Publishing Company. This book was released on 2000 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Amyotrophic Lateral Sclerosis

Author : Francesco Pagnini
Publisher : Oxford University Press
ISBN 13 : 0191075132
Total Pages : 300 pages
Book Rating : 4.1/5 (91 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Francesco Pagnini

Download or read book Amyotrophic Lateral Sclerosis written by Francesco Pagnini and published by Oxford University Press. This book was released on 2018-02-09 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disorder with a progressive and fatal course, with no known medical therapies that can reverse the disease or halt its progression. Palliative care is the mainstay of disease management, aimed at maximizing Quality Of Life (QOL) for the patient and caregiver. Clinicians caring for patients with ALS need to understand complex psychological issues in the patient and caregiver, including depression, anxiety, hopelessness, and wish for hastened death (physician-assisted suicide). They also need to confront the psychological implications of rapidly advancing genetic research, the impact of cognitive and behavioural dysfunction in a sizable minority of ALS patients, and caregiver burnout. Healthcare providers can optimize care by better understanding not only these factors, but by learning how to facilitate their management with problem-solving, coping techniques, and with psychologically-based approaches such as mindfulness and other non-pharmacological approaches aimed at maximizing QOL. Amyotrophic Lateral Sclerosis: Understanding and Optimizing Quality of Life and Psychological Well-Being provides a detailed review and evaluation of ALS, presented in a comprehensive and integrated fashion. The book achieves this through detailed and up-to-date information about the current state of knowledge in this field. It also offers new insights regarding future directions for research. This book will provide clinicians with a comprehensive description of the psychological aspects of ALS and their management, and incorporates chapters written by recognized scholars in their respective fields.

Guiding Principles for Developing Dietary Reference Intakes Based on Chronic Disease

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309462568
Total Pages : 335 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Guiding Principles for Developing Dietary Reference Intakes Based on Chronic Disease by : National Academies of Sciences, Engineering, and Medicine

Download or read book Guiding Principles for Developing Dietary Reference Intakes Based on Chronic Disease written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-12-21 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: Since 1938 and 1941, nutrient intake recommendations have been issued to the public in Canada and the United States, respectively. Currently defined as the Dietary Reference Intakes (DRIs), these values are a set of standards established by consensus committees under the National Academies of Sciences, Engineering, and Medicine and used for planning and assessing diets of apparently healthy individuals and groups. In 2015, a multidisciplinary working group sponsored by the Canadian and U.S. government DRI steering committees convened to identify key scientific challenges encountered in the use of chronic disease endpoints to establish DRI values. Their report, Options for Basing Dietary Reference Intakes (DRIs) on Chronic Disease: Report from a Joint US-/Canadian-Sponsored Working Group, outlined and proposed ways to address conceptual and methodological challenges related to the work of future DRI Committees. This report assesses the options presented in the previous report and determines guiding principles for including chronic disease endpoints for food substances that will be used by future National Academies committees in establishing DRIs.

Children and Young People’s Response to Parental Illness

Author : David Morley
Publisher : CRC Press
ISBN 13 : 131534968X
Total Pages : 277 pages
Book Rating : 4.3/5 (153 download)

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Book Synopsis Children and Young People’s Response to Parental Illness by : David Morley

Download or read book Children and Young People’s Response to Parental Illness written by David Morley and published by CRC Press. This book was released on 2016-09-15 with total page 277 pages. Available in PDF, EPUB and Kindle. Book excerpt: Assessment of the impact of parental illness has gathered significant momentum over recent years. This book provides an up-to-date guide, for a variety of professionals, on how a range of conditions might impact upon children and young people. Each chapter provides an overview of current literature, an evaluation of relevant interventions, an ‘in practice’ section that provides guidance for readers in terms of best practice, and future research directions. Although the primary focus of the book is directed at children’s and young people’s response to their parent’s condition, the challenges of parenting are also frequently highlighted. Additionally, the text provides an overview of measurement issues when investigating children’s and young people’s response to parental illness.

Patient Reported Outcome Measures in Rheumatic Diseases

Author : Yasser El Miedany
Publisher : Springer
ISBN 13 : 3319328514
Total Pages : 449 pages
Book Rating : 4.3/5 (193 download)

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Book Synopsis Patient Reported Outcome Measures in Rheumatic Diseases by : Yasser El Miedany

Download or read book Patient Reported Outcome Measures in Rheumatic Diseases written by Yasser El Miedany and published by Springer. This book was released on 2016-09-14 with total page 449 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.

Imaging in Neurodegenerative Disorders

Author : Luca Saba
Publisher : Oxford University Press, USA
ISBN 13 : 0199671613
Total Pages : 585 pages
Book Rating : 4.1/5 (996 download)

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Book Synopsis Imaging in Neurodegenerative Disorders by : Luca Saba

Download or read book Imaging in Neurodegenerative Disorders written by Luca Saba and published by Oxford University Press, USA. This book was released on 2015 with total page 585 pages. Available in PDF, EPUB and Kindle. Book excerpt: This text summarizes the latest developments in imaging techniques and other new diagnostic methods as applied to the neurodegenerative disorders.

Multiple Sclerosis

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309072859
Total Pages : 457 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Multiple Sclerosis by : Institute of Medicine

Download or read book Multiple Sclerosis written by Institute of Medicine and published by National Academies Press. This book was released on 2001-08-10 with total page 457 pages. Available in PDF, EPUB and Kindle. Book excerpt: Multiple sclerosis is a chronic and often disabling disease of the nervous system, affecting about 1 million people worldwide. Even though it has been known for over a hundred years, no cause or cure has yet been discovered-but now there is hope. New therapies have been shown to slow the disease progress in some patients, and the pace of discoveries about the cellular machinery of the brain and spinal cord has accelerated. This book presents a comprehensive overview of multiple sclerosis today, as researchers seek to understand its processes, develop therapies that will slow or halt the disease and perhaps repair damage, offer relief for specific symptoms, and improve the abilities of MS patients to function in their daily lives. The panel reviews existing knowledge and identifies key research questions, focusing on: Research strategies that have the greatest potential to understand the biological mechanisms of recovery and to translate findings into specific strategies for therapy. How people adapt to MS and the research needed to improve the lives of people with MS. Management of disease symptoms (cognitive impairment, depression, spasticity, vision problems, and others). The committee also discusses ways to build and financially support the MS research enterprise, including a look at challenges inherent in designing clinical trials. This book will be important to MS researchers, research funders, health care advocates for MS research and treatment, and interested patients and their families.

Functional Neurologic Disorders

Author :
Publisher : Academic Press
ISBN 13 : 0128018496
Total Pages : 684 pages
Book Rating : 4.1/5 (28 download)

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Book Synopsis Functional Neurologic Disorders by :

Download or read book Functional Neurologic Disorders written by and published by Academic Press. This book was released on 2016-10-06 with total page 684 pages. Available in PDF, EPUB and Kindle. Book excerpt: Functional Neurologic Disorders, the latest volume in the Handbook of Clinical Neurology series, summarizes state-of-the-art research findings and clinical practice on this class of disorders at the interface between neurology and psychiatry. This 51-chapter volume offers an historical introduction, chapters on epidemiology and pathophysiolology, a large section on the clinical features of different type of functional neurologic symptoms and disorders (including functional movement disorders, non-epileptic seizures, dizziness, vision, hearing, speech and cognitive symptoms), and then concluding with approaches to therapy. This group of internationally acclaimed experts in neurology, psychiatry, and neuroscience represent a broad spectrum of areas of expertise, chosen for their ability to write clearly and concisely with an eye toward a clinical audience. This HCN volume sets a new landmark standard for a comprehensive, multi-authored work dealing with functional neurologic disorders (also described as psychogenic, dissociative or conversion disorders). Offers a comprehensive interdisciplinary approach for the care of patients with functional disorders seen in neurologic practice, leading to more efficient prevention, management, and treatment Provides a synthesis of research efforts incorporating clinical, brain imaging and neurophysiological studies Fills an existing gap between traditional neurology and traditional psychiatry Contents include coverage of history, epidemiology, clinical presentations, and therapy Edited work with chapters authored by leaders in the field, the broadest, most expert coverage available

White Matter Diseases

Author : Massimo Filippi
Publisher : Springer Nature
ISBN 13 : 303038621X
Total Pages : 215 pages
Book Rating : 4.0/5 (33 download)

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Book Synopsis White Matter Diseases by : Massimo Filippi

Download or read book White Matter Diseases written by Massimo Filippi and published by Springer Nature. This book was released on 2020-02-13 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides cutting-edge information on the epidemiology, etiopathogenesis, clinical manifestations, diagnostic procedures and treatment approaches for the main white matter (WM) disorders of the central nervous system (CNS). WM lesions are associated with many neurological conditions, and with aging. The diagnostic work-up of neurological diseases characterized by the presence of these lesions has changed dramatically over the past few years. This is mainly due on the one hand to the discovery of specific pathogenetic factors in some of these conditions, and on the order to the optimized use of diagnostic tools. All of this has resulted in new diagnostic algorithms, and in the identification of new neurological conditions. The book offers neurologists essential guidance in the diagnosis and treatment of the most frequent WM conditions, promoting their correct and cost-saving diagnosis and management. By integrating neurological, laboratory and imaging concepts with the demands of accurate diagnosis, this reference guide provides a state-of-the-art overview of the current state of knowledge on these conditions, as well as practical guidelines for their diagnosis and treatment.

Diagnosis and Management in Parkinson's Disease

Author : Colin R Martin
Publisher : Academic Press
ISBN 13 : 0128159472
Total Pages : 784 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Diagnosis and Management in Parkinson's Disease by : Colin R Martin

Download or read book Diagnosis and Management in Parkinson's Disease written by Colin R Martin and published by Academic Press. This book was released on 2020-08-13 with total page 784 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diagnosis and Management in Parkinson's Disease: The Neuroscience of Parkinson’s, Volume 1 provides a single source of material covering different scientific domains of neuropathology underlying this condition. The book covers a wide range of subjects and unravels the complex relationships between genetics, molecular biology, pharmaceutical chemistry, neurobiology, imaging, assessments, and treatment regimens. It fills a much-needed gap as a "one-stop" synopsis of everything concerning the neurology and neuroscience related to Parkinson’s disease, from chemicals and cells to individuals. The book is an invaluable resource for neuroscientists, neurologists, and anyone in the field. Offers the most comprehensive coverage of a broad range of topics related to Parkinson's disease Serves as a foundational collection for neuroscientists and neurologists on the biology of disease and brain dysfunction Contains in each chapter an abstract, key facts, mini dictionary of terms, and summary points to aid in understanding Features preclinical and clinical studies to help researchers map out key areas for research and further clinical recommendations Serves as a "one-stop" source for everything you need to know about Parkinson’s disease

Handbook of Decision Support Systems for Neurological Disorders

Author : Hemanth D. Jude
Publisher : Academic Press
ISBN 13 : 0128222727
Total Pages : 320 pages
Book Rating : 4.1/5 (282 download)

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Book Synopsis Handbook of Decision Support Systems for Neurological Disorders by : Hemanth D. Jude

Download or read book Handbook of Decision Support Systems for Neurological Disorders written by Hemanth D. Jude and published by Academic Press. This book was released on 2021-03-30 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Handbook of Decision Support Systems for Neurological Disorders provides readers with complete coverage of advanced computer-aided diagnosis systems for neurological disorders. While computer-aided decision support systems for different medical imaging modalities are available, this is the first book to solely concentrate on decision support systems for neurological disorders. Due to the increase in the prevalence of diseases such as Alzheimer, Parkinson’s and Dementia, this book will have significant importance in the medical field. Topics discussed include recent computational approaches, different types of neurological disorders, deep convolution neural networks, generative adversarial networks, auto encoders, recurrent neural networks, and modified/hybrid artificial neural networks. Includes applications of computer intelligence and decision support systems for the diagnosis and analysis of a variety of neurological disorders Presents in-depth, technical coverage of computer-aided systems for tumor image classification, Alzheimer’s disease detection, dementia detection using deep belief neural networks, and morphological approaches for stroke detection Covers disease diagnosis for cerebral palsy using auto-encoder approaches, contrast enhancement for performance enhanced diagnosis systems, autism detection using fuzzy logic systems, and autism detection using generative adversarial networks Written by engineers to help engineers, computer scientists, researchers and clinicians understand the technology and applications of decision support systems for neurological disorders