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Nord Resource Guide
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Author :National Organization for Rare Disorders Publisher :Lippincott Williams & Wilkins ISBN 13 :9780781730631 Total Pages :982 pages Book Rating :4.7/5 (36 download)
Book Synopsis NORD Guide to Rare Disorders by : National Organization for Rare Disorders
Download or read book NORD Guide to Rare Disorders written by National Organization for Rare Disorders and published by Lippincott Williams & Wilkins. This book was released on 2003 with total page 982 pages. Available in PDF, EPUB and Kindle. Book excerpt: NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.
Book Synopsis Rare Diseases and Orphan Products by : Institute of Medicine
Download or read book Rare Diseases and Orphan Products written by Institute of Medicine and published by National Academies Press. This book was released on 2011-04-03 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.
Book Synopsis Physicians' Guide to Rare Diseases by : Jess G. Thoene
Download or read book Physicians' Guide to Rare Diseases written by Jess G. Thoene and published by Dowden Publishing. This book was released on 1995 with total page 1056 pages. Available in PDF, EPUB and Kindle. Book excerpt: This classic reference, now with almost 900 disease descriptions, is edited by nationally known pediatrician Jess G. Thoene, M.D. & provides a quick, organized approach to identifying puzzling & unusual symptoms, giving patients the opportunity for early diagnosis & treatment. Special features include: * A full color atlas of visual clues, cross referenced to disease listings. * Thirteen separate specialty sections with an expert overview to introduce each section. Eminent clinicians from the outstanding research centers in rare diseases give you the current status of research & practical approaches to diagnosis & therapy of the rare diseases in that specialty. * Full reference to more than 250 orphan drugs. Each drug is cross referenced to the appropriate disease description. * Clear language for the Layperson. Though written for physicians, the descriptions of diseases, symptoms & treatments are clear & understandable for patients, educators & others outside the medical profession. Each disease description provides symptomatology, etiology, affected population & a comparison of related disorders. Each disease description contains a list of other resources to consult: voluntary agencies, units of the National Institutes of Health, research centers around the country, etc. Addresses & phone numbers are provided in a central reference. Library Journal: "...PHYSICIAN'S GUIDE...is recommended for medical collections & public libraries with consumer health collections."
Author :Agency for Healthcare Research and Quality/AHRQ Publisher :Government Printing Office ISBN 13 :1587634333 Total Pages :396 pages Book Rating :4.5/5 (876 download)
Book Synopsis Registries for Evaluating Patient Outcomes by : Agency for Healthcare Research and Quality/AHRQ
Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Book Synopsis Suggestions to Medical Authors and A.M.A. Style Book by : American Medical Association
Download or read book Suggestions to Medical Authors and A.M.A. Style Book written by American Medical Association and published by . This book was released on 1919 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Religion & American Education by : Warren A. Nord
Download or read book Religion & American Education written by Warren A. Nord and published by UNC Press Books. This book was released on 1995 with total page 512 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nord's thoughtful book tackles an issue of great importance in contemporary America--the proper place of religion in our public schools and universities. Nord's comprehensive study encompasses American history, constitutional law, educational theory and practice, theology and ethics.
Book Synopsis Orphan Drugs and Rare Diseases by : David C Pryde
Download or read book Orphan Drugs and Rare Diseases written by David C Pryde and published by Royal Society of Chemistry. This book was released on 2014 with total page 488 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides an up-to-date monograph on the drug discovery and regulatory elements of therapeutics used to treat rare or "orphan" diseases.
Download or read book Peace written by Miranda Paul and published by Simon and Schuster. This book was released on 2024-04-23 with total page 38 pages. Available in PDF, EPUB and Kindle. Book excerpt: “A valuable, necessary lesson that beautifully defines peace for children and their adults.”–School Library Journal, starred review A stunning and multicultural introduction to the concept of peace for young readers, now available in paperback. Peace is on purpose. Peace is a choice. Peace lets the smallest of us have a voice. From a hello and pronouncing your friend’s name correctly to giving more than you take and saying I’m sorry, this simple concept book explores definitions of peace and actions small and big that foster it. Award-winning authors, Baptiste Paul and Miranda Paul, have teamed up with illustrator Estelí Meza—winner of the ‘A la Orilla del Viento’ the premier Picture Book Contest Award in Mexico—to create an inspiring look at things we can all do to bring peace into our lives and world.
Book Synopsis Syndromes of the Head and Neck by : Robert J. Gorlin
Download or read book Syndromes of the Head and Neck written by Robert J. Gorlin and published by McGraw-Hill Companies. This book was released on 1976 with total page 846 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis A Field Guide to Medicinal Plants and Herbs of Eastern and Central North America by : Steven Foster
Download or read book A Field Guide to Medicinal Plants and Herbs of Eastern and Central North America written by Steven Foster and published by Houghton Mifflin Harcourt. This book was released on 2000 with total page 440 pages. Available in PDF, EPUB and Kindle. Book excerpt: At a time when interest in herbs and natural medicine has never been higher, the second edition of this essential guide shows how to identify more than 500 healing plants. 300+ color photos.
Book Synopsis Delimitation Equity Project Resource Guide by :
Download or read book Delimitation Equity Project Resource Guide written by and published by IFES. This book was released on with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Martindale written by Sean C. Sweetman and published by . This book was released on 2006-01-01 with total page 3335 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is thirty-fifth edition of Martindale, which provides reliable, and evaluated information on drugs and medicines used throughout the world. It contains encyclopaedic facts about drugs and medicines, with: 5,500 drug monographs; 128,000 preparations; 40,700 reference citations; 10,900 manufacturers. There are synopses of disease treatments which enables identification of medicines, the local equivalent and the manufacturer. It also Includes herbals, diagnostic agents, radiopharmaceuticals, pharmaceutical excipients, toxins, and poisons as well as drugs and medicines. Based on published information and extensively referenced
Book Synopsis The Mental Health Resource Guide by :
Download or read book The Mental Health Resource Guide written by and published by . This book was released on 2000 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Pulmonary Hypertension by : Gail Boyer Hayes
Download or read book Pulmonary Hypertension written by Gail Boyer Hayes and published by . This book was released on 2013-07-15 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fifth Edition, 2013 Revision. Pulmonary Hypertension: A Patient's Survival Guide serves as a soup-to-nuts resource book covering many of the questions patients and their loved ones might have about living with pulmonary hypertension. The book (350+ pages) includes topics like the mechanics of PH, the latest treatments, patient care and lifestyle issues.
Download or read book The Far Right Today written by Cas Mudde and published by John Wiley & Sons. This book was released on 2019-10-25 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: The far right is back with a vengeance. After several decades at the political margins, far-right politics has again taken center stage. Three of the world’s largest democracies – Brazil, India, and the United States – now have a radical right leader, while far-right parties continue to increase their profile and support within Europe. In this timely book, leading global expert on political extremism Cas Mudde provides a concise overview of the fourth wave of postwar far-right politics, exploring its history, ideology, organization, causes, and consequences, as well as the responses available to civil society, party, and state actors to challenge its ideas and influence. What defines this current far-right renaissance, Mudde argues, is its mainstreaming and normalization within the contemporary political landscape. Challenging orthodox thinking on the relationship between conventional and far-right politics, Mudde offers a complex and insightful picture of one of the key political challenges of our time.
Book Synopsis The Neuronal Ceroid Lipofuscinoses (Batten Disease) by : Sara Mole
Download or read book The Neuronal Ceroid Lipofuscinoses (Batten Disease) written by Sara Mole and published by OUP Oxford. This book was released on 2011-03-10 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: The neuronal ceroid lipofuscinoses are an extremely rare group of inherited neurodegenerative diseases that primarily affect children. Core symptoms of these conditions typically include epilepsy, cognitive decline and visual failure. These diseases are so rare that professionals who come into contact with them need a consultative reference work that enables them to become expert, or identify who to contact for more details. Fully updated and revised, this second edition continues to be the definitive volume on this devastating group of disorders. Written by an international collection of authorities in the field, it provides invaluable advice on their diagnosis, patient care, and new treatments that are available. This new edition of the definitive reference text on the neuronal ceroid lipofuscinoses will prove useful for clinicians, family physicians, research scientists, diagnostic laboratories, families affected by the disease as well as by workers in industry planning translational research.
Book Synopsis Rare Diseases Epidemiology: Update and Overview by : Manuel Posada de la Paz
Download or read book Rare Diseases Epidemiology: Update and Overview written by Manuel Posada de la Paz and published by Springer. This book was released on 2017-12-06 with total page 667 pages. Available in PDF, EPUB and Kindle. Book excerpt: The fields of rare diseases research and orphan products development continue to expand with more products in research and development status. In recent years, the role of the patient advocacy groups has evolved into a research partner with the academic research community and the bio-pharmaceutical industry. Unique approaches to research and development require epidemiological data not previously available to assist in protocol study design and patient recruitment for clinical trials required by regulatory agencies prior to approval for access by patents and practicing physicians.
