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Genetic Counselling And The Question Of Informed Consent In Predictive Testing For Huntingtons Disease
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Book Synopsis Genetic Counselling and the Question of Informed Consent in Predictive Testing for Huntington's Disease by : Janet Scott
Download or read book Genetic Counselling and the Question of Informed Consent in Predictive Testing for Huntington's Disease written by Janet Scott and published by . This book was released on 1989 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Informed Consent in Predictive Genetic Testing by : Jessica Minor
Download or read book Informed Consent in Predictive Genetic Testing written by Jessica Minor and published by Springer. This book was released on 2015-06-15 with total page 237 pages. Available in PDF, EPUB and Kindle. Book excerpt: This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource. Included in the coverage: The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness. A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.
Book Synopsis Assessing Genetic Risks by : Institute of Medicine
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Book Synopsis Experiencing Predictive Genetic Testing in Families with Huntington's Disease and Hereditary Breast and Ovarian Cancer by : Rebeka Jean Hamilton
Download or read book Experiencing Predictive Genetic Testing in Families with Huntington's Disease and Hereditary Breast and Ovarian Cancer written by Rebeka Jean Hamilton and published by . This book was released on 2003 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Genetic Counselling by : Angus Clarke
Download or read book Genetic Counselling written by Angus Clarke and published by Routledge. This book was released on 2006-12-05 with total page 219 pages. Available in PDF, EPUB and Kindle. Book excerpt: Contributions to this study are drawn both from health professionals engaged in genetic counselling and from observers and critics with backgrounds in law, philosophy, biology, and the social sciences. This diversity will enable health professonals to examine their activities with a fresh eye, and will help the observer-critic to understand the ethical problems that arise in genetic counselling practice, rather than in imaginary encounters. Most examinations of the ethical issues raised by genetics are concerned in a broad sense with the application of new technology to human reproduction. This volume focuses on genetic counselling and screening as such, providing valuable insights for the health professional, social scientist, philosopher, lawyer, and bioethicist.
Download or read book Early Warning written by David H. Smith and published by Indiana University Press. This book was released on 1998-11-22 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents twenty-nine case studies that identify the most important ethical issues likely to emerge from new technologies of genetic testing and develops a series of guidelines based on the case studies. The authors believe that guideline formation is dependent on case analysis and that any statement of general guidelines must follow from concrete, practical discussion of specific situations. For these reasons, the guidelines presented are rooted in the case discussions and follow from the resolution of the cases. By providing the clinical origins and rationale behind each of its recommendations, the book aims to provide guidance for thinking through the ethical issues as well as a starting point for development of additional guidelines.
Book Synopsis Ethical Dilemmas in Genetics and Genetic Counseling by : Janice L. Berliner
Download or read book Ethical Dilemmas in Genetics and Genetic Counseling written by Janice L. Berliner and published by Oxford University Press, USA. This book was released on 2014-09-25 with total page 241 pages. Available in PDF, EPUB and Kindle. Book excerpt: By using a creative approach that focuses on a single extended family as a case example to illustrate each chapter's key point, the authors elucidate ethical issues arising in the genetics clinic and laboratory surrounding many timely issues.
Book Synopsis Informed Consent and the Misattributed Paternity Problem in Genetic Counseling by : Erica K. Lucast
Download or read book Informed Consent and the Misattributed Paternity Problem in Genetic Counseling written by Erica K. Lucast and published by . This book was released on 2007 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: When misattributed paternity is discovered in the course of genetic testing, a genetic counselor is presented with a dilemma concerning whether to reveal this information to the clients. She is committed to treating the clients equally and enabling informed decision making, but disclosing the information may carry consequences for the woman that the counselor cannot judge in advance. A frequent suggestion aimed at avoiding this problem is to include the risk of discovering nonpaternity in the informed consent process for counseling. In this paper I argue that such a move does not resolve the problem, because the conflict hinges on the interpretation of equality on which the counselor operates. Given the principles of genetic counseling, neither construal of equality yields a satisfactory solution to the conflict. In fact, I conclude that including nonpaternity in informed consent is not endorsed by either view, and we are still left with the question of what to do should nonpaternity be discovered. I suggest a compromise position concerning disclosure, involving revealing relevant genetic information but withholding nonpaternity when possible.
Book Synopsis Genetic Information Values and Rights by : Niklas Juth
Download or read book Genetic Information Values and Rights written by Niklas Juth and published by . This book was released on 2005 with total page 482 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Ethics and Genetics by : Guido de Wert
Download or read book Ethics and Genetics written by Guido de Wert and published by Berghahn Books. This book was released on 2003-05 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic information plays an increasingly important role in ourlives. As a result of the Human Genome Project, knowledge ofthe genetic basis of various diseases is growing, withimportant consequences for the role of genetics in clinicalpractice, health care systems and for society at large. In theclinical setting genetic testing may result in a better insightinto susceptibility for inheritable diseases, not only before orafter birth, but also at later stages in life. Besides prenataltesting and pre-conceptional testing, predictive testing hasresulted in new possibilities for the early detection, treatmentand prevention of inheritable diseases. However, not all inheritable diseases that can be predicted onthe basis of genetic information can be treated or cured.Should we offer genetic tests to people for untreatablediseases? Should we test every individual who wants to knowhis or her genetic status? Should we inform family membersabout the results of genetic tests of individuals, even whenthere are no possibilities for treatment? What, in such cases,is the role of the "right-not-to-know"? Should we informfamily members when there is only an increased risk of adisease? This book deals with the ethical issues of clinicalgenetics, as well as ethical issues that arise in geneticscreening, the research of populations, and the use of geneticinformation for access to insurance and the workplace.
Book Synopsis The Genetic Testing of Children by : Angus Clarke
Download or read book The Genetic Testing of Children written by Angus Clarke and published by Garland Science. This book was released on 2020-07-26 with total page 390 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, written by a leading geneticist, examines the ethical and social issues raised by the genetic testing of children. The opinions of geneticists, ethicists and affected families are all included to give a balanced view of this controversial field. Issues covered include confidentiality, potential abuses of genetic information (eg the use of test results by insurance companies) and the value of predictive genetic testing. The aim of the book is to improve awareness of the complexity of the issues raised and provide suggestions as to how the discussions must develop - it therefore raises new questions as well as answering those that already exist.
Author :Patricia McCarthy Veach Publisher :Springer Science & Business Media ISBN 13 :0387217746 Total Pages :319 pages Book Rating :4.3/5 (872 download)
Book Synopsis Facilitating the Genetic Counseling Process by : Patricia McCarthy Veach
Download or read book Facilitating the Genetic Counseling Process written by Patricia McCarthy Veach and published by Springer Science & Business Media. This book was released on 2006-05-04 with total page 319 pages. Available in PDF, EPUB and Kindle. Book excerpt: Designed as an aid to students in Genetics counseling classes and professionals interested in honing their skills, Facilitating the Genetic Counseling Process will guide the reader through the why's and how's of assisting clients with these complex issues. The authors' collective years of both teaching students and counseling clients is reflected in the clear, practical approach of this manual.
Book Synopsis Practical Ethics for Students, Interns, and Residents by : Charles Junkerman (M.D.)
Download or read book Practical Ethics for Students, Interns, and Residents written by Charles Junkerman (M.D.) and published by University Publishing Group.. This book was released on 2008 with total page 92 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author :Georg Pfleiderer Publisher :Karger Medical and Scientific Publishers ISBN 13 :3805596499 Total Pages :130 pages Book Rating :4.8/5 (55 download)
Book Synopsis Knowing One's Medical Fate in Advance by : Georg Pfleiderer
Download or read book Knowing One's Medical Fate in Advance written by Georg Pfleiderer and published by Karger Medical and Scientific Publishers. This book was released on 2012 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: Modern medicine is now in a position to make advanced prognoses that chart the entire course of illness and recovery. Paradoxically, this is coupled with a new dimension of uncertainty for the patient, i.e. coming to terms with discovering they have an increased risk of a particular disease and deciding what appropriate steps to take.
Book Synopsis Disclosure Dilemmas by : Hansjakob Müller
Download or read book Disclosure Dilemmas written by Hansjakob Müller and published by Routledge. This book was released on 2017-03-02 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: There exists today a fast growing availability of personal genetic information. Its prognostic impact and value for an individual or family member's health is sometimes unclear, whilst at other times it is clear-cut. The issue of whether to disclose genetic information does however have wide ranging implications. Avoiding the rhetoric of 'genetic exceptionalism', and drawing on an expanded field of bioethical, sociological and anthropological research, this book sets a new agenda for discussing the ethics surrounding the disclosure of prognostic genetic information. A hermeneutical approach reconsiders the ethics of disclosure in a variety of contexts in which genetic information is generated, requested, interpreted or communicated - from the provider perspective, but also from the moral perspectives of clients and their families. It is in situations of disclosure, in these different contexts, that genetic information meets morality. Providers and recipients can become vulnerable to the revelation or concealment of information, and the forms in which it may be provided. Disclosure Dilemmas invites readers to explore these contexts from an ethical viewpoint and will be a valuable resource for anyone with an interest in biomedical ethics.
Book Synopsis How to Practice Academic Medicine and Publish from Developing Countries? by : Samiran Nundy
Download or read book How to Practice Academic Medicine and Publish from Developing Countries? written by Samiran Nundy and published by Springer Nature. This book was released on 2021-10-23 with total page 475 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is an open access book. The book provides an overview of the state of research in developing countries – Africa, Latin America, and Asia (especially India) and why research and publications are important in these regions. It addresses budding but struggling academics in low and middle-income countries. It is written mainly by senior colleagues who have experienced and recognized the challenges with design, documentation, and publication of health research in the developing world. The book includes short chapters providing insight into planning research at the undergraduate or postgraduate level, issues related to research ethics, and conduct of clinical trials. It also serves as a guide towards establishing a research question and research methodology. It covers important concepts such as writing a paper, the submission process, dealing with rejection and revisions, and covers additional topics such as planning lectures and presentations. The book will be useful for graduates, postgraduates, teachers as well as physicians and practitioners all over the developing world who are interested in academic medicine and wish to do medical research.
Author :United States. Commission for the Control of Huntington's Disease and Its Consequences Publisher : ISBN 13 : Total Pages :500 pages Book Rating :4.3/5 (121 download)
Book Synopsis Report by : United States. Commission for the Control of Huntington's Disease and Its Consequences
Download or read book Report written by United States. Commission for the Control of Huntington's Disease and Its Consequences and published by . This book was released on 1978 with total page 500 pages. Available in PDF, EPUB and Kindle. Book excerpt:
