Global Genes Local Concerns

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Global Genes, Local Concerns

Author : Timo Minssen
Publisher : Edward Elgar Publishing
ISBN 13 : 1788116194
Total Pages : 304 pages
Book Rating : 4.7/5 (881 download)

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Book Synopsis Global Genes, Local Concerns by : Timo Minssen

Download or read book Global Genes, Local Concerns written by Timo Minssen and published by Edward Elgar Publishing. This book was released on 2019 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: With interdisciplinary chapters written by lawyers, sociologists, doctors and biobank practitioners, Global Genes, Local Concerns identifies and discusses the most pressing issues in contemporary biobanking. Addressing pressing questions such as how do national biobanks best contribute to translational research and how could academic and industrial exploitation, ownership and IPR issues be addressed and facilitated, this book contributes to the continued development of international biobanking by highlighting and analysing the complexities in this important area of research.

Managing Global Genetic Resources

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309131863
Total Pages : 476 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Managing Global Genetic Resources by : National Research Council

Download or read book Managing Global Genetic Resources written by National Research Council and published by National Academies Press. This book was released on 1993-02-01 with total page 476 pages. Available in PDF, EPUB and Kindle. Book excerpt: This anchor volume to the series Managing Global Genetic Resources examines the structure that underlies efforts to preserve genetic material, including the worldwide network of genetic collections; the role of biotechnology; and a host of issues that surround management and use. Among the topics explored are in situ versus ex situ conservation, management of very large collections of genetic material, problems of quarantine, the controversy over ownership or copyright of genetic material, and more.

Altered Genes, Twisted Truth

Author : Steven M. Druker
Publisher :
ISBN 13 : 9780985616908
Total Pages : 0 pages
Book Rating : 4.6/5 (169 download)

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Book Synopsis Altered Genes, Twisted Truth by : Steven M. Druker

Download or read book Altered Genes, Twisted Truth written by Steven M. Druker and published by . This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers an exposé on the genetic engineering of foods, maintaining that the unduly reckless way it has been practiced is based, not on sound science, but the subversion of science, and that its promotion has been marked by corruption and the suppression or distortion of facts.

Evaluating Human Genetic Diversity

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309184746
Total Pages : 101 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Evaluating Human Genetic Diversity by : National Research Council

Download or read book Evaluating Human Genetic Diversity written by National Research Council and published by National Academies Press. This book was released on 1998-01-19 with total page 101 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book assesses the scientific value and merit of research on human genetic differencesâ€"including a collection of DNA samples that represents the whole of human genetic diversityâ€"and the ethical, organizational, and policy issues surrounding such research. Evaluating Human Genetic Diversity discusses the potential uses of such collection, such as providing insight into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.

Governing Intellectual Property Rights Within Publicly Funded Biobanks

Author : Rajam Neethu
Publisher : Kluwer Law International B.V.
ISBN 13 : 9403506229
Total Pages : 342 pages
Book Rating : 4.4/5 (35 download)

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Book Synopsis Governing Intellectual Property Rights Within Publicly Funded Biobanks by : Rajam Neethu

Download or read book Governing Intellectual Property Rights Within Publicly Funded Biobanks written by Rajam Neethu and published by Kluwer Law International B.V.. This book was released on 2019-06-21 with total page 342 pages. Available in PDF, EPUB and Kindle. Book excerpt: Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out of the knowledge emanating from the use of biobank resources lies in managing intellectual property inputs and outputs effectively in keeping with the values core to such research. Focusing on the challenges of involving intellectual property rights (IPRs) particularly in the precompetitive phase of biobank-based research, the book offers an extensive understanding of the role of different IPRs and identifies the gaps in the law and its implications for biobanks. The analysis covers important aspects in relation to biobanks such as: Digital integration and biomedical data storage; Ownership of biological samples; Commercialization and benefit sharing; Partnership models; Public sector research; Disposition of samples; Consent; Cross-border exchange; Trade secrecy; Privacy; Regulatory stewardship; Business strategies; Ethical considerations over biological resources; Patenting of inventions relating to personalized medicine; Ethical parameters within patent law; and Rights regarding genetic data and databases. The book includes observations, case studies and interviews conducted by the author. In conclusion, the author offers cogent recommendations for legal interoperability of IP rules and research practices designed to enhance the ability of biobanks to share, access and reuse data. This book is the first of its kind to explore the organizational and legislative choices for biobanks particularly while engaging in the protection of research results and technology transfer within a publicly funded setting. It will be of substantial interest to all stakeholders in biobanking, especially policymakers, biobankers and researchers working in the field of health law as well as for legal practitioners, academics and patient interest groups.

The Routledge Handbook of Food Ethics

Author : Mary Rawlinson
Publisher : Routledge
ISBN 13 : 1317595491
Total Pages : 658 pages
Book Rating : 4.3/5 (175 download)

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Book Synopsis The Routledge Handbook of Food Ethics by : Mary Rawlinson

Download or read book The Routledge Handbook of Food Ethics written by Mary Rawlinson and published by Routledge. This book was released on 2016-07-01 with total page 658 pages. Available in PDF, EPUB and Kindle. Book excerpt: While the history of philosophy has traditionally given scant attention to food and the ethics of eating, in the last few decades the subject of food ethics has emerged as a major topic, encompassing a wide array of issues, including labor justice, public health, social inequity, animal rights and environmental ethics. This handbook provides a much needed philosophical analysis of the ethical implications of the need to eat and the role that food plays in social, cultural and political life. Unlike other books on the topic, this text integrates traditional approaches to the subject with cutting edge research in order to set a new agenda for philosophical discussions of food ethics. The Routledge Handbook of Food Ethics is an outstanding reference source to the key topics, problems and debates in this exciting subject and is the first collection of its kind. Comprising over 35 chapters by a team of international contributors, the Handbook is divided into 7 parts: the phenomenology of food gender and food food and cultural diversity liberty, choice and food policy food and the environment farming and eating other animals food justice Essential reading for students and researchers in food ethics, it is also an invaluable resource for those in related disciplines such as environmental ethics and bioethics.

Handbook of Intellectual Property Research

Author : Irene Calboli
Publisher : Oxford University Press
ISBN 13 : 0198826745
Total Pages : 913 pages
Book Rating : 4.1/5 (988 download)

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Book Synopsis Handbook of Intellectual Property Research by : Irene Calboli

Download or read book Handbook of Intellectual Property Research written by Irene Calboli and published by Oxford University Press. This book was released on 2021 with total page 913 pages. Available in PDF, EPUB and Kindle. Book excerpt: "The relevance of intellectual property (IP) law has increased dramatically over the last several years. Globalization, digitization, and the rise of post-industrial information-based industries have all contributed to a new prominence of IP law as one of the most important factors in driving innovation and economic development. At the same time, the significant expansion of IP rules has impacted many areas of public policy such as public health, the environment, biodiversity, agriculture, information, in an unprecedented manner. The growing importance of IP law has led to an exponential growth of academic research in this area. This Book offers a comprehensive overview of the methods and approaches that can be used to address and develop scholarly research questions related to IP law. In particular, this Book aims to provide a useful resource that can be used by IP scholars who are interested in expanding their expertise in a specific research method or seek to acquire an understanding of alternative lenses that could be applied to their research. Even though this Book does not claim to include all existing research methodologies, it represents one of the largest and most diverse compilations, which has been carried out to date. In addition, the authors of this Book comprise an equally diverse group of scholars from different jurisdictions, backgrounds, and legal traditions. This diversity, both regarding the topics and the authors, is a fundamental feature of the Book, which seeks to assist IP scholars worldwide in their research journeys." --

GDPR and Biobanking

Author : Jane Reichel
Publisher : Springer Nature
ISBN 13 : 3030493881
Total Pages : 432 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis GDPR and Biobanking by : Jane Reichel

Download or read book GDPR and Biobanking written by Jane Reichel and published by Springer Nature. This book was released on 2021 with total page 432 pages. Available in PDF, EPUB and Kindle. Book excerpt: Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research -- A Pan-European analysis of Article 89 implementation and national biobank research regulations -- EEA, Switzerland analysis of GDPR requirements and national biobank research regulations -- Part III National insights in biobank regulatory frameworks -- Selected 10-15 countries for reports: Germany -- Greece -- France -- Finland -- Sweden -- United Kingdom -- Part IV Conclusions -- Reflections on individual rights, the public interest and biobank research, ramifications and ways forward. .

Fairness, Morality and Ordre Public in Intellectual Property

Author : Daniel J.Gervais
Publisher : Edward Elgar Publishing
ISBN 13 : 1839104376
Total Pages : 384 pages
Book Rating : 4.8/5 (391 download)

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Book Synopsis Fairness, Morality and Ordre Public in Intellectual Property by : Daniel J.Gervais

Download or read book Fairness, Morality and Ordre Public in Intellectual Property written by Daniel J.Gervais and published by Edward Elgar Publishing. This book was released on 2020-04-24 with total page 384 pages. Available in PDF, EPUB and Kindle. Book excerpt: This incisive book explores the ways in which the major notions of fairness, morality and ordre public can be used both to justify and to limit intellectual property rights. Written by an international team of experts in the field, it provides varied and sometimes divergent perspectives on how these notions are applied to different rights and in different contexts.

Big Data, Health Law, and Bioethics

Author : I. Glenn Cohen
Publisher : Cambridge University Press
ISBN 13 : 110815364X
Total Pages : 374 pages
Book Rating : 4.1/5 (81 download)

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Book Synopsis Big Data, Health Law, and Bioethics by : I. Glenn Cohen

Download or read book Big Data, Health Law, and Bioethics written by I. Glenn Cohen and published by Cambridge University Press. This book was released on 2018-03-08 with total page 374 pages. Available in PDF, EPUB and Kindle. Book excerpt: When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors.

Scarcity, regulation, and the abundance society

Author : Mark A. Lemley
Publisher : Frontiers Media SA
ISBN 13 : 2832521959
Total Pages : 274 pages
Book Rating : 4.8/5 (325 download)

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Book Synopsis Scarcity, regulation, and the abundance society by : Mark A. Lemley

Download or read book Scarcity, regulation, and the abundance society written by Mark A. Lemley and published by Frontiers Media SA. This book was released on 2023-04-27 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Bioeconomies

Author : Vincenzo Pavone
Publisher : Springer
ISBN 13 : 3319556517
Total Pages : 350 pages
Book Rating : 4.3/5 (195 download)

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Book Synopsis Bioeconomies by : Vincenzo Pavone

Download or read book Bioeconomies written by Vincenzo Pavone and published by Springer. This book was released on 2017-09-18 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the promissory discourses and practices associated with the bioeconomy, focusing especially on the transformation of institutions; the creation, appropriation, and distribution of value; the struggle over resources, power, and meaning; and the role of altruism, kinship, and care practices. Governments and science enthusiasts worldwide are embracing the bioeconomy, championing it as the key to health, wealth, and sustainability, while citing it as justification to transform research and regulatory institutions, health and agricultural practices, ethics of privacy and ownership, and conceptions of self and kin. Drawing together studies from Asia, Australia, the Americas, and Europe, this volume encompasses subjects as diverse as regenerative medicine, population health research, agricultural finance, biobanking, assisted reproduction, immigration, breastfeeding, self-help groups, GM fish, and mining sewage.

Assessing Genetic Risks

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309047986
Total Pages : 353 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Assessing Genetic Risks by : Institute of Medicine

Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Human Genome Editing

Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309452880
Total Pages : 329 pages
Book Rating : 4.3/5 (94 download)

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Book Synopsis Human Genome Editing by : National Academies of Sciences, Engineering, and Medicine

Download or read book Human Genome Editing written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-08-13 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.

Making Genes, Making Waves

Author : Jon Beckwith
Publisher : Harvard University Press
ISBN 13 : 0674020677
Total Pages : 251 pages
Book Rating : 4.6/5 (74 download)

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Book Synopsis Making Genes, Making Waves by : Jon Beckwith

Download or read book Making Genes, Making Waves written by Jon Beckwith and published by Harvard University Press. This book was released on 2009-07-01 with total page 251 pages. Available in PDF, EPUB and Kindle. Book excerpt: In 1969, Jon Beckwith and his colleagues succeeded in isolating a gene from the chromosome of a living organism. Announcing this startling achievement at a press conference, Beckwith took the opportunity to issue a public warning about the dangers of genetic engineering. Jon Beckwith's book, the story of a scientific life on the front line, traces one remarkable man's dual commitment to scientific research and social responsibility over the course of a career spanning most of the postwar history of genetics and molecular biology. A thoroughly engrossing memoir that recounts Beckwith's halting steps toward scientific triumphs--among them, the discovery of the genetic element that turns genes on--as well as his emergence as a world-class political activist, Making Genes, Making Waves is also a compelling history of the major controversies in genetics over the last thirty years. Presenting the science in easily understandable terms, Beckwith describes the dramatic changes that transformed biology between the late 1950s and our day, the growth of the radical science movement in the 1970s, and the personalities involved throughout. He brings to light the differing styles of scientists as well as the different ways in which science is presented within the scientific community and to the public at large. Ranging from the travails of Robert Oppenheimer and the atomic bomb to the Human Genome Project and recent "Science Wars," Beckwith's book provides a sweeping view of science and its social context in the latter half of the twentieth century.

Digital Transformation in Healthcare

Author : Panos Constantinides
Publisher : Taylor & Francis
ISBN 13 : 1003807410
Total Pages : 151 pages
Book Rating : 4.0/5 (38 download)

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Book Synopsis Digital Transformation in Healthcare by : Panos Constantinides

Download or read book Digital Transformation in Healthcare written by Panos Constantinides and published by Taylor & Francis. This book was released on 2023-12-08 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: In an era of digital transformation within healthcare management, this important book outlines an ecosystem perspective to illustrate how a range of actors can use digital technologies to offer better value within the provision of healthcare services. From mobile applications to point-of-care diagnostic devices, from AI-enabled applications for data analysis to cloud models for service delivery and blockchain infrastructures, it provides a roadmap for how healthcare organizations can leverage these digital technologies. The book is also illustrated with case studies from different areas, including software for medical diagnostics, blockchain infrastructures for use in pharmaceutical supply chains and clinical trials, and federated learning platforms for genomics. Covering key issues such as patients’ rights to data and written in the aftermath of the COVID-19 pandemic, the book will be essential reading for researchers, postgraduate students, and professionals interested in how technology can support and enable healthcare service provision.

Corporate Social Responsibility in Europe

Author : Samuel O. Idowu
Publisher : Springer
ISBN 13 : 331913566X
Total Pages : 518 pages
Book Rating : 4.3/5 (191 download)

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Book Synopsis Corporate Social Responsibility in Europe by : Samuel O. Idowu

Download or read book Corporate Social Responsibility in Europe written by Samuel O. Idowu and published by Springer. This book was released on 2015-02-12 with total page 518 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the current state of Corporate Social Responsibility (CSR) in 24 European nations, examining the state of the development and practice of CSR and sustainability for organizations in these countries. The common denominator for all of the book’s 25 chapters is a management perspective rather than an ethical discourse. The book therefore represents a comprehensive survey of initiatives and activities in the field of CSR and provides a wealth of complete cases and examples for different approaches to sustainable and responsible management practice. The book also reviews the relevant political and governmental guidelines and frameworks for organizations, both on a national and a European level. Europe has taken a leading role in the promotion and implementation of CSR. This book showcases how, through CSR, enterprises can significantly contribute to achieving the European Union’s treaty objectives of sustainable development and a highly competitive social market economy.