Genetics And Ethics In Global Perspective

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Genetics and Ethics in Global Perspective

Author : Dorothy C. Wertz
Publisher : Springer Science & Business Media
ISBN 13 : 9400709811
Total Pages : 474 pages
Book Rating : 4.4/5 (7 download)

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Book Synopsis Genetics and Ethics in Global Perspective by : Dorothy C. Wertz

Download or read book Genetics and Ethics in Global Perspective written by Dorothy C. Wertz and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 474 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics". This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning. Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Ethical Issues in Governing Biobanks

Author : Nikola Biller-Andorno
Publisher : Routledge
ISBN 13 : 1317141482
Total Pages : 296 pages
Book Rating : 4.3/5 (171 download)

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Book Synopsis Ethical Issues in Governing Biobanks by : Nikola Biller-Andorno

Download or read book Ethical Issues in Governing Biobanks written by Nikola Biller-Andorno and published by Routledge. This book was released on 2016-05-13 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.

Ethics and Human Genetics

Author : Dorothy C. Wertz
Publisher : Springer Science & Business Media
ISBN 13 : 3642736564
Total Pages : 564 pages
Book Rating : 4.6/5 (427 download)

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Book Synopsis Ethics and Human Genetics by : Dorothy C. Wertz

Download or read book Ethics and Human Genetics written by Dorothy C. Wertz and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 564 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based in part on a survey of ethical decision-marking among 682 medical geneticists worldwide, this book includes a chapter authored by a geneticistand an ethicist in 19 nations, describing genetic services, counselling, screening, prenatal diagnosis, and major ethical problems and social controversies faced by geneticists. The concluding chapter describes ethical and policy issues that exist worldwide, and offerssome possible resolutions.

Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies

Author : Sorin Hostiuc
Publisher : Academic Press
ISBN 13 : 0128137657
Total Pages : 431 pages
Book Rating : 4.1/5 (281 download)

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Book Synopsis Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies by : Sorin Hostiuc

Download or read book Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies written by Sorin Hostiuc and published by Academic Press. This book was released on 2018-08-07 with total page 431 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies offers thorough discussions on preconception carrier screening, genetic engineering and the use of CRISPR gene editing, mitochondrial gene replacement therapy, sex selection, predictive testing, secondary findings, embryo reduction and the moral status of the embryo, genetic enhancement, and the sharing of genetic data. Chapter contributions from leading bioethicists and clinicians encourage a global, holistic perspective on applied challenges and the moral questions relating the implementation of genetic reproductive technology. The book is an ideal resource for practitioners, regulators, lawmakers, clinical researchers, genetic counselors and graduate and medical students. As the Human Genome Project has triggered a technological revolution that has influenced nearly every field of medicine, including reproductive medicine, obstetrics, gynecology, andrology, prenatal genetic testing, and gene therapy, this book presents a timely resource. Provides practical analysis of the ethical issues raised by cutting-edge techniques and recent advances in prenatal and reproductive genetics Contains contributions from leading bioethicists and clinicians who offer a global, holistic perspective on applied challenges and moral questions relating to genetic and genomic reproductive technology Discusses preconception carrier screening, genetic engineering and the use of CRISPR gene editing, mitochondrial gene replacement therapy, ethical issues, and more

Populations and Genetics

Author : Bartha Maria Knoppers
Publisher : BRILL
ISBN 13 : 9047402936
Total Pages : 668 pages
Book Rating : 4.0/5 (474 download)

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Book Synopsis Populations and Genetics by : Bartha Maria Knoppers

Download or read book Populations and Genetics written by Bartha Maria Knoppers and published by BRILL. This book was released on 2003-12-01 with total page 668 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.

Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements

Author : Hongladarom, Soraj
Publisher : IGI Global
ISBN 13 : 1616928859
Total Pages : 332 pages
Book Rating : 4.6/5 (169 download)

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Book Synopsis Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements by : Hongladarom, Soraj

Download or read book Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements written by Hongladarom, Soraj and published by IGI Global. This book was released on 2010-09-30 with total page 332 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This book focuses on ethical, social, cultural, and legal implications of genetics, genomics and genetic databanking as they relate to concrete cultural and historical traditions"--Provided by publisher.

Ethics and Human Genetics

Author : Dorothy C. Wertz
Publisher : Springer
ISBN 13 : 9783540192244
Total Pages : 536 pages
Book Rating : 4.1/5 (922 download)

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Book Synopsis Ethics and Human Genetics by : Dorothy C. Wertz

Download or read book Ethics and Human Genetics written by Dorothy C. Wertz and published by Springer. This book was released on 1989-08-10 with total page 536 pages. Available in PDF, EPUB and Kindle. Book excerpt: Based in part on a survey of ethical decision-marking among 682 medical geneticists worldwide, this book includes a chapter authored by a geneticistand an ethicist in 19 nations, describing genetic services, counselling, screening, prenatal diagnosis, and major ethical problems and social controversies faced by geneticists. The concluding chapter describes ethical and policy issues that exist worldwide, and offerssome possible resolutions.

Global Perspectives on Precision Medicine

Author : Evangel Sarwar
Publisher : Springer Nature
ISBN 13 : 303128593X
Total Pages : 239 pages
Book Rating : 4.0/5 (312 download)

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Book Synopsis Global Perspectives on Precision Medicine by : Evangel Sarwar

Download or read book Global Perspectives on Precision Medicine written by Evangel Sarwar and published by Springer Nature. This book was released on 2023-04-04 with total page 239 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents the promises of Precision Medicine (PM) and the challenges of its implementation in daily clinical routine, while addressing the anticipated ethical and social implications. It is the first book that critically analyzes the potential and the dilemmas relevant to genomics and precision medicine from healthcare, public health and global perspectives. The nine chapters presented in this book elaborate on pharmacogenomics' crucial role in maximizing the potential benefits and minimizing medication's potential risks in groups of people, especially in cancer treatment and other health conditions. Infectious and non-communicable diseases (NCDs) are also discussed in this book by identifying challenges and ways to overcome them. Essential concepts are addressed, such as health-related benefits and harm to individuals and the broader community, including threats to individual privacy and autonomy, which warrant just distribution of scarce resources. The book also identifies and addresses the lack of competency in the healthcare workforce in the era of PM and discusses the path to laying the ethical foundation for the implementation of PM in healthcare organizations.

Ethical Challenges in Genomics Research

Author : Paula Boddington
Publisher : Springer Science & Business Media
ISBN 13 : 3642236987
Total Pages : 242 pages
Book Rating : 4.6/5 (422 download)

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Book Synopsis Ethical Challenges in Genomics Research by : Paula Boddington

Download or read book Ethical Challenges in Genomics Research written by Paula Boddington and published by Springer Science & Business Media. This book was released on 2012-03-14 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: New developments in science and technology have resulted in shifting ethical challenges in many areas including in genomics research. This book enables those who are involved in genomics research, whether as researcher, participant or policy maker, to understand the ethical issues currently developing in this field and to participate actively in these important debates. A clear account is given of how science and technology are outstripping the capacity of previous ethical regulations to cope with current issues, together with practical illustrations of possible ways forward. Key ethical ideas are presented, drawing on the history of research regulation and on an account of the particular challenges arising in the field of genomics. The book uses a grounded, practical approach to explaining ethical concepts and issues which is geared to enhancing interdisciplinary dialogue. Its broad approach to ethical issues includes relevant considerations from social psychology and there is a particular emphasis on understanding the problems of ethical regulations and practice in the institutional and social context of research. A glossary and numerous text boxes explaining relevant terms and key ideas help to make the work an invaluable resource for both beginners and experts in the field.

Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies

Author : Sorin Hostiuc
Publisher : Elsevier
ISBN 13 : 0443190461
Total Pages : 556 pages
Book Rating : 4.4/5 (431 download)

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Book Synopsis Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies by : Sorin Hostiuc

Download or read book Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies written by Sorin Hostiuc and published by Elsevier. This book was released on 2023-08-14 with total page 556 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Human Genome Project has triggered a technological revolution that has influenced nearly every field of medicine, including reproductive medicine, obstetrics, gynecology, andrology, prenatal genetic testing, and gene therapy. This second edition of Clinical Ethics at the Crossroads of Genetic and Reproductive Technologies offers a thorough, timely discussion of ethical issues raised by the latest genetic and genomic technologies applied in human reproductive and prenatal medicine, providing practical recommendations, guidelines, and algorithms to support ethical clinical practice. Here, international experts consider the ethics of technologies from preconception carrier screening to genetic engineering, CRISPR gene editing, mitochondrial gene replacement therapy, sex selection, predictive testing, secondary findings, embryo reduction, and the moral status of the embryo, genetic enhancement, and the sharing of genetic data. Throughout the book, contributors adopt a global, holistic perspective on applied challenges and the moral questions around the implementation of genetic reproductive technologies. The book is an ideal resource for practitioners, regulators, lawmakers, clinical researchers, genetic counselors, and graduate and medical students.This fully updated second edition examines new developments in the field, tackling ethical aspects of organoid development, recent advances in pharmacogenomics, direct-to-consumer genetic testing, and genetic engineering. • Provides practical analysis of the ethical issues raised by cutting-edge techniques and recent advances in prenatal and reproductive geneticsContains contributions from leading bioethicists and clinicians who offer a global, holistic perspective on applied challenges and moral questions relating to genetic and genomic reproductive technology • Discusses preconception carrier screening, genetic engineering, and the use of CRISPR gene editing, mitochondrial gene replacement therapy, and ethical issues, among others • Considers ethical aspects of recent advances and new technologies in the field, from organoid development to pharmacogenomics and direct-to-consumer genetic testing

Genetics and Christian Ethics

Author : Celia Deane-Drummond
Publisher : Cambridge University Press
ISBN 13 : 9780521829434
Total Pages : 320 pages
Book Rating : 4.8/5 (294 download)

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Book Synopsis Genetics and Christian Ethics by : Celia Deane-Drummond

Download or read book Genetics and Christian Ethics written by Celia Deane-Drummond and published by Cambridge University Press. This book was released on 2006 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the immediate future we are likely to witness significant developments in human genetic science. It is therefore of critical importance that Christian ethics engages with the genetics debate, since it affects not just the way we perceive ourselves and the natural world, but also has wider implications for our society. This book considers ethical issues arising out of specific practices in human genetics, including genetic screening, gene patenting, gene therapy, genetic counselling as well as feminist concerns. Genetics and Christian Ethics argues for a particular theo-ethical approach that derives from a modified version of virtue ethics, drawing particularly on a Thomistic understanding of the virtues, especially prudence or practical wisdom and justice. The book demonstrates that a theological voice is highly relevant to contested ethical debates about genetics.

Creation Ethics

Author : David DeGrazia
Publisher : Oxford University Press
ISBN 13 : 0190232447
Total Pages : 241 pages
Book Rating : 4.1/5 (92 download)

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Book Synopsis Creation Ethics by : David DeGrazia

Download or read book Creation Ethics written by David DeGrazia and published by Oxford University Press. This book was released on 2014 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: The ethics of creating -- or declining to create -- human beings has been addressed in several contexts: debates over abortion and embryo research; literature on "self-creation"; and discussions of procreative rights and responsibilities, genetic engineering, and future generations. Here, for the first time, is a sustained, scholarly analysis of all of these issues -- a discussion combining breadth of topics with philosophical depth, imagination with current scientific understanding, argumentative rigor with accessibility. The overarching aim of Creation Ethics is to illuminate a broad array of issues connected with reproduction and genetics, through the lens of moral philosophy. With novel frameworks for understanding prenatal moral status and human identity, and exceptional fairness to those holding different views, David DeGrazia sheds new light on the ethics of abortion and embryo research, genetic enhancement and prenatal genetic interventions, procreation and parenting, and decisions that affect the quality of life of future generations. Along the way, he helpfully introduces personal identity theory and value theory as well as such complex topics as moral status, wrongful life, and the "nonidentity problem." The results include a subjective account of human well-being, a standard for responsible procreation and parenting, and a theoretical bridge between consequentialist and nonconsequentialist ethical theories. The upshot is a synoptic, mostly liberal vision of the ethics of creating human beings.

Global Genes, Local Concerns

Author : Timo Minssen
Publisher : Edward Elgar Publishing
ISBN 13 : 1788116194
Total Pages : 304 pages
Book Rating : 4.7/5 (881 download)

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Book Synopsis Global Genes, Local Concerns by : Timo Minssen

Download or read book Global Genes, Local Concerns written by Timo Minssen and published by Edward Elgar Publishing. This book was released on 2019 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: With interdisciplinary chapters written by lawyers, sociologists, doctors and biobank practitioners, Global Genes, Local Concerns identifies and discusses the most pressing issues in contemporary biobanking. Addressing pressing questions such as how do national biobanks best contribute to translational research and how could academic and industrial exploitation, ownership and IPR issues be addressed and facilitated, this book contributes to the continued development of international biobanking by highlighting and analysing the complexities in this important area of research.

Genomics and Society

Author : Dhavendra Kumar
Publisher : Academic Press
ISBN 13 : 0127999213
Total Pages : 438 pages
Book Rating : 4.1/5 (279 download)

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Book Synopsis Genomics and Society by : Dhavendra Kumar

Download or read book Genomics and Society written by Dhavendra Kumar and published by Academic Press. This book was released on 2015-10-29 with total page 438 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011. The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system. Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine. Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011 Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more

Human DNA

Author : Bartha Maria Knoppers
Publisher : Martinus Nijhoff Publishers
ISBN 13 : 9789041103611
Total Pages : 486 pages
Book Rating : 4.1/5 (36 download)

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Book Synopsis Human DNA by : Bartha Maria Knoppers

Download or read book Human DNA written by Bartha Maria Knoppers and published by Martinus Nijhoff Publishers. This book was released on 1997-07-30 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Human DNA: Law and Policy" provides the first international debate on a topic of universal concern. No book has brought together such a diverse range of multidisciplinary ethical and legal expertise on the highly controversial issues surrounding the use, storage, exchange and sale of the very stuff' of which we are made - human genetic material. Testing of human genetic material involves a variety of samples (pathological samples, newborn screening samples, samples leftover' after testing, and research samples), shared around the world. This places consent issues on an individual, familial, and societal level. The comparative and international perspectives presented reveal the transnational nature of genetic studies. This book focuses on the issues of DNA sampling and testing, consent and confidentiality, banking policies, genetic epidemiology and diversity. Since financial and technological pressures are inextricably linked to human genetics research, commercialization and patents are also examined. Academic researchers, policy makers and industry will benefit from the learned papers and reports of the discussion, which is rich in diversity of opinion, controversial in the diversity of policy and approaches presented, anchored on scientific facts and yet sensitive to cultural, political and economic differences.

Negotiating Bioethics

Author : Adèle Langlois
Publisher : Routledge
ISBN 13 : 1136237003
Total Pages : 221 pages
Book Rating : 4.1/5 (362 download)

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Book Synopsis Negotiating Bioethics by : Adèle Langlois

Download or read book Negotiating Bioethics written by Adèle Langlois and published by Routledge. This book was released on 2013-08-15 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: A PDF version of this book is available for free in Open Access at www.tandfebooks.com. It has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. The sequencing of the entire human genome has opened up unprecedented possibilities for healthcare, but also ethical and social dilemmas about how these can be achieved, particularly in developing countries. UNESCO’s Bioethics Programme was established to address such issues in 1993. Since then, it has adopted three declarations on human genetics and bioethics (1997, 2003 and 2005), set up numerous training programmes around the world and debated the need for an international convention on human reproductive cloning. Negotiating Bioethics presents Langlois' research on the negotiation and implementation of the three declarations and the human cloning debate, based on fieldwork carried out in Kenya, South Africa, France and the UK, among policy-makers, geneticists, ethicists, civil society representatives and industry professionals. The book examines whether the UNESCO Bioethics Programme is an effective forum for (a) decision-making on bioethics issues and (b) ensuring ethical practice. Considering two different aspects of the UNESCO Bioethics Programme – deliberation and implementation – at international and national levels, Langlois explores: how relations between developed and developing countries can be made more equal who should be involved in global level decision-making and how this should proceed how overlap between initiatives can be avoided what can be done to improve the implementation of international norms by sovereign states how far universal norms can be contextualized what impact the efficacy of national level governance has at international level

Genetic Democracy

Author : Veikko Launis
Publisher : Springer Science & Business Media
ISBN 13 : 1402062125
Total Pages : 148 pages
Book Rating : 4.4/5 (2 download)

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Book Synopsis Genetic Democracy by : Veikko Launis

Download or read book Genetic Democracy written by Veikko Launis and published by Springer Science & Business Media. This book was released on 2007-12-20 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides an in-depth analysis of the ethical, social and philosophical issues related to modern genetic research and gene technology. The aim of the book is to introduce systematic research on the social and ethical impacts of the use and development of genetically modified organisms (GMOs) as well as the acquisition, use and storage of human genetic information (HGI). The book has been written from the viewpoint of social and political philosophy.