Genetic Nondiscrimination

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Direct-to-Consumer Genetic Testing

Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309162165
Total Pages : 106 pages
Book Rating : 4.3/5 (91 download)

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Book Synopsis Direct-to-Consumer Genetic Testing by : National Research Council

Download or read book Direct-to-Consumer Genetic Testing written by National Research Council and published by National Academies Press. This book was released on 2011-01-16 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.

Genetic Information Nondiscrimination Act of 2007

Author : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions
Publisher :
ISBN 13 :
Total Pages : 60 pages
Book Rating : 4.:/5 (327 download)

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Book Synopsis Genetic Information Nondiscrimination Act of 2007 by : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions

Download or read book Genetic Information Nondiscrimination Act of 2007 written by United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions and published by . This book was released on 2007 with total page 60 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetic Information Nondiscrimination Act of 2003

Author : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions
Publisher :
ISBN 13 :
Total Pages : 64 pages
Book Rating : 4.:/5 (327 download)

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Book Synopsis Genetic Information Nondiscrimination Act of 2003 by : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions

Download or read book Genetic Information Nondiscrimination Act of 2003 written by United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions and published by . This book was released on 2003 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetic Information Nondiscrimination Act of 2007

Author : United States. Congress. House. Committee on Education and Labor
Publisher :
ISBN 13 :
Total Pages : 56 pages
Book Rating : 4.:/5 (327 download)

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Book Synopsis Genetic Information Nondiscrimination Act of 2007 by : United States. Congress. House. Committee on Education and Labor

Download or read book Genetic Information Nondiscrimination Act of 2007 written by United States. Congress. House. Committee on Education and Labor and published by . This book was released on 2007 with total page 56 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetic Non-discrimination

Author : United States. Congress. House. Committee on Ways and Means. Subcommittee on Health
Publisher :
ISBN 13 :
Total Pages : 96 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis Genetic Non-discrimination by : United States. Congress. House. Committee on Ways and Means. Subcommittee on Health

Download or read book Genetic Non-discrimination written by United States. Congress. House. Committee on Ways and Means. Subcommittee on Health and published by . This book was released on 2009 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetic Discrimination

Author : Leana J. Albertson
Publisher : Nova Publishers
ISBN 13 : 9781604563573
Total Pages : 124 pages
Book Rating : 4.5/5 (635 download)

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Book Synopsis Genetic Discrimination by : Leana J. Albertson

Download or read book Genetic Discrimination written by Leana J. Albertson and published by Nova Publishers. This book was released on 2008 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic information can be misused. It can be used to discriminate against people in health insurance and employment. People known to carry a gene that increases their likelihood of developing cancer, for example, may get turned down for health insurance. Without health insurance, it may be impossible for some people to get treatment for a disease that could be fatal. This may lead some people to decide against genetic testing for fear of what the results might show, and who might find out about them. It also could lead some people to decline participation in biomedical research such as studies of gene mutations associated with certain diseases that examine the history of families prone to those maladies. This new book examines some of the hot areas of research in the field.

Genetic Nondiscrimination

Author : United States. Congress. House. Committee on Education and the Workforce. Subcommittee on Employer-Employee Relations
Publisher :
ISBN 13 :
Total Pages : 164 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Genetic Nondiscrimination by : United States. Congress. House. Committee on Education and the Workforce. Subcommittee on Employer-Employee Relations

Download or read book Genetic Nondiscrimination written by United States. Congress. House. Committee on Education and the Workforce. Subcommittee on Employer-Employee Relations and published by . This book was released on 2002 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetic non-discrimination

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Book Synopsis Genetic non-discrimination by : United States. Congress. House. Committee on Education and the Workforce. Subcommittee on Employer-Employee Relations

Download or read book Genetic non-discrimination written by United States. Congress. House. Committee on Education and the Workforce. Subcommittee on Employer-Employee Relations and published by . This book was released on 2004 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Assessing Genetic Risks

Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309047986
Total Pages : 353 pages
Book Rating : 4.3/5 (9 download)

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Book Synopsis Assessing Genetic Risks by : Institute of Medicine

Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Genetic Discrimination and Genetic Privacy in a Comparative Perspective

Author : Janneke H. Gerards
Publisher : Intersentia nv
ISBN 13 : 9050954529
Total Pages : 254 pages
Book Rating : 4.0/5 (59 download)

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Book Synopsis Genetic Discrimination and Genetic Privacy in a Comparative Perspective by : Janneke H. Gerards

Download or read book Genetic Discrimination and Genetic Privacy in a Comparative Perspective written by Janneke H. Gerards and published by Intersentia nv. This book was released on 2005 with total page 254 pages. Available in PDF, EPUB and Kindle. Book excerpt: During the last decades, a better understanding of the influence of genetic factors on the onset of illness and disease has evolved. Unfortunately, however, the information revealed by genetic tests is not always accurate and reliable and its probabilistic value is often limited. Throughout the world, the possibility of genetic testing and the availability of individual genetic information have therefore caused increasing social concern, especially since many actors outside the medical profession, such as health and life insurance companies and employers, have shown a growing interest in individual genetic information. In many states, as well as on the international level, there is an ongoing debate about the balance that should be struck between the protection of the individual against misuse of genetic information and the interests of social actors and genetic research institutes, and about the policy options that are at hand to reduce the risks that are created by the availability of genetic information. This book offers some clarity as to the choices that have been made in various legal systems, both national and international, with respect to the regulation of genetic information. On the basis of an elaborate analysis of relevant legislation, policy approaches and case-law in the United States, the various European states and on the international level, the book aims to provide insight in the issues that must be deemed relevant in considering and, eventually, introducing regulative measures with respect to genetic information.

Genetic Information Nondiscrimination Act of 2007 : report house version parts 3 and 4

Author :
Publisher : DIANE Publishing
ISBN 13 : 9781422325353
Total Pages : 148 pages
Book Rating : 4.3/5 (253 download)

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Book Synopsis Genetic Information Nondiscrimination Act of 2007 : report house version parts 3 and 4 by :

Download or read book Genetic Information Nondiscrimination Act of 2007 : report house version parts 3 and 4 written by and published by DIANE Publishing. This book was released on with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Genetic Discrimination

Author : Gerard Quinn
Publisher : Routledge
ISBN 13 : 1135044600
Total Pages : 281 pages
Book Rating : 4.1/5 (35 download)

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Book Synopsis Genetic Discrimination by : Gerard Quinn

Download or read book Genetic Discrimination written by Gerard Quinn and published by Routledge. This book was released on 2014-11-20 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: As genetic technologies advance, genetic testing may well offer the prospect of detecting the onset of future disabilities. Some research also forwards that certain behavioural profiles may have a strong genetic basis, such as the determination to succeed, or the propensity for risk-taking. As this technology becomes more prevalent, there is a danger that genetic information may be misused by third parties and that particular genetic profiles may be discriminated against by employers, by providers of social goods and services, such as insurance companies and even by educational facilities. This book explores the different forms and potential uses of genetic testing. Drawing together leading experts in disability law, bioethics, health law and a range of related fields, it highlights the ethical and legal challenges arising as a result of emerging and rapidly advancing genetic science. On examining transatlantic perspectives on the matter, chapters in the book ask whether the US Genetic Information Nondiscrimination Act (GINA) is proving to be an effective tool in addressing the issue of genetic discrimination and alleviating fears of discrimination. The book also reviews what insights may be gained from GINA within employment and health insurance contexts, and asks how the UN Convention on the Rights of Persons with Disabilities (CRPD) may impact similar debates within the European Union. The book focuses particularly on the legislative and policy framework in the European Union, with an emphasis on the gaps in protection and the scope for specific legislative action in this area. This book will be of great interest to scholars and students of discrimination law, bioethics and disability law, and will be of considerable use to legal practitioners, medical practitioners and policy-makers in this area.

Fulfilling the Promise of Genetics Research

Author : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions
Publisher :
ISBN 13 :
Total Pages : 68 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Fulfilling the Promise of Genetics Research by : United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions

Download or read book Fulfilling the Promise of Genetics Research written by United States. Congress. Senate. Committee on Health, Education, Labor, and Pensions and published by . This book was released on 2001 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt:

The Genetic Information Nondiscrimination Act

Author : United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health
Publisher :
ISBN 13 :
Total Pages : 208 pages
Book Rating : 4.0/5 ( download)

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Book Synopsis The Genetic Information Nondiscrimination Act by : United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health

Download or read book The Genetic Information Nondiscrimination Act written by United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health and published by . This book was released on 2008 with total page 208 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Perspectives on Genetic Discrimination

Author : Thomas Lemke
Publisher : Routledge
ISBN 13 : 1134056915
Total Pages : 172 pages
Book Rating : 4.1/5 (34 download)

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Book Synopsis Perspectives on Genetic Discrimination by : Thomas Lemke

Download or read book Perspectives on Genetic Discrimination written by Thomas Lemke and published by Routledge. This book was released on 2013-07-18 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the past 15 years, a series of empirical studies in different countries have shown that our increasing genetic knowledge leads to new forms of exclusion, disadvantaging and stigmatization. The spectrum of this "genetic discrimination" ranges from disadvantages at work, via problems with insurance policies, to difficulties with adoption agencies. The empirical studies on the problem of genetic discrimination have not gone unnoticed. Since the beginning of the 1990s, a series of legislative initiatives and statements, both on the national level and on the part of international and supranational organizations and commissions, have been put forward as ways of protecting people from genetic discrimination. This is the first book to critically evaluate the empirical evidence and the theoretical usefulness of the concept of "genetic discrimination." It discusses the advantages and limitations of adopting the concept, and offers a more complex account distinguishing between several dimensions and forms of genetic discrimination.

Genetic Testing and the Governance of Risk in the Contemporary Economy

Author : Lara Khoury
Publisher : Springer Nature
ISBN 13 : 3030436993
Total Pages : 354 pages
Book Rating : 4.0/5 (34 download)

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Book Synopsis Genetic Testing and the Governance of Risk in the Contemporary Economy by : Lara Khoury

Download or read book Genetic Testing and the Governance of Risk in the Contemporary Economy written by Lara Khoury and published by Springer Nature. This book was released on 2020-10-01 with total page 354 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to provide a comparative analysis of how various legal systems are tackling the challenges produced by the legal aspects of genetic testing in insurance and employment. They cover the diverse set of norms that surround this issue, and share insights into relevant international, regional and national incursions into the field. By doing so, the authors offer a basis for comparative reflection, including on whether transnational standard setting might be useful or necessary for the legal aspects of genetic testing as they relate to the insurance and employment contexts. The respective texts cover a broad range of topics, including the prevalence of genetic testing in the contexts of insurance and employment, and policy factors that might affect this prevalence, such as the design of national health or social insurance systems, of private insurance schemes or the availability of low-cost direct-to-consumer genetic testing. Further, the field of genetics is gaining in importance at the international and regional levels. Relevant concepts – mainly genetic tests and genetic data/information – have been internationally defined, and these definitions have influenced definitions adopted nationally. International law also recognizes a “special status” for human genetic data. The authors therefore also consider these definitions and the recognition of the special status of human genetic data within regional and national legal orders. They investigate the range of norms that specifically address the use of genetic testing in employment and insurance, encompassing international sources – including human rights norms – that may be binding or non-binding, as well national statutory, regulatory and soft-law mechanisms. Accordingly, some of the texts examine general frameworks relevant to genetic testing in each country, including those that stem from general anti-discrimination rules and norms protecting rights to autonomy, self-determination, confidentiality and privacy. In closing, the authors provide an overview of the efficiency of their respective legal regimes’ approaches – specific and generalist – to genetic testing or disclosure of genetic information in the employment or insurance contexts, including the effect of lack of legal guidance. In this regard, some of the authors highlight the need for transnational action in the field and make recommendation for future legal developments.

Protecting Workers from Genetic Discrimination

Author : United States. Congress. House. Committee on Education and Labor. Subcommittee on Health, Employment, Labor, and Pensions
Publisher :
ISBN 13 :
Total Pages : 68 pages
Book Rating : 4.F/5 ( download)

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Book Synopsis Protecting Workers from Genetic Discrimination by : United States. Congress. House. Committee on Education and Labor. Subcommittee on Health, Employment, Labor, and Pensions

Download or read book Protecting Workers from Genetic Discrimination written by United States. Congress. House. Committee on Education and Labor. Subcommittee on Health, Employment, Labor, and Pensions and published by . This book was released on 2007 with total page 68 pages. Available in PDF, EPUB and Kindle. Book excerpt: