Population Biobank Studies: A Practical Guide

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Author :
Publisher : Springer Nature
ISBN 13 : 9811576661
Total Pages : 212 pages
Book Rating : 4.8/5 (115 download)

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Book Synopsis Population Biobank Studies: A Practical Guide by : Zhengming Chen

Download or read book Population Biobank Studies: A Practical Guide written by Zhengming Chen and published by Springer Nature. This book was released on 2020-12-09 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes some of the key epidemiological principles, scientific approaches and quality assurance frameworks required to design and conduct biobank studies in various settings. Using examples from contemporary biobanks, the book addresses the design features and practical procedures needed in order to launch and manage biobank studies, including consent and regulatory approval, the organisation of field work, management of data and biological samples, follow-up and verification of disease outcomes, development of IT systems for data collection, quality assurance and study management. Over the last two decades, several large biobank studies have been initiated in different populations, intended to greatly enhance the development of precision medicine. Contemporary biobank studies are extremely large and complex, and involve several decades of follow-up. Such studies pose major challenges in terms of ensuring rapid recruitment, obtaining high-quality data, minimising loss to follow-up, reliably classifying disease outcomes, and optimising the use of the biological samples collected. In this regard, the key to success lies not in planning the perfect study, but in planning the most appropriate, reliable, sustainable and future-proof study given the practical constraints of available resources, time and capacity. The authors of this handbook are epidemiologists, clinicians, software engineers, and laboratory and data scientists with extensive experience in conducting large biobank studies. The eight chapters can be read separately or together, and provide readers with essential information on how to design, implement and manage these studies. The state-of-the-art, innovative and scalable approaches and methodologies presented here are intended to stimulate the development of further population-based and hospital-based biobank studies in diverse populations.

Principles and Practice in Biobank Governance

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Author :
Publisher : Routledge
ISBN 13 : 1317075889
Total Pages : 317 pages
Book Rating : 4.3/5 (17 download)

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Book Synopsis Principles and Practice in Biobank Governance by : Mark Stranger

Download or read book Principles and Practice in Biobank Governance written by Mark Stranger and published by Routledge. This book was released on 2016-04-15 with total page 317 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Biobanking of Human Biospecimens

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Author :
Publisher : Springer
ISBN 13 : 3319551205
Total Pages : 240 pages
Book Rating : 4.3/5 (195 download)

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Book Synopsis Biobanking of Human Biospecimens by : Pierre Hainaut

Download or read book Biobanking of Human Biospecimens written by Pierre Hainaut and published by Springer. This book was released on 2017-06-06 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume is the first comprehensive text on human biobanking, authored by scientists and regulatory officers who have led the field over the past 10 years. It covers biobanking issues and its importance in advancing the field of research in cancer, cardiovascular, metabolic, and other diseases. Biobanks of human specimens have become the cornerstone for research on human health that harnesses the power of “omics” technologies to identify biomarkers for disease susceptibility. Biobanks are an essential component of the development of personalized medicine, which relies on the molecular analysis of biospecimens that are truly representative of individuals and of diseases. Over the past decade, biobanking has been the focus of major investments and developments aimed at developing appropriate infrastructure, methods, networking practice and evidence-based pre-analytical procedures. This volume explores topics including specimen storage, protocol design, specimen collection, pre-analytical processing and preservation, long-term storage, retrieval and separation, and distribution to analytical laboratory platforms. These activities are extremely complex and are essential for biomedical and biotechnological developments and this text provides critical information about biobanking for the development of future forms of medicine.​

Biobanks and Tissue Research

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Publisher : Springer Science & Business Media
ISBN 13 : 9400716737
Total Pages : 240 pages
Book Rating : 4.4/5 (7 download)

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Book Synopsis Biobanks and Tissue Research by : Christian Lenk

Download or read book Biobanks and Tissue Research written by Christian Lenk and published by Springer Science & Business Media. This book was released on 2011-07-30 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.

Methods in Biobanking

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Publisher : Humana Press
ISBN 13 : 9781588299956
Total Pages : 0 pages
Book Rating : 4.2/5 (999 download)

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Book Synopsis Methods in Biobanking by : Joakim Dillner

Download or read book Methods in Biobanking written by Joakim Dillner and published by Humana Press. This book was released on 2010-10-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: International biobank collaborations allow for studies with large number of subjects where generalizability of findings across populations can be investigated, which means establishing quality criteria concerning the nature of the sample, conditions of sample storage, and the adequacy of available information is of vital importance. Methods in Biobanking brings together contributions from experts in the field in order to aid in the establishment of this much needed consistency. The volume discusses how to use existing collections of biological material to answer significant questions concerning the cause of disease without violating the personal integrity of participating sample donors, the ethical issues surrounding biobanks, guidelines for the use of coding systems and the use of biocomputing and registry linkages in research projects, as well as many other key subjects. As a volume in the highly successful Methods in Molecular BiologyTM series, this collection provides the kind of detailed description and implementation advice that is crucial for getting optimal results. Authoritative and cutting-edge, Methods in Biobanking seeks to provide scientists with the tools necessary to take advantage of the tremendous current resources of the world’s biobanks and strengthen those resources for the future.

Population Biobanks and Access

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Author :
Publisher :
ISBN 13 :
Total Pages : 8 pages
Book Rating : 4.:/5 (13 download)

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Book Synopsis Population Biobanks and Access by : Bartha Knoppers

Download or read book Population Biobanks and Access written by Bartha Knoppers and published by . This book was released on 2015 with total page 8 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic research gained a new momentum with the completion of the Human Genome Project in 2003. Formerly entered on the investigation of single-genes research, genetics now targets the whole genome, its environment and the impact on genomic variation. Indeed, increasing our understanding of common disease risk and human health, population genomics draws on basic data on genomic variation and on lifestyle behaviours and environmental factors. But, the study of normal genomic variation across whole populations requires the collection of data and biological samples from individuals on a longitudinal scale. Consequently, in Canada and the rest of the world, large-scale biobanking initiatives have emerged. As for the participants in these population biobanks, they provide DNA and personal information with no individual benefit and are followed up over time through recontact and access to administrative health record systems. The benefits are systemic: better disease/health research, targeted drug delivery and improved health care programs based on an understanding of the role of the environment in the expression of genetic risk factors. However, achieving these goals requires statistical power and, in order to do so, sharing data across studies and countries is crucial. This chapter will first examine, from an international perspective, how the importance of access is reflected in different national legislation and international guidelines. Secondly, taking the example of CARTaGENE, a Quebec population biobank, we will demonstrate how the novel and complex nature of population longitudinal studies is interacting with the ethics governance surrounding access and how this uneasy, but nonetheless mandatory, relationship can sometimes risk defeating the very purpose of a resource, facilitating good science.

Epidemiological Studies: A Practical Guide

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Publisher : Oxford University Press
ISBN 13 : 0192546317
Total Pages : 305 pages
Book Rating : 4.1/5 (925 download)

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Book Synopsis Epidemiological Studies: A Practical Guide by : Alan J. Silman

Download or read book Epidemiological Studies: A Practical Guide written by Alan J. Silman and published by Oxford University Press. This book was released on 2018-10-18 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: To successfully conduct an epidemiological study, academic subject knowledge must be combined with careful consideration of the practical elements involved. From an academic perspective, insights into the basis of epidemiology, the concepts behind how we study diseases, and the challenges and limitations of the results that emerge are prioritised. However, the success of the academic analysis depends on how, when, and where the data used is collected. Epidemiological Studies: A Practical Guide focuses on the practical challenges of epidemiological data collection. Essential topics, such as how to choose the population to study, how to maximise participation and retention, and how to frame questions so that subjects provide the information required, are the core of the material presented. The book explains the skills needed to conduct a study where data is collected and presented accurately, and in appropriate formats. In addition to presenting a step-by-step guide to epidemiological investigations, the chapters in the book are accompanied by examples of how to phrase the letters and forms needed for each stage of conducting a study. Focusing on measurement, study designs, statistics, methodological issues, and key skills, the book provides a valuable background to epidemiological study. With detailed tables and figures, a clear chapter outline, and a straightforward index, the information presented is easily accessible and can quickly be applied to the reader's own work. Extensively revised, this new edition includes updates on case-crossover, Mendelian randomisation, and case-cohort. New chapters have been added to reflect the areas a student is now likely to encounter in an introductory epidemiological course, such as evidence synthesis, use of routine data, association or causation, feasibility, and pilot studies. Epidemiological Studies: A Practical Guide is ideal for students in epidemiology, public health, health research, and health services research. It is also highly relevant to post-graduate research students, and early stage clinical and non-clinical researchers.

Manual of Biobank Quality Management

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Author :
Publisher : Springer
ISBN 13 : 9783031125614
Total Pages : 0 pages
Book Rating : 4.1/5 (256 download)

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Book Synopsis Manual of Biobank Quality Management by : Agnieszka Matera-Witkiewicz

Download or read book Manual of Biobank Quality Management written by Agnieszka Matera-Witkiewicz and published by Springer. This book was released on 2024-02-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This pioneering handbook serves as an essential tool for any biobanking entity to create, implement and continuously improve their Quality Management System (QMS). Written in a concise and highly readable manner all biobanking related QMS aspects, ranging from legal aspects to safety matters, are addressed according to the best knowledge in compliance with the dedicated Biobanks ISO standards. Following a practical approach by making use of FAQ and common practice sections this book guides the readers through this complex field in an easy-to understand way. The guidelines are convergent not only with ISO 20387:2018 Biotechnology - Biobanking - General requirements for biobanking but also with ISO 9001:2015, ISO 19011:2018, ISO 27000:2014, and ISO 27002:2013. Furthermore, they are compatible, among others with the recommendations of the Organization for Economic Cooperation and Development (OECD), IARC, and ISBER Best Practices. Aimed at both biobank employees and other stakeholders (e.g. public bodies, political bodies, hospitals, pharmaceutical industry, funders) at any level of experience the book serves as valuable source for self-education and teaching. The manual complies to the principles of responsibility, openness, and transparency and can be used by any biobanking unit regardless of the biological material the biobank operates with and independent of their associated biobank network. On behalf of a group of specialists and experts in the area of biobanking, regarding Quality Management Systems (QMS), Ethical, Legal and Societal Issues (ELSI) and IT solutions, the authors present with this book a significant achievement based on activities within the project, European Research Infrastructure BBMRI-ERIC „Quality Standards for Polish Biobanks” Handbook (QSPB).

Practical Guide to Hereditary Breast and Ovarian Cancer

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Author :
Publisher : Springer Nature
ISBN 13 : 981995231X
Total Pages : 147 pages
Book Rating : 4.8/5 (199 download)

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Book Synopsis Practical Guide to Hereditary Breast and Ovarian Cancer by : Daisuke Aoki

Download or read book Practical Guide to Hereditary Breast and Ovarian Cancer written by Daisuke Aoki and published by Springer Nature. This book was released on 2023-12-02 with total page 147 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book shares cutting-edge evidence on Hereditary Breast and Ovarian Cancer (HBOC) treatment, delivering facts on breast cancer, gynecologic oncology, and basic research to contribute to clinicians' practices. Each chapter presents the latest clinical techniques, basic experimental results, and the best-chosen research findings. The book is based on the works presented at the Japanese Organization of Hereditary Brest and Ovarian Cancer (JOHBOC) and a special chapter delivers a study based on the extensive data from the Japanese HBOC patients registered in the society's database, presenting novel evidence for further advancement in the field. The practice for HBOC has been rapidly increasing due to the clinical development of poly(ADP-ribose) polymerase inhibitors and the spread of companion diagnostics. In addition, the insurance coverage of a part of HBOC treatment raised social awareness in Japan, and the book illustrates not only clinical efforts but also issues related to the social system and the efforts of the association of related organizations. Hereditary Breast and Ovarian Cancer – Annual meeting of JOHBOC will be of interest to breast surgeons, obstetricians and gynecologists, pancreatic cancer surgeons, and urologists engaged in HBOC treatment through the implementation of companion diagnostics for PARP inhibitors administration. Also, physicians occupied in genetic medicine who perform genetic testing and medical staff practicing HBOC will find this book insightful. It is also for HBOC patients and their families, medical administrators in the social system of HBOC practice. Editors and authors hope to contribute to the equalization and widespread of HBOC practice and serve as a foundation for future advances in the disease's treatment and medical practice.

Health Informatics: Practical Guide for Healthcare and Information Technology Professionals (Fifth Edition)

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Author :
Publisher : Lulu.com
ISBN 13 : 1105437558
Total Pages : 492 pages
Book Rating : 4.1/5 (54 download)

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Book Synopsis Health Informatics: Practical Guide for Healthcare and Information Technology Professionals (Fifth Edition) by : Robert E Hoyt

Download or read book Health Informatics: Practical Guide for Healthcare and Information Technology Professionals (Fifth Edition) written by Robert E Hoyt and published by Lulu.com. This book was released on 2012 with total page 492 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health Informatics (HI) focuses on the application of information technology (IT) to the field of medicine to improve individual and population healthcare delivery, education and research. This extensively updated fifth edition reflects the current knowledge in Health Informatics and provides learning objectives, key points, case studies and references. Topics include: HI Overview; Healthcare Data, Information, and Knowledge; Electronic Health Records, Practice Management Systems; Health Information Exchange; Data Standards; Architectures of Information Systems;Health Information Privacy and Security; HI Ethics; Consumer HI; Mobile Technology; Online Medical Resources; Search Engines; Evidence-Based Medicine and Clinical Practice Guidelines; Disease Management and Registries; Quality Improvement Strategies; Patient Safety; Electronic Prescribing; Telemedicine; Picture Archiving and Communication Systems; Bioinformatics; Public HI; E-Research. Available as a printed copy and E-book.

Handbook of Digital Technologies in Movement Disorders

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Publisher : Elsevier
ISBN 13 : 0323994954
Total Pages : 366 pages
Book Rating : 4.3/5 (239 download)

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Book Synopsis Handbook of Digital Technologies in Movement Disorders by : Roongroj Bhidayasiri

Download or read book Handbook of Digital Technologies in Movement Disorders written by Roongroj Bhidayasiri and published by Elsevier. This book was released on 2024-01-20 with total page 366 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the past few years, there have been fundamental changes in the diagnosing and treating patients with chronic diseases, significantly affecting management of neurological movement disorders. In addition, the health and fitness sector developed several devices to better classify, track, and potentially treat chronic diseases. Both handling and interpreting these large datasets has been revolutionized, by machine and deep learning approaches, leading to new and more effective therapies, resulting in longer survival rates. Handbook of Digital Technologies in Movement Disorders aims to unite these factors to provide a comprehensive guide to patient focused treatments for movement disorders. This book is divided into five distinct sections, starting with an introduction to digital technologies, concepts, and terminologies. The following section reviews various perspectives on technology in movement disorders, including patient and medical professionals. The third section presents technologies used in detecting, measuring progression, and determining response to treatments. This is followed by reviewing the technology used in various treatments of movement disorders including assistive and robotic technologies. Finally, the last section examines the challenges with technology including privacy and other ethical issues. Reviews different stakeholders' perspectives on technology in movement disorders Presents technological advancements for diagnosing, monitoring, and managing Parkinson’s disease Discusses challenges with implementing technology into treatment

A Researcher's Guide to Using Electronic Health Records

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Author :
Publisher : CRC Press
ISBN 13 : 1000908887
Total Pages : 436 pages
Book Rating : 4.0/5 (9 download)

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Book Synopsis A Researcher's Guide to Using Electronic Health Records by : Neal D. Goldstein

Download or read book A Researcher's Guide to Using Electronic Health Records written by Neal D. Goldstein and published by CRC Press. This book was released on 2023-07-25 with total page 436 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an age when electronic health records (EHRs) are an increasingly important source of data, this essential textbook provides both practical and theoretical guidance to researchers conducting epidemiological or clinical analysis through EHRs. Split into three parts, the book covers the research journey from start to finish. Part 1 focuses on the challenges inherent when working with EHRs, from access to data management, and raising issues such as completeness and accuracy which impact the validity of any research project. Part 2 examines the core research process itself, with chapters on research design, sampling, and analysis, as well as emerging methodological techniques. Part 3 demonstrates how EHR research can be made meaningful, from presentation to publication, and includes how findings can be applied to real-world issues of public health. Supported by case studies throughout, and applicable across a range of research software programs (including R, SPSS, and SAS), this is the ideal text for students and researchers engaging with EHRs across epidemiological and clinical research.

Health Informatics: Practical Guide for Healthcare and Information Technology Professionals (Sixth Edition)

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Author :
Publisher : Lulu.com
ISBN 13 : 1304791106
Total Pages : 535 pages
Book Rating : 4.3/5 (47 download)

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Book Synopsis Health Informatics: Practical Guide for Healthcare and Information Technology Professionals (Sixth Edition) by : Robert E. Hoyt

Download or read book Health Informatics: Practical Guide for Healthcare and Information Technology Professionals (Sixth Edition) written by Robert E. Hoyt and published by Lulu.com. This book was released on 2014 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health Informatics (HI) focuses on the application of Information Technology (IT) to the field of medicine to improve individual and population healthcare delivery, education and research. This extensively updated fifth edition reflects the current knowledge in Health Informatics and provides learning objectives, key points, case studies and references.

Ethical Issues in Clinical Research

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Author :
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1451152779
Total Pages : 302 pages
Book Rating : 4.4/5 (511 download)

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Book Synopsis Ethical Issues in Clinical Research by : Bernard Lo

Download or read book Ethical Issues in Clinical Research written by Bernard Lo and published by Lippincott Williams & Wilkins. This book was released on 2012-03-28 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book teaches researchers how to resolve the ethical dilemmas that can arise at any stage in clinical research. In addition to explaining pertinent regulations and laws, Dr. Lo helps investigators understand the gaps and uncertainties in regulations, as well as situations in which merely complying with the law may not fulfill ethical responsibilities. Most chapters include real-life examples that the author walks through, discussing the salient issues and how to approach them. This book can be used in courses on research ethics that are required or encouraged by major National Institutes of Health grants in academic health centers.

Health Informatics: Practical Guide Seventh Edition

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Author :
Publisher : Lulu.com
ISBN 13 : 1387642413
Total Pages : 488 pages
Book Rating : 4.3/5 (876 download)

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Book Synopsis Health Informatics: Practical Guide Seventh Edition by : William R. Hersh

Download or read book Health Informatics: Practical Guide Seventh Edition written by William R. Hersh and published by Lulu.com. This book was released on 2018 with total page 488 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health informatics is the discipline concerned with the management of healthcare data and information through the application of computers and other information technologies. The field focuses more on identifying and applying information in the healthcare field and less on the technology involved. Our goal is to stimulate and educate healthcare and IT professionals and students about the key topics in this rapidly changing field. This seventh edition reflects the current knowledge in the topics listed below and provides learning objectives, key points, case studies and extensive references. Available as a paperback and eBook. Visit the textbook companion website at http://informaticseducation.org for more information.--Page 4 de la couverture.

A Practical Guide to Drug Development in Academia

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Author :
Publisher : Springer Nature
ISBN 13 : 3031347242
Total Pages : 276 pages
Book Rating : 4.0/5 (313 download)

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Book Synopsis A Practical Guide to Drug Development in Academia by : Daria Mochly-Rosen

Download or read book A Practical Guide to Drug Development in Academia written by Daria Mochly-Rosen and published by Springer Nature. This book was released on 2023-11-06 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A lot of hard-won knowledge is laid out here in a brief but informative way. Every topic is well referenced, with citations from both the primary literature and relevant resources from the internet." Review of first edition from Nature Chemical Biology Written by the founders of the SPARK program at Stanford University, this book is a practical guide designed for professors, students and clinicians at academic research institutions who are interested in learning more about the drug development process and how to start transforming their basic research discoveries into novel drugs. Often many potentially transformative basic science discoveries are not pursued because they are deemed ‘too early’ to attract industry interest. This comprehensive book lays out simple, relatively cost-effective things that academic researchers can do to advance their findings to the point that they can be tested in the clinic or attract more industry interest. Each chapter broadly discusses an important topic in drug development, from discovery, optimization and preclinical studies through clinical trial design, regulatory issues and marketing assessments. After the practical overview provided here, the reader is encouraged to consult more detailed texts on specific topics of interest. The SPARK model has been adopted in over 60 institutions on six continents, and the program has been honored with multiple awards including the 2020 Xconomy Award for Ecosystem Development, the 2020 Cures Within Reach Award for Patient Impact Research, and the 2022 California Life Sciences Pantheon Award for Academia, Non-Profits, & Research. The new edition updates every chapter with the latest developments since the 2014 publication of the first edition.

Conducting Biosocial Surveys

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Author :
Publisher : National Academies Press
ISBN 13 : 0309157064
Total Pages : 124 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Conducting Biosocial Surveys by : National Research Council

Download or read book Conducting Biosocial Surveys written by National Research Council and published by National Academies Press. This book was released on 2010-10-02 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent years have seen a growing tendency for social scientists to collect biological specimens such as blood, urine, and saliva as part of large-scale household surveys. By combining biological and social data, scientists are opening up new fields of inquiry and are able for the first time to address many new questions and connections. But including biospecimens in social surveys also adds a great deal of complexity and cost to the investigator's task. Along with the usual concerns about informed consent, privacy issues, and the best ways to collect, store, and share data, researchers now face a variety of issues that are much less familiar or that appear in a new light. In particular, collecting and storing human biological materials for use in social science research raises additional legal, ethical, and social issues, as well as practical issues related to the storage, retrieval, and sharing of data. For example, acquiring biological data and linking them to social science databases requires a more complex informed consent process, the development of a biorepository, the establishment of data sharing policies, and the creation of a process for deciding how the data are going to be shared and used for secondary analysis-all of which add cost to a survey and require additional time and attention from the investigators. These issues also are likely to be unfamiliar to social scientists who have not worked with biological specimens in the past. Adding to the attraction of collecting biospecimens but also to the complexity of sharing and protecting the data is the fact that this is an era of incredibly rapid gains in our understanding of complex biological and physiological phenomena. Thus the tradeoffs between the risks and opportunities of expanding access to research data are constantly changing. Conducting Biosocial Surveys offers findings and recommendations concerning the best approaches to the collection, storage, use, and sharing of biospecimens gathered in social science surveys and the digital representations of biological data derived therefrom. It is aimed at researchers interested in carrying out such surveys, their institutions, and their funding agencies.