Living With Hht

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Living with HHT

Author : Sara Palmer
Publisher : JHU Press
ISBN 13 : 142142391X
Total Pages : 199 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Living with HHT by : Sara Palmer

Download or read book Living with HHT written by Sara Palmer and published by JHU Press. This book was released on 2017-12-01 with total page 199 pages. Available in PDF, EPUB and Kindle. Book excerpt: Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

Everything about Hereditary Hemorrhagic Telangiectasia (Hht)

Author : Dr Cade Josue
Publisher : Independently Published
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.3/5 (245 download)

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Book Synopsis Everything about Hereditary Hemorrhagic Telangiectasia (Hht) by : Dr Cade Josue

Download or read book Everything about Hereditary Hemorrhagic Telangiectasia (Hht) written by Dr Cade Josue and published by Independently Published. This book was released on 2024-05 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: UNLOCK THE SECRETS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) In this comprehensive guide, delve into the intricate world of Hereditary Hemorrhagic Telangiectasia (HHT) and discover a wealth of knowledge crucial for patients, caregivers, and healthcare professionals. Discover the genetic blueprint behind HHT. Decode the symptoms before they escalate. Navigate treatment options for optimal outcomes. Uncover the emotional journey of HHT patients. Explore life strategies for managing HHT effectively. Gain insights into pediatric HHT challenges and solutions. Empower yourself with resources for HHT support. Bridge the gap between genetics and lifestyle choices. Advocate for awareness and action in the HHT community. Prepare for family planning with HHT considerations. Demystify complications associated with HHT. Navigate the psychological impact of living with HHT. Stay informed about ongoing HHT research and breakthroughs. Empathize with real-life stories of HHT resilience. Access expert guidance for HHT management and care. Join the movement for HHT awareness and advocacy. Shape the future of HHT treatment through knowledge and action. TABLE OF CONTENTS HIGHLIGHTS: Understanding HHT: Unravel the complexities of this genetic disorder and its various manifestations. Genetics and Origins: Dive deep into the genetic underpinnings and causal factors of HHT. Symptoms and Diagnosis: Learn to recognize the signs early for timely intervention. Treatment Alternatives: Explore cutting-edge therapies and management strategies for HHT. Patient Perspectives: Gain insights from those living with HHT and their experiences. Future Directions: Stay abreast of the latest research and advancements in HHT care. WHY YOU NEED THIS BOOK: This book is not just a resource; it's a lifeline for anyone touched by HHT. Whether you're a patient, caregiver, or healthcare professional, the insights, strategies, and stories shared here will empower you to navigate HHT with confidence and resilience. Don't wait for HHT to dictate your journey. Equip yourself with knowledge, understanding, and actionable strategies. Your journey to empowered HHT management starts here.

Just One of the Kids

Author : Kay Harris Kriegsman
Publisher : JHU Press
ISBN 13 : 1421409305
Total Pages : 241 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Just One of the Kids by : Kay Harris Kriegsman

Download or read book Just One of the Kids written by Kay Harris Kriegsman and published by JHU Press. This book was released on 2013-05-31 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supporting and encouraging all members of the family when a child has a physical disability. If you have a child with a physical disability, how can you plan your family’s life in a way that is inclusive for everyone? What can you do to create a family where every member pulls his or her own weight (in appropriate measure), meets challenges, and has moments in the spotlight along the way? Most parents of a child who has a physical disability want their child to have fun, be responsible, make friends, and take acceptable risks—in short, to feel like “just one of the kids”—and they want to make sure that the needs of the whole family are met, too. Just One of the Kids is designed to help parents focus not on what could have been but instead on what can be, so that they, their children, and the grandparents thrive as individuals and as a family. The advice from psychologists Kay Harris Kriegsman and Sara Palmer is valuable for any family with children who have a physical disability, from any cause. Their warm and encouraging book is full of family stories, tips, and tools. Parents of children with physical disabilities can help them develop the skills needed to meet life’s challenges and launch into independence. Parents, building on that foundation and acknowledging each person’s contributions, interests, and aspirations, create an inclusive and resilient family.

Spinal Cord Injury

Author : Sara Palmer
Publisher :
ISBN 13 : 9780801863530
Total Pages : 0 pages
Book Rating : 4.8/5 (635 download)

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Book Synopsis Spinal Cord Injury by : Sara Palmer

Download or read book Spinal Cord Injury written by Sara Palmer and published by . This book was released on 2000 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A comprehensive resource for coping with medical, emotional, and practical challenges."--Cover.

When Your Spouse Has a Stroke

Author : Sara Palmer
Publisher : Johns Hopkins University Press
ISBN 13 : 9780801898877
Total Pages : 0 pages
Book Rating : 4.8/5 (988 download)

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Book Synopsis When Your Spouse Has a Stroke by : Sara Palmer

Download or read book When Your Spouse Has a Stroke written by Sara Palmer and published by Johns Hopkins University Press. This book was released on 2011-04-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: A stroke can alter two people's lives in an instant. For the person who has had a stroke, simple tasks suddenly become difficult or impossible. For that person's partner, life seems to revolve mostly around the stroke survivor's needs. Such a drastic change naturally requires making many, sometimes taxing, adjustments. In this book, two experts in stroke recovery help couples deal with the impact of stroke on their lives and their relationship. Drs. Sara and Jeffrey Palmer explain how to overcome three major challenges: • providing quality care for your partner • maintaining or rebuilding your relationship • caring for yourself as an individual The book invites you into the lives of real couples who are themselves coping with these challenges. Their experiences model how you can improve essential aspects of your relationship, including communication, roles and responsibilities, and sexuality. A list of practical tips summarizes each chapter, providing a handy reference guide to meeting each day's challenges. More than just a discussion of the medical and practical aspects of stroke and stroke recovery, this book focuses on the emotional, psychological, and social consequences of stroke and the deeply personal side of caregiving. When Your Spouse Has a Stroke will relieve your burden and strengthen your partnership.

School, Family, and Community Partnerships

Author : Joyce L. Epstein
Publisher : Corwin Press
ISBN 13 : 1483320014
Total Pages : 508 pages
Book Rating : 4.4/5 (833 download)

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Book Synopsis School, Family, and Community Partnerships by : Joyce L. Epstein

Download or read book School, Family, and Community Partnerships written by Joyce L. Epstein and published by Corwin Press. This book was released on 2018-07-19 with total page 508 pages. Available in PDF, EPUB and Kindle. Book excerpt: Strengthen programs of family and community engagement to promote equity and increase student success! When schools, families, and communities collaborate and share responsibility for students′ education, more students succeed in school. Based on 30 years of research and fieldwork, the fourth edition of the bestseller School, Family, and Community Partnerships: Your Handbook for Action, presents tools and guidelines to help develop more effective and more equitable programs of family and community engagement. Written by a team of well-known experts, it provides a theory and framework of six types of involvement for action; up-to-date research on school, family, and community collaboration; and new materials for professional development and on-going technical assistance. Readers also will find: Examples of best practices on the six types of involvement from preschools, and elementary, middle, and high schools Checklists, templates, and evaluations to plan goal-linked partnership programs and assess progress CD-ROM with slides and notes for two presentations: A new awareness session to orient colleagues on the major components of a research-based partnership program, and a full One-Day Team Training Workshop to prepare school teams to develop their partnership programs. As a foundational text, this handbook demonstrates a proven approach to implement and sustain inclusive, goal-linked programs of partnership. It shows how a good partnership program is an essential component of good school organization and school improvement for student success. This book will help every district and all schools strengthen and continually improve their programs of family and community engagement.

Anarchist's Guide to Historic House Museums

Author : Franklin D Vagnone
Publisher : Routledge
ISBN 13 : 1315435047
Total Pages : 263 pages
Book Rating : 4.3/5 (154 download)

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Book Synopsis Anarchist's Guide to Historic House Museums by : Franklin D Vagnone

Download or read book Anarchist's Guide to Historic House Museums written by Franklin D Vagnone and published by Routledge. This book was released on 2016-07-01 with total page 263 pages. Available in PDF, EPUB and Kindle. Book excerpt: In these days of an aging traditional audience, shrinking attendance, tightened budgets, increased competition, and exponential growth in new types of communication methods, America’s house museums need to take bold steps and expand their overall purpose beyond those of the traditional museum. They need not only to engage the communities surrounding them, but also to collaborate with visitors on the type and quality of experience they provide. This book is a groundbreaking manifesto that calls for the establishment of a more inclusive, visitor-centered paradigm based on the shared experience of human habitation. It draws inspiration from film, theater, public art, and urban design to transform historic house museums while providing a how-to guide for making historic house museums sustainable, through five primary themes: communicating with the surrounding community, engaging the community, re-imagining the visitor experience, celebrating the detritus of human habitation, and acknowledging the illusion of the shelter’s authenticity. Anarchist's Guide to Historic House Museums offers a wry, but informed, rule-breaking perspective from authors with years of experience and gives numerous vivid examples of both good and not-so-good practices from house museums in the U.S.

Doormen

Author : Peter Bearman
Publisher : University of Chicago Press
ISBN 13 : 0226039714
Total Pages : 305 pages
Book Rating : 4.2/5 (26 download)

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Book Synopsis Doormen by : Peter Bearman

Download or read book Doormen written by Peter Bearman and published by University of Chicago Press. This book was released on 2009-01-30 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Little fascinates New Yorkers more than doormen, who know far more about tenants than tenants know about them. Doormen know what their tenants eat, what kind of movies they watch, whom they spend time with, whether they drink too much, and whether they have kinky sex. But if doormen are unusually familiar with their tenants, they are also socially very distant. In Doormen, Peter Bearman untangles this unusual dynamic to reveal the many ways that tenants and doormen negotiate their complex relationship. Combining observation, interviews, and survey information, Doormen provides a deep and enduring ethnography of the occupational role of doormen, the dynamics of the residential lobby, and the mundane features of highly consequential social exchanges between doormen and tenants. Here, Bearman explains why doormen find their jobs both boring and stressful, why tenants feel anxious about how much of a Christmas bonus their neighbors give, and how everyday transactions small and large affect tenants' professional and informal relationships with doormen. In the daily life of the doorman resides the profound, and this book provides a brilliant account of how tenants and doormen interact within the complex world of the lobby.

Diet and Health

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309039940
Total Pages : 765 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Diet and Health by : National Research Council

Download or read book Diet and Health written by National Research Council and published by National Academies Press. This book was released on 1989-01-01 with total page 765 pages. Available in PDF, EPUB and Kindle. Book excerpt: Diet and Health examines the many complex issues concerning diet and its role in increasing or decreasing the risk of chronic disease. It proposes dietary recommendations for reducing the risk of the major diseases and causes of death today: atherosclerotic cardiovascular diseases (including heart attack and stroke), cancer, high blood pressure, obesity, osteoporosis, diabetes mellitus, liver disease, and dental caries.

Rare Diseases and Orphan Products

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309158060
Total Pages : 442 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Rare Diseases and Orphan Products by : Institute of Medicine

Download or read book Rare Diseases and Orphan Products written by Institute of Medicine and published by National Academies Press. This book was released on 2011-04-03 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.

In My Family's Shadow

Author : Deloris E. Jordan
Publisher :
ISBN 13 :
Total Pages : 232 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis In My Family's Shadow by : Deloris E. Jordan

Download or read book In My Family's Shadow written by Deloris E. Jordan and published by . This book was released on 2001 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rarely is one's life as it appears to onlookers observing from afar. When observing the life and family of NBA great Michael Jordan, words such as chaos and dysfunction are not words that any of us would associate with the great icon. Yet, this 224-page hardcover autobiography written by his older sister, Deloris E. Jordan, depicts a life of situations that are nothing less than chaotic and dysfunctional at times. While paying homage to the world icon and his great accomplishments, the author also recounts her family's life before her youngest brother became one of the most recognizable athletes, men, and legendary economic figures in the world. Recalling the charismatic charm and risk-taking adventurers of an athlete known for his flying capabilities, she writes earnestly of childhood enjoyments as well as familial discord before ushering us down the road of her own personal experiences. Experiences that tarnished her childhood, destroyed her adolescent dreams, and left her trying to escape the damage of it all still, thirty-plus years later. Many books have and will be written about Michael and the Jordan family, but none of them can tell this author's perspective or personal story better than the author herself. Retracing her journey to wellness, Deloris E. Jordan writes with uncompromised truth and grave transparency in hopes that others will learn from her familial experiences and be spared some of their pain.

A Very Thin Line

Author : Rohan Sharma
Publisher :
ISBN 13 : 9780998043210
Total Pages : 160 pages
Book Rating : 4.0/5 (432 download)

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Book Synopsis A Very Thin Line by : Rohan Sharma

Download or read book A Very Thin Line written by Rohan Sharma and published by . This book was released on 2019-11-16 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rohan Sharma takes the reader on a confessional and genuine journey through his bipolar episode that left him incarcerated and serving time in jail. Despite the darkness he faces, he finds a way to focus on the light and the positive, and while incarcerated makes the biggest discovery of all: his self and who he wants to be.

Spinal Vascular Malformations

Author : D. L. Barrow
Publisher :
ISBN 13 : 9783131348319
Total Pages : 187 pages
Book Rating : 4.3/5 (483 download)

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Book Synopsis Spinal Vascular Malformations by : D. L. Barrow

Download or read book Spinal Vascular Malformations written by D. L. Barrow and published by . This book was released on 1999-01-01 with total page 187 pages. Available in PDF, EPUB and Kindle. Book excerpt: Spinal Vascular Malformations is a comprehensive text detailing the historical perspective and evolution of current understanding of the various vascular malformations involving the spinal cord. Contributing authors are recognized experts in the fields of anatomy, pathophysiology, hemodynamics, imaging and the surgical and endovascular treatment ......

94 Maidens

Author : Rhonda Fink-Whitman
Publisher : Dog Ear Publishing
ISBN 13 : 9781457512773
Total Pages : 304 pages
Book Rating : 4.5/5 (127 download)

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Book Synopsis 94 Maidens by : Rhonda Fink-Whitman

Download or read book 94 Maidens written by Rhonda Fink-Whitman and published by Dog Ear Publishing. This book was released on 2012-10 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: WHEN THE UNIMAGINABLE IS THE ONLY THING LEFT TO DO... They are innocent schoolgirls ranging in age from 14 to 22. Under normal circumstances they should be learning, laughing, and playing. Unfortunately, the year is 1942 and the place is Nazi-occupied Poland. Nothing is normal. On the night of August 11, dressed only in cotton nightgowns, they await their fate at the hands of their Nazi captors. They are no match for the Nazi beast- or are they? Meanwhile, a young Jewish family is caught in a perilous game of cat and mouse with the Nazis in Berlin. How long can they possibly remain among the living? It's getting harder to run, more dangerous to hide. The Nazis are hot on their trail, and time is running out for both the hunters and the hunted. Rhonda is a successful television personality and a well-respected Jewish educator. With her aging mother still suffering scars left by the Holocaust some 70 years later, she decides it's time to go to Germany, where she pitches her way inside the largest Nazi archive the world has never seen in an attempt to discover the truth about what happened to her mother during WWII. Will the secrets she unveils help heal her mother's wounded soul? Or will the answers to her questions change everything she ever thought she knew about her family, her mother, and herself? Inspired by true events, 94 Maidens is an unforgettable story of heroism, resistance, martyrdom, and survival. "Total Inspiration! Never before has an account of the atrocities of Nazi Germany struck such a chord. 94 Maidens will send chills up your spine and bring tears to your eyes, but Rhonda Fink-Whitman's brilliant depiction of valiancy strengthens the inner soul." Lorraine Ranalli, author of Gravy Wars/South Philly Foods, Feuds & Attytudes and host of the Cucina Chatter Radio Network "Chillingly authentic. It's as if Rhonda dipped her paintbrush into a can of history and used her potent words to paint us a picture that is spot on. I would know." David Tuck, Auschwitz survivor, speaker, educator Meet Dave and hear other eyewitness accounts @ www.94maidens.com. "Heartfelt and moving...a great reminder to all of us about our obligation to share and preserve our own family history, the courage of ancestors, and their impact on our world." Tim Chambers, screenwriter, director, and producer of The Mighty Macs "It wasn't my choice to write this story...it was my responsibility." Rhonda Fink-Whitman RHONDA FINK-WHITMAN is a veteran TV and radio personality as well as an award-winning screenwriter, longtime Jewish educator and the daughter of a Holocaust survivor. 94 Maidens is her first novel. She lives in a suburb of Philadelphia with her husband, two children, and two cats. In their free time, for which they thank our troops, Rhonda and her family volunteer for the USO. Visit Rhonda online at www.94Maidens.com, at www.Facebook.com/94Maidens, and on Twitter @94Maidens. Serious filmmakers interested in the screenplay of 94 Maidens can contact the writer at [email protected].

Departments of Labor, Health and Human Services, Education, and Related Agencies Appropriations for 2007

Author : United States. Congress. House. Committee on Appropriations. Subcommittee on the Departments of Labor, Health and Human Services, Education, and Related Agencies
Publisher :
ISBN 13 :
Total Pages : 1406 pages
Book Rating : 4.:/5 (319 download)

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Book Synopsis Departments of Labor, Health and Human Services, Education, and Related Agencies Appropriations for 2007 by : United States. Congress. House. Committee on Appropriations. Subcommittee on the Departments of Labor, Health and Human Services, Education, and Related Agencies

Download or read book Departments of Labor, Health and Human Services, Education, and Related Agencies Appropriations for 2007 written by United States. Congress. House. Committee on Appropriations. Subcommittee on the Departments of Labor, Health and Human Services, Education, and Related Agencies and published by . This book was released on 2006 with total page 1406 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Departments of Labor, Health and Human Services, Education, and Related Agencies Appropriations for 2007: Testimony of members of Congress and other interested individuals and organizations

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Book Synopsis Departments of Labor, Health and Human Services, Education, and Related Agencies Appropriations for 2007: Testimony of members of Congress and other interested individuals and organizations by : United States. Congress. House. Committee on Appropriations. Subcommittee on the Departments of Labor, Health and Human Services, Education, and Related Agencies

Download or read book Departments of Labor, Health and Human Services, Education, and Related Agencies Appropriations for 2007: Testimony of members of Congress and other interested individuals and organizations written by United States. Congress. House. Committee on Appropriations. Subcommittee on the Departments of Labor, Health and Human Services, Education, and Related Agencies and published by . This book was released on 2006 with total page 1406 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Congressional Record

Author : United States. Congress
Publisher :
ISBN 13 :
Total Pages : 1488 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Congressional Record by : United States. Congress

Download or read book Congressional Record written by United States. Congress and published by . This book was released on 2009 with total page 1488 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Congressional Record is the official record of the proceedings and debates of the United States Congress. It is published daily when Congress is in session. The Congressional Record began publication in 1873. Debates for sessions prior to 1873 are recorded in The Debates and Proceedings in the Congress of the United States (1789-1824), the Register of Debates in Congress (1824-1837), and the Congressional Globe (1833-1873)