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Neurogenetic Diagnoses The Power Of Hope And The Limits Of Todays Medicine
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Book Synopsis Neurogenetic Diagnoses, the Power of Hope, and the Limits of Today’s Medicine by : Carole H. Browner
Download or read book Neurogenetic Diagnoses, the Power of Hope, and the Limits of Today’s Medicine written by Carole H. Browner and published by Routledge. This book was released on 2009-12-18 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: Amid intense debate over the consequences of decoding the human genome and the impact of such technology on our lives, these lucid, richly-textured, jargon-free case studies explore the diverse meanings and impacts of genetic diagnoses for patients enduring currently incurable, ultimately fatal neurodegenerative diseases -- and for their family caregivers and clinicians.
Book Synopsis Disclosure in Health and Illness by : Mark Davis
Download or read book Disclosure in Health and Illness written by Mark Davis and published by Routledge. This book was released on 2014-04-24 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt: Disclosure is a frequently used but rarely interrogated concept in health and social welfare. Abuse, disability, sexuality and health status can be ‘disclosed’ to peers and professionals, and on some occasions, disclosure is a requirement and not a choice. This innovative collection examines the new social and political implications of disclosure practices in health and illness. We make our identities and our connections with others by sharing life stories, experiences and innermost desires and are often asked to disclose facts about our lives, bodies and minds, at times with unintended consequences. Yet how and what, why and when people ‘disclose’ – and perceive, question and expose – and in what ways, has rarely received critical analytic attention. The contributors take up these problems by foregrounding the many shades of disclosure: from the secret, through the telling of diagnosis, to the more prosaic sharing of narratives from everyday life. The processes and implications of disclosing are addressed in areas such as: illness trajectories and end-of-life decisions; ethical research practices; medical procedures; and interpersonal relationships. Exploring the idea of disclosure as a moral imperative and a social act, this book offers a diverse range of empirical case studies, social theories and methodological insights to show how dominant and normative understandings of social relationships and their obligations shape our understanding of acts of disclosure, enquiry and exposure. It will be of interest to students and academics with an interest in narrative studies, medical anthropology, bioethics, health psychology, health studies and the sociology of health and illness.
Book Synopsis The Atomized Body by : Max Liljefors
Download or read book The Atomized Body written by Max Liljefors and published by Nordic Academic Press. This book was released on 2015-01-01 with total page 222 pages. Available in PDF, EPUB and Kindle. Book excerpt: Referring to the focus of the biosciences on molecular "particles" of the human biology, such as stem cells, genes, and neurons, this account examines the relationships between culture, society, and bioscientific research. Showing that the atomized body is indeed socially and culturally embedded, in plural and complex ways, it argues that biomedicine and biotechnology do not only intersect with the human body, but also reshape our perceptions of selfhood and life. From a multidisciplinary perspective, this volume explores the biosciences and the atomized body in their social, cultural, and philosophical contexts.
Book Synopsis Science and Democracy by : Stephen Hilgartner
Download or read book Science and Democracy written by Stephen Hilgartner and published by Routledge. This book was released on 2015-03-05 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the life sciences and beyond, new developments in science and technology and the creation of new social orders go hand in hand. In short, science and society are simultaneously and reciprocally coproduced and changed. Scientific research not only produces new knowledge and technological systems but also constitutes new forms of expertise and contributes to the emergence of new modes of living and new forms of exchange. These dynamic processes are tightly connected to significant redistributions of wealth and power, and they sometimes threaten and sometimes enhance democracy. Understanding these phenomena poses important intellectual and normative challenges: neither traditional social sciences nor prevailing modes of democratic governance have fully grappled with the deep and growing significance of knowledge-making in twenty-first century politics and markets. Building on new work in science and technology studies (STS), this book advances the systematic analysis of the coproduction of knowledge and power in contemporary societies. Using case studies in the new life sciences, supplemented with cases on informatics and other topics such as climate science, this book presents a theoretical framing of coproduction processes while also providing detailed empirical analyses and nuanced comparative work. Science and Democracy: Knowledge as Wealth and Power in the Biosciences and Beyond will be interesting for students of sociology, science & technology studies, history of science, genetics, political science, and public administration.
Book Synopsis An Anthropology of Biomedicine by : Margaret M. Lock
Download or read book An Anthropology of Biomedicine written by Margaret M. Lock and published by John Wiley & Sons. This book was released on 2018-01-09 with total page 687 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this fully revised and updated second edition of An Anthropology of Biomedicine, authors Lock and Nguyen introduce biomedicine from an anthropological perspective, exploring the entanglement of material bodies with history, environment, culture, and politics. Drawing on historical and ethnographic work, the book critiques the assumption made by the biological sciences of a universal human body that can be uniformly standardized. It focuses on the ways in which the application of biomedical technologies brings about radical changes to societies at large based on socioeconomic inequalities and ethical disputes, and develops and integrates the theory that the human body in health and illness is not an ontological given but a moveable, malleable entity. This second edition includes new chapters on: microbiology and the microbiome; global health; and, the self as a socio-technical system. In addition, all chapters have been comprehensively revised to take account of developments from within this fast-paced field, in the intervening years between publications. References and figures have also been updated throughout. This highly-regarded and award-winning textbook (Winner of the 2010 Prose Award for Archaeology and Anthropology) retains the character and features of the previous edition. Its coverage remains broad, including discussion of: biomedical technologies in practice; anthropologies of medicine; biology and human experiments; infertility and assisted reproduction; genomics, epigenomics, and uncertain futures; and molecularizing racial difference, ensuring it remains the essential text for students of anthropology, medical anthropology as well as public and global health.
Book Synopsis The Gene, the Clinic, and the Family by : Joanna Latimer
Download or read book The Gene, the Clinic, and the Family written by Joanna Latimer and published by Routledge. This book was released on 2013-07-04 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: While some theorists argue that medicine is caught in a relentless process of ‘geneticization’ and others offer a thesis of biomedicalization, there is still little research that explores how these effects are accomplished in practice. Joanna Latimer, whose groundbreaking ethnography on acute medicine gave us the social science classic The Conduct of Care, moves her focus from the bedside to the clinic in this in-depth study of genetic medicine. Against current thinking that proselytises the rise of laboratory science, Professor Latimer shows how the genetic clinic is at the heart of the revolution in the new genetics. Tracing how work on the abnormal in an embryonic genetic science, dysmorphology, is changing our thinking about the normal, The Gene, the Clinic, and the Family charts new understandings about family, procreation and choice. Far from medicine experiencing the much-proclaimed ‘death of the clinic’, this book shows how medicine is both reasserting its status as a science and revitalising its dominance over society, not only for now but for societies in the future. This book will appeal to students, scholars and professionals interested in medical sociology, science and technology studies, the anthropology of science, medical science and genetics, as well as genetic counselling.
Book Synopsis The Sociology of Health and Illness by : Peter Conrad
Download or read book The Sociology of Health and Illness written by Peter Conrad and published by SAGE Publications. This book was released on 2023-06-20 with total page 865 pages. Available in PDF, EPUB and Kindle. Book excerpt: This anthology for Medical Sociology courses brings together a collection of readings from the scholarly literature on health, medicine, and health care. covering some of the most timely health issues of our day,
Book Synopsis An Anthropology of Biomedicine by : Margaret Lock
Download or read book An Anthropology of Biomedicine written by Margaret Lock and published by John Wiley & Sons. This book was released on 2010-04-26 with total page 521 pages. Available in PDF, EPUB and Kindle. Book excerpt: An Anthropology of Biomedicine is an exciting new introduction to biomedicine and its global implications. Focusing on the ways in which the application of biomedical technologies bring about radical changes to societies at large, cultural anthropologist Margaret Lock and her co-author physician and medical anthropologist Vinh-Kim Nguyen develop and integrate the thesis that the human body in health and illness is the elusive product of nature and culture that refuses to be pinned down. Introduces biomedicine from an anthropological perspective, exploring the entanglement of material bodies with history, environment, culture, and politics Develops and integrates an original theory: that the human body in health and illness is not an ontological given but a moveable, malleable entity Makes extensive use of historical and contemporary ethnographic materials around the globe to illustrate the importance of this methodological approach Integrates key new research data with more classical material, covering the management of epidemics, famines, fertility and birth, by military doctors from colonial times on Uses numerous case studies to illustrate concepts such as the global commodification of human bodies and body parts, modern forms of population, and the extension of biomedical technologies into domestic and intimate domains Winner of the 2010 Prose Award for Archaeology and Anthropology
Book Synopsis Saving Babies? by : Stefan Timmermans
Download or read book Saving Babies? written by Stefan Timmermans and published by University of Chicago Press. This book was released on 2015-05-06 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction: the consequences of newborn screening -- The expansion of newborn screening -- Patients-in-waiting -- Shifting disease ontologies -- Is my baby normal? -- The limits of prevention -- Does expanded newborn screening save lives? -- Conclusion: the future of expanded newborn screening
Book Synopsis Knowing New Biotechnologies by : Matthias Wienroth
Download or read book Knowing New Biotechnologies written by Matthias Wienroth and published by Routledge. This book was released on 2015-02-20 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: The areas of personal genomics and citizen science draw on – and bring together – different cultures of producing and managing knowledge and meaning. They also cross local and global boundaries, are subjects and objects of transformation and mobility of research practices, evaluation and multi-stakeholder groups. Thirdly, they draw on logics of ‘convergence’: new links between, and new kinds of, stakeholders, spaces, knowledge, practices, challenges and opportunities. This themed collection of essays from nationally and internationally leading scholars and commentators advances and widens current debates in Science and Technology Studies and in Science Policy concerning ‘converging technologies’ by complementing the customary focus on technical aspirations for convergence with the analysis of the practices and logics of scientific, social and cultural knowledge production that constitute contemporary technoscience. In case studies from across the globe, contributors discuss the ways in which science and social order are linked in areas such as direct-to consumer genetic testing and do-it-yourself biotechnologies. Organised into thematic sections, ‘Knowing New Biotechnologies’ explores: • ways of understanding the dynamics and logics of convergences in emergent biotechnologies • governance and regulatory issues around technoscientific convergences • democratic aspects of converging technologies – lay involvement in scientific research and the co-production of biotechnology and social and cultural knowledge.
Book Synopsis Breast Cancer Gene Research and Medical Practices by : Sahra Gibbon
Download or read book Breast Cancer Gene Research and Medical Practices written by Sahra Gibbon and published by Routledge. This book was released on 2014-03-05 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: The discovery of the two inherited susceptibility genes BRCA1 and BRCA2 in the mid-1990s created the possibility of predictive genetic testing and led to the establishment of specific medical programmes for those at high risk of developing breast cancer in the UK, US and Europe. The book provides a coherent structure for examining the diversity of practices and discourses that surround developments linked to BRCA genetics, and to the evolving field of genetics more broadly. It will be of interest to students and scholars of anthropology, sociology, history of science, STS, public health and bioethics. Chapter 8 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 3.0 license.
Book Synopsis Moral Laboratories by : Cheryl Mattingly
Download or read book Moral Laboratories written by Cheryl Mattingly and published by Univ of California Press. This book was released on 2014-10-03 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Moral Laboratories is an engaging ethnography and a groundbreaking foray into the anthropology of morality. It takes us on a journey into the lives of African American families caring for children with serious chronic medical conditions, and it foregrounds the uncertainty that affects their struggles for a good life. Challenging depictions of moral transformation as possible only in moments of breakdown or in radical breaches from the ordinary, it offers a compelling portrait of the transformative powers embedded in day-to-day existence. From soccer fields to dinner tables, the everyday emerges as a moral laboratory for reshaping moral life. Cheryl Mattingly offers vivid and heart-wrenching stories to elaborate a first-person ethical framework, forcefully showing the limits of third-person renderings of morality.Ê
Book Synopsis Negotiating Bioethics by : Adèle Langlois
Download or read book Negotiating Bioethics written by Adèle Langlois and published by Routledge. This book was released on 2013-08-15 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: A PDF version of this book is available for free in Open Access at www.tandfebooks.com. It has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO’s Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme – deliberation and implementation – at international and national levels, Langlois explores: how relations between developed and developing countries can be made more equal who should be involved in global level decision-making and how this should proceed how overlap between initiatives can be avoided what can be done to improve the implementation of international norms by sovereign states how far universal norms can be contextualized what impact the efficacy of national level governance has at international level
Book Synopsis Barcoding Nature by : Claire Waterton
Download or read book Barcoding Nature written by Claire Waterton and published by Routledge. This book was released on 2013-07-18 with total page 254 pages. Available in PDF, EPUB and Kindle. Book excerpt: DNA Barcoding has been promoted since 2003 as a new, fast, digital genomics-based means of identifying natural species based on the idea that a small standard fragment of any organism’s genome (a so-called ‘micro-genome’) can faithfully identify and help to classify every species on the planet. The fear that species are becoming extinct before they have ever been known fuels barcoders, and the speed, scope, economy and ‘user-friendliness’ claimed for DNA barcoding, as part of the larger ferment around the ‘genomics revolution’, has also encouraged promises that it could inspire humanity to reverse its biodiversity-destructive habits. This book is based on six years of ethnographic research on changing practices in the identification and classification of natural species. Informed both by Science and Technology Studies (STS) and the anthropology of science, the authors analyse DNA barcoding in the context of a sense of crisis – concerning global biodiversity loss, but also the felt inadequacy of taxonomic science to address such loss. The authors chart the specific changes that this innovation is propelling in the collecting, organizing, analyzing, and archiving of biological specimens and biodiversity data. As they do so they highlight the many questions, ambiguities and contradictions that accompany the quest to create a genomics-based environmental technoscience dedicated to biodiversity protection. They ask what it might mean to recognise ambiguity, contradiction, and excess more publicly as a constitutive part of this and other genomic technosciences. Barcoding Nature will be of interest to students and scholars of sociology of science, science and technology studies, politics of the environment, genomics and post-genomics, philosophy and history of biology, and the anthropology of science.
Book Synopsis Risk, Reproduction, and Narratives of Experience by : Lauren Fordyce
Download or read book Risk, Reproduction, and Narratives of Experience written by Lauren Fordyce and published by Vanderbilt University Press. This book was released on 2012 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: Vivid ethnographies of reproductive risk and responsibility that speak to the conflicts between pregnant women and mothers and statesanctioned biomedicine
Download or read book CyberGenetics written by Anna Harris and published by Routledge. This book was released on 2016-04-28 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online? With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services.
Book Synopsis Waiting for Cancer to Come by : Sharlene Hesse-Biber
Download or read book Waiting for Cancer to Come written by Sharlene Hesse-Biber and published by University of Michigan Press. This book was released on 2014-07-28 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: Waiting for Cancer to Come tells the stories of women who are struggling with their high risk for cancer. Based on interviews and surveys of dozens of women, this book pieces together the diverse yet interlocking experiences of women who have tested positive for the BRCA 1/2 gene mutations, which indicate a higher risk of developing breast and ovarian cancer. Sharlene Hesse-Biber brings these narratives to light and follows women’s journeys from deciding to get screened for BRCA, to learning the test has come back positive, to dealing with their risk. Many women already know the challenges of a family history riddled with cancer and now find themselves with the devastating knowledge of their own genetic risk. Using the voices of the women themselves to describe the under-explored BRCA experience, Waiting for Cancer to Come looks at the varied emotional, social, economic, and psychological factors at play in women’s decisions about testing and cancer prevention.
