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Family Quality Of Life In Caregivers Of Individuals With Moderate To Severe Autism Spectrum Disorder Asd In Singapore
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Book Synopsis Family Quality of Life in Caregivers of Individuals with Moderate to Severe Autism Spectrum Disorder (ASD) in Singapore by : Tiffany Peiqi Wang
Download or read book Family Quality of Life in Caregivers of Individuals with Moderate to Severe Autism Spectrum Disorder (ASD) in Singapore written by Tiffany Peiqi Wang and published by . This book was released on 2017 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) by : Kerry Ryan Thompson
Download or read book Predicting Caregiver and Family Quality of Life for Caregivers of Children with Autism Spectrum Disorder (ASD) written by Kerry Ryan Thompson and published by . This book was released on 2017 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism Spectrum Disorder (ASD) is a neurodevelopmental disorder that is expressed quite differently from person to person due to the spectrum of symptoms an individual may experience. Developmentally, children who have ASD manage issues with communication and restricted or repetitive behaviors that impact their activities of daily living and/or overall functioning (American Psychiatric Association, 2013). The ongoing care and assistance for children with ASD from their caregivers is vital to help them achieve and maintain optimal quality of life. Given the pervasive needs of children with ASD, caregivers have a unique role in providing for their child, as compared to caregivers of children without disabilities. The present study explored the caregiver in a family with a child with ASD. Applying a family systems perspective, Bishop's (2005a, 2005b) Disability Centrality Model constructs (i.e. role impact, relationship satisfaction, mastery) were used to explain caregiver and family quality of life. In addition, family quality of life was measured in such a way to incorporate Bishop's idea of centrality, or the importance an individual places on certain areas of life. A three-step statistical analysis was completed in order to better measure this conceptualization. This study included 204 caregivers who met the criteria for the study (i.e., caregiver of a child with ASD under the age of 18; self-reported reading level of 6th grade or above). Hayes' regression based path-analytic framework, PROCESS v2.16 was used to determine the explained variance of caregiver and family quality of life. In addition, correlational and moderation analyses were tested. Results suggested that the caregiver's perceived quality of life is positively correlated with the caregiver's perceived family quality of life. In addition, results indicated that the proposed path analyses explained 52.3% of the variance in caregiver quality of life, 44.4% variance for the weighted family quality of life model, and between 23.1-45.2% variance in the five-individual family quality of life-satisfaction domains (i.e, family interaction, parenting, emotional well-being, physical/material well-being, disability-related support). Finally, to better understand the impact of importance on quality of life, a three-step statistical analysis found that importance was significant when used as a weighted measurement of family quality of life that took the importance and satisfaction in consideration in their relation to one another; however, importance was not significant as a moderator between the relationship of caregiver relationship satisfaction and family quality of life. The findings in this study expand the current literature on caregivers of children with ASD, caregiver quality of life, and family quality of life. In addition, this study demonstrated the viability of strengths-based models of caregiver and family quality of life using Disability Centrality Model constructs through a family systems perspective for a sample of caregivers of children with ASD. Future implications for rehabilitation research and practice are discussed.
Book Synopsis Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns by : Colleen M. Harker
Download or read book Determinants of Quality of Life in Caregivers of Children with Autism and Autism Concerns written by Colleen M. Harker and published by . This book was released on 2018 with total page 76 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given the unique demands of raising a child with autism spectrum disorder (ASD), it is necessary to understand the impact on the quality of life (QoL) of their caregivers. Though QoL is considered an important outcome in health services research (Moons et al., 2006; Oliveira, Carvalho, & Esteves 2016), there is a lack of knowledge about QoL in caregivers of children with ASD or caregivers of children for whom there are ASD concerns, but no formal diagnosis. The objectives of the current study were to (1) Examine how having a young child with ASD or ASD concerns affects caregiver QoL, relative to children with other developmental concerns and typical development; (2) Examine profiles across QoL domains within each caregiver group to determine which QoL domains were most impacted relative to other domains; (3) Examine to what extent three levels of determinants contribute to caregiver QoL: family demographic (child age, family income, caregiver employment status, number of children in the home), psychological (parenting stress), and health care (family-centered care); and 4) (Exploratory) Examine the extent to which family centered care moderates the relation between parenting stress and QoL. The sample was drawn from a larger NIH study examining screening and referral practices for children with ASD in primary care provider (PCP) practices and early intervention (EI) agencies in Washington State. The sample was comprised of three groups: caregivers of children with ASD or ASD concerns (ASD/ASD Concerns; n = 42), caregivers of children with other developmental concerns (Other Concerns; n = 34), and caregivers of children with typical development (No Concerns; n = 112). Caregivers completed a measure of family demographics, parenting stress, family-centered care, and QoL at their time of entry in the study. Results indicated that caregivers in the ASD/ASD Concerns group reported significantly lower Psychological and Social QoL than caregivers in the Other Concerns group and the No Concerns group, and significantly lower Environmental QoL and Physical QoL than caregivers in the No Concerns group (Objective 1). For caregivers in the ASD/ASD Concerns group, Social QoL was significantly lower than Environmental and Physical QoL and Psychological QoL was significantly lower than Environmental QoL (Objective 2). Income, parenting stress, and family-centered care were significant predictors for all four QoL domains, while the number of children residing in the home was a significant predictor for Physical QoL only. There was also a significant group by stress interaction for Environmental QoL, such that there was a stronger negative relationship between parenting stress and Environmental QoL for caregivers in the ASD/ASD Concerns group compared to caregivers in the No Concerns group (Objective 3). Family-centered care did not moderate the relationship between parenting stress and QoL as predicted (Objective 4). Overall, these findings suggest that future research is needed to determine how to provide additional support to all caregivers, particularly low-income families and caregivers who are experiencing high levels of parenting stress and low levels of family-centered care.
Book Synopsis Caregiver Adaptation Among Black and White Families of Individuals with Autism Spectrum Disorder and the Comparison of the Two Racial Groups by : Yue Yu
Download or read book Caregiver Adaptation Among Black and White Families of Individuals with Autism Spectrum Disorder and the Comparison of the Two Racial Groups written by Yue Yu and published by . This book was released on 2020 with total page 142 pages. Available in PDF, EPUB and Kindle. Book excerpt: To date, only two studies, both using the same sample at two different time points, have quantitatively examined outcomes in Black caregivers of individuals with autism spectrum disorder (ASD). This study examined family adaptational outcomes in Black and White caregivers of individuals with ASD using the double ABCX model of family adaptation to examine the impacts of stressors, the A in the model (e.g., autism symptom severity, general life demands), resources/supports, the B in the model (e.g., social support), and individual coping/stress appraisal styles, the C in the model (e.g., cognitive appraisal, religious coping) on caregiver positive and negative adaptation outcomes, the X in the model, (e.g., caregiver strain, benefit finding, family quality of life). Black and White caregivers were compared on adaptation outcomes at the family, dyadic, and individual level, including both positively valenced (e.g., benefit finding) and negatively valenced outcomes (e.g., depression, caregiver strain). Participants were Black (N = 24) and White (N = 32) primary caregivers of individuals with ASD. Racial differences were found for both the general and racial-specific factors in the ABCX model. White and Black caregivers reported moderate and equal levels of caregiver strain. However, Black caregivers reported greater levels of anxiety and depression and lower levels of life satisfaction. When adjusting for potential ABC covariates, racial differences in outcomes were no longer significant. That is, racial differences in outcomes could be explained by differences in the proximal elements represented by the ABC variables of the model (e.g., passive-avoidance coping, religious coping). Black caregivers reported higher levels of pile-up of demands, formal social support, threat appraisal, passive-avoidance coping, and positive and negative religious coping than White caregivers. Different factors were related to caregiver strain in the two racial groups. Conscientiousness was a protective factor against caregiver strain for Black caregivers, whereas greater use of passive-avoidance coping and threat appraisal, higher levels of neuroticism and barriers to care, and lower levels of satisfaction with services, parenting self-efficacy, and formal social support were explanatory factors for increased caregiver strain among White caregivers. These results are helpful in informing interventions and support the cultural adaptation of care as provided to Black caregivers of individuals with ASD.
Book Synopsis Burden, Health Care Needs, and Quality of Life of Family Caregivers of Adults with Autism Spectrum Disorder by : Sophia Dückert
Download or read book Burden, Health Care Needs, and Quality of Life of Family Caregivers of Adults with Autism Spectrum Disorder written by Sophia Dückert and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders by : Maureen Russell
Download or read book Sleep and Quality of Life Among Family Caregivers with Children who Have Autism Spectrum Disorders written by Maureen Russell and published by . This book was released on 2014 with total page 162 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) holds potential for significantly impacting the primary caregiver and family, as well as the child with ASD. In particular, sleep problems occur frequently among children with ASD, and their poor sleep may negatively affect that of their caregivers. Health-related quality of life (HRQoL) and Family Quality of Life (FQoL) are salient indices of caregiver and family well-being. This pilot study explored associations between family caregiver sleep problems and caregiver sense of coherence (SOC) or coping on HRQoL and FQoL. Additionally, this study examined relationships between child sleep and behavior problems on caregiver sleep and well-being. Sixty-two family caregivers of children with ASD (M =7.61, range: 6-11 years old) participated in this survey study. Participants provided demographic information and completed measures of HRQoL, FQoL, caregiver sleep, SOC, parental stress, child sleep, and child behavior. Caregivers with longer sleep duration reported better mental health and better FQol. Caregivers who reported insomnia symptoms, non-restorative sleep, and insufficient sleep were more likely to report poorer mental health than caregivers who did not report these sleep disorder symptoms. A stronger caregiver SOC was associated with lower caregiver stress, better mental health, and better FQoL. Significant relationships were found between shorter caregiver sleep duration or sleep disorder symptoms (i.e., difficulty staying asleep, early morning awakening, insufficient sleep) and greater child sleep problems. Moreover, short sleep duration or insufficient sleep among caregivers was significantly associated with greater parenting stress. Notably, biological parents with Restless Legs Syndrome (RLS) had children with more restless sleep and higher rates of some behavior problems. There are a number of potential connections between sleep problems of children with ASD and sleep problems of their caregivers that are likely rooted in genetic, environmental, socio-economic, and behavioral factors. Interventions for sleep problems must address the context of the family and consider that sleep problems may be common to the caregiver and the child. The results of this study support findings from many prior studies and point to salient variables for future research and interventions to promote healthy caregiver sleep.
Book Synopsis Quality of Life in Families of Children with Autism Spectrum Disorder by : Emily Claire Gardiner
Download or read book Quality of Life in Families of Children with Autism Spectrum Disorder written by Emily Claire Gardiner and published by . This book was released on 2014 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Having a family member with a neurodevelopmental disorder (NDD) has significant implications for family functioning. Overall, research findings demonstrate that families of children with NDDs are less satisfied with their quality of life (QOL), across domains, than families of typically developing children, and that families of children with Autism Spectrum Disorder (ASD) are even less so. Although families of children with ASD are significantly at-risk, most research has included families of children with varied conditions, and has not examined predictors of family quality of life (FQOL) within specific NDD populations. This research gap, along with rising ASD awareness and prevalence, provides a strong rationale for devoting attention to this group specifically, and addressing the limitations that exist within this work. This research utilized a mixed-methods design to examine QOL among 84 families of children and adolescents (aged 6-18 years) with ASD living in British Columbia, and addressed three aims. First, the role of child characteristics, including adaptive functioning and behaviour problems, was examined in relation to FQOL. Adaptive functioning, and specifically daily living skills, emerged as a significant predictor of FQOL satisfaction, after accounting for behavioural and demographic characteristics, including child age, gender, perceived disability severity, and behavioural problems, as well as family income. Furthermore, there were significant differences across each domain of FQOL when groups were separated by daily living skill functioning level ('low,' 'moderately low,' and 'adequate'). Second, the relation between endorsed family resilience processes, based on Walsh's (2006, 2012) model, and FQOL satisfaction was examined. This revealed that greater endorsement of the 'family connectedness' and 'family communication and problem solving' processes significantly predicted FQOL when child and family demographic characteristics were accounted for. Finally, a subset (n = 15) of caregivers, representing both high and low levels of FQOL satisfaction, participated in a qualitative interview, during which they shared their perceptions of FQOL, both generally and in relation to specific topics, elaborated on service delivery experiences, and reflected on sources of family resilience. The findings are discussed in light of previous research, and the associated practice implications, as well as opportunities for future research, are highlighted.
Book Synopsis Handbook of Life Course Health Development by : Neal Halfon
Download or read book Handbook of Life Course Health Development written by Neal Halfon and published by Springer. This book was released on 2017-11-20 with total page 667 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is open access under a CC BY 4.0 license. This handbook synthesizes and analyzes the growing knowledge base on life course health development (LCHD) from the prenatal period through emerging adulthood, with implications for clinical practice and public health. It presents LCHD as an innovative field with a sound theoretical framework for understanding wellness and disease from a lifespan perspective, replacing previous medical, biopsychosocial, and early genomic models of health. Interdisciplinary chapters discuss major health concerns (diabetes, obesity), important less-studied conditions (hearing, kidney health), and large-scale issues (nutrition, adversity) from a lifespan viewpoint. In addition, chapters address methodological approaches and challenges by analyzing existing measures, studies, and surveys. The book concludes with the editors’ research agenda that proposes priorities for future LCHD research and its application to health care practice and health policy. Topics featured in the Handbook include: The prenatal period and its effect on child obesity and metabolic outcomes. Pregnancy complications and their effect on women’s cardiovascular health. A multi-level approach for obesity prevention in children. Application of the LCHD framework to autism spectrum disorder. Socioeconomic disadvantage and its influence on health development across the lifespan. The importance of nutrition to optimal health development across the lifespan. The Handbook of Life Course Health Development is a must-have resource for researchers, clinicians/professionals, and graduate students in developmental psychology/science; maternal and child health; social work; health economics; educational policy and politics; and medical law as well as many interrelated subdisciplines in psychology, medicine, public health, mental health, education, social welfare, economics, sociology, and law.
Book Synopsis Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder by : Tiana C Cypher
Download or read book Resources and Quality of Life in Caregivers of Children with Autism Spectrum Disorder written by Tiana C Cypher and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Participants were 23 caregivers of children between the ages of four to twenty-two years old who are diagnosed with autism spectrum disorder and attend the Autism Society of North Carolina (ASNC) Social Recreation program in Winterville, Wilmington, and Newport. The present study evaluated the quality of life in parents of children with autism spectrum disorder, as well as the utilization and availability of resources for their child and the family. Data was collected using an online Qualtrics survey sent out to families by email. The survey consisted of questions regarding demographics, questions from the Questionnaire for Each Treatment regarding the treatments their child with autism receives, and questions from the Family Quality of Life Scale by the Beach Center on Disability. Overall results revealed that parenting is the most satisfying domain of quality of life, and disability related support was the least satisfactory for the parents. Results suggest that families with disability need to identify and enroll their children in early intervention programs and recreation program that help with children's development. The government and school programs should also strive to offer educative sessions for parents and families with children with autism to enhance their contribution outside of school hours.
Book Synopsis Encyclopedia of Autism Spectrum Disorders by : Fred R. Volkmar
Download or read book Encyclopedia of Autism Spectrum Disorders written by Fred R. Volkmar and published by Springer. This book was released on 2012-10-06 with total page 3429 pages. Available in PDF, EPUB and Kindle. Book excerpt: This major reference work breaks new ground as an electronic resource for students, educators, researchers, and professionals. Comprehensive in breath and textbook in depth, the Encyclopedia of Autism Spectrum Disorders serves as a reference repository of knowledge in the field as well as a regularly updated conduit of new knowledge long before such information trickles down from research to standard textbooks. The Encyclopedia consists of 5 volumes and approximately 1,500 entries divided by the major conceptual areas of ASD and PDDs, including: - Research trends and findings - Behavior/speech - Communication - Treatments - Education Taking advantage of the techniques offered by the electronic medium, the Encyclopedia of Autism Spectrum Disorders offers an extensive cross-referencing system facilitating search and retrieval of information.
Book Synopsis Creating Quality of Life for Adults on the Autism Spectrum by : Jeanne Dennler
Download or read book Creating Quality of Life for Adults on the Autism Spectrum written by Jeanne Dennler and published by Taylor & Francis. This book was released on 2022-11-30 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: Creating Quality of Life for Adults on the Autism Spectrum: The Story of Bittersweet Farms provides an overview of the first farmstead community for adults with autism established in North America. The book also provides a detailed description and evaluation of the intervention model used to promote quality of life for the adults with autism who live as residents at Bittersweet Farms. Through its aim to provide a better understanding of adults with autism spectrum disorder (ASD), the text enables a deeper appreciation of the Bittersweet Farms model, which meets the residential and therapeutic needs of this population that are not often well understood. The book discusses the apprenticeship model used at Bittersweet Farms along with examples of how residents benefit from this approach. The text expands upon its approach through the inclusion of specific guidelines that can be adopted for improved communication and social interaction, managing troublesome behaviors, calming anxieties, and establishing daily routines. These guidelines reflect a positive approach to intervention and are consistent with the quality-of-life emphasis inherent in the Bittersweet model. This book will serve as a seminal work for professionals and paraprofessionals working with people with ASD. It will further be of interest to parents and relatives of people with ASD along with researchers and policymakers concerned about the ASD adult population, and those interested in services for people with ASD.
Book Synopsis The Role of Caregiving on Quality of Life of Parents with Children Having Autism in Taiwan by : Hsiu-Shuo Hu
Download or read book The Role of Caregiving on Quality of Life of Parents with Children Having Autism in Taiwan written by Hsiu-Shuo Hu and published by . This book was released on 2008 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Living with Autistic Spectrum Disorders by : Elizabeth Attfield
Download or read book Living with Autistic Spectrum Disorders written by Elizabeth Attfield and published by SAGE. This book was released on 2006-11-15 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: ′The layout and presentation of the material are very "user friendly" and the book is, therefore, easy to read. Those with less direct experience of living or working with children who are autistic, including teachers and learning support assistants, who require some help in appreciating the complex range of behaviours and responses such children present, will find this little book illuminating′ - Support for Learning "This is a really practical tool........ the structure of the book is clear and uncomplicated for the reader to access. This book is based on a wealth of experience of working closely both with individuals with Autism and their families. It will be a revelation to professionals interested in this area and a comfort to carers who live the experience. Most importantly, it reminds us of the barriers to positive parent/professional partnership and challenges us to build supportive bridges to effective intervention for the individual with Autism. Autism NI (PAPA) was created out of such a dynamic approach and therefore welcomes this significant commentary on this critical issue." By giving a concise account of what life may be like following the diagnosis of autistic spectrum disorders (ASDs) in the family, this book examines service provision at different stages, and provides information for parents, carers and practitioners′ - Arlene Cassidy, Chief Executive, Autism NI Parents want support and advice during and after a diagnosis of ASDs, and professionals want to be able to give the right answers. This book will meet the needs of both. Issues dealt with include: " how to help the family " how to help brothers and sisters " preparing children with ASDs for the world outside " keeping expectations high " how to work together with schools and other agencies " finding community links ′In my view it would be a good read for relatives, friends and teachers in training to enable them to understand many of the issues associated with children who have an autism spectrum disorder (ASD). It points up the various facets of having and living with a child with autism - as far as possible from a positive point of view. The authors, from their obvious extensive experience, have identified many problems and circumstances that parents/carers are likely to meet and that can be tackled in a wide variety of ways. The book is designed to raise these for consideration - and this it does well′ - Support for Learning, Volume 22, Number 2
Book Synopsis A Comprehensive Book on Autism Spectrum Disorders by : Mohammad-Reza Mohammadi
Download or read book A Comprehensive Book on Autism Spectrum Disorders written by Mohammad-Reza Mohammadi and published by BoD – Books on Demand. This book was released on 2011-09-15 with total page 491 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of the book is to serve for clinical, practical, basic and scholarly practices. In twentyfive chapters it covers the most important topics related to Autism Spectrum Disorders in the efficient way and aims to be useful for health professionals in training or clinicians seeking an update. Different people with autism can have very different symptoms. Autism is considered to be a "spectrum" disorder, a group of disorders with similar features. Some people may experience merely mild disturbances, while the others have very serious symptoms. This book is aimed to be used as a textbook for child and adolescent psychiatry fellowship training and will serve as a reference for practicing psychologists, child and adolescent psychiatrists, general psychiatrists, pediatricians, child neurologists, nurses, social workers and family physicians. A free access to the full-text electronic version of the book via Intech reading platform at http://www.intechweb.org is a great bonus.
Book Synopsis The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household by : Alisa Tamarrah Cook
Download or read book The Quality of Life of Maternal Caregivers Rearing a Child with Autism Spectrum Disorder in a Single-parent, Coupled, Or Extended Family Household written by Alisa Tamarrah Cook and published by . This book was released on 2021 with total page 210 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD) by : Fabienne Bain
Download or read book The impact of child-related variables and caregiver-related variables in affecting the quality of life of caregivers of children with autism spectrum disorder (ASD) written by Fabienne Bain and published by . This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Handbook of Quality of Life for Individuals with Autism Spectrum Disorder by : Justin B. Leaf
Download or read book Handbook of Quality of Life for Individuals with Autism Spectrum Disorder written by Justin B. Leaf and published by Springer. This book was released on 2023-06-17 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This handbook offers a comprehensive examination of wide-ranging issues relevant to adults diagnosed with autism spectrum disorder. Coverage includes a detailed review of such issues as psychiatric comorbidity, family relationships, education, living in different settings (e.g., group homes, community), meaningful and effective interventions, functional goals (e.g., social, language, vocational, and adaptive behaviors), and curriculum. In addition the book provides unique perspectives of parents as well as individuals diagnosed with autism spectrum disorder who have reached adulthood. Key areas of coverage include: Transitioning adults diagnosed with autism spectrum disorder from educational settings to vocational settings. Strategies that can help create independence for adults diagnosed with autism spectrum disorder. Effective approaches to address issues relating to sexuality for adults diagnosed with autism spectrum disorder. The effectiveness of early intensive behavioral intervention to help adults diagnosed with autism spectrum disorder. Handbook of Quality of Life for Individuals with Autism Spectrum Disorder is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in clinical child and school psychology, social work, behavioral therapy and related disciplines, including clinical medicine, clinical nursing, counseling, speech and language pathology, and special education.
