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Participants And Participation
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Book Synopsis Ethical Conduct of Clinical Research Involving Children by : Institute of Medicine
Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Book Synopsis The Participant by : Christopher M. Kelty
Download or read book The Participant written by Christopher M. Kelty and published by University of Chicago Press. This book was released on 2020-01-21 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participation is everywhere today. It has been formalized, measured, standardized, scaled up, network-enabled, and sent around the world. Platforms, algorithms, and software offer to make participation easier, but new technologies have had the opposite effect. We find ourselves suspicious of how participation extracts our data or monetizes our emotions, and the more procedural participation becomes, the more it seems to recede from our grasp. In this book, Christopher M. Kelty traces four stories of participation across the twentieth century, showing how they are part of a much longer-term problem in relation to the individual and collective experience of representative democracy. Kelty argues that in the last century or so, the power of participation has dwindled; over time, it has been formatted in ways that cramp and dwarf it, even as the drive to participate has spread to nearly every kind of human endeavor, all around the world. The Participant is a historical ethnography of the concept of participation, investigating how the concept has evolved into the form it takes today. It is a book that asks, “Why do we participate?” And sometimes, “Why do we refuse?”
Book Synopsis Participatory Action Research by : Alice McIntyre
Download or read book Participatory Action Research written by Alice McIntyre and published by SAGE. This book was released on 2008 with total page 105 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participatory Action Research (PAR) introduces a method that is ideal for researchers who are committed to co-developing research programs with people rather than for people. The book provides a history of this technique, its various strands, and the underlying tenets that guide most projects. It then draws on two PAR projects that highlight three integral dimensions: the meaning of participation; the way action manifests itself; and the strategies for gathering, analyzing, and disseminating information. Author Alice McIntyre describes the various ways in which PAR is carried out depending on, for example, the issue under investigation, the site of the project, the project participants, people's access to resources, and other related issues. Intended Audience: This resource is an ideal supplement for graduate courses PAR, qualitative research, and various types of action-based research.
Book Synopsis Participatory Action Research by : William Foote Whyte
Download or read book Participatory Action Research written by William Foote Whyte and published by SAGE Publications, Incorporated. This book was released on 1991 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Through a rejection of the traditional separation between the researcher and the research setting, this volume discusses a philosophy in which the researcher is fully involved in the process of organizational learning and change. William Foote Whyte and his collaborators outline the theory and methods behind participatory action research, weigh up its strengths and weaknesses and then present cases where this research strategy has been used in both industry and agriculture from a variety of countries on four continents.
Book Synopsis Physical Disability and Sexuality by : Xanthe Hunt
Download or read book Physical Disability and Sexuality written by Xanthe Hunt and published by Springer Nature. This book was released on 2021-02-08 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access edited volume explores physical disability and sexuality in South Africa, drawing on past studies, new research conducted by the editors, and first-person narratives from people with physical disabilities in the country. Sexuality has long been a site of oppression and discrimination for people with disabilities based on myths and misconceptions, and this book explores how these play out for people with physical disabilities in the South African setting. One myth with which the book is centrally concerned, is that people with disabilities are unable to have sex, or are seen as lacking sexuality by society at large. Societal understandings of masculinity, femininity, bodies and attractiveness, often lead people with physical disabilities to be seen as being undesirable romantic or sexual partners. The contributions in this volume explore how these prevailing social conditions impact on the access to sexual and reproductive healthcare, involvement in romantic relationships, childbearing, and sexual citizenship as a whole, of people with physical disabilities in the Western Cape of the country. The authors' research, and first person contributions by people with physical disabilities themselves, suggest that education and public health policy must change, if the sexual and reproductive health rights and full inclusion of people with disabilities are to be achieved.
Book Synopsis The Participation Gap by : Russell J. Dalton
Download or read book The Participation Gap written by Russell J. Dalton and published by Oxford University Press. This book was released on 2017-10-06 with total page 254 pages. Available in PDF, EPUB and Kindle. Book excerpt: The dilemma of democracy arises from two contrasting trends. More people in the established democracies are participating in civil society activity, contacting government officials, protesting, and using online activism and other creative forms of participation. At the same time, the importance of social status as an influence on political activity is increasing. The democratic principle of the equality of voice is eroding. The politically rich are getting richer-and the politically needy have less voice. This book assembles an unprecedented set of international public opinion surveys to identify the individual, institutional, and political factors that produce these trends. New forms of activity place greater demands on participants, raising the importance of social status skills and resources. Civil society activity further widens the participation gap. New norms of citizenship shift how people participate. And generational change and new online forms of activism accentuate this process. Effective and representative government requires a participatory citizenry and equal voice, and participation trends are undermining these outcomes. The Participation Gap both documents the growing participation gap in contemporary democracies and suggests ways that we can better achieve their theoretical ideal of a participatory citizenry and equal voice.
Book Synopsis A Restless Art by : François Matarasso
Download or read book A Restless Art written by François Matarasso and published by . This book was released on 2019 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: From the contents:00I. Participatory art now01. The normalisation of participatory art 0II. What is participatory art?02. Concepts03. Defnitions04. The intentions of participatory art 05. The art of participatory art 06. The ethics of participatory art 0III. Where does participatory art come from?07. Making history 08. Deep roots 09. Community art and the cultural revolution (1968 to 1988) 010. Participatory art and appropriation (1988 to 2008).
Book Synopsis Identity and the Museum Visitor Experience by : John H Falk
Download or read book Identity and the Museum Visitor Experience written by John H Falk and published by Routledge. This book was released on 2016-06-16 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing upon a career in studying museum visitors, renowned researcher John Falk attempts to create a predictive model of visitor experience, one that can help museum professionals better meet those visitors’ needs.
Book Synopsis Women and Health Research by : Institute of Medicine
Download or read book Women and Health Research written by Institute of Medicine and published by National Academies Press. This book was released on 1994-02-01 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the nineteenth century some scientists argued that women should not be educated because thinking would use energy needed by the uterus for reproduction. The proof? Educated women had a lower birth rate. Today's researchers can only shake their heads at such reasoning. Yet professional journals and the popular press are increasingly criticizing medical research for ignoring women's health issues. Women and Health Research examines the facts behind the public's perceptions about women participating as subjects in medical research. With the goal of increasing researchers' awareness of this important topic, the book explores issues related to maintaining justice (in its ethical sense) in clinical studies. Leading experts present general principles for the ethical conduct of research on womenâ€"principles that are especially important in the light of recent changes in federal policy on the inclusion of women in clinical research. Women and Health Research documents the historical shift from a paternalistic approach by researchers toward women and a disproportionate reliance on certain groups for research to one that emphasizes proper access for women as subjects in clinical studies in order to ensure that women receive the benefits of research. The book addresses present-day challenges to equity in four areas: Scientificâ€"Do practical aspects of scientific research work at cross-purposes to gender equity? Focusing on drug trials, the authors identify rationales for excluding people from research based on demographics. Social and Ethicalâ€"The authors offer compelling discussions on subjectivity in science, the evidence for male bias, and issues related to race and ethnicity, as well as the recruitment, retention, and protection of research participants. Legalâ€"Women and Health Research reviews federal research policies that affect the inclusion of women and evaluates the basis for researchers' fears about liability, citing court cases. Riskâ€"The authors focus on risks to reproduction and offspring in clinical drug trials, exploring how risks can be identified for study participants, who should make the assessment of risk and benefit for participation in a clinical study, and how legal implications could be addressed. This landmark study will be of immediate use to the research community, policymakers, women's health advocates, attorneys, and individuals.
Book Synopsis The Participatory Museum by : Nina Simon
Download or read book The Participatory Museum written by Nina Simon and published by Museum 2.0. This book was released on 2010 with total page 391 pages. Available in PDF, EPUB and Kindle. Book excerpt: Visitor participation is a hot topic in the contemporary world of museums, art galleries, science centers, libraries and cultural organizations. How can your institution do it and do it well? The Participatory Museum is a practical guide to working with community members and visitors to make cultural institutions more dynamic, relevant, essential places. Museum consultant and exhibit designer Nina Simon weaves together innovative design techniques and case studies to make a powerful case for participatory practice. "Nina Simon's new book is essential for museum directors interested in experimenting with audience participation on the one hand and cautious about upending the tradition museum model on the other. In concentrating on the practical, this book makes implementation possible in most museums. More importantly, in describing the philosophy and rationale behind participatory activity, it makes clear that action does not always require new technology or machinery. Museums need to change, are changing, and will change further in the future. This book is a helpful and thoughtful road map for speeding such transformation." -Elaine Heumann Gurian, international museum consultant and author of Civilizing the Museum "This book is an extraordinary resource. Nina has assembled the collective wisdom of the field, and has given it her own brilliant spin. She shows us all how to walk the talk. Her book will make you want to go right out and start experimenting with participatory projects." -Kathleen McLean, participatory museum designer and author of Planning for People in Museum Exhibitions "I predict that in the future this book will be a classic work of museology." --Elizabeth Merritt, founding director of the Center for the Future of Museums
Book Synopsis Learning in the Museum by : George E. Hein
Download or read book Learning in the Museum written by George E. Hein and published by Routledge. This book was released on 2002-09-11 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learning in the Museum examines major issues and shows how research in visitor studies and the philosophy of education can be applied to facilitate a meaningful educational experience in museums. Hein combines a brief history of education in public museums, with a rigorous examination of how the educational theories of Dewey, Piaget, Vygotsky and subsequent theorists relate to learning in the museum. Surveying a wide range of research methods employed in visitor studies is illustrated with examples taken from museums around the world, Hein explores how visitors can best learn from exhibitions which are physically, socially, and intellectually accessible to every single visitor. He shows how museums can adapt to create this kind of environment, to provide what he calls the 'constructivist museum'. Providing essential theoretical analysis for students, this volume also serves as a practical guide for all museum professionals on how to adapt their museums to maximize the educational experience of every visitor.
Book Synopsis The Aftermaths of Participation by : Susanne Boersma
Download or read book The Aftermaths of Participation written by Susanne Boersma and published by transcript Verlag. This book was released on 2022-12-31 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: How do participatory museum projects with forced migrants impact both the museum and the participants? What happens during these projects and what is left of them afterwards? Based on interviews with museum practitioners, facilitators and project participants, Susanne Boersma brings together unique insights into museum work with forced migrants. Her study of participatory projects in Germany, the Netherlands and the UK reveals museums' limiting infrastructures, the shortcomings of their ethical frameworks, and the problems of addressing forced migrants as 'communities'. Outlining the diverging objectives, experiences and outcomes of participatory projects, she suggests how these might be united in practice.
Book Synopsis Student Participation in Online Discussions by : Khe Foon Hew
Download or read book Student Participation in Online Discussions written by Khe Foon Hew and published by Springer Science & Business Media. This book was released on 2012-06-13 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: The increasingly prevalent use of online- or blended-learning in schools universities has resulted in asynchronous online discussion forum becoming an increasingly common means to facilitate dialogue between instructors and students, as well as students and students beyond the boundaries of their physical classrooms. This proposed academic book contributes to the literature on asynchronous online discussions in the following three main ways: First, it reviews previous research studies in order to identify the factors leading to limited student contribution. Limited student contribution is defined as students making few or no postings, students exhibiting surface-level thinking or students demonstrating low-level knowledge construction in online discussions. It then identifies the various empirically-based guidelines to address the factors. Second, three potential guideline dilemmas that educators may encounter: (a) use of grades, (b) use of number of posting guideline, and (c) instructor-facilitation are introduced. These are guidelines where previous empirical research shows mixed results when they are implemented. Acknowledging the dilemmas is essential for educators and researchers to make informed decisions about the discussion guidelines they are considering implementing. Third, nine exploratory case studies related to student-facilitation and audio-based discussion are reported on and examined. Using students as facilitators may be an alternative solution to educators who wish to avoid the instructor-facilitation guideline dilemma. Using audio discussion would be useful for participants with poor typing skills or those who prefer talking to typing. The proposed book is distinctive in comparison to current competitor titles because all the findings and guidelines are empirically-based. Furthermore, the nine expanded case studies provided specifically address the issue of student/peer facilitation and audio-based discussion. Student/peer facilitation and audio discussion are two areas that hitherto received comparatively lesser attention compared to instructor facilitation and text-based discussion.
Book Synopsis The Impact of Personality on Participation Decisions in Surveys by : Denise Saßenroth
Download or read book The Impact of Personality on Participation Decisions in Surveys written by Denise Saßenroth and published by Springer Science & Business Media. This book was released on 2013-05-13 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increasing nonresponse rates in surveys are a matter of concern internationally, as low response rates put the quality of survey data into question. The risk of biased data is high if nonrespondents differ significantly from respondents. In arguing that sample persons’ personality traits are decisive in survey participation decisions, Denise Saßenroth investigates the mechanisms causing increasing nonresponse rates. Based on a modification of the Social Isolation Hypothesis, she analyses the impact of sample persons’ personality on participation decisions with data from the German General Social Survey and the LISS Panel from the Netherlands.
Book Synopsis This Is Service Design Doing by : Marc Stickdorn
Download or read book This Is Service Design Doing written by Marc Stickdorn and published by "O'Reilly Media, Inc.". This book was released on 2018-01-02 with total page 1156 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can you establish a customer-centric culture in an organization? This is the first comprehensive book on how to actually do service design to improve the quality and the interaction between service providers and customers. You'll learn specific facilitation guidelines on how to run workshops, perform all of the main service design methods, implement concepts in reality, and embed service design successfully in an organization. Great customer experience needs a common language across disciplines to break down silos within an organization. This book provides a consistent model for accomplishing this and offers hands-on descriptions of every single step, tool, and method used. You'll be able to focus on your customers and iteratively improve their experience. Move from theory to practice and build sustainable business success.
Book Synopsis Community-based Participatory Research by : United States. Agency for Healthcare Research and Quality
Download or read book Community-based Participatory Research written by United States. Agency for Healthcare Research and Quality and published by . This book was released on 2004 with total page 8 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Envisioning a Transformed Clinical Trials Enterprise in the United States by : Institute of Medicine
Download or read book Envisioning a Transformed Clinical Trials Enterprise in the United States written by Institute of Medicine and published by National Academies Press. This book was released on 2012-09-13 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is growing recognition that the United States' clinical trials enterprise (CTE) faces great challenges. There is a gap between what is desired - where medical care is provided solely based on high quality evidence - and the reality - where there is limited capacity to generate timely and practical evidence for drug development and to support medical treatment decisions. With the need for transforming the CTE in the U.S. becoming more pressing, the IOM Forum on Drug Discovery, Development, and Translation held a two-day workshop in November 2011, bringing together leaders in research and health care. The workshop focused on how to transform the CTE and discussed a vision to make the enterprise more efficient, effective, and fully integrated into the health care system. Key issue areas addressed at the workshop included: the development of a robust clinical trials workforce, the alignment of cultural and financial incentives for clinical trials, and the creation of a sustainable infrastructure to support a transformed CTE. This document summarizes the workshop.
