Having Cystic Fibrosis Is A Lot Like Being A Super Hero

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Publisher :
ISBN 13 :
Total Pages : 28 pages
Book Rating : 4.6/5 (691 download)

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Book Synopsis Having Cystic Fibrosis Is A Lot Like Being A Super Hero by : Kelsey M Finn

Download or read book Having Cystic Fibrosis Is A Lot Like Being A Super Hero written by Kelsey M Finn and published by . This book was released on 2020-07-24 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells the story of Jack, a boy who has CF, and his CF Superpowers. This book is intended to serve as a way to communicate with children about CF, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis. The book also contains a section for parents of tips of how best to communicate with kids about CF. The tips in this section are based on empirical, peer-reviewed research.

Having Cystic Fibrosis Is A Lot Like Being A Superhero

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Author :
Publisher :
ISBN 13 :
Total Pages : 28 pages
Book Rating : 4.6/5 (631 download)

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Book Synopsis Having Cystic Fibrosis Is A Lot Like Being A Superhero by : Kelsey M Finn

Download or read book Having Cystic Fibrosis Is A Lot Like Being A Superhero written by Kelsey M Finn and published by . This book was released on 2020-07-02 with total page 28 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.

Taking Cystic Fibrosis to School

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Publisher : Jayjo Books
ISBN 13 : 9781891383090
Total Pages : 0 pages
Book Rating : 4.3/5 (83 download)

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Book Synopsis Taking Cystic Fibrosis to School by : Cynthia S. Henry

Download or read book Taking Cystic Fibrosis to School written by Cynthia S. Henry and published by Jayjo Books. This book was released on 2000 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.

Mallory's 65 Roses

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Publisher :
ISBN 13 : 9780970035301
Total Pages : 24 pages
Book Rating : 4.0/5 (353 download)

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Book Synopsis Mallory's 65 Roses by : Diane Shader Smith

Download or read book Mallory's 65 Roses written by Diane Shader Smith and published by . This book was released on 1997-01-01 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."

Diary of a CF Kid

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Publisher : Independently Published
ISBN 13 :
Total Pages : 225 pages
Book Rating : 4.7/5 (288 download)

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Book Synopsis Diary of a CF Kid by : Tim Sweeney

Download or read book Diary of a CF Kid written by Tim Sweeney and published by Independently Published. This book was released on 2021-04-19 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.

I'm Not Fat, I'm Just Big Boned and Other Lies We Tell Ourselves

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Author :
Publisher : iUniverse
ISBN 13 : 1462015530
Total Pages : 129 pages
Book Rating : 4.4/5 (62 download)

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Book Synopsis I'm Not Fat, I'm Just Big Boned and Other Lies We Tell Ourselves by : Leticia Remauro

Download or read book I'm Not Fat, I'm Just Big Boned and Other Lies We Tell Ourselves written by Leticia Remauro and published by iUniverse. This book was released on 2011-06-07 with total page 129 pages. Available in PDF, EPUB and Kindle. Book excerpt: "When I first decided to write this book it was because I wanted to share my weight loss experience with others. I figured that if I could overcome a life long struggle with obesity then others could as well. I compiled all my tips in one place hoping that after people read them they would understand that weight loss is an achievable goal. The odd thing is, the more I wrote the more I realized that it wasnt a diet program alone that helped me to lose weight it was the fact that I had finally stopped lying to myself about why I was fat in the first place."

Oh Skin Nay !

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Publisher : Blurb
ISBN 13 :
Total Pages : 0 pages
Book Rating : 4.2/5 (16 download)

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Book Synopsis Oh Skin Nay ! by : Comic Books Restore

Download or read book Oh Skin Nay ! written by Comic Books Restore and published by Blurb. This book was released on 2023-11-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: ----- This book by cartoonist Briggs Care and in collaboration with poet Wilbur D. Nesbit. First published in 1913 by P. F. Volland and Company of Chicago, Oh Skin-Nay! depicts a year in the life of a small American town through the eyes of a twelve-year-old boy: wood gathering, sleigh rides, post office games, swimming and sand ball games. ---- It's a very real and funny snapshot of late 19th-century American working-class life, with its swimming pools, boardwalks, vacant lots, ice cream carts, Sunday school picnics and Saturday night baths. It is indeed a masterful work in its own right, a richly comic portrait of Midwestern America in the days of childhood. ----ABOUT THE AUTHOR As a young man, Briggs left his rural home to embark on a career as an illustrator and cartoonist. He enjoyed success in big-city newspapers such as the Chicago Examiner, the Chicago Tribune and the New York Tribune. In the space of a few years, Briggs moved away from the brutal humor of early comics and drew discreet strips in two modes: nostalgic musings centered on memories of small-town childhood, and satirical strips about the quarrels inherent in married life.

Five Feet Apart

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Publisher : Simon & Schuster Books for Young Readers
ISBN 13 : 1534451560
Total Pages : 288 pages
Book Rating : 4.5/5 (344 download)

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Book Synopsis Five Feet Apart by : Rachael Lippincott

Download or read book Five Feet Apart written by Rachael Lippincott and published by Simon & Schuster Books for Young Readers. This book was released on 2019-02-05 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now a major motion picture starring Cole Sprouse and Haley Lu Richardson! Goodreads Choice Winner, Best Young Adult Fiction of 2019 In this #1 New York Times bestselling novel that’s perfect for fans of John Green’s The Fault in Our Stars, two teens fall in love with just one minor complication—they can’t get within a few feet of each other without risking their lives. Can you love someone you can never touch? Stella Grant likes to be in control—even though her totally out of control lungs have sent her in and out of the hospital most of her life. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Six feet apart. No exceptions. The only thing Will Newman wants to be in control of is getting out of this hospital. He couldn’t care less about his treatments, or a fancy new clinical drug trial. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. Will’s exactly what Stella needs to stay away from. If he so much as breathes on Stella she could lose her spot on the transplant list. Either one of them could die. The only way to stay alive is to stay apart. But suddenly six feet doesn’t feel like safety. It feels like punishment. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too?

The CF Warrior Project Volume 2

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Publisher : Booklogix
ISBN 13 : 9781665304030
Total Pages : 0 pages
Book Rating : 4.3/5 (4 download)

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Book Synopsis The CF Warrior Project Volume 2 by : Andy C. Lipman

Download or read book The CF Warrior Project Volume 2 written by Andy C. Lipman and published by Booklogix. This book was released on 2023-02-07 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The CF Warrior Project Volume 2: Celebrating Our Cystic Fibrosis Community is a first-of-its-kind, inspirational book that details the lives of both people who live with the life-changing diagnosis of cystic fibrosis along with those who have made a difference in the CF community by advocating for those who fight the disease.

Raising Sweetness

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Publisher : Live Oak Media (NY)
ISBN 13 : 9781591122678
Total Pages : pages
Book Rating : 4.1/5 (226 download)

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Book Synopsis Raising Sweetness by : Diane Stanley

Download or read book Raising Sweetness written by Diane Stanley and published by Live Oak Media (NY). This book was released on 2003-10-01 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

My DNA Diary

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Publisher :
ISBN 13 : 9781916455009
Total Pages : 56 pages
Book Rating : 4.4/5 (55 download)

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Book Synopsis My DNA Diary by : Lisa Mullan

Download or read book My DNA Diary written by Lisa Mullan and published by . This book was released on 2018-10 with total page 56 pages. Available in PDF, EPUB and Kindle. Book excerpt: A child-friendly explanation of the cause of Cystic Fibrosis with an introduction to the language of DNA and genetics. This easy-to-read, illustrated narrative is written in small, bite-sized sections from the point of view of your DNA. Filled with amazing insights and fascinating facts, My DNA Diary: Cystic Fibrosis is aimed at 9-12 year olds.

Breath from Salt

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Publisher : BenBella Books
ISBN 13 : 1948836629
Total Pages : 744 pages
Book Rating : 4.9/5 (488 download)

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Book Synopsis Breath from Salt by : Bijal P. Trivedi

Download or read book Breath from Salt written by Bijal P. Trivedi and published by BenBella Books. This book was released on 2020-09-08 with total page 744 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.

Can You See What I See?

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Publisher : Anchor Books
ISBN 13 : 9781907107757
Total Pages : pages
Book Rating : 4.1/5 (77 download)

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Book Synopsis Can You See What I See? by : Louise Byrne

Download or read book Can You See What I See? written by Louise Byrne and published by Anchor Books. This book was released on 2011 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Tells the story of a little person with Cystic Fibrosis and a superhero style approach to health challenges in the Family. This title also includes practical and positive tips for parents.

Living with Cystic Fibrosis

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Publisher :
ISBN 13 : 9781567661057
Total Pages : 40 pages
Book Rating : 4.6/5 (61 download)

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Book Synopsis Living with Cystic Fibrosis by : Susan Heinrichs Gray

Download or read book Living with Cystic Fibrosis written by Susan Heinrichs Gray and published by . This book was released on 2003 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chronic condition of cystic fibrosis is explained to help children better understand and cope with the condition and to educate regarding the prospects of a cure.

Smile: A Graphic Novel

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Publisher : Scholastic Inc.
ISBN 13 : 0545780012
Total Pages : 227 pages
Book Rating : 4.5/5 (457 download)

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Book Synopsis Smile: A Graphic Novel by : Raina Telgemeier

Download or read book Smile: A Graphic Novel written by Raina Telgemeier and published by Scholastic Inc.. This book was released on 2014-07-29 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raina Telgemeier's #1 New York Times bestselling, Eisner Award-winning graphic memoir based on her childhood! Raina just wants to be a normal sixth grader. But one night after Girl Scouts she trips and falls, severely injuring her two front teeth. What follows is a long and frustrating journey with on-again, off-again braces, surgery, embarrassing headgear, and even a retainer with fake teeth attached. And on top of all that, there's still more to deal with: a major earthquake, boy confusion, and friends who turn out to be not so friendly.

Handle with Care

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Publisher : Simon and Schuster
ISBN 13 : 1982186399
Total Pages : 640 pages
Book Rating : 4.9/5 (821 download)

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Book Synopsis Handle with Care by : Jodi Picoult

Download or read book Handle with Care written by Jodi Picoult and published by Simon and Schuster. This book was released on 2022-02-22 with total page 640 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Every expectant parent insists the same thing: they simply want a healthy baby. Charlotte and Sean O'Keefe wanted the same but instead, their lives are made up of sleepless nights, mounting bills, pity from other parents, and haunting what-ifs. Yet, in other ways, their daughter Willow is a perfect child. Smart as a whip, beautiful, brave, and kind, Willow is Willow, in sickness and in health. Everything changes, though, after a series of events forces Charlotte and Sean to confront the most serious what-ifs of all. What if Charlotte had known earlier of Willow's illness? What if things could have been different? What if their beloved Willow had never been born? To do Willow justice, Charlotte must ask herself these questions and one more: what constitutes a valuable life?"--from amazon.com

Sisters: A Graphic Novel

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Publisher : Scholastic Inc.
ISBN 13 : 0545540666
Total Pages : 211 pages
Book Rating : 4.5/5 (455 download)

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Book Synopsis Sisters: A Graphic Novel by : Raina Telgemeier

Download or read book Sisters: A Graphic Novel written by Raina Telgemeier and published by Scholastic Inc.. This book was released on 2014-08-26 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raina Telgemeier’s #1 New York Times bestselling, Eisner Award-winning companion to Smile! Raina can't wait to be a big sister. But once Amara is born, things aren't quite how she expected them to be. Amara is cute, but she's also a cranky, grouchy baby, and mostly prefers to play by herself. Their relationship doesn't improve much over the years, but when a baby brother enters the picture and later, something doesn't seem right between their parents, they realize they must figure out how to get along. They are sisters, after all.Raina uses her signature humor and charm in both present-day narrative and perfectly placed flashbacks to tell the story of her relationship with her sister, which unfolds during the course of a road trip from their home in San Francisco to a family reunion in Colorado.