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Living With Illness Jaspers Story Living With Cystic Fibrosis
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Book Synopsis Living with Illness: Jasper's Story - Living with Cystic Fibrosis by : Andy Glynne
Download or read book Living with Illness: Jasper's Story - Living with Cystic Fibrosis written by Andy Glynne and published by Franklin Watts. This book was released on 2017-08-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this powerful story, told in his own words, Jasper explains what it means to grow up with cystiuc fibrosis. Read about what cystic fibrosis is, the treatment he receives and how it affects his daily life.
Book Synopsis Not a Wasted Breath by : LaRecea Tabor Gibbs
Download or read book Not a Wasted Breath written by LaRecea Tabor Gibbs and published by Tate Publishing. This book was released on 2010-12-14 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Sis, the worst thing CF [cystic fibrosis] can do is kill me. It can't stop me from living.' Todd Gibbs spoke those words once to his sister and he proved that statement true time and time again. Though cystic fibrosis did kill him five days after his thirty-first birthday, the living he did showed that he had won the battle, even if CF eventually won the war. Not a Wasted Breath is not just a story about living with a fatal disease or waiting for a transplant. That was only a part of Todd's life. He never allowed his illness to rule his life, even in the face of over eighty hospitalizations. This is truly a story about how others perceived Todd, how they were affected by his presence in their lives, and how Todd viewed himself and his existence. In a poignant compilation of thoughts, memories, articles, and journal entries, LaRecea Gibbs, Todd's mother, creates a touching tableau of a life well spent that will inspire anyone to overcome personal obstacles through faith, determination, courage, and most of all, humor. Join mother and author LaRecea Gibbs in an inspiring biography which shows that though Todd's life was short, he never wasted a single breath. This Book is an inspiration to all readers in appreciating the gift of life. The account is thorough, has depth of development, is authentic, and puts us inside the people involved. Not a Wasted Breath enables readers to travel along emotionally. As a result, we count our own blessings. John Hagaman, Professor of English, Western Kentucky University, Director of WKU Writing Project.
Book Synopsis The Power of Two by : Isabel Stenzel Byrnes
Download or read book The Power of Two written by Isabel Stenzel Byrnes and published by University of Missouri Press. This book was released on 2014-10-14 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
Book Synopsis Every Precious Breath by : Tom Valenta
Download or read book Every Precious Breath written by Tom Valenta and published by Michelle Anderson Publishing. This book was released on 2012-07-01 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Tom Valenta tells the story of his two grandsons and discovers that people living with cystic fibrosis and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational.
Book Synopsis It’s Been a Good Life, Dad by : Jerry E. Hendon
Download or read book It’s Been a Good Life, Dad written by Jerry E. Hendon and published by iUniverse. This book was released on 2016-01-07 with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt: It’s Been a Good Life, Dad!—My Son’s Struggle with Cystic Fibrosis portrays a young man—Kevin Hendon—who lived his eighteen years with cystic fibrosis ever present. The author, Jerry E. Hendon, tells the story of his son’s life in the first part of this biography. He presents the disease’s harsh truths and the severe limits—and of medicine’s ability to respond to the disease’s challenges. With equal clarity, though, he reveals the energy and determination his son showed in the face of his diagnosis. In the second part of It’s Been a Good Life, Dad!, Kevin’s poetry takes center stage. He shares his feelings of isolation and frustration. He ruminates on love, lust, and romance. He expresses his observations about friends and school. He reflects on the place of religion and family in his life. The final two sections of the book sample the recollections of people who knew Kevin and share the abiding influences of Kevin’s spirit in the wider community of those his life has touched. Whether you have cystic fibrosis or know someone who lives with this disease, you might find yourself turning the pages of this portrayal and feeling the temptation to echo the author’s despair when he said, “What a miserable life!” But in the face of this disease and in response to such tugs to give in to despair, Kevin’s responds, “Oh, no. It’s been a good life .... It’s been a good life.”
Book Synopsis The Fight of My Life by : William Mahaney
Download or read book The Fight of My Life written by William Mahaney and published by . This book was released on 2012-08-10 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Born with cystic fibrosis, I am no stranger to hospitals, physical exams, PFT's and various other procedures that determined the illness I have and the extend of its' impact on my life. I kept many of my hospital reports, the various test results and procedures I have had throughout the years, including notes I had written and thoughts about these experiences. During the thirty days I was in Cleveland Clinic for my double lung transplant surgery and recovery my wife started a blog informing friends and relatives on my triumphs and setbacks. After my recovery I visited the nurses and respiratory therapists at Women and Children's Hospital of Buffalo, NY. One of the nurse's suggested I write a book on my experiences which I readily dismissed, but...that suggestion got me thinking, and over the course of several months I began to believe writing a book wasn't such a crazy idea. I reflected on the times in my life I could have used a base of reference to more easily comprehend and understand what I have been going through all these years. During my "tune-ups" I often wondered what was going through the mind of the CF patient in the room next to mine on the10th floor of the Women and Children's Hospital of Buffalo. Did they have the same issues, problems and fears that I had? How were they dealing with their disease? What were their concerns? Were they sicker or healthier than I was? So, here it is, on paper, my experience living with cystic fibrosis. It's not an extensive day by day diary of my life but it tells a pretty complete story. I know my experiences with this disease differ from other CF'ers, and however unique we all are, there is, still, many similarities and I know those with CF who read this will be able to relate to my story as if it was their own.
Book Synopsis Living on Borrowed Time by : Debbie Pitts
Download or read book Living on Borrowed Time written by Debbie Pitts and published by Author House. This book was released on 2007-01-19 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: My book tells how I have struggled to live from day to day since my being diagnosed at six months of age. So you know I have lived a long time with this disease. It hadn't been easy.
Book Synopsis Always Another Mountain, Living With Cystic Fibrosis by : Benjamin Easterday
Download or read book Always Another Mountain, Living With Cystic Fibrosis written by Benjamin Easterday and published by Lulu.com. This book was released on 2018-04-05 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Always Another Mountain is the whimsical life story of David Foster, an adventurer, an outdoors man, and a man afflicted with the debilitating lung disorder Cystic Fibrosis. This book is adapted from the screenplay and draws the reader in through film styled scene descriptions. The story is an inspirational love story with many notes of humor that will leave you the reader with a full range of emotions. David had a passion for life and a love of the outdoors which transcended the physical limitations brought on by this incurable disease. Foster wanted to leave this world better than he found it, and wanted his life to serve as an inspiration not only for those suffering from CF, but for all of us. This is a story that touches on triumphs and tragedies that all those afflicted with cystic fibrosis must face during their shortened lives, and specifically David FosterÕs life. ""I'm just like anyone else, I just cough a little more"" -DavidFoster
Book Synopsis Living with Cystic Fibrosis by : Susan Heinrichs Gray
Download or read book Living with Cystic Fibrosis written by Susan Heinrichs Gray and published by . This book was released on 2003 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chronic condition of cystic fibrosis is explained to help children better understand and cope with the condition and to educate regarding the prospects of a cure.
Book Synopsis The CF Warrior Project Volume 2 by : Andy C. Lipman
Download or read book The CF Warrior Project Volume 2 written by Andy C. Lipman and published by Booklogix. This book was released on 2023-02-07 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The CF Warrior Project, Volume 2: Celebrating Our Cystic Fibrosis Community is a first-of-its-kind, inspirational book that details the lives of both people who live with the life-changing diagnosis of cystic fibrosis along with those who have made a difference in the CF community by advocating for those who fight the disease. Andy Lipman, the author and a CF warrior himself, created this series of memoirs in memory of someone who advocated for him-his mother, Eva-who inspired people inside and outside the CF community to fight for their dreams. Stories include people who once lived with a childhood disease now living into their fifties, sixties, and seventies thanks in large part to various scientific breakthroughs; parents who have turned unfathomable circumstances into impactful legacies in honor and, in some cases, in memory of their children; and celebrities who have used their influence to bring awareness to a disease and hope to a community that is so passionate to cure it. If you are looking for an inspirational series of stories of people who are making every breath count, The CF Warrior Project, Volume 2: Celebrating Our Cystic Fibrosis Community is the book for you.
Book Synopsis In the Shadow of Illness by : Myra Bluebond-Langner
Download or read book In the Shadow of Illness written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-06-30 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Download or read book Transplanted written by Allison Watson and published by Nimbus+ORM. This book was released on 2019-06-03 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: A poignant, witty memoir of learning to cope with a frightening genetic disease—and of a life transformed thanks to an organ donor. When Allison Watson awoke that day, she knew she was in a hospital bed. That's all. She had no idea how much time had passed since she’d seen her family. When she tried to focus, her vision was blurry, and when she tried to wave someone down, she became so exhausted she thought she was dying. Hours later, when Watson was able to communicate, she asked a nurse if the news was good or bad. “It’s good news,” the nurse replied. “You had your lung transplant four days ago.” Many cystic fibrosis patients are living longer today, thanks, in part, to transplants—though they are not easy to obtain. In this candid memoir, Watson describes living under the shadow of this incurable disease; her special bond with her sister, Amy, who also grew up with CF; and her life-altering surgery in Toronto in 2014. ; the r. Nor was the road to full recovery. In this book, Watson, who cycled across Canada with her brother in 2008 to raise awareness of CF, describes her journey. “Watson tells her resilient story of living with cystic fibrosis (CF), her progressive lung damage, the stress of waiting for an organ donor, her lifesaving transplant and life in the almost five years since her major surgery.” —The Guardian (Prince Edward Island, Canada)
Book Synopsis Cystic Fibrosis by : Melanie Ann Apel
Download or read book Cystic Fibrosis written by Melanie Ann Apel and published by Scarecrow Press. This book was released on 2006 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Describes the challenges of living with cystic fibrosis, as well as a description of the illness, and an explanation of procedures for diagnosis and therapy.
Download or read book Breathe Deep written by Kelly M. Wever and published by Mill City Press, Incorporated. This book was released on 2018-10-26 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: There was no cure. There were no more treatments or medications that could help. No way of reversing the years of lung damage, scarring, infection, or inflammation. Both of my lungs were no longer able to adequately provide oxygen to the cells in my body. Carbon dioxide was building up in my bloodstream to a dangerous level. The excessive, forceful coughing was popping holes in my lungs and causing them to deflate. I could no longer live with my lungs. It was time for double lung transplant, the last resort." Born with Cystic Fibrosis, a chronic, progressive, life-threatening illness, Kelly was told she would only live to 18 years old. She surpassed the statistic, and at age 29, was officially placed on the national wait list for a double lung transplant. Doctors said there was a 1% chance of finding a donor match for this life-saving transplant. Kelly's wait for her new lungs was full of hardships and resilience, but through it all, she found her faith and whole new life. Breathe Deep is a true, inspirational story about beating the odds. Life is full of trials and tribulations, and Breathe Deep will inspire you to make the most out of your life, strengthen your faith, and have HOPE. THE LORD WILL FIGHT FOR YOU, AND YOU NEED ONLY TO BE STILL. Exodus 14:14
Download or read book Cystic Fibrosis written by Judy Monroe and published by Capstone. This book was released on 2001 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses what cystic fibrosis is, how it affects the body, how it is diagnosed and managed and includes information on finding support and living with this condition.
Book Synopsis Cystic Fibrosis by : Melissa Abramovitz
Download or read book Cystic Fibrosis written by Melissa Abramovitz and published by Greenhaven Publishing LLC. This book was released on 2012-11-16 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: Author Melissa Abramovitz discusses the causes of cystic fibrosis, the history of its discovery, and current and future treatment options. Though a diagnosis of cystic fibrosis remains devastating in today's world, Abramovitz explains that revelations about the disease's genetic foundations may lead to medical breakthroughs in the near future. First-person accounts and inspirational quotes from individuals with cystic fibrosis will educate and inspire readers.
Book Synopsis Raising Children With Chronic Illness by : Dana Rogers Ph.D RN
Download or read book Raising Children With Chronic Illness written by Dana Rogers Ph.D RN and published by Covenant Books, Inc.. This book was released on 2020-11-11 with total page 111 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is an inspiring, heartfelt story of a mother's journey in raising two children who were diagnosed with very serious health problems at birth. The mother has a unique perspective as both a psychologist and registered nurse as she and her husband diligently worked to provide the best life possible for each child. The determination and perseverance this family showed in fighting for each child's very existence is quite remarkable. The youngest child who was born with a severe case of cystic fibrosis required a liver transplant as a teenager and later a double lung transplant in his early twenties. He is now thirty years of age doing well and working as a registered nurse. His older brother who had breathing trouble at birth contracted a virus later in childhood that resulted in ulcerative colitis requiring a complete colectomy. He is now thirty-two years of age. He is thriving and doing well working in the medical field. A nice dimension to the book is that each boy is interviewed and asked what it was like living with a chronic illness as a child and now as an adult. Each boy's advice to parents of chronically ill children is meant to be of support to parents in their life journey in raising their child.
