Read Books Online and Download eBooks, EPub, PDF, Mobi, Kindle, Text Full Free.
Experiences Of Accumulated Stress Among Aging Parent Caregivers Of Adults With Autism Spectrum Disorder
Download Experiences Of Accumulated Stress Among Aging Parent Caregivers Of Adults With Autism Spectrum Disorder full books in PDF, epub, and Kindle. Read online Experiences Of Accumulated Stress Among Aging Parent Caregivers Of Adults With Autism Spectrum Disorder ebook anywhere anytime directly on your device. Fast Download speed and no annoying ads. We cannot guarantee that every ebooks is available!
Book Synopsis Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder by : Ian McDonough
Download or read book Experiences of Accumulated Stress Among Aging Parent Caregivers of Adults with Autism Spectrum Disorder written by Ian McDonough and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the continuing increased incidence rate of autism spectrum disorder over the decades, there are increasing numbers of adults with autism who require varying levels of lifelong care, typically from parents. It is necessary to understand parents' lived experience of lifelong caregiving, and how their own aging process further impacts life quality. Furthermore, greater understanding of stressors, resources, appraisals, and coping among parent caregivers of children with "high functioning autism" who are transitioning into young adulthood is particularly necessary as services, needs, and experiences for both are nuanced due to functional status, deficits in the service system, and demographic disparities. Given lifespan aspects past research has not addressed, the study focused on development of a measure of parent accumulated stressors, and on interrelations of stressors, perceived social support, future time perspective, burden, satisfaction, and coping on health-related quality of life and meaning in life among 28 parents of young adults with autism. Although proposed quantitative analyses were not completed due to sample size, qualitative analyses on parent experiences and stressors revealed common themes of concern for child's future quality of life, complicated dynamics of providing help to their child overtime, and increased stress related to others' lack of understanding of their child. In total, 10 themes and multiple subthemes were identified in relation to aspects of accumulated stressors. Findings suggest parent stress with this specific population is complex, manifesting in nuanced ways at different life stages. Impacts of the COVID-19 pandemic are also explored, and implications for scientific advancement and clinical services are discussed.
Book Synopsis A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee by : Nadine McNeal
Download or read book A Qualitative Exploration of the Experience of Parental Caretakers of Adults with Asperger's Syndrome in Rural West Tennessee written by Nadine McNeal and published by . This book was released on 2020 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABSTRACT: The phenomenological study was conducted to investigate the experience of parental caregivers of adults with Asperger's syndrome. Bowen's Family Systems Theory provided a theoretical foundation for understanding the complex relationship between the role of the caregiver, the family unit, and the community. The family, as an interdependent system, is purposed to meet the diverse needs of its members. For children with an autism spectrum disorder, the supportive parental role often transitions into one of a long-term caretaker (Buescher et al., 2014). There is scant empirical information presented regarding the issues faced by this population as they enter middle and later adulthood. To address the gap in the literature this study gave attention to the role of parental caregiving, from a rural perspective, for individuals over age 23 with Asperger's syndrome, Ten caregivers addressed issues regarding the psychosocial impact of caregiving, Their relationships with the adult child, and survival with limited community supports. Themes from the study revealed the varied roles, losses, limited community supports, Themes from the study reveled the varied roles, losses, limited community support/resources, and the absence of understanding or empathy that beset the participants in the studio ad they journeyed through the lifecycle of adulthood with their children , Nevertheless, the caregivers shared a lifetime vow of commitment to their children and many appeared empowered by overcoming their various trials.
Book Synopsis Primary Caregivers of Children with Autism Spectrum Disorders: an Exploration of the Stressors, Joys, and Parental Coping Before and After Out-of-home Placement by :
Download or read book Primary Caregivers of Children with Autism Spectrum Disorders: an Exploration of the Stressors, Joys, and Parental Coping Before and After Out-of-home Placement written by and published by . This book was released on 2007 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: In the present phenomenological study, mothers of children with Autism Spectrum Disorder (ASD) were interviewed using semi-structured, open-ended interview questions. The purpose of this study was to explore the stressors and joys, and parental coping associated with having a child with ASD, before and after out-of-home placement. A total of 9 mothers, six from British Columbia and three from Alberta, participated in the study. The findings suggest that along with stressors, parents experienced a multitude of joys throughout their caregiving experiences. Also, joys had an impact on caregiver's stress-coping process. This study, therefore, expanded upon current states of knowledge on the adaptational function of joys to caregivers of individuals with chronic conditions. In light of the findings, modified stress-coping process model based on the work of Lazarus and Folkman (1984), Folkman (1997), and Pearlin et al. (1990; 1980) is proposed. Also, findings shed light on mothers' lived-experiences leading up to and after out-of-home placement, illuminating an understudied aspect of caregiving for children with ASD.
Book Synopsis Experiences And Stories Of Older Autistic Adults And Their Family Members by : Kaitlin Koffer Miller
Download or read book Experiences And Stories Of Older Autistic Adults And Their Family Members written by Kaitlin Koffer Miller and published by . This book was released on 2023 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This dissertation study focuses on the underexplored area of autism spectrum disorder (ASD) and aging, recognizing the increasing number of individuals on the spectrum reaching older adulthood. Despite the lifelong nature of ASD, most of the research has been centered on children, leaving a significant gap in knowledge regarding the experiences and needs of aging individuals with ASD. Furthermore, the impact of the COVID-19 pandemic on this population adds an additional layer of complexity and importance. To address this gap, a concurrent nested mixed methods design was employed, utilizing both qualitative and quantitative data collection methods. Semi-structured interviews were conducted with aging autistic adults and their family members, while quantitative data from the 2018 Pennsylvania Autism Needs Assessment (PANA) provided additional context. This approach allows for a comprehensive understanding of the experiences and perspectives of this population, incorporating both subjective narratives and statistical data. The qualitative interviews were guided by an interview guide and focused on various aspects such as the challenges faced by aging autistic adults and their supporters, service access experiences, community participation, and the impact of the COVID-19 pandemic. The results of this study contribute to the limited literature on ASD and aging, shedding light on the unique needs and experiences of aging autistic individuals and their families. The findings provide valuable insights into topics such as stress, trauma, service access, community participation, and the impact of the COVID-19 pandemic. By integrating qualitative and quantitative data, this study offers a comprehensive understanding of the multifaceted issues surrounding ASD and aging. The insights gained from this study can inform the development of interventions, services, and policies tailored to meet the specific needs of this population. Additionally, it underscores the need for increased awareness and understanding of ASD beyond childhood, challenging prevailing myths and stereotypes and recognizing the valuable contributions that autistic individuals can make to society.
Book Synopsis Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder by : Dawn M. Turnage
Download or read book Stress, Coping, and Quality of Life Among Parental Caregivers of Children with Autism Spectrum Disorder written by Dawn M. Turnage and published by . This book was released on 2019 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keywords: Stress, Coping, Autism Spectrum Disorder, Caregiver
Book Synopsis Stress, Health Behaviors, and Health Outcomes in Caregivers of Children with Autism Spectrum Disorder by : Ashley Holub
Download or read book Stress, Health Behaviors, and Health Outcomes in Caregivers of Children with Autism Spectrum Disorder written by Ashley Holub and published by . This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Autism spectrum disorder (ASD) is a developmental disorder marked by communication limitations and behavioral features that vary broadly across individuals. The identification of ASD has increased by approximately 30% since 2008. As the identification of ASD continues to increase, similarly so does the number of caregivers of children with ASD, making this an important, and growing population. Since children with ASD may have a unique phenotypic profile of behaviors caregivers of children with ASD often face increased levels of stress, and experience higher levels of stress compared to other populations, including caregivers of children of other developmental disabilities. Chronic stress is a known risk factor for a wide range of chronic diseases, including cardiometabolic and mental health outcomes. Chronic stress may also influence health behaviors such as smoking, alcohol use and physical activity through coping mechanisms. The occurrence of chronic diseases and their risk factors in caregivers of children with ASD has not been well studied. There is a need to further investigate specific child behaviors as correlates of caregiver health and health behaviors. This project included two studies. The first study examined stress in caregivers of children with ASD and focused on specific child behaviors, within a locally-recruited sample of N=116 caregivers of children with ASD aged 3-17 years. Caregivers completed the Autism Behavior Inventory-Short as a measure of child behaviors, and the Parent Stress Scale as a measure of total parenting stress. We used linear regression to determine the association between specific child behaviors and caregiver stress. We hypothesized that caregivers of children with higher levels of behavioral difficulties (social-communication, mental health, repetitive behaviors) will report higher levels of self-reported stress, compared to caregivers of children with fewer behavioral difficulties. More behavioral difficulties in each domain was associated with higher levels of parental stress. For the second study, data on health behaviors and health outcomes from the National Health Interview Survey 2016-2017 cycles were used to compare caregivers of children with ASD to caregivers of typically developing children and children with other disabilities (N=10,162). For the child, information on child's diagnosis was reported by the parent. For the parent, health risk behaviors and health outcomes were self-reported. We used logistic regression to determine effects and hypothesized that caregivers of children with ASD will report more adverse health behaviors (i.e., smoking, alcohol use, less physical activity) compared to caregivers of typically developing children and caregivers of children with other disabilities. We also hypothesized that caregivers of children with ASD will have more cardiometabolic outcomes (i.e., type 2 diabetes, obesity, hypertension, high cholesterol) and more mental health symptoms compared to caregivers of typically developing children and caregivers of children with other disabilities. Compared to typically developing caregivers, caregivers of children with ASD had higher odds of physical inactivity, smoking and tobacco use, and heavy drinking, though these relationships varied when compared to other disability groups. The effect estimates for these relationships also were of low magnitude and were relativity imprecise. Similar patterns of association were shown for health outcomes compared to caregivers of children with other disabilities. Overall, our findings suggest that it is the culmination of the child's phenotype that results in increased caregiver stress, rather than individual, unique behaviors. This may support the idea that is the total experience of all behaviors that is important, including those not required for an ASD diagnosis, but that are commonly shared with other developmental disorders. Furthermore, caregivers of children with ASD had more adverse health behaviors and outcomes compared to caregivers of typically developing children, but not when compared to other disability groups, though these estimates had low magnitude and were relatively imprecise. Caregiver stress should be considered for potential interventions to improve their health. Future studies should seek to better understand why child behaviors influence caregiver stress and how caregiver stress may influence health risk behaviors and health outcomes.
Book Synopsis Adolescents and Adults with Autism Spectrum Disorders by : Fred R. Volkmar
Download or read book Adolescents and Adults with Autism Spectrum Disorders written by Fred R. Volkmar and published by Springer Nature. This book was released on with total page 516 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Perceived Negative Impact in Parents of Individuals with Autism Spectrum Disorder from 9 to 25 Years of Age by : Kourtney Christopher
Download or read book Perceived Negative Impact in Parents of Individuals with Autism Spectrum Disorder from 9 to 25 Years of Age written by Kourtney Christopher and published by . This book was released on 2022 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregivers raising a child with autism experience increased parental burden, though many have positive experiences as well. Perceived negative impact, a form of parental burden, is the degree to which a caregiver reports negative financial, social, and emotional experiences associated with having a child with a disability. This longitudinal study defined parental perceived negative impact trajectory classes across time, determined predictors, and explored the relationship between functional adult outcomes and impact class. Participants (n = 209) were comprised of caregivers whose child received an ASD diagnosis or had developmental delay. Latent class growth modeling defined three trajectory classes (e.g., low [n = 68, 32.54%], medium [n = 98, 46.89%], and high [n = 43, 20.57%]). Regressions revealed the low impact trajectory class had more caregivers who were racial minorities, less educated, and more socially supported. Membership in the high negative impact class was associated with increased childhood hyperactivity, irritability, autism symptomology, and poor adaptive skills. The low negative impact trajectory class was associated with young adults achieving more functional outcomes. Overall, negative impact declined over time all for all classes, though never completely subsided. Possible implications for clinical practices are discussed.
Book Synopsis Understanding Autism by : Neophytos L. Papaneophytou
Download or read book Understanding Autism written by Neophytos L. Papaneophytou and published by Elsevier. This book was released on 2024-09-09 with total page 498 pages. Available in PDF, EPUB and Kindle. Book excerpt: Understanding Autism: Perspectives, Assessment, Interventions, and the Journey Toward Inclusion is a compelling book offering a multifaceted examination, providing readers with a comprehensive understanding of autism spectrum disorder from both biological and social perspectives. From the role of bioactive lipids in the pathobiology of autism to the challenges faced by individuals with autism within the criminal justice system, this book explores critical aspects of autism, assessment strategies, and innovative interventions. From a biological perspective, readers will be introduced to the gut-brain connection and the impact of vitamin D on the gut microbiota. Meanwhile, the social perspective sheds light on sensory processing, autonomic regulation, and socio-emotional development in autism, as well as the pressing issue of justice and representation. Through the assessment section, readers will explore the unique challenges faced by parents with autism spectrum disorder and delve into linguistic anomalies in autism. Finally, the interventions section introduces groundbreaking programs and strategies designed to improve the lives of individuals with autism. Whether you’re a healthcare professional, educator, or simply curious about autism, this book is an essential guide that offers diverse insights into this complex condition, ultimately fostering greater awareness, understanding, and support for individuals on the spectrum. Discusses strategies to help children with autism overcome fears and phobias Outlines innovative nutrition education interventions tailored for adolescents with autism Uncovers the role of vitamin D in shaping gut health and its implications for understanding autism
Book Synopsis Parenting Stress in Caregivers of Young Children with Concerns about ASD Prior to a Formal Diagnostic Evaluation by : Trent D. DesChamps
Download or read book Parenting Stress in Caregivers of Young Children with Concerns about ASD Prior to a Formal Diagnostic Evaluation written by Trent D. DesChamps and published by . This book was released on 2019 with total page 34 pages. Available in PDF, EPUB and Kindle. Book excerpt: Robust findings demonstrate that parents of children with autism spectrum disorder (ASD) experience high levels of parenting stress that are related to negative outcomes for families. Although the majority of research on parenting stress has focused on parents of children with a current ASD diagnosis, parents of young children with concerns about ASD-related behaviors also face many unique challenges before the child receives a formal ASD diagnostic evaluation. However, no study to date has examined patterns of parenting stress among parents of children with ASD concerns prior to a formal ASD diagnosis. Therefore, the current study investigated longitudinal trajectories of parenting stress among parents of young children with ASD concerns compared to parents of children with non-ASD developmental concerns (e.g., language delay), and parents of children with no developmental concerns. Known predictors of parenting stress were also examined. Results revealed that parents of children with ASD concerns experienced consistently higher levels of parenting stress across early child development compared to parents of children with non-ASD developmental concerns and children with no concerns. Additionally, parenting efficacy, parent psychological functioning, parent social quality of life, and child social communication behaviors predicted levels of parenting stress for all parents.
Book Synopsis Caregiver Impact of Autism Spectrum Disorder by : Nicole M. Kline
Download or read book Caregiver Impact of Autism Spectrum Disorder written by Nicole M. Kline and published by . This book was released on 2014 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: While the impact of psycho-social variables has been evaluated for children with chronic illness and related disabilities, questions remain unanswered for families affected by ASD. Participants included 68 primary caregivers seeking services for a child aged fifteen months to 12 years suspected of or diagnosed with an ASD. Assessment tools included: 1. Parenting Stress Index-Fourth Edition-Short-Form (PSI-4-SF; Abidin, 2012), 2. Parenting Sense of Competence Scale (PSOC; Johnston and Mash, 1989), and 3. Relationship Assessment Scale (Hendrick, 1988). Independent samples t-tests were conducted to determine differences with a nonclinical control population (60 participants with a typically-developed child) regarding perceptions of stress, competence and relationship satisfaction. ASD caregivers reported experiencing significantly higher stress than Control caregivers (p=.000)..A hierarchical multiple regression analysis was used to assess whether perceived competence and relationship satisfaction variables were predictors of overall stress in the clinical sample. Results indicate that these variables significantly impact parenting stress (p
Book Synopsis The Division of Family Work Among Fathers and Mothers of Children with an Autism Spectrum Disorder by : Paula L. Ogston-Nobile
Download or read book The Division of Family Work Among Fathers and Mothers of Children with an Autism Spectrum Disorder written by Paula L. Ogston-Nobile and published by . This book was released on 2014 with total page 189 pages. Available in PDF, EPUB and Kindle. Book excerpt: [A]n often ignored aspect of parenting and family work is the responsibility-related caregiving (i.e. the monitoring, arranging, and planning) that is done to ensure that a child is cared for. Among fathers and mothers who have a child with an autism spectrum disorder (ASD), the intensity of meeting these needs is greater than for a typically developing child (e.g. additional coordination of schooling, interventions, healthcare, recreation, respite, and after-school services). As is the case for all parents, they must also attend to the demands of household labor (e.g. car maintenance, groceries, laundry, yard care), nurture their relationships (e.g. partner, friends, other family members) and find time to pursue interests outside of the home. The aim of this study was to examine parents' management of and satisfaction with the division of responsibility-related caregiving and household labor, parenting stress, the couple's relationship quality, and family functioning among parents of children with an ASD. Fathers (n = 66) and mothers (n = 104) of school-age children with an ASD responded to an online questionnaire. Most parents (mean 41.4 y.) were white (95%) and well-educated (98% had at least some college). All lived in the United States with the child and the child' s other parent. Parents provided information about their child (82% boys, mean 8.8 y.), including level of functioning. Fathers managed less responsibility-related caregiving than mothers, but they did not differ in their management of household labor. Parents were most satisfied with how the family work was shared when they managed less of it; however, when one parent always managed the work, satisfaction with the couple' s relationship was lowest and parenting stress was highest. Satisfaction with how the family work was shared was positively associated with overall family functioning. In general, parents, couples, and families fare better when the management of family work is shared between parents. Findings will further our understanding of the experience of fathers and mothers who have a child with an ASD, and may aid in our efforts to best support families affected by the autism spectrum disorders.
Book Synopsis Stress and Coping Among Parents Or Caregivers Raising a Child with an Autism Spectrum Disorder (ASD) by : Elizabeth Alvarez (Graduate student)
Download or read book Stress and Coping Among Parents Or Caregivers Raising a Child with an Autism Spectrum Disorder (ASD) written by Elizabeth Alvarez (Graduate student) and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis Questionnaire on Resources and Stress by : Jean Holroyd
Download or read book Questionnaire on Resources and Stress written by Jean Holroyd and published by . This book was released on 1987-01-01 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Book Synopsis The Role of Human Factors in Home Health Care by : National Research Council
Download or read book The Role of Human Factors in Home Health Care written by National Research Council and published by National Academies Press. This book was released on 2010-11-14 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rapid growth of home health care has raised many unsolved issues and will have consequences that are far too broad for any one group to analyze in their entirety. Yet a major influence on the safety, quality, and effectiveness of home health care will be the set of issues encompassed by the field of human factors research-the discipline of applying what is known about human capabilities and limitations to the design of products, processes, systems, and work environments. To address these challenges, the National Research Council began a multidisciplinary study to examine a diverse range of behavioral and human factors issues resulting from the increasing migration of medical devices, technologies, and care practices into the home. Its goal is to lay the groundwork for a thorough integration of human factors research with the design and implementation of home health care devices, technologies, and practices. On October 1 and 2, 2009, a group of human factors and other experts met to consider a diverse range of behavioral and human factors issues associated with the increasing migration of medical devices, technologies, and care practices into the home. This book is a summary of that workshop, representing the culmination of the first phase of the study.
Book Synopsis Paths to Successful Development by : Lea Pulkkinen
Download or read book Paths to Successful Development written by Lea Pulkkinen and published by Cambridge University Press. This book was released on 2002-04-04 with total page 436 pages. Available in PDF, EPUB and Kindle. Book excerpt: The influence of the lifespan approach has been an important feature of recent research in developmental psychology, as has a growing interest in the relationship between personality and development. This important new book, edited by two distinguished psychologists, explores the relationship between personality and development from a life-course perspective. The book presents current theoretical approaches and new empirical findings from ongoing studies conducted by leading researchers in North America and Europe. It is unique in focussing on successful personality development, where developmental psychology in the past seems to have focussed almost entirely on problem behaviour and risk of maladaption. The book has a multidisciplinary appeal and will be of interest to students and researchers in the fields of developmental psychology, adult development and aging, and personality and social psychology.
Book Synopsis Profiles in Caregiving by : Carol S. Aneshensel
Download or read book Profiles in Caregiving written by Carol S. Aneshensel and published by Elsevier. This book was released on 1995-09-15 with total page 406 pages. Available in PDF, EPUB and Kindle. Book excerpt: Given medical advances and greater understanding of healthful living habits, people are living longer lives. Proportionally speaking, a greater percentage of the population is elderly. Despite medical advances, there is still no cure for dementia, and as elderly individuals succumb to Alzheimer's Disease or related dementia, more and more people are having to care their elderly parents and /or siblings. Profiles in Caregiving is practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. This book discusses recent research on stress factors associated with caregiving, and what factors impact on successful versus non-successful adaptation to the care-giving role. This is an expanding field in gerontology, and is also of interest to personality and social psychologists studying stress and interpersonal relations. Although there are many books on the cause and treatment of dementia, there has been a book that provides a research investigation into the factors associated with effective caregiving to dementia patients. Conceptualizes caregiving as a multistage career whose impact on the caregiver continues to be felt after in-home care has ceased Based upon a longitudinal survey of a demographically diverse sample of principal caregivers over a three-year period Identifies caregivers who are most at-risk for adverse adaptation to the role Describes preventative and clinical intervention strategies Identifies post-care risk and issues Identifies antecedents to successful adaptation State of the art analytic techniques Graphic presentation of empirical findings Renowned multidisciplinary research team
