Kickin' ALS

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Publisher :
ISBN 13 : 9781941953877
Total Pages : pages
Book Rating : 4.9/5 (538 download)

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Book Synopsis Kickin' ALS by : Carrey Dewey

Download or read book Kickin' ALS written by Carrey Dewey and published by . This book was released on 2019-10 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Carrey Dewey and her husband, Eric, worked hard to build their dream life: a strong marriage, three incredible kids, and a beautiful home. It all came crashing down when Carrey was diagnosed at age 42 with amyotrophic lateral sclerosis (ALS) - a disease that had no treatment or cure, a disease that is 100 percent fatal. Her doctor told her, "Get your paperwork in order and go make memories." But Carrey, a smart, courageous, and often very funny woman, was determined to do more - to spend what life she had left advocating for ALS research and educating people about the disease.Kickin' ALS is a compilation of Carrey's personal Facebook posts, written from shortly after her diagnosis in June 2014 until just before her death in May 2018. It is a powerful and poignant chronicle of one woman's experience with the disease made famous through the Ice Bucket Challenge.More than 5,000 people in the United States are diagnosed with ALS each year, according to the ALS Association, and it is estimated that at least 16,000 Americans may be living with ALS at any given time.Proceeds from the sale of this book will be donated to organizations supporting ALS research and education, as well as ALS patients and their families.

A Life Impossible

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Publisher : Knopf
ISBN 13 : 0593536827
Total Pages : 313 pages
Book Rating : 4.5/5 (935 download)

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Book Synopsis A Life Impossible by : Steve Gleason

Download or read book A Life Impossible written by Steve Gleason and published by Knopf. This book was released on 2024-04-30 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially. This unsparing portrait argues that a person's true strength does not reside solely in one’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.

Living All the Way

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Publisher : iUniverse
ISBN 13 : 1532059574
Total Pages : 90 pages
Book Rating : 4.5/5 (32 download)

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Book Synopsis Living All the Way by : Barbara Victoria

Download or read book Living All the Way written by Barbara Victoria and published by iUniverse. This book was released on 2018-10-11 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a hospice nurse explained the physical and emotional benchmarks in the end stages of life that my mother-in-law would experience after her cancer metastasized, a light went on in my head. I had been schooled in the physical and emotional phases of birth with Lamaze; dying is the journey at the other end of life! Both are wrought on sacred ground, accompanied by pain and awe and the unexpected. And both can reveal true miracles that cannot be foreseen unless we get out of the way and allow the process to reveal itself. Fifteen years later—eleven as a hospice volunteer and four on an interdisciplinary team—I appreciate the practical factors, financial and physical, of hospice care. The spiritual dimensions make this work I can’t NOT do. If we put away our fear, we can make choices for ourselves and with our loved ones that allow living all the way to the end with grace and dignity and peace.

How ALS Changed Everything

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Publisher :
ISBN 13 : 9781500689261
Total Pages : 210 pages
Book Rating : 4.6/5 (892 download)

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Book Synopsis How ALS Changed Everything by : Jan Murray

Download or read book How ALS Changed Everything written by Jan Murray and published by . This book was released on 2014-12-21 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family's journey through ALS/Amyotrophic Lateral Sclerosis, aka Lou Gehrig's Disease, taking the reader from shock and devastation to acceptance, hope and LIFE despite the terminal illness. "How ALS Changed Everything" follows the Murray family through everyday, real, raw experiences with ALS, its effects on them as individuals, their children, their marriage, and faith. The story immediately draws the reader into the Murray's lives and is a poignant tale of facing a monster of an illness, with little to no hope, with bravery, yet fear, and still coming out on top in happiness. Eleven other touching stories from ALS families from around the country are also included in the book. Inspiring. Heart wrenching. Compelling.

Amyotrophic Lateral Sclerosis

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Publisher : Demos Medical Publishing
ISBN 13 : 1935281194
Total Pages : 499 pages
Book Rating : 4.9/5 (352 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Hiroshi Mitsumoto, MD

Download or read book Amyotrophic Lateral Sclerosis written by Hiroshi Mitsumoto, MD and published by Demos Medical Publishing. This book was released on 2009-03-16 with total page 499 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.

Amyotrophic Lateral Sclerosis

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Author :
Publisher : ReadHowYouWant.com
ISBN 13 : 1458753573
Total Pages : 458 pages
Book Rating : 4.4/5 (587 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Hiroshi Mitsumoto

Download or read book Amyotrophic Lateral Sclerosis written by Hiroshi Mitsumoto and published by ReadHowYouWant.com. This book was released on 2010-04 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.

The Ice Bucket Challenge

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Author :
Publisher : University Press of New England
ISBN 13 : 1512601594
Total Pages : 186 pages
Book Rating : 4.5/5 (126 download)

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Book Synopsis The Ice Bucket Challenge by : Casey Sherman

Download or read book The Ice Bucket Challenge written by Casey Sherman and published by University Press of New England. This book was released on 2017-09-05 with total page 186 pages. Available in PDF, EPUB and Kindle. Book excerpt: While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body. A man whose love for others was unshakable. A man who refused to fight alone, and in so doing mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease. When disease crippled Frates, the former Boston College baseball star turned tragedy into inspiration. Pete's story is a testament to the power of love, the steadfastness of family, the generosity of strangers, and the compassion of crowds. Half of the authors' proceeds will go to the Frates family.

Amyotrophic Lateral Sclerosis

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Publisher : Demos Medical Publishing
ISBN 13 : 1934559067
Total Pages : 258 pages
Book Rating : 4.9/5 (345 download)

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Book Synopsis Amyotrophic Lateral Sclerosis by : Deborah Gelinas

Download or read book Amyotrophic Lateral Sclerosis written by Deborah Gelinas and published by Demos Medical Publishing. This book was released on 2004-10-01 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations.

One Blink at a Time

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Publisher :
ISBN 13 : 9781073767069
Total Pages : 231 pages
Book Rating : 4.7/5 (67 download)

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Book Synopsis One Blink at a Time by : Cheryl Tsieprati

Download or read book One Blink at a Time written by Cheryl Tsieprati and published by . This book was released on 2014-11-06 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: One Blink at a Time is Ismail and Cheryl Tsieprati's story of living with ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's Disease} for more than 30 years. One Blink at a Time is upbeat, inspiring and full of optimism as Ismail and Cheryl recount in alternating chapters how they deal with their daily challenges. Although ALS has stolen Ismail's ability to move, speak, even to breathe on his own, it has not taken away his determination to live a happy and productive life. Ismail spelled out his chapters using eye blinks, letter by letter, word by word. Cheryl and Ismail's distinctive voices add to the impact of this exceptional book. Full of practical advice from training caregivers to preparing for emergencies to surviving the hospital, the book also includes an extensive glossary and resources for anyone dealing with ALS and other disabling conditions. But above all else, One Blink at a Time is an inspiring love story. Ismail and Cheryl are as devoted to one another today as they were the day they were married nearly 50 years ago.

Playing Chess with the Devil

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Publisher : Tate Pub & Enterprises Llc
ISBN 13 : 9781628544640
Total Pages : 76 pages
Book Rating : 4.5/5 (446 download)

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Book Synopsis Playing Chess with the Devil by : Julie A. Rouse

Download or read book Playing Chess with the Devil written by Julie A. Rouse and published by Tate Pub & Enterprises Llc. This book was released on 2013-10 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is ALS, also known as Lou Gehrig's Disease? What can I expect from this diagnosis for myself or my loved one? How will Lou Gehrig's Disease affect my family? Where do I find more information about this disease? How will my family cope? When first receiving the news that her father had developed Lou Gehrig's Disease, there really wasn't much that author Julie Rouse could find to help her understand this disease or what her family would face throughout its progression. Playing Chess with the Devil: One Family's Journey through ALS is one resource that every newly diagnosed ALS patient or loved one should read in order to understand how the disease might affect your life and to find practical advice about how to battle this disease. Playing Chess with the Devil: One Family's Journey through ALS is the personal journey of the author's family from her dad's ALS diagnosis through his passing. Join Julie Rouse as she takes you on a journey of unconditional love, happiness, humor, loss, and finding the strength to carry on.

Journeys with ALS

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Publisher :
ISBN 13 :
Total Pages : 308 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Journeys with ALS by :

Download or read book Journeys with ALS written by and published by . This book was released on 1998 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Hold On, Let Go

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Publisher :
ISBN 13 : 9780995334601
Total Pages : pages
Book Rating : 4.3/5 (346 download)

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Book Synopsis Hold On, Let Go by : Nadine Sands

Download or read book Hold On, Let Go written by Nadine Sands and published by . This book was released on 2016-10-12 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: This "stay positive in difficult times" story is about a man with ALS (also known as Lou Gehrig's disease) and his wife who writes about their inspiring journey in her blog called ALS With Courage. In Hold On, Let Go, Nadine Sands expands on her blog, which takes her readers from pre-diagnosis to Michael's complete paralysis, and reflects throughout on her husband's strength and determination; on their hope and faith in God; and the sorrow and joy of learning to let go. "Mike has let go of working, walking, talking, eating, moving, and slowly he lets go of breathing. And I am letting go of him.... With each loss, we gain; by losing so much, we have more than we could imagine." Follow Nadine as she learns to savour every moment, to give thanks in all circumstances, and to cherish the love. "Our love would never have known these depths had Mike been taken away suddenly. Instead we were given three to five years to rejoice, pray, and give thanks together every day."

The Highest Hurdle

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Publisher : Elm Hill
ISBN 13 : 0310101859
Total Pages : 278 pages
Book Rating : 4.3/5 (11 download)

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Book Synopsis The Highest Hurdle by : Kim Wroblewski

Download or read book The Highest Hurdle written by Kim Wroblewski and published by Elm Hill. This book was released on 2019-05-07 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: It was year of the Ice Bucket Challenge when MaryFran Peterlin-Kolp was diagnosed with Amyotrophic Lateral Sclerosis. A top college athlete and having earned a Ph. D in Exercise Physiology she was never afraid to rise up to a challenge and she decided that she would do "whatever it takes" to try to find a cure. MaryFran always had a strong Catholic Faith to rely on, great family support and would soon see how a small Northern Michigan town would rally around her. She would explore not just conventional western medicine but alternative treatments and therapies, diets, and of course rely on her faith to guide her. Using her positive attitude she takes us on her ALS journey with the belief that God chose her so that others could be spared with the hope that maybe she could help find a cure. You will laugh, cry and be amazed at how one woman could have such a lasting impact on a community and how that community helped to care for her. MaryFan will show you that all you need is faith, family, and some "Frantabulous Friends" to live a happy life.

The Only Way to Live: My Life and Coping with ALS

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Publisher : Lulu.com
ISBN 13 : 1300011327
Total Pages : 160 pages
Book Rating : 4.3/5 ( download)

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Book Synopsis The Only Way to Live: My Life and Coping with ALS by : Michael Boman

Download or read book The Only Way to Live: My Life and Coping with ALS written by Michael Boman and published by Lulu.com. This book was released on 2012-06-26 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: ​"The Only Way to Live" is a quick read filled with many entertaining stories. Michael has not held back anything in this book - brutal honesty and vulnerability when he talks about going from a life of non-stop adventure to his latest challenge of life - fighting ALS. An amazing tale of a kid with all the odds against him, moving all over the country multiple times with multiple family members in and out of his life, growing up and working hard to get what he wants in a career. Throughout the childhood stories, his young adult escapades, and through his years starting his career, it is apparent that Michael lives life to the fullest!​

ALS--Lou Gehrig's Disease

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Publisher : Enslow Publishing
ISBN 13 : 9780766015944
Total Pages : 134 pages
Book Rating : 4.0/5 (159 download)

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Book Synopsis ALS--Lou Gehrig's Disease by : Mary Dodson Wade

Download or read book ALS--Lou Gehrig's Disease written by Mary Dodson Wade and published by Enslow Publishing. This book was released on 2001 with total page 134 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explores the history of this incurable disease, from its initial diagnosis to the sophisticated techniques used today for treatment and for helping patients cope with the disease.

Crucible of the Incurable

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Publisher : Cornell University Press
ISBN 13 : 1501778331
Total Pages : 0 pages
Book Rating : 4.5/5 (17 download)

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Book Synopsis Crucible of the Incurable by : Anthony Stavrianakis

Download or read book Crucible of the Incurable written by Anthony Stavrianakis and published by Cornell University Press. This book was released on 2024-11-15 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Crucible of the Incurable concerns how people face life with amyotrophic lateral sclerosis (ALS). Anthony Stavrianakis spent a year in clinics and with people living with the illness in the United States. He examines the multiple meanings of care in a context of a chronic, degenerative, one-hundred percent fatal, neuromuscular illness, whose most common duration is between two and five years. How do people diagnosed with ALS continue to "live as well as possible, for as long as possible" in accordance with the normative work at the heart of outpatient ALS care? Crucible of the Incurable shows how those touched by the situation of a person living with ALS bear this problem and this task. Given the sense of certitude around the diagnosis, given past experiences of those aware of its usual progression, and given the uncertainty of the disease's cause and its progression for each specific person; how then do people orient themselves to the experience of life with this illness, how to support those who are confronted with it, and how to provide aid or solace.

Joy and Suffering

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Publisher : Createspace Independent Publishing Platform
ISBN 13 : 9781494926137
Total Pages : 0 pages
Book Rating : 4.9/5 (261 download)

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Book Synopsis Joy and Suffering by : Martin J. D'Amore

Download or read book Joy and Suffering written by Martin J. D'Amore and published by Createspace Independent Publishing Platform. This book was released on 2014-01-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Martin D'Amore and his wife are both doctors, so when they began to notice possible ALS symptoms in Marty, they desperately looked for other causes. But after many tests and meetings with experts, Marty finally got the word, he had Lou Gehrig's disease, and the clock began to tick. ALS robs its victims of their physical abilities, from their muscular activity, to their nervous system, and, finally, their ability to even breathe. All the while, the mind remains intact. It is a brutal, often soul-crushing disease, and yet Marty has persevered and even grown as a result of ALS. Discover how Marty's battle with ALS has led him to a greater relationship with Christ, a better understanding of himself, and, finally, to great contentment and happiness. Whether or not you or someone you love is battling ALS, this inspiring true story of love and courage will help you find joy through your sufferings.