Public Access To Data From Federally Funded Research

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Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309147824
Total Pages : 179 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age by : Institute of Medicine

Download or read book Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age written by Institute of Medicine and published by National Academies Press. This book was released on 2009-11-17 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: As digital technologies are expanding the power and reach of research, they are also raising complex issues. These include complications in ensuring the validity of research data; standards that do not keep pace with the high rate of innovation; restrictions on data sharing that reduce the ability of researchers to verify results and build on previous research; and huge increases in the amount of data being generated, creating severe challenges in preserving that data for long-term use. Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age examines the consequences of the changes affecting research data with respect to three issues - integrity, accessibility, and stewardship-and finds a need for a new approach to the design and the management of research projects. The report recommends that all researchers receive appropriate training in the management of research data, and calls on researchers to make all research data, methods, and other information underlying results publicly accessible in a timely manner. The book also sees the stewardship of research data as a critical long-term task for the research enterprise and its stakeholders. Individual researchers, research institutions, research sponsors, professional societies, and journals involved in scientific, engineering, and medical research will find this book an essential guide to the principles affecting research data in the digital age.

The State of Open Data

Author : Davies, Tim
Publisher : African Minds
ISBN 13 : 1928331955
Total Pages : 592 pages
Book Rating : 4.9/5 (283 download)

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Book Synopsis The State of Open Data by : Davies, Tim

Download or read book The State of Open Data written by Davies, Tim and published by African Minds. This book was released on 2019-05-22 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: It’s been ten years since open data first broke onto the global stage. Over the past decade, thousands of programmes and projects around the world have worked to open data and use it to address a myriad of social and economic challenges. Meanwhile, issues related to data rights and privacy have moved to the centre of public and political discourse. As the open data movement enters a new phase in its evolution, shifting to target real-world problems and embed open data thinking into other existing or emerging communities of practice, big questions still remain. How will open data initiatives respond to new concerns about privacy, inclusion, and artificial intelligence? And what can we learn from the last decade in order to deliver impact where it is most needed? The State of Open Data brings together over 60 authors from around the world to address these questions and to take stock of the real progress made to date across sectors and around the world, uncovering the issues that will shape the future of open data in the years to come.

Funding a Revolution

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309062780
Total Pages : 300 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Funding a Revolution by : National Research Council

Download or read book Funding a Revolution written by National Research Council and published by National Academies Press. This book was released on 1999-02-11 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: The past 50 years have witnessed a revolution in computing and related communications technologies. The contributions of industry and university researchers to this revolution are manifest; less widely recognized is the major role the federal government played in launching the computing revolution and sustaining its momentum. Funding a Revolution examines the history of computing since World War II to elucidate the federal government's role in funding computing research, supporting the education of computer scientists and engineers, and equipping university research labs. It reviews the economic rationale for government support of research, characterizes federal support for computing research, and summarizes key historical advances in which government-sponsored research played an important role. Funding a Revolution contains a series of case studies in relational databases, the Internet, theoretical computer science, artificial intelligence, and virtual reality that demonstrate the complex interactions among government, universities, and industry that have driven the field. It offers a series of lessons that identify factors contributing to the success of the nation's computing enterprise and the government's role within it.

Public Access to Federally-funded Research

Author : United States. Congress. House. Committee on Oversight and Government Reform. Subcommittee on Information Policy, Census, and National Archives
Publisher :
ISBN 13 :
Total Pages : 168 pages
Book Rating : 4.:/5 (318 download)

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Book Synopsis Public Access to Federally-funded Research by : United States. Congress. House. Committee on Oversight and Government Reform. Subcommittee on Information Policy, Census, and National Archives

Download or read book Public Access to Federally-funded Research written by United States. Congress. House. Committee on Oversight and Government Reform. Subcommittee on Information Policy, Census, and National Archives and published by . This book was released on 2011 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Biological Collections

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309498538
Total Pages : 245 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Biological Collections by : National Academies of Sciences, Engineering, and Medicine

Download or read book Biological Collections written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2021-01-29 with total page 245 pages. Available in PDF, EPUB and Kindle. Book excerpt: Biological collections are a critical part of the nation's science and innovation infrastructure and a fundamental resource for understanding the natural world. Biological collections underpin basic science discoveries as well as deepen our understanding of many challenges such as global change, biodiversity loss, sustainable food production, ecosystem conservation, and improving human health and security. They are important resources for education, both in formal training for the science and technology workforce, and in informal learning through schools, citizen science programs, and adult learning. However, the sustainability of biological collections is under threat. Without enhanced strategic leadership and investments in their infrastructure and growth many biological collections could be lost. Biological Collections: Ensuring Critical Research and Education for the 21st Century recommends approaches for biological collections to develop long-term financial sustainability, advance digitization, recruit and support a diverse workforce, and upgrade and maintain a robust physical infrastructure in order to continue serving science and society. The aim of the report is to stimulate a national discussion regarding the goals and strategies needed to ensure that U.S. biological collections not only thrive but continue to grow throughout the 21st century and beyond.

Privacy, Big Data, and the Public Good

Author : Julia Lane
Publisher : Cambridge University Press
ISBN 13 : 1316094456
Total Pages : 343 pages
Book Rating : 4.3/5 (16 download)

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Book Synopsis Privacy, Big Data, and the Public Good by : Julia Lane

Download or read book Privacy, Big Data, and the Public Good written by Julia Lane and published by Cambridge University Press. This book was released on 2014-06-09 with total page 343 pages. Available in PDF, EPUB and Kindle. Book excerpt: Massive amounts of data on human beings can now be analyzed. Pragmatic purposes abound, including selling goods and services, winning political campaigns, and identifying possible terrorists. Yet 'big data' can also be harnessed to serve the public good: scientists can use big data to do research that improves the lives of human beings, improves government services, and reduces taxpayer costs. In order to achieve this goal, researchers must have access to this data - raising important privacy questions. What are the ethical and legal requirements? What are the rules of engagement? What are the best ways to provide access while also protecting confidentiality? Are there reasonable mechanisms to compensate citizens for privacy loss? The goal of this book is to answer some of these questions. The book's authors paint an intellectual landscape that includes legal, economic, and statistical frameworks. The authors also identify new practical approaches that simultaneously maximize the utility of data access while minimizing information risk.

Handbook on Using Administrative Data for Research and Evidence-based Policy

Author : Shawn Cole
Publisher : Abdul Latif Jameel Poverty Action Lab
ISBN 13 : 9781736021606
Total Pages : 618 pages
Book Rating : 4.0/5 (216 download)

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Book Synopsis Handbook on Using Administrative Data for Research and Evidence-based Policy by : Shawn Cole

Download or read book Handbook on Using Administrative Data for Research and Evidence-based Policy written by Shawn Cole and published by Abdul Latif Jameel Poverty Action Lab. This book was released on 2021 with total page 618 pages. Available in PDF, EPUB and Kindle. Book excerpt: This Handbook intends to inform Data Providers and researchers on how to provide privacy-protected access to, handle, and analyze administrative data, and to link them with existing resources, such as a database of data use agreements (DUA) and templates. Available publicly, the Handbook will provide guidance on data access requirements and procedures, data privacy, data security, property rights, regulations for public data use, data architecture, data use and storage, cost structure and recovery, ethics and privacy-protection, making data accessible for research, and dissemination for restricted access use. The knowledge base will serve as a resource for all researchers looking to work with administrative data and for Data Providers looking to make such data available.

Freedom of Information Act Guide

Author :
Publisher :
ISBN 13 :
Total Pages : 1146 pages
Book Rating : 4.3/5 ( download)

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Book Synopsis Freedom of Information Act Guide by :

Download or read book Freedom of Information Act Guide written by and published by . This book was released on 2007 with total page 1146 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Open Scientific Data

Author : Vera J. Lipton
Publisher :
ISBN 13 : 9781838809867
Total Pages : pages
Book Rating : 4.8/5 (98 download)

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Book Synopsis Open Scientific Data by : Vera J. Lipton

Download or read book Open Scientific Data written by Vera J. Lipton and published by . This book was released on 2020 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Public science is critical to the economy and to society. However, much of the beneficial impact of scientific research only occurs when scientific knowledge is disseminated broadly and is used by others. This book examines the emerging policy, law and practice of facilitating open access to scientific research data. One particular focus is to examine the open data policies recently introduced by research funders and publishers, and the potential in these for driving the practice of open scientific data into the future. This study identifies five major stumbling blocks to sustainable open scientific data. Firstly, it is the prevailing mindset that facilitating open access to data is analogous to facilitating open access to publications and, therefore, research data can easily be shared, with research funders and librarians effectively leading the process. Secondly, it is the unclear meaning of the term data which causes confusion among stakeholders. Thirdly, it is the misunderstood incentives for data sharing and the additional inputs required from researchers. Fourthly, data privacy—an issue that only applies to selected research datasets, and yet appears to dominate the discussion about open research data. Finally, there is a copyright law, which poses challenges at different stages of data release and reuse. In this book, it is argued that the above problems can be addressed using a staged model for open scientific data. I draw specifically on the practice with open scientific data at CERN (the European Organization for Nuclear Research) and the practice of sharing clinical trial data to argue that open data can be shared at various stages of processing and diversification. This model is supplemented by recommendations proposing changes to existing open data mandates and the introduction of a text and data mining exemption into Australian copyright law.

Research Data Management

Author : Joyce M. Ray
Publisher : Purdue University Press
ISBN 13 : 1557536643
Total Pages : 448 pages
Book Rating : 4.5/5 (575 download)

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Book Synopsis Research Data Management by : Joyce M. Ray

Download or read book Research Data Management written by Joyce M. Ray and published by Purdue University Press. This book was released on 2014 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: It has become increasingly accepted that important digital data must be retained and shared in order to preserve and promote knowledge, advance research in and across all disciplines of scholarly endeavor, and maximize the return on investment of public funds. To meet this challenge, colleges and universities are adding data services to existing infrastructures by drawing on the expertise of information professionals who are already involved in the acquisition, management and preservation of data in their daily jobs. Data services include planning and implementing good data management practices, thereby increasing researchers' ability to compete for grant funding and ensuring that data collections with continuing value are preserved for reuse. This volume provides a framework to guide information professionals in academic libraries, presses, and data centers through the process of managing research data from the planning stages through the life of a grant project and beyond. It illustrates principles of good practice with use-case examples and illuminates promising data service models through case studies of innovative, successful projects and collaborations.

Fostering Integrity in Research

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309391253
Total Pages : 327 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Fostering Integrity in Research by : National Academies of Sciences, Engineering, and Medicine

Download or read book Fostering Integrity in Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-01-13 with total page 327 pages. Available in PDF, EPUB and Kindle. Book excerpt: The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means that the organizations in which research is conducted encourage those involved to exemplify these values in every step of the research process. Understanding the dynamics that support â€" or distort â€" practices that uphold the integrity of research by all participants ensures that the research enterprise advances knowledge. The 1992 report Responsible Science: Ensuring the Integrity of the Research Process evaluated issues related to scientific responsibility and the conduct of research. It provided a valuable service in describing and analyzing a very complicated set of issues, and has served as a crucial basis for thinking about research integrity for more than two decades. However, as experience has accumulated with various forms of research misconduct, detrimental research practices, and other forms of misconduct, as subsequent empirical research has revealed more about the nature of scientific misconduct, and because technological and social changes have altered the environment in which science is conducted, it is clear that the framework established more than two decades ago needs to be updated. Responsible Science served as a valuable benchmark to set the context for this most recent analysis and to help guide the committee's thought process. Fostering Integrity in Research identifies best practices in research and recommends practical options for discouraging and addressing research misconduct and detrimental research practices.

The Future of the Academic Journal

Author : Bill Cope
Publisher : Elsevier
ISBN 13 : 1780630115
Total Pages : 417 pages
Book Rating : 4.7/5 (86 download)

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Book Synopsis The Future of the Academic Journal by : Bill Cope

Download or read book The Future of the Academic Journal written by Bill Cope and published by Elsevier. This book was released on 2009-06-22 with total page 417 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examines current issues in journals publishing and reviews how the industry will develop over the next few years. With contributions from leading academics and industry professionals, the book provides an authoritative and balanced view of this fast-changing area. There are a variety of views surrounding the future of journals and these are covered using a range of contributors. Online access is now taken for granted - 90 per cent of journals published are now available online, an increase from 75 per cent in 2003. - Looks at a fast moving and vital area for academics and publishers - Contains contributions from leading international figures from universities and publishers

Policy Guidelines for the Development and Promotion of Open Access

Author : Swan, Alma
Publisher : UNESCO Publishing
ISBN 13 : 9230010529
Total Pages : 79 pages
Book Rating : 4.2/5 (3 download)

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Book Synopsis Policy Guidelines for the Development and Promotion of Open Access by : Swan, Alma

Download or read book Policy Guidelines for the Development and Promotion of Open Access written by Swan, Alma and published by UNESCO Publishing. This book was released on 2012-04-10 with total page 79 pages. Available in PDF, EPUB and Kindle. Book excerpt: UNESCO issued this publication to demystify the concept of open access (OA) and to provide concrete steps on putting relevant policies in place. Its focus is on scientific research from peer-reviewed journal articles. Building capacities in Member States for Open Access is a necessary but not sufficient condition for promotion of the concept. Creating an enabling policy environment for OA is therefore a priority. This publication will serve the needs of OA policy development at the government, institutional and funding agency level. The overall objective of the Policy Guidelines is to promote Open Access in Member States by facilitating understanding of all relevant issues related to Open Access. The guidelines are not prescriptive in nature, but are suggestive to facilitate knowledge-based decision-making to adopt OA policies and strengthen national research systems.

Open Access

Author : Peter Suber
Publisher : MIT Press
ISBN 13 : 0262517639
Total Pages : 255 pages
Book Rating : 4.2/5 (625 download)

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Book Synopsis Open Access by : Peter Suber

Download or read book Open Access written by Peter Suber and published by MIT Press. This book was released on 2012-07-20 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: A concise introduction to the basics of open access, describing what it is (and isn't) and showing that it is easy, fast, inexpensive, legal, and beneficial. The Internet lets us share perfect copies of our work with a worldwide audience at virtually no cost. We take advantage of this revolutionary opportunity when we make our work “open access”: digital, online, free of charge, and free of most copyright and licensing restrictions. Open access is made possible by the Internet and copyright-holder consent, and many authors, musicians, filmmakers, and other creators who depend on royalties are understandably unwilling to give their consent. But for 350 years, scholars have written peer-reviewed journal articles for impact, not for money, and are free to consent to open access without losing revenue. In this concise introduction, Peter Suber tells us what open access is and isn't, how it benefits authors and readers of research, how we pay for it, how it avoids copyright problems, how it has moved from the periphery to the mainstream, and what its future may hold. Distilling a decade of Suber's influential writing and thinking about open access, this is the indispensable book on the subject for researchers, librarians, administrators, funders, publishers, and policy makers.

Beyond the HIPAA Privacy Rule

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309124999
Total Pages : 334 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Beyond the HIPAA Privacy Rule by : Institute of Medicine

Download or read book Beyond the HIPAA Privacy Rule written by Institute of Medicine and published by National Academies Press. This book was released on 2009-03-24 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.

Sharing Clinical Trial Data

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309316324
Total Pages : 236 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Principles and Obstacles for Sharing Data from Environmental Health Research

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 030937085X
Total Pages : 115 pages
Book Rating : 4.3/5 (93 download)

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Book Synopsis Principles and Obstacles for Sharing Data from Environmental Health Research by : National Academies of Sciences, Engineering, and Medicine

Download or read book Principles and Obstacles for Sharing Data from Environmental Health Research written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-05-29 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.