Measuring Health-Related Quality of Life in Children and Adolescents

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Author :
Publisher : Psychology Press
ISBN 13 : 1317824563
Total Pages : 394 pages
Book Rating : 4.3/5 (178 download)

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Book Synopsis Measuring Health-Related Quality of Life in Children and Adolescents by : Dennis Drotar

Download or read book Measuring Health-Related Quality of Life in Children and Adolescents written by Dennis Drotar and published by Psychology Press. This book was released on 2014-06-03 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.

Quality of Life Measurement in Neurodegenerative and Related Conditions

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Author :
Publisher : Cambridge University Press
ISBN 13 : 1139491342
Total Pages : 207 pages
Book Rating : 4.1/5 (394 download)

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Book Synopsis Quality of Life Measurement in Neurodegenerative and Related Conditions by : Crispin Jenkinson

Download or read book Quality of Life Measurement in Neurodegenerative and Related Conditions written by Crispin Jenkinson and published by Cambridge University Press. This book was released on 2011-02-03 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient reported outcome measures are central to the evaluation of medical care and treatment regimes. Such measures depart from traditional clinical assessments as they are based on issues known to be of importance to patients. This book outlines the development and application of a variety of such measures in a wide range of neurological conditions. Introductory chapters outline issues in the application and validation of quality-of-life measures in neurology. Subsequent chapters survey the most widely used quality-of-life instruments in Parkinson's disease, motor neurone disease, multiple sclerosis, multiple system atrophy, progressive supranuclear palsy, and Alzheimer's/dementia. A chapter on cerebral palsy deals with the particular challenges to developing outcome measures for children. The book also addresses issues relating to the translation of measures for use in cross-cultural studies, handling missing data, carer experiences of long-term conditions, and methodological challenges. Essential reading for clinicians and researchers working in the field of neurology.

Child and Adolescent Health and Health Care Quality

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Author :
Publisher : National Academies Press
ISBN 13 : 0309186234
Total Pages : 281 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Child and Adolescent Health and Health Care Quality by : National Research Council

Download or read book Child and Adolescent Health and Health Care Quality written by National Research Council and published by National Academies Press. This book was released on 2011-10-15 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Increasing public investments in health care services for low-income and special needs children and adolescents in the United States have raised questions about whether these efforts improve their health outcomes. Yet it is difficult to assess the general health status and health care quality for younger populations, especially those at risk of poor health outcomes, because the United States has no national information system that can provide timely, comprehensive, and reliable indicators in these areas for children and adolescents. Without such a system in place, it is difficult to know whether and how selected health care initiatives and programs contribute to children's health status. Child and Adolescent Health and Health Care Quality identifies key advances in the development of pediatric health and health care quality measures, examines the capacity of existing federal data sets to support these measures, and considers related research activities focused on the development of new measures to address current gaps. This book posits the need for a comprehensive strategy to make better use of existing data, to integrate different data sources, and to develop new data sources and collection methods for unique populations. Child and Adolescent Health and Health Care Quality looks closely at three areas: the nature, scope, and quality of existing data sources; gaps in measurement areas; and methodological areas that deserve attention. Child and Adolescent Health and Health Care Quality makes recommendations for improving and strengthening the timeliness, quality, public transparency, and accessibility of information on child health and health care quality. This book will be a vital resource for health officials at the local, state, and national levels, as well as private and public health care organizations and researchers.

Quality of Life in Child and Adolescent Illness

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Author :
Publisher : Psychology Press
ISBN 13 : 9781583912331
Total Pages : 486 pages
Book Rating : 4.9/5 (123 download)

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Book Synopsis Quality of Life in Child and Adolescent Illness by : Hans M. Koot

Download or read book Quality of Life in Child and Adolescent Illness written by Hans M. Koot and published by Psychology Press. This book was released on 2001 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness.

Quality of Life in Child and Adolescent Illness

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Author :
Publisher : Psychology Press
ISBN 13 : 9781583912348
Total Pages : 484 pages
Book Rating : 4.9/5 (123 download)

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Book Synopsis Quality of Life in Child and Adolescent Illness by : Hans M. Koot

Download or read book Quality of Life in Child and Adolescent Illness written by Hans M. Koot and published by Psychology Press. This book was released on 2001 with total page 484 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness.

Measuring Health-Related Quality of Life in Children and Adolescents

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Author :
Publisher : Psychology Press
ISBN 13 : 1317824571
Total Pages : 387 pages
Book Rating : 4.3/5 (178 download)

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Book Synopsis Measuring Health-Related Quality of Life in Children and Adolescents by : Dennis Drotar

Download or read book Measuring Health-Related Quality of Life in Children and Adolescents written by Dennis Drotar and published by Psychology Press. This book was released on 2014-06-03 with total page 387 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.

Oral Health-related Quality of Life

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Author :
Publisher : Quintessence Publishing (IL)
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Oral Health-related Quality of Life by : Marita Rohr Inglehart

Download or read book Oral Health-related Quality of Life written by Marita Rohr Inglehart and published by Quintessence Publishing (IL). This book was released on 2002 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABSTRACT: Helping patients achieve an optimal quality of life through patient-centered treatment planning should be the ultimate goal of all oral health care providers. However, this issue extends beyond the realm of the individual clinician's office. This text presents quality-of-life research from various fields, including psychology, public health, and general health care; discusses how a patient-centered approach can be applied to basic oral and craniofacial research, clinical dental practice, community dental health issues, and dental education; and addresses how oral health-related quality of life relates to treating and understanding different patient populations, such as children with special needs, medically compromised patients, patients with oral cancer, and patients with chronic facial pain. Also discussed is how factors such as race/ethnicity, gender, and age can affect oral health-related quality-of-life concerns and treatment strategies. Finally, the book offers an outlook on the role that oral health-related quality of life will play in future research and dental education.

Children with Developmental Coordination Disorder

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Author :
Publisher : John Wiley & Sons
ISBN 13 :
Total Pages : 338 pages
Book Rating : 4.X/5 (4 download)

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Book Synopsis Children with Developmental Coordination Disorder by : David Sugden

Download or read book Children with Developmental Coordination Disorder written by David Sugden and published by John Wiley & Sons. This book was released on 2005-01-28 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: The term Developmental Coordination Disorder (DCD) is used to describe a group of children who have difficulty. with tasks involving movement such that it interferes with their daily living or academic progress. As with other developmental disorders such as autistic spectrum disorder, attention deficit disorder and dyslexia, DCD is now a prominent concern of both researchers and practitioners. This text is aimed at both researchers and professionals who work in a practical manner with the condition and includes professionals in health, occupational therapists, physiotherapists, health visitors, paediatricians, and - in the educational field - teachers and others who are in daily contact with the children - their parents. The essence of the text is that work with children should be guided by research evidence driving the clinical practice which in turn raisies more questions for research. The authors in this text have both experience in research and are engaged in the day-to-day clinical work with children and bring both of these to bear in the chapters they have written.

Quality of Life in Child and Adolescent Illness

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Author :
Publisher : Routledge
ISBN 13 : 1317763017
Total Pages : 480 pages
Book Rating : 4.3/5 (177 download)

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Book Synopsis Quality of Life in Child and Adolescent Illness by : Hans Koot

Download or read book Quality of Life in Child and Adolescent Illness written by Hans Koot and published by Routledge. This book was released on 2014-01-14 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.

Quality of Life

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Author :
Publisher : John Wiley & Sons
ISBN 13 : 1118699459
Total Pages : 460 pages
Book Rating : 4.1/5 (186 download)

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Book Synopsis Quality of Life by : Peter M. Fayers

Download or read book Quality of Life written by Peter M. Fayers and published by John Wiley & Sons. This book was released on 2013-05-23 with total page 460 pages. Available in PDF, EPUB and Kindle. Book excerpt: Quality of life studies form an essential part of the evaluation of any treatment. Written by two authors who are well respected within this field, Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes, Second Edition lays down guidelines on assessing, analysing and interpreting quality of life data. The new edition of this standard book has been completely revised, updated and expanded to reflect many methodological developments emerged since the publication of the first edition. Covers the design of instruments, the practical aspects of implementing assessment, the analyses of the data, and the interpretation of the results Presents all essential information on Quality of Life Research in one comprehensive volume Explains the use of qualitative and quantitative methods, including the application of basic statistical methods Includes copious practical examples Fills a need in a rapidly growing area of interest New edition accommodates significant methodological developments, and includes chapters on computer adaptive testing and item banking, choosing an instrument, systematic reviews and meta analysis This book is of interest for everyone involved in quality of life research, and it is applicable to medical and non-medical, statistical and non-statistical readers. It is of particular relevance for clinical and biomedical researchers within both the pharmaceutical industry and practitioners in the fields of cancer and other chronic diseases. Reviews of the First Edition – Winner of the first prize in the Basis of Medicine Category of the BMA Medical Book Competition 2001: “This book is highly recommended to clinicians who are actively involved in the planning, analysis and publication of QoL research.” CLINICAL ONCOLOGY “This book is highly recommended reading.” QUALITY OF LIFE RESEARCH

Encyclopedia of Behavioral Medicine

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Publisher :
ISBN 13 : 9781461464396
Total Pages : pages
Book Rating : 4.4/5 (643 download)

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Book Synopsis Encyclopedia of Behavioral Medicine by : Marc D. Gellman

Download or read book Encyclopedia of Behavioral Medicine written by Marc D. Gellman and published by . This book was released on with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

When Children Die

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Publisher : National Academies Press
ISBN 13 : 0309084377
Total Pages : 713 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis When Children Die by : Institute of Medicine

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Patient-Reported Outcomes in Performance Measurement

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Publisher : RTI Press
ISBN 13 : 193483114X
Total Pages : 97 pages
Book Rating : 4.9/5 (348 download)

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Book Synopsis Patient-Reported Outcomes in Performance Measurement by : David Cella

Download or read book Patient-Reported Outcomes in Performance Measurement written by David Cella and published by RTI Press. This book was released on 2015-09-17 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.

Health Measurement Scales

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Publisher : Oxford University Press, USA
ISBN 13 : 0199685215
Total Pages : 415 pages
Book Rating : 4.1/5 (996 download)

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Book Synopsis Health Measurement Scales by : David L. Streiner

Download or read book Health Measurement Scales written by David L. Streiner and published by Oxford University Press, USA. This book was released on 2015 with total page 415 pages. Available in PDF, EPUB and Kindle. Book excerpt: A new edition of this practical guide for clinicians who are developing tools to measure subjective states, attitudes, or non-tangible outcomes in their patients, suitable for those who have no knowledge of statistics.

The Kidscreen Questionnaires

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Publisher :
ISBN 13 : 9783899673340
Total Pages : 231 pages
Book Rating : 4.6/5 (733 download)

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Book Synopsis The Kidscreen Questionnaires by : Ulrike Ravens-Sieberer

Download or read book The Kidscreen Questionnaires written by Ulrike Ravens-Sieberer and published by . This book was released on 2006 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Moss & Adams Heart Disease in Infants, Children, and Adolescents

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Author :
Publisher : Lippincott Williams & Wilkins
ISBN 13 : 1451118937
Total Pages : 1757 pages
Book Rating : 4.4/5 (511 download)

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Book Synopsis Moss & Adams Heart Disease in Infants, Children, and Adolescents by : David J. Driscoll

Download or read book Moss & Adams Heart Disease in Infants, Children, and Adolescents written by David J. Driscoll and published by Lippincott Williams & Wilkins. This book was released on 2012-10-22 with total page 1757 pages. Available in PDF, EPUB and Kindle. Book excerpt: Established since 1968 as a classic pediatric cardiology text, this edition uses new technology to bring the most sought after information in the most concise, effective manner. Leading international experts describe state-of-the-art diagnostic and interventional techniques for treatment of young patients with congenital and acquired heart diseases and for adult survivors of congenital heart disease.

Evidence-based Pediatrics and Child Health

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Publisher : John Wiley & Sons
ISBN 13 : 1405140259
Total Pages : 544 pages
Book Rating : 4.4/5 (51 download)

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Book Synopsis Evidence-based Pediatrics and Child Health by : Virginia Moyer

Download or read book Evidence-based Pediatrics and Child Health written by Virginia Moyer and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 544 pages. Available in PDF, EPUB and Kindle. Book excerpt: Evidence Based Pediatrics and Child Health is a ground-breaking new text on pediatrics and child care management, using evidence based approach. It covers all the major childhood conditions and contains the features of both a handbook and a reference text. Each chapter combines both advice on management and how best to practice evidence based medicine with reviews of all the available evidence in a specific area. The goal of the book is to help pediatricians and others who care for children to provide the best possible care by combining the best, most current evidence with special circumstances of each individual patient.