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Author :
Publisher :
ISBN 13 :
Total Pages : 236 pages
Book Rating : 4.3/5 ( download)
Download or read book Exploring Public Policy Issues in Genetics written by and published by . This book was released on 1997 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309047986
Total Pages : 353 pages
Book Rating : 4.3/5 (9 download)
Download or read book Assessing Genetic Risks written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309673062
Total Pages : 113 pages
Book Rating : 4.3/5 (96 download)
Download or read book Exploring the Current Landscape of Consumer Genomics written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2020-07-23 with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: Consumer genomics, encompassing both direct-to-consumer applications (i.e., genetic testing that is accessed by a consumer directly from a commercial company apart from a health care provider) and consumer-driven genetic testing (i.e., genetic testing ordered by a health care provider in response to an informed patient request), has evolved considerably over the past decade, moving from more personal utility-focused applications outside of traditional health care to interfacing with clinical care in nontraditional ways. As consumer genomics has increasingly intersected with clinical applications, discussions have arisen around the need to demonstrate clinical and analytical validity and clinical utility due to the potential for misinterpretation by consumers. Clinical readiness and interest for this information have presented educational and training challenges for providers. At the same time, consumer genomics has emerged as a potentially innovative mechanism for thinking about health literacy and engaging participants in their health and health care. To explore the current landscape of consumer genomics and the implications for how genetic test information is used or may be used in research and clinical care, the Roundtable on Genomics and Precision Health of the National Academies of Sciences, Engineering, and Medicine hosted a public workshop on October 29, 2019, in Washington, DC. Discussions included such topics as the diversity of participant populations, the impact of consumer genomics on health literacy and engagement, knowledge gaps related to the use of consumer genomics in clinical care, and regulatory and health policy issues such as data privacy and security. A broad array of stakeholders took part in the workshop, including genomics and consumer genomics experts, epidemiologists, health disparities researchers, clinicians, users of consumer genomics research applications, representatives from patient advocacy groups, payers, bioethicists, regulators, and policy makers. This publication summarizes the presentations and discussion of the workshop.
Author : National Research Council
Publisher : National Academies Press
ISBN 13 : 0309171431
Total Pages : 388 pages
Book Rating : 4.3/5 (91 download)
Download or read book Cells and Surveys written by National Research Council and published by National Academies Press. This book was released on 2001-01-19 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: What can social science, and demography in particular, reasonably expect to learn from biological information? There is increasing pressure for multipurpose household surveys to collect biological data along with the more familiar interviewer-respondent information. Given that recent technical developments have made it more feasible to collect biological information in non-clinical settings, those who fund, design, and analyze survey data need to think through the rationale and potential consequences. This is a concern that transcends national boundaries. Cells and Surveys addresses issues such as which biologic/genetic data should be collected in order to be most useful to a range of social scientists and whether amassing biological data has unintended side effects. The book also takes a look at the various ethical and legal concerns that such data collection entails.
Author : Alexandra Plows
Publisher :
ISBN 13 : 9780415451109
Total Pages : 232 pages
Book Rating : 4.4/5 (511 download)
Download or read book Debating Human Genetics written by Alexandra Plows and published by . This book was released on 2010 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'This book on human genetics and its multiple publics is a timely reminder that there are many different publics who engage with policy issues in different ways. It is an important contribution to our understanding of the complexities of 'engaging publics' and public engagement. Its coverage of a broad terrain, from human embryonic stem cell research to biobanks and national DNA forensic databases affords a rich assortment of narratives on how competing visions of the good life are framed differently in the different arenas of genetics. It is a useful contribution to our broader understanding of biosocietal life.'-Edna Einsiedel, Professor of Communication Studies, University of Calgary, Canada Debating Human Genetics is based on ethnographic research focusing primarily on the UK publics who are debating and engaging with human genetics, and related bio and techno-science. Drawing on recent interviews and data, collated in a range of public settings, it provides a unique overview of multiple publics as they 'frame' the stake of the debates in this emerging, complex and controversial arena. The book outlines key sites and applications of human genetics that have sparked public interest, such as biobanks, stem cells, genetic screening and genomics. It also addresses the 'scientific controversies' that have made considerable impact in the public sphere û the UK police DNA database, gene patenting, 'saviour siblings' and human cloning. By grounding the concepts and issues of human genetics in the real life narratives and actions of patient groups, genetic watchdogs, scientists, policy makers and many other public groups, the book exemplifies how human genetics is a site where public knowledge and value claims converge and collide, and identifies the emergence of 'hybrid publics' who are engaging with this hybrid science.
Author : Barrett Williams
Publisher : Barrett Williams
ISBN 13 :
Total Pages : 124 pages
Book Rating : 4./5 ( download)
Download or read book The Code of Life written by Barrett Williams and published by Barrett Williams. This book was released on 2024-08-22 with total page 124 pages. Available in PDF, EPUB and Kindle. Book excerpt: Unlock the Secrets Within Your DNA with "The Code of Life"! Dive deep into the fascinating world of genetics with our latest eBook, The Code of Life. From the pioneering experiments of Gregor Mendel to the cutting-edge advancements in genetic engineering, this comprehensive guide offers an illuminating journey through the building blocks of life. Start your adventure with a historical overview, discovering the roots of genetic science and the revolutionary discovery of DNA. Grasp essential concepts and terminology, embracing the foundational knowledge that will pave the way for exploring more complex genetic topics. Journey through Mendelian genetics and master the laws of inheritance, as well as the use of Punnett squares for genetic predictions. Unveil the molecular structure of DNA, from Watson and Crick's iconic double helix to the intricate process of DNA replication and the role of chromosomes and genes. Explore the genetic code and the marvel of protein synthesis, understanding the central dogma of molecular biology, transcription, and translation. Delve into genetic mutations and variations, learning about their types, causes, effects, and their critical role in genetic diversity and evolution. Navigate the world of genetic mapping and sequencing, featuring techniques and groundbreaking projects like the Human Genome Project. Engage with the field of epigenetics, exploring how environmental factors influence gene expression and its implications for health and disease. Discover the transformative field of genetic engineering and biotechnology, including powerful tools like CRISPR. Consider the ethical debates surrounding these technologies and their applications in medicine and agriculture. Unlock the potential of stem cells, delve into personalized medicine, and understand the significance of genetic counseling. Explore behavioral genetics, population genetics, and the role of genetics in mental health and human migration. The Code of Life also addresses genetic diseases and disorders, genetic epidemiology, and the profound ethical and policy issues tied to genetics. Glimpse the future of genetic research, emerging technologies, and their societal implications. Transform your understanding of the genetic blueprint that defines us all with The Code of Life. This eBook is your gateway to the ever-evolving field of genetics, offering insights that bridge science, health, and ethical discourse. Embark on a journey that transcends the microscopic world, unveiling the profound impact of genetics on our present and future.
Author : Anne Kerr
Publisher :
ISBN 13 :
Total Pages : 228 pages
Book Rating : 4.X/5 (4 download)
Download or read book Genetic Politics written by Anne Kerr and published by . This book was released on 2002 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Genetic Politics explores the history of eugenics and the rise of contemporary genomics, identifying continuities and changes between the past and the present. The authors reject the two extreme positions that human genetics are either fatally corrupted by, or utterly immune from, eugenic influence. They argue that today's forms of genetic screening are far from equivalent to the eugenics of the past, but eugenics cannot simply be dismissed as bad science, or the product of totalitarian regimes, for its values and practices continue to shape genetics today."--BOOK JACKET.Title Summary field provided by Blackwell North America, Inc. All Rights Reserved
Author : Audrey R. Chapman
Publisher :
ISBN 13 : 9781316090558
Total Pages : pages
Book Rating : 4.0/5 (95 download)
Download or read book Genetic Research on Addiction written by Audrey R. Chapman and published by . This book was released on 2012 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: "The manner in which genetic research associated with addiction is conducted, interpreted and translated into clinical practice and policy initiatives raises important social, ethical and legal issues. Genetic Research on Addiction fulfils two key aims; the first is to identify the ethical issues and requirements arising when carrying out genetically-based addiction research, and the second is to explore the ethical, legal and public policy implications of interpreting, translating and applying this research. The book describes research guidelines on human protection issues such as improving the informed consent process, protecting privacy, responsibilities to minors and determining whether to accept industry funding. The broader public health policy implications of the research are explored and guidelines offered for developing effective social interventions. Highly relevant for clinicians, researchers, academics and policy-makers in the fields of addiction, mental health and public policy"--Provided by publisher
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
ISBN 13 : 0309452880
Total Pages : 329 pages
Book Rating : 4.3/5 (94 download)
Download or read book Human Genome Editing written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2017-08-13 with total page 329 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.
Author : Oonagh Corrigan
Publisher : Routledge
ISBN 13 : 1134373341
Total Pages : 228 pages
Book Rating : 4.1/5 (343 download)
Download or read book Genetic Databases written by Oonagh Corrigan and published by Routledge. This book was released on 2004-07-31 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercial involvement in the creation and use of genetic databases. The authors argue that policy and regulatory frameworks produce a representation of participation that is often at odds with the experiences and understandings of those taking part. The findings present a serious challenge for public policy to provide mechanisms to safeguard the welfare of individuals participating in genetic databases.
Author : Bruce R. Korf
Publisher : John Wiley & Sons
ISBN 13 : 1118537661
Total Pages : 280 pages
Book Rating : 4.1/5 (185 download)
Download or read book Human Genetics and Genomics written by Bruce R. Korf and published by John Wiley & Sons. This book was released on 2012-11-19 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: This fourth edition of the best-selling textbook, Human Genetics and Genomics, clearly explains the key principles needed by medical and health sciences students, from the basis of molecular genetics, to clinical applications used in the treatment of both rare and common conditions. A newly expanded Part 1, Basic Principles of Human Genetics, focuses on introducing the reader to key concepts such as Mendelian principles, DNA replication and gene expression. Part 2, Genetics and Genomics in Medical Practice, uses case scenarios to help you engage with current genetic practice. Now featuring full-color diagrams, Human Genetics and Genomics has been rigorously updated to reflect today’s genetics teaching, and includes updated discussion of genetic risk assessment, “single gene” disorders and therapeutics. Key learning features include: Clinical snapshots to help relate science to practice 'Hot topics' boxes that focus on the latest developments in testing, assessment and treatment 'Ethical issues' boxes to prompt further thought and discussion on the implications of genetic developments 'Sources of information' boxes to assist with the practicalities of clinical research and information provision Self-assessment review questions in each chapter Accompanied by the Wiley E-Text digital edition (included in the price of the book), Human Genetics and Genomics is also fully supported by a suite of online resources at www.korfgenetics.com, including: Factsheets on 100 genetic disorders, ideal for study and exam preparation Interactive Multiple Choice Questions (MCQs) with feedback on all answers Links to online resources for further study Figures from the book available as PowerPoint slides, ideal for teaching purposes The perfect companion to the genetics component of both problem-based learning and integrated medical courses, Human Genetics and Genomics presents the ideal balance between the bio-molecular basis of genetics and clinical cases, and provides an invaluable overview for anyone wishing to engage with this fast-moving discipline.
Author : Catherine Baker
Publisher :
ISBN 13 : 9780871686367
Total Pages : 96 pages
Book Rating : 4.6/5 (863 download)
Download or read book Your Genes, Your Choices written by Catherine Baker and published by . This book was released on 1996 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: Program discusses the Human Genome Project, the science behind it, and the ethical, legal and social issues raised by the project.
Author : Cheye Calvo
Publisher :
ISBN 13 : 9781580241687
Total Pages : 66 pages
Book Rating : 4.2/5 (416 download)
Download or read book Genetics Policy Report written by Cheye Calvo and published by . This book was released on 2001-01-01 with total page 66 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Spencer S. Stober
Publisher : Bloomsbury Publishing USA
ISBN 13 : 0313352542
Total Pages : 258 pages
Book Rating : 4.3/5 (133 download)
Download or read book God, Science, and Designer Genes written by Spencer S. Stober and published by Bloomsbury Publishing USA. This book was released on 2009-10-13 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: A biologist and a Christian theologian examine the scientific and philosophical implications and potential impacts of genetic technologies. God, Science, and Designer Genes: An Exploration of Emerging Technologies provides a unique approach to the central ethical dilemma in contemporary science, offering both an up-to-date account of the current state of genetic technologies and insightful discussions of the moral/theological questions these technologies raise. Coauthored by professors of biology and theology, God, Science, and Designer Genes examines a range of from-the-headlines issues, including the relationship between science and religion, "designing" our children, stem-cell research, cloning, genetics and behavior, genetics and privacy, and using genetic technologies for social justice. Who should benefit—personally and financially—from DNA technology? Who might be harmed? How do we protect individual rights and guard against discrimination? How will embryo modification affect the identity of those so modified? God, Science, and Designer Genes gives readers an eloquent, thoughtful, and objective foundation for considering these and other questions about the potential conflict between scientific achievement, personal faith, and social responsibility.
Author : Angus Clarke
Publisher : Garland Science
ISBN 13 : 1000144674
Total Pages : 390 pages
Book Rating : 4.0/5 (1 download)
Download or read book The Genetic Testing of Children written by Angus Clarke and published by Garland Science. This book was released on 2020-07-26 with total page 390 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, written by a leading geneticist, examines the ethical and social issues raised by the genetic testing of children. The opinions of geneticists, ethicists and affected families are all included to give a balanced view of this controversial field. Issues covered include confidentiality, potential abuses of genetic information (eg the use of test results by insurance companies) and the value of predictive genetic testing. The aim of the book is to improve awareness of the complexity of the issues raised and provide suggestions as to how the discussions must develop - it therefore raises new questions as well as answering those that already exist.
Author : Institute of Medicine
Publisher : National Academies Press
ISBN 13 : 0309051320
Total Pages : 560 pages
Book Rating : 4.3/5 (9 download)
Download or read book Society's Choices written by Institute of Medicine and published by National Academies Press. This book was released on 1995-03-27 with total page 560 pages. Available in PDF, EPUB and Kindle. Book excerpt: Breakthroughs in biomedicine often lead to new life-giving treatments but may also raise troubling, even life-and-death, quandaries. Society's Choices discusses ways for people to handle today's bioethics issues in the context of America's unique history and cultureâ€"and from the perspectives of various interest groups. The book explores how Americans have grappled with specific aspects of bioethics through commission deliberations, programs by organizations, and other mechanisms and identifies criteria for evaluating the outcomes of these efforts. The committee offers recommendations on the role of government and professional societies, the function of commissions and institutional review boards, and bioethics in health professional education and research. The volume includes a series of 12 superb background papers on public moral discourse, mechanisms for handling social and ethical dilemmas, and other specific areas of controversy by well-known experts Ronald Bayer, Martin Benjamin, Dan W. Brock, Baruch A. Brody, H. Alta Charo, Lawrence Gostin, Bradford H. Gray, Kathi E. Hanna, Elizabeth Heitman, Thomas Nagel, Steven Shapin, and Charles M. Swezey.
Author : Jennifer Hochschild
Publisher : Oxford University Press
ISBN 13 : 0197550738
Total Pages : 337 pages
Book Rating : 4.1/5 (975 download)
Download or read book Genomic Politics written by Jennifer Hochschild and published by Oxford University Press. This book was released on 2021 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A groundbreaking analysis of how the genomic revolution is transforming American society and creating new social divisions - some along racial lines - that promise to fundamentally shape American politics for years to come.The emergence of genomic science in the last quarter century has revolutionized medicine, the justice system, and our very understanding of who we are. We use genomics to determine guilt and exonerate the convicted; devise new medicines; test embryos; and discover our ethnic and national roots. Onemight think that, given these advances, most would favor the availability of genomic tools. Yet as Jennifer Hochschild explains in Genomic Politics , the uses of genomic science are both politically charged and hotly contested.The political divisions around genomics do not follow the usual left-right ideological divides that dominate most of American politics. Through four controversial innovations resulting from genomic science - genetically modified medicines that target African-Americans, who are demographically moresusceptible to heart disease; the use of DNA evidence in the criminal justice system; the current ancestry craze; and the use of genetic tests in prenatal exams - Hochschild reveals how the phenomenon is polarizing America in novel ways. Advocates of genomic science argue that these applicationswill make life better, but their opponents respond by pointing out the potential for misuse - from racial profiling to "selecting out" fetuses that gene tests show to have conditions like Down's Syndrome. Hochschild's central message is that the divide hinges on answers to two questions: Howsignificant are genetic factors in explaining human traits and behaviors? And what is the right balance between risk acceptance and risk avoidance for a society grappling with innovations arising from genomic science? A deeply researched and original analysis of the politics surrounding one of thesignal issues of our times, this is essential reading for anyone interested in how the genetics revolution is reshaping society.
