Living And Dying With Dementia

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In Death's Waiting Room

Author : Anne-Mei The
Publisher : Amsterdam University Press
ISBN 13 : 9053560777
Total Pages : 204 pages
Book Rating : 4.0/5 (535 download)

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Book Synopsis In Death's Waiting Room by : Anne-Mei The

Download or read book In Death's Waiting Room written by Anne-Mei The and published by Amsterdam University Press. This book was released on 2008 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nederland telt op dit moment 250.000 dementerenden en hun aantal neemt toe. Ooit treft wellicht onze ouders, onze geliefden of onszelf dit lot. Anne-Mei The werkte als onderzoeker twee jaar in een verpleeghuis. Zij onthult wat meestal verborgen blijft: de beslissing om te stoppen met behandelen. De armoede en voodoo-rituelen van de gekleurde verzorgenden. Problemen die kunnen optreden met de familie. Spanningen, agressie en seks op de afdeling. Maar ze maakt ons ook deelgenoot van ontroerende en hilarische taferelen. Daarnaast ontrafelt The 'de zaak 't Blauwbörgje' die in de jaren negentig in het nieuws kwam. De familie van een diep demente man beschuldigde het verpleeghuis van poging tot moord. Wat ging er mis? En kan zoiets weer gebeuren? Het boek leest als een roman en zet eenieder aan het denken over de invulling van zijn of haar eigen levenseinde in het geval van dementie.

Living Before Dying

Author : Janette Davies
Publisher : Berghahn Books
ISBN 13 : 1785336142
Total Pages : 0 pages
Book Rating : 4.7/5 (853 download)

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Book Synopsis Living Before Dying by : Janette Davies

Download or read book Living Before Dying written by Janette Davies and published by Berghahn Books. This book was released on 2017-08 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This in-depth description of life in a nursing/care home for 70 residents and 40 staff highlights the daily care of frail or ill residents between 80 and 100 years of age, including people suffering with dementia. How residents interact with care assistants is emphasised, as are the different behaviours of men and women observed during a year of daily conversations between the author, patients and staff, who share their stories of the pressures of the work. Living Before Dying shows a world where, in extreme old age, people have to learn how to cope with living communally.

Living and Dying with Dementia

Author : Neil Small
Publisher :
ISBN 13 : 0198566875
Total Pages : 262 pages
Book Rating : 4.1/5 (985 download)

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Book Synopsis Living and Dying with Dementia by : Neil Small

Download or read book Living and Dying with Dementia written by Neil Small and published by . This book was released on 2007 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt: Improvements in health care in the 21st century mean people are living longer, but with the paradox that chronic illness is increasingly prevalent. Dementia, a term used to describe various different brain disorders that involve a loss of brain function that is usually progressive and eventually severe, is a condition associated with an ageing population and is becoming increasingly common. Worldwide there are approximately 25 million people with dementia, expected to rise to 63 million by 2030, and 114 million by 2050. Inevitably, people living with dementia will die, but their needs at the end of life are not well known. This book describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together, to achieve quality end of life care for this specific group of patients. It explores what is known about the experience of dying with dementia, using a narrative approach, and develops a model that draws together a 'person-centered' approach to care. The book examines the possibiities and the challenges faced when trying to improve quality of life for people with dementia, and presents examples of good practice from across the world.

How Do I Know You?

Author : Barbara Karnes
Publisher :
ISBN 13 : 9780983784197
Total Pages : 21 pages
Book Rating : 4.7/5 (841 download)

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Book Synopsis How Do I Know You? by : Barbara Karnes

Download or read book How Do I Know You? written by Barbara Karnes and published by . This book was released on 2016-09 with total page 21 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for someone with dementia presents different challenges than caring for others with health care issues.People with dementia don't "play by the rules" that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.The aim of this booklet is to provide information regarding approaching end of life to those people, family and significant others, who are making decisions for and caring for someone with dementia. It would be given to the family upon admission to the Palliative Care program or to any family that is having to address the eating and not eating dilemma.Like it's companions, Gone From My Sight and The Eleventh Hour, How Do I Know You? is short, written in large print, and the information is conveyed in a simple, direct yet gentle manner.

Making Tough Decisions about End-of-Life Care in Dementia

Author : Anne Kenny
Publisher : JHU Press
ISBN 13 : 1421426684
Total Pages : 232 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Making Tough Decisions about End-of-Life Care in Dementia by : Anne Kenny

Download or read book Making Tough Decisions about End-of-Life Care in Dementia written by Anne Kenny and published by JHU Press. This book was released on 2018-09-03 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

The Color of Gray: (Living and Dying with Alzheimer's)

Author : Polly L. Spainhour
Publisher : PublishAmerica
ISBN 13 : 1462631274
Total Pages : 284 pages
Book Rating : 4.4/5 (626 download)

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Book Synopsis The Color of Gray: (Living and Dying with Alzheimer's) by : Polly L. Spainhour

Download or read book The Color of Gray: (Living and Dying with Alzheimer's) written by Polly L. Spainhour and published by PublishAmerica. This book was released on 2011-06-24 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Polly was born in Surry County, N. C. She graduated from Pinnacle High School in 1964. She attended Winston-Salem Business College, and worked for North Carolina Baptist Hospital until she retired in 2008. She has taken several writing classes at Salem College, Winston-Salem, N. C. She was given the Editor's Choice Award in The Path Not Taken, by the National Library of Poetry. She has also had poetry published in Beyond the Stars, Where Dawn Lingers, Poetic Voices of America, and Treasured Poems of America. She has also self-published Daisies Rainbows Dreams. This is her story of being a caregiver and her husband's battle with Alzheimer's."

Living With Dementia

Author : Esther Chang
Publisher : ACER Press
ISBN 13 : 1742863310
Total Pages : 247 pages
Book Rating : 4.7/5 (428 download)

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Book Synopsis Living With Dementia by : Esther Chang

Download or read book Living With Dementia written by Esther Chang and published by ACER Press. This book was released on 2013-07-01 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: A sensitive, direct and highly accessible insight into the complexities and challenges that a diagnosis of dementia presents. Contributors represent academics, practicing nurses, aged care professionals and family advocates.

Dementia Reimagined

Author : Tia Powell
Publisher : Penguin
ISBN 13 : 0735210918
Total Pages : 322 pages
Book Rating : 4.7/5 (352 download)

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Book Synopsis Dementia Reimagined by : Tia Powell

Download or read book Dementia Reimagined written by Tia Powell and published by Penguin. This book was released on 2020-09-01 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.

In Death's Waiting Room

Author : Anne-Mei The
Publisher :
ISBN 13 :
Total Pages : 208 pages
Book Rating : 4.:/5 (11 download)

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Book Synopsis In Death's Waiting Room by : Anne-Mei The

Download or read book In Death's Waiting Room written by Anne-Mei The and published by . This book was released on 2008 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Death's Waiting Room is a penetrating story about people suffering from dementia in a multi-cultural society, relevant to us all. Anne-Mei The carried out two years of ethnographic research in a nursing home in the Netherlands revealing what usually remains hidden from the public: the decision to stop treatment, the cultural and social gap between the Dutch occupants and the black Caribbean nursing staff, the communication problems with relatives, the tensions and aggression. But she also shares with us the touching and funny moments and experiences with the elderly occupants. This book also unravels "the Blauwborgje case" - which was the focus of much media attention in the Netherlands in the late 1990s - in which a nursing home refused to re-hydrate a man with extreme dementia because they considered his condition to be terminal, whilst his family disagreed and pressed charges for attempted murder. Anne-Mei The gives an account of the events that took place and also explores the wider relevance of the case.

Making Tough Decisions about End-of-Life Care in Dementia

Author : Anne Kenny
Publisher : JHU Press
ISBN 13 : 1421426676
Total Pages : 233 pages
Book Rating : 4.4/5 (214 download)

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Book Synopsis Making Tough Decisions about End-of-Life Care in Dementia by : Anne Kenny

Download or read book Making Tough Decisions about End-of-Life Care in Dementia written by Anne Kenny and published by JHU Press. This book was released on 2018-09-03 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: Practical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health. Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about • making life-altering decisions while preparing for a loved one's inevitable death • medical care, pain, insomnia, medication, and eating • caring for the caregiver • having conversations about difficult topics with other family members and with health care, legal, and financial professionals Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

Living and Dying with Dementia

Author : Neil Small
Publisher :
ISBN 13 : 9780191730511
Total Pages : 248 pages
Book Rating : 4.7/5 (35 download)

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Book Synopsis Living and Dying with Dementia by : Neil Small

Download or read book Living and Dying with Dementia written by Neil Small and published by . This book was released on 2007 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: This title describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together.

Alzheimer's Disease

Author : Robert T. Woods
Publisher :
ISBN 13 : 9780285650381
Total Pages : 232 pages
Book Rating : 4.6/5 (53 download)

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Book Synopsis Alzheimer's Disease by : Robert T. Woods

Download or read book Alzheimer's Disease written by Robert T. Woods and published by . This book was released on 1989 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Dying of the Light

Author : Arthur Olson
Publisher : Burnstown, Ont. : General Store Publishing House
ISBN 13 : 9780919431539
Total Pages : 156 pages
Book Rating : 4.4/5 (315 download)

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Book Synopsis The Dying of the Light by : Arthur Olson

Download or read book The Dying of the Light written by Arthur Olson and published by Burnstown, Ont. : General Store Publishing House. This book was released on 1992 with total page 156 pages. Available in PDF, EPUB and Kindle. Book excerpt:

In Love

Author : Amy Bloom
Publisher : Random House
ISBN 13 : 0593243943
Total Pages : 241 pages
Book Rating : 4.5/5 (932 download)

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Book Synopsis In Love by : Amy Bloom

Download or read book In Love written by Amy Bloom and published by Random House. This book was released on 2022-03-08 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.

On Living

Author : Kerry Egan
Publisher : Penguin
ISBN 13 : 1594634823
Total Pages : 226 pages
Book Rating : 4.5/5 (946 download)

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Book Synopsis On Living by : Kerry Egan

Download or read book On Living written by Kerry Egan and published by Penguin. This book was released on 2017-10-24 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: "A poetic and philosophical and brave and uplifting meditation on how important it is to make peace and meaning of our lives while we still have them.” –Elizabeth Gilbert, bestselling author of Eat Pray Love "Illuminating, unflinching and ultimately inspiring... A book to treasure.” –People Magazine A hospice chaplain passes on wisdom on giving meaning to life, from those taking leave of it. As a hospice chaplain, Kerry Egan didn’t offer sermons or prayers, unless they were requested; in fact, she found, the dying rarely want to talk about God, at least not overtly. Instead, she discovered she’d been granted a powerful chance to witness firsthand what she calls the “spiritual work of dying”—the work of finding or making meaning of one’s life, the experiences it’s contained and the people who have touched it, the betrayals, wounds, unfinished business, and unrealized dreams. Instead of talking, she mainly listened: to stories of hope and regret, shame and pride, mystery and revelation and secrets held too long. Most of all, though, she listened as her patients talked about love—love for their children and partners and friends; love they didn’t know how to offer; love they gave unconditionally; love they, sometimes belatedly, learned to grant themselves. This isn’t a book about dying—it’s a book about living. And Egan isn’t just passively bearing witness to these stories. An emergency procedure during the birth of her first child left her physically whole but emotionally and spiritually adrift. Her work as a hospice chaplain healed her, from a brokenness she came to see we all share. Each of her patients taught her something about what matters in the end—how to find courage in the face of fear or the strength to make amends; how to be profoundly compassionate and fiercely empathetic; how to see the world in grays instead of black and white. In this hopeful, moving, and beautiful book, she passes along all their precious and necessary gifts.

Living and Dying with Alzheimer's and Related Diseases

Author : Frances Hightower
Publisher : Trafford Publishing
ISBN 13 : 1426990332
Total Pages : 62 pages
Book Rating : 4.4/5 (269 download)

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Book Synopsis Living and Dying with Alzheimer's and Related Diseases by : Frances Hightower

Download or read book Living and Dying with Alzheimer's and Related Diseases written by Frances Hightower and published by Trafford Publishing. This book was released on 2009-09-29 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Art of Dying Well

Author : Katy Butler
Publisher : Scribner
ISBN 13 : 1501135473
Total Pages : 288 pages
Book Rating : 4.5/5 (11 download)

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Book Synopsis The Art of Dying Well by : Katy Butler

Download or read book The Art of Dying Well written by Katy Butler and published by Scribner. This book was released on 2020-02-11 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).